Guest guest Posted April 13, 2000 Report Share Posted April 13, 2000 HI Elaine and a: Steve showed no improvement on Paxil until he was on 60 mg for over 10 weeks. It required a lot of patience, not my strong suit :-((( Good luck, aloha, Kathy (H) kathyh@... At 12:57 AM 04/13/2000 -0400, you wrote: >a, > > My son (13) started on Paxil 7 to 8 weeks ago. The doc. started him on >what I consider(ed) a pretty small dose for such a large boy (160lbs), that >is 20mg in the morning. After six weeks, he has increased it to 30mgs., but >we still haven't had any kind of noticeable improvement (He stressed all >during Spring break about a project that was due today). I just called his >doc. today (got nurse) to inform him that there have been no changes. I have >received no reply. This is very frustrating because I have heard from people >who are dumbfounded by the improvement their children have exhibited on this >drug. As far as we can tell, there are no side effects yet (a small >blessing). What dose is your child on, and do you see improvement? Sorry I >am no font of wisdom on this subject. I am as new at this as you (We tried >Prozac first, but no luck). > >Elaine-Devon > >------------------------------------------------------------------------ >Free E-Cards, Screensavers, and Digital Pictures! >Corbis.com: >1/3358/3/_/531051/_/955601869/ >------------------------------------------------------------------------ > >You may subscribe to the OCD-L by emailing >listserv@... . >In the body of your message write: >subscribe OCD-L your name. >The Archives and Features List for the OCD and >Parenting List may be accessed by going to > , enter your email address and password, then point and click. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2000 Report Share Posted April 13, 2000 I think the dose is way to low and way to slow to increase. My 85 lb son was up to 60 mg in that amount of time. Judy DnEBrock@... wrote: > > a, > > My son (13) started on Paxil 7 to 8 weeks ago. The doc. started > him on > what I consider(ed) a pretty small dose for such a large boy (160lbs), > that > is 20mg in the morning. After six weeks, he has increased it to > 30mgs., but > we still haven't had any kind of noticeable improvement (He stressed > all > during Spring break about a project that was due today). I just > called his > doc. today (got nurse) to inform him that there have been no changes. > I have > received no reply. This is very frustrating because I have heard from > people > who are dumbfounded by the improvement their children have exhibited > on this > drug. As far as we can tell, there are no side effects yet (a small > blessing). What dose is your child on, and do you see improvement? > Sorry I > am no font of wisdom on this subject. I am as new at this as you (We > tried > Prozac first, but no luck). > > Elaine-Devon > ---------------------------------------------------------------------- > [Apply now for a low interest Wells Fargo Home Equity Loan] > ---------------------------------------------------------------------- > You may subscribe to the OCD-L by emailing > listserv@... . > In the body of your message write: > subscribe OCD-L your name. > The Archives and Features List for the OCD and > Parenting List may be accessed by going to > , enter your email address and password, then > point and click. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2001 Report Share Posted January 24, 2001 Hi a, Thanks for the info on the Texas cath. I wish he would keep something like that on, but I think I would be dreaming! LOL I mentioned it to dh and he said, did you forget that this is we are talking about?! LOL Is there such a thing as a [lower] body cast that you can get wet? Terry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2001 Report Share Posted March 20, 2001 Hi a, How did you get the Vail bed? Did your insurance pay for it? Terry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2001 Report Share Posted March 20, 2001 a, what is a vailbed? Please describe. I am very interested. Thanks, Cheryl Re: a > Hi a, > How did you get the Vail bed? Did your insurance pay for it? > Terry > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2001 Report Share Posted March 21, 2001 Hi a, Thanks for the info. I'm pretty sure if I tried to get a Vail bed through our insurance, they would just laugh at me! LOL does have other coverage and we have considered trying to get one on a few occasions. So far, the bed dh " customized " is working for us, but the Vail beds sure are nice! Terry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2001 Report Share Posted March 21, 2001 eventually our insurance did, its not something one can just get easily, you need a rx from your doc, and try to go to insurance for it, and ours dept denying pending further info, but our docs wrote them a nasty letter and ding, it was approved, but we all have different insurances, and in some states medicaid will pay for, they hadnt yet in iowa, but they were the last route to try after others. you can find them online too nowdays, i think its www.vailbed.com or something simalair to that. shawna. >From: Imaddenmom@... >Reply- > >Subject: Re: a >Date: Tue, 20 Mar 2001 17:22:39 EST > >Hi a, >How did you get the Vail bed? Did your insurance pay for it? >Terry > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2001 Report Share Posted March 21, 2001 its big and heavy, but its easier if you go to www.vailbed.com i looked up the online address in my exceptional parent magazine for sure, and their number is 1-800-235-vail. i hope this helps.shawna. >From: " Cheryl Magnussen " <magnussen@...> >Reply- >< > >Subject: Re: a >Date: Tue, 20 Mar 2001 14:42:15 -0800 > >a, what is a vailbed? Please describe. I am very interested. > >Thanks, Cheryl > Re: a > > > > Hi a, > > How did you get the Vail bed? Did your insurance pay for it? > > Terry > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2001 Report Share Posted March 27, 2001 What is Wicca? Sara Umm...just so you know, there are people on this list, who won't be mentioned, who actually follow the spiritual path of Wicca, and calling bogus information " witchcraft " is a bit insulting. I agree that the vitamin posts were bogus. :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2001 Report Share Posted March 27, 2001 What is Wicca? Sara Umm...just so you know, there are people on this list, who won't be mentioned, who actually follow the spiritual path of Wicca, and calling bogus information " witchcraft " is a bit insulting. I agree that the vitamin posts were bogus. :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2001 Report Share Posted April 15, 2001 Dear a, Forst i would like to tell you Happy Easter to you and Your family. Please do not loose heart with your son. Sometimes in our school system, teachers focus so much on the points where a child is flagging behind, or struggling, that they forget to focus on the points where a child can excel. I am sure your son has some things he excels at, Love and Logic tells us to focus on the points where your children excel, its going to be those points that carry them through. Figureout what those are, and find ways to stimulate those areas. I dont care if it's a sport or whatever. Biuld him up, let him know you have faith in him, never give up. if it turns out that he needs a little extra help at school, so be it, but don't let him see or hear anything negitive. Sadly, sometimes I see children in regular education that can have an entire carrer ins chool shot down becuase of the negitivism of one teacher. Also I see kids all the time that are very bright, that just struggle in a group envirmoment. But do great one on one. it's just thier style, and they can outgrow that. With a lot of love and patience. Also I see kids that are very bright, but just have an aversion to book learning. Now, to be honest, it is not unusual for a child to finish kindergarten and not be fully reading yet. Dont give up, but most of all, focus on his shining points. I myself was one of those kids who early on everyone thought I had some learning disabilities as well. I went on with the help of a positivily thinking mother to do just fine. I never excelled, but I did keep up. ( I am told I could have if I had just applied myself, but to be honest, nothing they ever taught me interested me. ) Good luck and God Bless you and yours Lee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 oh yes, its a constant complaint from his aid in his notebook, even usuing his chewy for periods of the day arnt really helping with this. shawna --- Cheryl Magnussen <magnussen@...> wrote: > a, does chew up the inside of his mouth? > > Cheryl > Re: Thanks for the welcome & > replies > > > > ewwww, nathan still grinds his teeth often, drives > me > > crazy, we give him " chewey's " and this helps some. > He > > also still occasionally chews on his shirts, use > to be > > realy bad at it. and his meds keep the head > banging > > down to rare occasion anymore shawna. > > --- carole any <carole9545@...> wrote: > > > > > > Hi , had surgery at 3 and the > behaviors > > > started at 4 ,hmmmm,hope they have a repeat of > that > > > show.He likes to put things in containers and > shake > > > them and everything must be done the same way > EVERY > > > time or he gets very upset.He had a period of > time > > > where he also chewed on his clothes.When he was > two > > > he climbed up on the couch and adjusted a > picture > > > that was crooked!He was a headbanger and tooth > > > grinder also. Carole > > > > > > > > > > > > > > > <rysmum@...> wrote: > > > They are much appreciated! I am glad I found > this > > > site! As I > > > mentioned, has not officially been dually > > > diagnosed yet, we are > > > waiting to get in to the specialist. Reading > your > > > responses, I have > > > to say that probably is a bit autistic. > How's > > > that for sounding > > > like I am in denial, LOL. I have had mixed > feelings > > > about the autism, > > > and realize now that I have seen the signs for a > > > couple of years. I > > > feel badly that I waited this long to act on > them. > > > To be honest, I > > > either didn't want to see these things, and > assumed > > > that he was a > > > " lower functioning " DS child. > > > > > > Most of the behaviours that regularily > displays > > > have been > > > mentioned in your posts. He rocks, lines up his > > > toys, flaps, slaps, > > > shakes/twirls an object (such as paper) for his > > > amusement. As well, > > > we have had ongoing feeding problems, ie. food > > > refusal and texture > > > preference. At 5 1/2 years old, he is still not > > > feeding himself full- > > > time. > > > > > > Up until December of last year, was a > terrible > > > sleeper. He > > > would rock and bang himself till he fell asleep. > > > This started when > > > he was about one, rocking on all fours, and as > he > > > got bigger and > > > stronger the rocking/banging got more forceful. > It > > > got to the point > > > where either my husband or I would end up > sleeping > > > with to calm > > > him. He actually had a welt the size of a golf > ball > > > on his back from > > > this. We ended up having to remove his closet > doors > > > as he kept > > > bumping on them in the night. > > > > > > Another behaviour that started about a month ago > has > > > me concerned. > > > During meal times, will check under the > table > > > to see where my > > > legs are. By that I mean, if my legs or ankles > > > happened to be > > > crossed, he will slide from his chair to under > the > > > table to put my > > > legs together with my knees touching and both > feet > > > together on the > > > floor. Once back up on his chair, he will > continue > > > to check on the > > > status of my legs while feeding him. The first > time > > > this happened I > > > thought it kind of cute in an odd sort of way, > but > > > now I am worried > > > that this is an autistic tendancy as well. > > > > > > The other thing I wonder about is that he he > chews > > > on his shirts, > > > actually soaks his shirt, and has even chewed > holes > > > in a few. I > > > can't buy him shirts with collars or buttons as > he > > > will chew them > > > off. Thinking back, a few years ago, we went > > > through 2 ski jackets > > > as he kept chewing the zippers up. I ended up > > > removing the zippers > > > and replaced them with heavy duty velcro and > snaps. > > > > > > Anyway, a bit more about ...he attends > school > > > and absolutely > > > loves it! He goes to kindergarten in the > morning > > > and grade 1 in the > > > afternoon. He was in a pre-school program 2 > years > > > prior to this and > > > an EI program. Just this year he has begun to > > > become a little more > > > sociable, which I am thrilled about. He seems > to > > > prefer his own > > > company for the most part, but he is starting to > > > interact and even > > > initiates play with his classmates and older > > > brothers. His speech is > > > very limited. He is starting to really babble > alot > > > more...mama,dada, > > > baba, bibi, that kind of thing. He does have > some > > > words, but they > > > are few and far between. Then out of the blue, > he > > > will say something > > > so clearly, that I wonder if I really heard it. > He > > > does alot of hand > > > over hand and bringing you to show what he > wants. It > > > is very obvious > > > that he understands so much more than he > verbally > > > communicates. > > > Overall, has been a healthy boy. He had an > > > AVSD repair at 6 > > > months of age. Last year he developed alopecia > > > areata and has since > > > lost all his hair. > > > > > > Well, I certainly didn't intend to be so > > > long-winded! It really feels > > > good to talk about this though. Thanks for > being > > > here! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 oh yes, its a constant complaint from his aid in his notebook, even usuing his chewy for periods of the day arnt really helping with this. shawna. --- Cheryl Magnussen <magnussen@...> wrote: > a, does chew up the inside of his mouth? > > Cheryl > Re: Thanks for the welcome & > replies > > > > ewwww, nathan still grinds his teeth often, drives > me > > crazy, we give him " chewey's " and this helps some. > He > > also still occasionally chews on his shirts, use > to be > > realy bad at it. and his meds keep the head > banging > > down to rare occasion anymore shawna. > > --- carole any <carole9545@...> wrote: > > > > > > Hi , had surgery at 3 and the > behaviors > > > started at 4 ,hmmmm,hope they have a repeat of > that > > > show.He likes to put things in containers and > shake > > > them and everything must be done the same way > EVERY > > > time or he gets very upset.He had a period of > time > > > where he also chewed on his clothes.When he was > two > > > he climbed up on the couch and adjusted a > picture > > > that was crooked!He was a headbanger and tooth > > > grinder also. Carole > > > > > > > > > > > > > > > <rysmum@...> wrote: > > > They are much appreciated! I am glad I found > this > > > site! As I > > > mentioned, has not officially been dually > > > diagnosed yet, we are > > > waiting to get in to the specialist. Reading > your > > > responses, I have > > > to say that probably is a bit autistic. > How's > > > that for sounding > > > like I am in denial, LOL. I have had mixed > feelings > > > about the autism, > > > and realize now that I have seen the signs for a > > > couple of years. I > > > feel badly that I waited this long to act on > them. > > > To be honest, I > > > either didn't want to see these things, and > assumed > > > that he was a > > > " lower functioning " DS child. > > > > > > Most of the behaviours that regularily > displays > > > have been > > > mentioned in your posts. He rocks, lines up his > > > toys, flaps, slaps, > > > shakes/twirls an object (such as paper) for his > > > amusement. As well, > > > we have had ongoing feeding problems, ie. food > > > refusal and texture > > > preference. At 5 1/2 years old, he is still not > > > feeding himself full- > > > time. > > > > > > Up until December of last year, was a > terrible > > > sleeper. He > > > would rock and bang himself till he fell asleep. > > > This started when > > > he was about one, rocking on all fours, and as > he > > > got bigger and > > > stronger the rocking/banging got more forceful. > It > > > got to the point > > > where either my husband or I would end up > sleeping > > > with to calm > > > him. He actually had a welt the size of a golf > ball > > > on his back from > > > this. We ended up having to remove his closet > doors > > > as he kept > > > bumping on them in the night. > > > > > > Another behaviour that started about a month ago > has > > > me concerned. > > > During meal times, will check under the > table > > > to see where my > > > legs are. By that I mean, if my legs or ankles > > > happened to be > > > crossed, he will slide from his chair to under > the > > > table to put my > > > legs together with my knees touching and both > feet > > > together on the > > > floor. Once back up on his chair, he will > continue > > > to check on the > > > status of my legs while feeding him. The first > time > > > this happened I > > > thought it kind of cute in an odd sort of way, > but > > > now I am worried > > > that this is an autistic tendancy as well. > > > > > > The other thing I wonder about is that he he > chews > > > on his shirts, > > > actually soaks his shirt, and has even chewed > holes > > > in a few. I > > > can't buy him shirts with collars or buttons as > he > > > will chew them > > > off. Thinking back, a few years ago, we went > > > through 2 ski jackets > > > as he kept chewing the zippers up. I ended up > > > removing the zippers > > > and replaced them with heavy duty velcro and > snaps. > > > > > > Anyway, a bit more about ...he attends > school > > > and absolutely > > > loves it! He goes to kindergarten in the > morning > > > and grade 1 in the > > > afternoon. He was in a pre-school program 2 > years > > > prior to this and > > > an EI program. Just this year he has begun to > > > become a little more > > > sociable, which I am thrilled about. He seems > to > > > prefer his own > > > company for the most part, but he is starting to > > > interact and even > > > initiates play with his classmates and older > > > brothers. His speech is > > > very limited. He is starting to really babble > alot > > > more...mama,dada, > > > baba, bibi, that kind of thing. He does have > some > > > words, but they > > > are few and far between. Then out of the blue, > he > > > will say something > > > so clearly, that I wonder if I really heard it. > He > > > does alot of hand > > > over hand and bringing you to show what he > wants. It > > > is very obvious > > > that he understands so much more than he > verbally > > > communicates. > > > Overall, has been a healthy boy. He had an > > > AVSD repair at 6 > > > months of age. Last year he developed alopecia > > > areata and has since > > > lost all his hair. > > > > > > Well, I certainly didn't intend to be so > > > long-winded! It really feels > > > good to talk about this though. Thanks for > being > > > here! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 oh yes, its a constant complaint from his aid in his notebook, even usuing his chewy for periods of the day arnt really helping with this. shawna. --- Cheryl Magnussen <magnussen@...> wrote: > a, does chew up the inside of his mouth? > > Cheryl > Re: Thanks for the welcome & > replies > > > > ewwww, nathan still grinds his teeth often, drives > me > > crazy, we give him " chewey's " and this helps some. > He > > also still occasionally chews on his shirts, use > to be > > realy bad at it. and his meds keep the head > banging > > down to rare occasion anymore shawna. > > --- carole any <carole9545@...> wrote: > > > > > > Hi , had surgery at 3 and the > behaviors > > > started at 4 ,hmmmm,hope they have a repeat of > that > > > show.He likes to put things in containers and > shake > > > them and everything must be done the same way > EVERY > > > time or he gets very upset.He had a period of > time > > > where he also chewed on his clothes.When he was > two > > > he climbed up on the couch and adjusted a > picture > > > that was crooked!He was a headbanger and tooth > > > grinder also. Carole > > > > > > > > > > > > > > > <rysmum@...> wrote: > > > They are much appreciated! I am glad I found > this > > > site! As I > > > mentioned, has not officially been dually > > > diagnosed yet, we are > > > waiting to get in to the specialist. Reading > your > > > responses, I have > > > to say that probably is a bit autistic. > How's > > > that for sounding > > > like I am in denial, LOL. I have had mixed > feelings > > > about the autism, > > > and realize now that I have seen the signs for a > > > couple of years. I > > > feel badly that I waited this long to act on > them. > > > To be honest, I > > > either didn't want to see these things, and > assumed > > > that he was a > > > " lower functioning " DS child. > > > > > > Most of the behaviours that regularily > displays > > > have been > > > mentioned in your posts. He rocks, lines up his > > > toys, flaps, slaps, > > > shakes/twirls an object (such as paper) for his > > > amusement. As well, > > > we have had ongoing feeding problems, ie. food > > > refusal and texture > > > preference. At 5 1/2 years old, he is still not > > > feeding himself full- > > > time. > > > > > > Up until December of last year, was a > terrible > > > sleeper. He > > > would rock and bang himself till he fell asleep. > > > This started when > > > he was about one, rocking on all fours, and as > he > > > got bigger and > > > stronger the rocking/banging got more forceful. > It > > > got to the point > > > where either my husband or I would end up > sleeping > > > with to calm > > > him. He actually had a welt the size of a golf > ball > > > on his back from > > > this. We ended up having to remove his closet > doors > > > as he kept > > > bumping on them in the night. > > > > > > Another behaviour that started about a month ago > has > > > me concerned. > > > During meal times, will check under the > table > > > to see where my > > > legs are. By that I mean, if my legs or ankles > > > happened to be > > > crossed, he will slide from his chair to under > the > > > table to put my > > > legs together with my knees touching and both > feet > > > together on the > > > floor. Once back up on his chair, he will > continue > > > to check on the > > > status of my legs while feeding him. The first > time > > > this happened I > > > thought it kind of cute in an odd sort of way, > but > > > now I am worried > > > that this is an autistic tendancy as well. > > > > > > The other thing I wonder about is that he he > chews > > > on his shirts, > > > actually soaks his shirt, and has even chewed > holes > > > in a few. I > > > can't buy him shirts with collars or buttons as > he > > > will chew them > > > off. Thinking back, a few years ago, we went > > > through 2 ski jackets > > > as he kept chewing the zippers up. I ended up > > > removing the zippers > > > and replaced them with heavy duty velcro and > snaps. > > > > > > Anyway, a bit more about ...he attends > school > > > and absolutely > > > loves it! He goes to kindergarten in the > morning > > > and grade 1 in the > > > afternoon. He was in a pre-school program 2 > years > > > prior to this and > > > an EI program. Just this year he has begun to > > > become a little more > > > sociable, which I am thrilled about. He seems > to > > > prefer his own > > > company for the most part, but he is starting to > > > interact and even > > > initiates play with his classmates and older > > > brothers. His speech is > > > very limited. He is starting to really babble > alot > > > more...mama,dada, > > > baba, bibi, that kind of thing. He does have > some > > > words, but they > > > are few and far between. Then out of the blue, > he > > > will say something > > > so clearly, that I wonder if I really heard it. > He > > > does alot of hand > > > over hand and bringing you to show what he > wants. It > > > is very obvious > > > that he understands so much more than he > verbally > > > communicates. > > > Overall, has been a healthy boy. He had an > > > AVSD repair at 6 > > > months of age. Last year he developed alopecia > > > areata and has since > > > lost all his hair. > > > > > > Well, I certainly didn't intend to be so > > > long-winded! It really feels > > > good to talk about this though. Thanks for > being > > > here! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 oh yes, its a constant complaint from his aid in his notebook, even usuing his chewy for periods of the day arnt really helping with this. shawna --- Cheryl Magnussen <magnussen@...> wrote: > a, does chew up the inside of his mouth? > > Cheryl > Re: Thanks for the welcome & > replies > > > > ewwww, nathan still grinds his teeth often, drives > me > > crazy, we give him " chewey's " and this helps some. > He > > also still occasionally chews on his shirts, use > to be > > realy bad at it. and his meds keep the head > banging > > down to rare occasion anymore shawna. > > --- carole any <carole9545@...> wrote: > > > > > > Hi , had surgery at 3 and the > behaviors > > > started at 4 ,hmmmm,hope they have a repeat of > that > > > show.He likes to put things in containers and > shake > > > them and everything must be done the same way > EVERY > > > time or he gets very upset.He had a period of > time > > > where he also chewed on his clothes.When he was > two > > > he climbed up on the couch and adjusted a > picture > > > that was crooked!He was a headbanger and tooth > > > grinder also. Carole > > > > > > > > > > > > > > > <rysmum@...> wrote: > > > They are much appreciated! I am glad I found > this > > > site! As I > > > mentioned, has not officially been dually > > > diagnosed yet, we are > > > waiting to get in to the specialist. Reading > your > > > responses, I have > > > to say that probably is a bit autistic. > How's > > > that for sounding > > > like I am in denial, LOL. I have had mixed > feelings > > > about the autism, > > > and realize now that I have seen the signs for a > > > couple of years. I > > > feel badly that I waited this long to act on > them. > > > To be honest, I > > > either didn't want to see these things, and > assumed > > > that he was a > > > " lower functioning " DS child. > > > > > > Most of the behaviours that regularily > displays > > > have been > > > mentioned in your posts. He rocks, lines up his > > > toys, flaps, slaps, > > > shakes/twirls an object (such as paper) for his > > > amusement. As well, > > > we have had ongoing feeding problems, ie. food > > > refusal and texture > > > preference. At 5 1/2 years old, he is still not > > > feeding himself full- > > > time. > > > > > > Up until December of last year, was a > terrible > > > sleeper. He > > > would rock and bang himself till he fell asleep. > > > This started when > > > he was about one, rocking on all fours, and as > he > > > got bigger and > > > stronger the rocking/banging got more forceful. > It > > > got to the point > > > where either my husband or I would end up > sleeping > > > with to calm > > > him. He actually had a welt the size of a golf > ball > > > on his back from > > > this. We ended up having to remove his closet > doors > > > as he kept > > > bumping on them in the night. > > > > > > Another behaviour that started about a month ago > has > > > me concerned. > > > During meal times, will check under the > table > > > to see where my > > > legs are. By that I mean, if my legs or ankles > > > happened to be > > > crossed, he will slide from his chair to under > the > > > table to put my > > > legs together with my knees touching and both > feet > > > together on the > > > floor. Once back up on his chair, he will > continue > > > to check on the > > > status of my legs while feeding him. The first > time > > > this happened I > > > thought it kind of cute in an odd sort of way, > but > > > now I am worried > > > that this is an autistic tendancy as well. > > > > > > The other thing I wonder about is that he he > chews > > > on his shirts, > > > actually soaks his shirt, and has even chewed > holes > > > in a few. I > > > can't buy him shirts with collars or buttons as > he > > > will chew them > > > off. Thinking back, a few years ago, we went > > > through 2 ski jackets > > > as he kept chewing the zippers up. I ended up > > > removing the zippers > > > and replaced them with heavy duty velcro and > snaps. > > > > > > Anyway, a bit more about ...he attends > school > > > and absolutely > > > loves it! He goes to kindergarten in the > morning > > > and grade 1 in the > > > afternoon. He was in a pre-school program 2 > years > > > prior to this and > > > an EI program. Just this year he has begun to > > > become a little more > > > sociable, which I am thrilled about. He seems > to > > > prefer his own > > > company for the most part, but he is starting to > > > interact and even > > > initiates play with his classmates and older > > > brothers. His speech is > > > very limited. He is starting to really babble > alot > > > more...mama,dada, > > > baba, bibi, that kind of thing. He does have > some > > > words, but they > > > are few and far between. Then out of the blue, > he > > > will say something > > > so clearly, that I wonder if I really heard it. > He > > > does alot of hand > > > over hand and bringing you to show what he > wants. It > > > is very obvious > > > that he understands so much more than he > verbally > > > communicates. > > > Overall, has been a healthy boy. He had an > > > AVSD repair at 6 > > > months of age. Last year he developed alopecia > > > areata and has since > > > lost all his hair. > > > > > > Well, I certainly didn't intend to be so > > > long-winded! It really feels > > > good to talk about this though. Thanks for > being > > > here! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 oh yes, its a constant complaint from his aid, in his notebook, he even uses his chewy for periods of the day but its ot helping greatly lately. shawna. --- Cheryl Magnussen <magnussen@...> wrote: > a, does chew up the inside of his mouth? > > Cheryl > Re: Thanks for the welcome & > replies > > > > ewwww, nathan still grinds his teeth often, drives > me > > crazy, we give him " chewey's " and this helps some. > He > > also still occasionally chews on his shirts, use > to be > > realy bad at it. and his meds keep the head > banging > > down to rare occasion anymore shawna. > > --- carole any <carole9545@...> wrote: > > > > > > Hi , had surgery at 3 and the > behaviors > > > started at 4 ,hmmmm,hope they have a repeat of > that > > > show.He likes to put things in containers and > shake > > > them and everything must be done the same way > EVERY > > > time or he gets very upset.He had a period of > time > > > where he also chewed on his clothes.When he was > two > > > he climbed up on the couch and adjusted a > picture > > > that was crooked!He was a headbanger and tooth > > > grinder also. Carole > > > > > > > > > > > > > > > <rysmum@...> wrote: > > > They are much appreciated! I am glad I found > this > > > site! As I > > > mentioned, has not officially been dually > > > diagnosed yet, we are > > > waiting to get in to the specialist. Reading > your > > > responses, I have > > > to say that probably is a bit autistic. > How's > > > that for sounding > > > like I am in denial, LOL. I have had mixed > feelings > > > about the autism, > > > and realize now that I have seen the signs for a > > > couple of years. I > > > feel badly that I waited this long to act on > them. > > > To be honest, I > > > either didn't want to see these things, and > assumed > > > that he was a > > > " lower functioning " DS child. > > > > > > Most of the behaviours that regularily > displays > > > have been > > > mentioned in your posts. He rocks, lines up his > > > toys, flaps, slaps, > > > shakes/twirls an object (such as paper) for his > > > amusement. As well, > > > we have had ongoing feeding problems, ie. food > > > refusal and texture > > > preference. At 5 1/2 years old, he is still not > > > feeding himself full- > > > time. > > > > > > Up until December of last year, was a > terrible > > > sleeper. He > > > would rock and bang himself till he fell asleep. > > > This started when > > > he was about one, rocking on all fours, and as > he > > > got bigger and > > > stronger the rocking/banging got more forceful. > It > > > got to the point > > > where either my husband or I would end up > sleeping > > > with to calm > > > him. He actually had a welt the size of a golf > ball > > > on his back from > > > this. We ended up having to remove his closet > doors > > > as he kept > > > bumping on them in the night. > > > > > > Another behaviour that started about a month ago > has > > > me concerned. > > > During meal times, will check under the > table > > > to see where my > > > legs are. By that I mean, if my legs or ankles > > > happened to be > > > crossed, he will slide from his chair to under > the > > > table to put my > > > legs together with my knees touching and both > feet > > > together on the > > > floor. Once back up on his chair, he will > continue > > > to check on the > > > status of my legs while feeding him. The first > time > > > this happened I > > > thought it kind of cute in an odd sort of way, > but > > > now I am worried > > > that this is an autistic tendancy as well. > > > > > > The other thing I wonder about is that he he > chews > > > on his shirts, > > > actually soaks his shirt, and has even chewed > holes > > > in a few. I > > > can't buy him shirts with collars or buttons as > he > > > will chew them > > > off. Thinking back, a few years ago, we went > > > through 2 ski jackets > > > as he kept chewing the zippers up. I ended up > > > removing the zippers > > > and replaced them with heavy duty velcro and > snaps. > > > > > > Anyway, a bit more about ...he attends > school > > > and absolutely > > > loves it! He goes to kindergarten in the > morning > > > and grade 1 in the > > > afternoon. He was in a pre-school program 2 > years > > > prior to this and > > > an EI program. Just this year he has begun to > > > become a little more > > > sociable, which I am thrilled about. He seems > to > > > prefer his own > > > company for the most part, but he is starting to > > > interact and even > > > initiates play with his classmates and older > > > brothers. His speech is > > > very limited. He is starting to really babble > alot > > > more...mama,dada, > > > baba, bibi, that kind of thing. He does have > some > > > words, but they > > > are few and far between. Then out of the blue, > he > > > will say something > > > so clearly, that I wonder if I really heard it. > He > > > does alot of hand > > > over hand and bringing you to show what he > wants. It > > > is very obvious > > > that he understands so much more than he > verbally > > > communicates. > > > Overall, has been a healthy boy. He had an > > > AVSD repair at 6 > > > months of age. Last year he developed alopecia > > > areata and has since > > > lost all his hair. > > > > > > Well, I certainly didn't intend to be so > > > long-winded! It really feels > > > good to talk about this though. Thanks for > being > > > here! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 oh yes, its a constant complaint from his aid, in his notebook, he even uses his chewy for periods of the day but its ot helping greatly lately. shawna. --- Cheryl Magnussen <magnussen@...> wrote: > a, does chew up the inside of his mouth? > > Cheryl > Re: Thanks for the welcome & > replies > > > > ewwww, nathan still grinds his teeth often, drives > me > > crazy, we give him " chewey's " and this helps some. > He > > also still occasionally chews on his shirts, use > to be > > realy bad at it. and his meds keep the head > banging > > down to rare occasion anymore shawna. > > --- carole any <carole9545@...> wrote: > > > > > > Hi , had surgery at 3 and the > behaviors > > > started at 4 ,hmmmm,hope they have a repeat of > that > > > show.He likes to put things in containers and > shake > > > them and everything must be done the same way > EVERY > > > time or he gets very upset.He had a period of > time > > > where he also chewed on his clothes.When he was > two > > > he climbed up on the couch and adjusted a > picture > > > that was crooked!He was a headbanger and tooth > > > grinder also. Carole > > > > > > > > > > > > > > > <rysmum@...> wrote: > > > They are much appreciated! I am glad I found > this > > > site! As I > > > mentioned, has not officially been dually > > > diagnosed yet, we are > > > waiting to get in to the specialist. Reading > your > > > responses, I have > > > to say that probably is a bit autistic. > How's > > > that for sounding > > > like I am in denial, LOL. I have had mixed > feelings > > > about the autism, > > > and realize now that I have seen the signs for a > > > couple of years. I > > > feel badly that I waited this long to act on > them. > > > To be honest, I > > > either didn't want to see these things, and > assumed > > > that he was a > > > " lower functioning " DS child. > > > > > > Most of the behaviours that regularily > displays > > > have been > > > mentioned in your posts. He rocks, lines up his > > > toys, flaps, slaps, > > > shakes/twirls an object (such as paper) for his > > > amusement. As well, > > > we have had ongoing feeding problems, ie. food > > > refusal and texture > > > preference. At 5 1/2 years old, he is still not > > > feeding himself full- > > > time. > > > > > > Up until December of last year, was a > terrible > > > sleeper. He > > > would rock and bang himself till he fell asleep. > > > This started when > > > he was about one, rocking on all fours, and as > he > > > got bigger and > > > stronger the rocking/banging got more forceful. > It > > > got to the point > > > where either my husband or I would end up > sleeping > > > with to calm > > > him. He actually had a welt the size of a golf > ball > > > on his back from > > > this. We ended up having to remove his closet > doors > > > as he kept > > > bumping on them in the night. > > > > > > Another behaviour that started about a month ago > has > > > me concerned. > > > During meal times, will check under the > table > > > to see where my > > > legs are. By that I mean, if my legs or ankles > > > happened to be > > > crossed, he will slide from his chair to under > the > > > table to put my > > > legs together with my knees touching and both > feet > > > together on the > > > floor. Once back up on his chair, he will > continue > > > to check on the > > > status of my legs while feeding him. The first > time > > > this happened I > > > thought it kind of cute in an odd sort of way, > but > > > now I am worried > > > that this is an autistic tendancy as well. > > > > > > The other thing I wonder about is that he he > chews > > > on his shirts, > > > actually soaks his shirt, and has even chewed > holes > > > in a few. I > > > can't buy him shirts with collars or buttons as > he > > > will chew them > > > off. Thinking back, a few years ago, we went > > > through 2 ski jackets > > > as he kept chewing the zippers up. I ended up > > > removing the zippers > > > and replaced them with heavy duty velcro and > snaps. > > > > > > Anyway, a bit more about ...he attends > school > > > and absolutely > > > loves it! He goes to kindergarten in the > morning > > > and grade 1 in the > > > afternoon. He was in a pre-school program 2 > years > > > prior to this and > > > an EI program. Just this year he has begun to > > > become a little more > > > sociable, which I am thrilled about. He seems > to > > > prefer his own > > > company for the most part, but he is starting to > > > interact and even > > > initiates play with his classmates and older > > > brothers. His speech is > > > very limited. He is starting to really babble > alot > > > more...mama,dada, > > > baba, bibi, that kind of thing. He does have > some > > > words, but they > > > are few and far between. Then out of the blue, > he > > > will say something > > > so clearly, that I wonder if I really heard it. > He > > > does alot of hand > > > over hand and bringing you to show what he > wants. It > > > is very obvious > > > that he understands so much more than he > verbally > > > communicates. > > > Overall, has been a healthy boy. He had an > > > AVSD repair at 6 > > > months of age. Last year he developed alopecia > > > areata and has since > > > lost all his hair. > > > > > > Well, I certainly didn't intend to be so > > > long-winded! It really feels > > > good to talk about this though. Thanks for > being > > > here! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 What do you mean 'CHEWY'??? What are you using for him to chew on? Angel mouths everything and really does need something safe to put in there. She won't touch a teether. We did have a vibrating teether that worked for a bit, but she chewed through it. LOL. I would love to hear what you use for . Thanks, Cheryl Re: Thanks for the welcome & > > replies > > > > > > > ewwww, nathan still grinds his teeth often, drives > > me > > > crazy, we give him " chewey's " and this helps some. > > He > > > also still occasionally chews on his shirts, use > > to be > > > realy bad at it. and his meds keep the head > > banging > > > down to rare occasion anymore shawna. > > > --- carole any <carole9545@...> wrote: > > > > > > > > Hi , had surgery at 3 and the > > behaviors > > > > started at 4 ,hmmmm,hope they have a repeat of > > that > > > > show.He likes to put things in containers and > > shake > > > > them and everything must be done the same way > > EVERY > > > > time or he gets very upset.He had a period of > > time > > > > where he also chewed on his clothes.When he was > > two > > > > he climbed up on the couch and adjusted a > > picture > > > > that was crooked!He was a headbanger and tooth > > > > grinder also. Carole > > > > > > > > > > > > > > > > > > > > <rysmum@...> wrote: > > > > They are much appreciated! I am glad I found > > this > > > > site! As I > > > > mentioned, has not officially been dually > > > > diagnosed yet, we are > > > > waiting to get in to the specialist. Reading > > your > > > > responses, I have > > > > to say that probably is a bit autistic. > > How's > > > > that for sounding > > > > like I am in denial, LOL. I have had mixed > > feelings > > > > about the autism, > > > > and realize now that I have seen the signs for a > > > > couple of years. I > > > > feel badly that I waited this long to act on > > them. > > > > To be honest, I > > > > either didn't want to see these things, and > > assumed > > > > that he was a > > > > " lower functioning " DS child. > > > > > > > > Most of the behaviours that regularily > > displays > > > > have been > > > > mentioned in your posts. He rocks, lines up his > > > > toys, flaps, slaps, > > > > shakes/twirls an object (such as paper) for his > > > > amusement. As well, > > > > we have had ongoing feeding problems, ie. food > > > > refusal and texture > > > > preference. At 5 1/2 years old, he is still not > > > > feeding himself full- > > > > time. > > > > > > > > Up until December of last year, was a > > terrible > > > > sleeper. He > > > > would rock and bang himself till he fell asleep. > > > > This started when > > > > he was about one, rocking on all fours, and as > > he > > > > got bigger and > > > > stronger the rocking/banging got more forceful. > > It > > > > got to the point > > > > where either my husband or I would end up > > sleeping > > > > with to calm > > > > him. He actually had a welt the size of a golf > > ball > > > > on his back from > > > > this. We ended up having to remove his closet > > doors > > > > as he kept > > > > bumping on them in the night. > > > > > > > > Another behaviour that started about a month ago > > has > > > > me concerned. > > > > During meal times, will check under the > > table > > > > to see where my > > > > legs are. By that I mean, if my legs or ankles > > > > happened to be > > > > crossed, he will slide from his chair to under > > the > > > > table to put my > > > > legs together with my knees touching and both > > feet > > > > together on the > > > > floor. Once back up on his chair, he will > > continue > > > > to check on the > > > > status of my legs while feeding him. The first > > time > > > > this happened I > > > > thought it kind of cute in an odd sort of way, > > but > > > > now I am worried > > > > that this is an autistic tendancy as well. > > > > > > > > The other thing I wonder about is that he he > > chews > > > > on his shirts, > > > > actually soaks his shirt, and has even chewed > > holes > > > > in a few. I > > > > can't buy him shirts with collars or buttons as > > he > > > > will chew them > > > > off. Thinking back, a few years ago, we went > > > > through 2 ski jackets > > > > as he kept chewing the zippers up. I ended up > > > > removing the zippers > > > > and replaced them with heavy duty velcro and > > snaps. > > > > > > > > Anyway, a bit more about ...he attends > > school > > > > and absolutely > > > > loves it! He goes to kindergarten in the > > morning > > > > and grade 1 in the > > > > afternoon. He was in a pre-school program 2 > > years > > > > prior to this and > > > > an EI program. Just this year he has begun to > > > > become a little more > > > > sociable, which I am thrilled about. He seems > > to > > > > prefer his own > > > > company for the most part, but he is starting to > > > > interact and even > > > > initiates play with his classmates and older > > > > brothers. His speech is > > > > very limited. He is starting to really babble > > alot > > > > more...mama,dada, > > > > baba, bibi, that kind of thing. He does have > > some > > > > words, but they > > > > are few and far between. Then out of the blue, > > he > > > > will say something > > > > so clearly, that I wonder if I really heard it. > > He > > > > does alot of hand > > > > over hand and bringing you to show what he > > wants. It > > > > is very obvious > > > > that he understands so much more than he > > verbally > > > > communicates. > > > > Overall, has been a healthy boy. He had an > > > > AVSD repair at 6 > > > > months of age. Last year he developed alopecia > > > > areata and has since > > > > lost all his hair. > > > > > > > > Well, I certainly didn't intend to be so > > > > long-winded! It really feels > > > > good to talk about this though. Thanks for > > being > > > > here! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 Hi a, How is that working...taking away 's strings, etc? We tried that at one point with and he just found other things to stim with. The Psych told us that if you try to change a behavior without giving them something to replace it, they will just find another, possibly more severe behavior. Are you finding this to be true or is turning to more appropriate behavior? Are they giving you helpful info at the research facility? Terry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 Well " chewy " is just its nickname so nathan has something easy and fun to say. He has a vibrating one, he uses a little, but he especially likes these white handled with a blue triange, rubbery top filled with sterile water,baby teether, that you can freeze or refrigerate, he likes them out of the fridge, and chews through them but he doesnt understand gum yet and its safe for him, sometimes if the store is out i buy them in bulk,lol, and we are out, he will chew on a cold damp wash cloth, i have tried ambesol in his mouth too, but that just made him drool even more. shawna --- Cheryl Magnussen <magnussen@...> wrote: > What do you mean 'CHEWY'??? What are you using for > him to chew on? Angel > mouths everything and really does need something > safe to put in there. She > won't touch a teether. We did have a vibrating > teether that worked for a > bit, but she chewed through it. LOL. I would love > to hear what you use for > . > > Thanks, Cheryl > Re: Thanks for the welcome > & > > > replies > > > > > > > > > > ewwww, nathan still grinds his teeth often, > drives > > > me > > > > crazy, we give him " chewey's " and this helps > some. > > > He > > > > also still occasionally chews on his shirts, > use > > > to be > > > > realy bad at it. and his meds keep the head > > > banging > > > > down to rare occasion anymore shawna. > > > > --- carole any <carole9545@...> wrote: > > > > > > > > > > Hi , had surgery at 3 and the > > > behaviors > > > > > started at 4 ,hmmmm,hope they have a repeat > of > > > that > > > > > show.He likes to put things in containers > and > > > shake > > > > > them and everything must be done the same > way > > > EVERY > > > > > time or he gets very upset.He had a period > of > > > time > > > > > where he also chewed on his clothes.When he > was > > > two > > > > > he climbed up on the couch and adjusted a > > > picture > > > > > that was crooked!He was a headbanger and > tooth > > > > > grinder also. Carole > > > > > > > > > > > > > > > > > > > > > > > > > <rysmum@...> wrote: > > > > > They are much appreciated! I am glad I > found > > > this > > > > > site! As I > > > > > mentioned, has not officially been > dually > > > > > diagnosed yet, we are > > > > > waiting to get in to the specialist. Reading > > > your > > > > > responses, I have > > > > > to say that probably is a bit autistic. > > > How's > > > > > that for sounding > > > > > like I am in denial, LOL. I have had mixed > > > feelings > > > > > about the autism, > > > > > and realize now that I have seen the signs > for a > > > > > couple of years. I > > > > > feel badly that I waited this long to act on > > > them. > > > > > To be honest, I > > > > > either didn't want to see these things, and > > > assumed > > > > > that he was a > > > > > " lower functioning " DS child. > > > > > > > > > > Most of the behaviours that regularily > > > displays > > > > > have been > > > > > mentioned in your posts. He rocks, lines up > his > > > > > toys, flaps, slaps, > > > > > shakes/twirls an object (such as paper) for > his > > > > > amusement. As well, > > > > > we have had ongoing feeding problems, ie. > food > > > > > refusal and texture > > > > > preference. At 5 1/2 years old, he is still > not > > > > > feeding himself full- > > > > > time. > > > > > > > > > > Up until December of last year, was a > > > terrible > > > > > sleeper. He > > > > > would rock and bang himself till he fell > asleep. > > > > > This started when > > > > > he was about one, rocking on all fours, and > as > > > he > > > > > got bigger and > > > > > stronger the rocking/banging got more > forceful. > > > It > > > > > got to the point > > > > > where either my husband or I would end up > > > sleeping > > > > > with to calm > > > > > him. He actually had a welt the size of a > golf > > > ball > > > > > on his back from > > > > > this. We ended up having to remove his > closet > > > doors > > > > > as he kept > > > > > bumping on them in the night. > > > > > > > > > > Another behaviour that started about a month > ago > > > has > > > > > me concerned. > > > > > During meal times, will check under the > > > table > > > > > to see where my > > > > > legs are. By that I mean, if my legs or > ankles > > > > > happened to be > > > > > crossed, he will slide from his chair to > under > > > the > > > > > table to put my > > > > > legs together with my knees touching and > both > > > feet > > > > > together on the > > > > > floor. Once back up on his chair, he will > > > continue > > > > > to check on the > > > > > status of my legs while feeding him. The > first > > > time > > > > > this happened I > > > > > thought it kind of cute in an odd sort of > way, > > > but > > > > > now I am worried > > > > > that this is an autistic tendancy as well. > > > > > > > > > > The other thing I wonder about is that he he > > > chews > > > > > on his shirts, > > > > > actually soaks his shirt, and has even > chewed > > > holes > > > > > in a few. I > > > > > can't buy him shirts with collars or buttons > as > > > he > > > > > will chew them > > > > > off. Thinking back, a few years ago, we > went > > > > > through 2 ski jackets > > > > > as he kept chewing the zippers up. I ended > up > > > > > removing the zippers > > > > > and replaced them with heavy duty velcro and > > > snaps. > > > > > > > > > > Anyway, a bit more about ...he attends > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 We have found him stimming more with his dangly toys, such as his woody doll or bear or monkey, we are suppose to take these out of the picture too, but i wont let nathan go cold turkey, i am slowly removeing things as im spring cleaning,lol, very slowly, we are at an i dont know point, because during the stduy and tx sessions at UIHC nathan would often play with us adn other toys than do his self stim, but at home its different and ive told them that, its not new or different toys, and i love my son but there are times i just want to watch tv or i have laundry to do, i cant keep playing with him but i do keep trying to redirect, saying i dont know where his strings are,ooo look batman, or games, he usually finds one somewhere in his toys , so like many other behavior things only time will tell. shawna. --- Imaddenmom@... wrote: > Hi a, > How is that working...taking away 's strings, > etc? We tried that at > one point with and he just found other > things to stim with. The > Psych told us that if you try to change a behavior > without giving them > something to replace it, they will just find > another, possibly more severe > behavior. Are you finding this to be true or is > turning to more > appropriate behavior? Are they giving you helpful > info at the research > facility? > Terry > > > [Non-text portions of this message have been > removed] > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 Hi a, Angel loves the wet washcloth to chew on. She takes baby wipes and sucks and chews them when ever she can get at them. Or she wets paper towel and sucks on it. funny kids. Today she tried to suck on and eat a note pad. Still has the ink on her face. Angel has always ran from the lawn mower and covered her ears. It has always scared the H out of her. But, tonight she ran for it and kept standing in front of it while I mowed the lawn. Played right beside it with no fear what so ever. I kept having to stop it and tell her to move so she wouldn't get hurt from it. WEIRD. She had absolutely no fear of it whatsoever. Almost like she swung to the other end of the pendulum on this one. Cheryl Re: Thanks for the welcome > > & > > > > replies > > > > > > > > > > > > > ewwww, nathan still grinds his teeth often, > > drives > > > > me > > > > > crazy, we give him " chewey's " and this helps > > some. > > > > He > > > > > also still occasionally chews on his shirts, > > use > > > > to be > > > > > realy bad at it. and his meds keep the head > > > > banging > > > > > down to rare occasion anymore shawna. > > > > > --- carole any <carole9545@...> wrote: > > > > > > > > > > > > Hi , had surgery at 3 and the > > > > behaviors > > > > > > started at 4 ,hmmmm,hope they have a repeat > > of > > > > that > > > > > > show.He likes to put things in containers > > and > > > > shake > > > > > > them and everything must be done the same > > way > > > > EVERY > > > > > > time or he gets very upset.He had a period > > of > > > > time > > > > > > where he also chewed on his clothes.When he > > was > > > > two > > > > > > he climbed up on the couch and adjusted a > > > > picture > > > > > > that was crooked!He was a headbanger and > > tooth > > > > > > grinder also. Carole > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > <rysmum@...> wrote: > > > > > > They are much appreciated! I am glad I > > found > > > > this > > > > > > site! As I > > > > > > mentioned, has not officially been > > dually > > > > > > diagnosed yet, we are > > > > > > waiting to get in to the specialist. Reading > > > > your > > > > > > responses, I have > > > > > > to say that probably is a bit autistic. > > > > How's > > > > > > that for sounding > > > > > > like I am in denial, LOL. I have had mixed > > > > feelings > > > > > > about the autism, > > > > > > and realize now that I have seen the signs > > for a > > > > > > couple of years. I > > > > > > feel badly that I waited this long to act on > > > > them. > > > > > > To be honest, I > > > > > > either didn't want to see these things, and > > > > assumed > > > > > > that he was a > > > > > > " lower functioning " DS child. > > > > > > > > > > > > Most of the behaviours that regularily > > > > displays > > > > > > have been > > > > > > mentioned in your posts. He rocks, lines up > > his > > > > > > toys, flaps, slaps, > > > > > > shakes/twirls an object (such as paper) for > > his > > > > > > amusement. As well, > > > > > > we have had ongoing feeding problems, ie. > > food > > > > > > refusal and texture > > > > > > preference. At 5 1/2 years old, he is still > > not > > > > > > feeding himself full- > > > > > > time. > > > > > > > > > > > > Up until December of last year, was a > > > > terrible > > > > > > sleeper. He > > > > > > would rock and bang himself till he fell > > asleep. > > > > > > This started when > > > > > > he was about one, rocking on all fours, and > > as > > > > he > > > > > > got bigger and > > > > > > stronger the rocking/banging got more > > forceful. > > > > It > > > > > > got to the point > > > > > > where either my husband or I would end up > > > > sleeping > > > > > > with to calm > > > > > > him. He actually had a welt the size of a > > golf > > > > ball > > > > > > on his back from > > > > > > this. We ended up having to remove his > > closet > > > > doors > > > > > > as he kept > > > > > > bumping on them in the night. > > > > > > > > > > > > Another behaviour that started about a month > > ago > > > > has > > > > > > me concerned. > > > > > > During meal times, will check under the > > > > table > > > > > > to see where my > > > > > > legs are. By that I mean, if my legs or > > ankles > > > > > > happened to be > > > > > > crossed, he will slide from his chair to > > under > > > > the > > > > > > table to put my > > > > > > legs together with my knees touching and > > both > > > > feet > > > > > > together on the > > > > > > floor. Once back up on his chair, he will > > > > continue > > > > > > to check on the > > > > > > status of my legs while feeding him. The > > first > > > > time > > > > > > this happened I > > > > > > thought it kind of cute in an odd sort of > > way, > > > > but > > > > > > now I am worried > > > > > > that this is an autistic tendancy as well. > > > > > > > > > > > > The other thing I wonder about is that he he > > > > chews > > > > > > on his shirts, > > > > > > actually soaks his shirt, and has even > > chewed > > > > holes > > > > > > in a few. I > > > > > > can't buy him shirts with collars or buttons > > as > > > > he > > > > > > will chew them > > > > > > off. Thinking back, a few years ago, we > > went > > > > > > through 2 ski jackets > > > > > > as he kept chewing the zippers up. I ended > > up > > > > > > removing the zippers > > > > > > and replaced them with heavy duty velcro and > > > > snaps. > > > > > > > > > > > > Anyway, a bit more about ...he attends > > > === message truncated === > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2001 Report Share Posted April 26, 2001 In a message dated 4/26/01 3:21:12 PM Eastern Daylight Time, mashawnag@... writes: > eeewww, i remember those days, thank goodness nathan > outgreww the baby wipe thing, uuuhh if he found a box > of them he would chew and suck on them wrecking them > all let alone that taste has to be awful! but he did > outgrow it,wheew, LOL Maddie too a. Actually, she dangled one in front of her face the entire plane ride home from Disney this past March. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2001 Report Share Posted April 26, 2001 eeewww, i remember those days, thank goodness nathan outgreww the baby wipe thing, uuuhh if he found a box of them he would chew and suck on them wrecking them all let alone that taste has to be awful! but he did outgrow it,wheew, shawna --- Cheryl Magnussen <magnussen@...> wrote: > Hi a, Angel loves the wet washcloth to chew on. > She takes baby wipes > and sucks and chews them when ever she can get at > them. Or she wets paper > towel and sucks on it. funny kids. Today she tried > to suck on and eat a > note pad. Still has the ink on her face. > Angel has always ran from the lawn mower and covered > her ears. It has > always scared the H out of her. But, tonight she > ran for it and kept > standing in front of it while I mowed the lawn. > Played right beside it with > no fear what so ever. I kept having to stop it and > tell her to move so she > wouldn't get hurt from it. WEIRD. She had > absolutely no fear of it > whatsoever. Almost like she swung to the other end > of the pendulum on this > one. > > Cheryl > Re: Thanks for the > welcome > > > & > > > > > replies > > > > > > > > > > > > > > > > ewwww, nathan still grinds his teeth > often, > > > drives > > > > > me > > > > > > crazy, we give him " chewey's " and this > helps > > > some. > > > > > He > > > > > > also still occasionally chews on his > shirts, > > > use > > > > > to be > > > > > > realy bad at it. and his meds keep the > head > > > > > banging > > > > > > down to rare occasion anymore shawna. > > > > > > --- carole any <carole9545@...> > wrote: > > > > > > > > > > > > > > Hi , had surgery at 3 and the > > > > > behaviors > > > > > > > started at 4 ,hmmmm,hope they have a > repeat > > > of > > > > > that > > > > > > > show.He likes to put things in > containers > > > and > > > > > shake > > > > > > > them and everything must be done the > same > > > way > > > > > EVERY > > > > > > > time or he gets very upset.He had a > period > > > of > > > > > time > > > > > > > where he also chewed on his clothes.When > he > > > was > > > > > two > > > > > > > he climbed up on the couch and adjusted > a > > > > > picture > > > > > > > that was crooked!He was a headbanger and > > > tooth > > > > > > > grinder also. Carole > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > <rysmum@...> wrote: > > > > > > > They are much appreciated! I am glad I > > > found > > > > > this > > > > > > > site! As I > > > > > > > mentioned, has not officially been > > > dually > > > > > > > diagnosed yet, we are > > > > > > > waiting to get in to the specialist. > Reading > > > > > your > > > > > > > responses, I have > > > > > > > to say that probably is a bit > autistic. > > > > > How's > > > > > > > that for sounding > > > > > > > like I am in denial, LOL. I have had > mixed > > > > > feelings > > > > > > > about the autism, > > > > > > > and realize now that I have seen the > signs > > > for a > > > > > > > couple of years. I > > > > > > > feel badly that I waited this long to > act on > > > > > them. > > > > > > > To be honest, I > > > > > > > either didn't want to see these things, > and > > > > > assumed > > > > > > > that he was a > > > > > > > " lower functioning " DS child. > > > > > > > > > > > > > > Most of the behaviours that > regularily > > > > > displays > > > > > > > have been > > > > > > > mentioned in your posts. He rocks, > lines up > > > his > > > > > > > toys, flaps, slaps, > > > > > > > shakes/twirls an object (such as paper) > for > > > his > > > > > > > amusement. As well, > > > > > > > we have had ongoing feeding problems, > ie. > > > food > > > > > > > refusal and texture > > > > > > > preference. At 5 1/2 years old, he is > still > > > not > > > > > > > feeding himself full- > > > > > > > time. > > > > > > > > > > > > > > Up until December of last year, was > a > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2001 Report Share Posted April 26, 2001 eeewww, i remember those days, thank goodness nathan outgreww the baby wipe thing, uuuhh if he found a box of them he would chew and suck on them wrecking them all let alone that taste has to be awful! but he did outgrow it,wheew, shawna --- Cheryl Magnussen <magnussen@...> wrote: > Hi a, Angel loves the wet washcloth to chew on. > She takes baby wipes > and sucks and chews them when ever she can get at > them. Or she wets paper > towel and sucks on it. funny kids. Today she tried > to suck on and eat a > note pad. Still has the ink on her face. > Angel has always ran from the lawn mower and covered > her ears. It has > always scared the H out of her. But, tonight she > ran for it and kept > standing in front of it while I mowed the lawn. > Played right beside it with > no fear what so ever. I kept having to stop it and > tell her to move so she > wouldn't get hurt from it. WEIRD. She had > absolutely no fear of it > whatsoever. Almost like she swung to the other end > of the pendulum on this > one. > > Cheryl > Re: Thanks for the > welcome > > > & > > > > > replies > > > > > > > > > > > > > > > > ewwww, nathan still grinds his teeth > often, > > > drives > > > > > me > > > > > > crazy, we give him " chewey's " and this > helps > > > some. > > > > > He > > > > > > also still occasionally chews on his > shirts, > > > use > > > > > to be > > > > > > realy bad at it. and his meds keep the > head > > > > > banging > > > > > > down to rare occasion anymore shawna. > > > > > > --- carole any <carole9545@...> > wrote: > > > > > > > > > > > > > > Hi , had surgery at 3 and the > > > > > behaviors > > > > > > > started at 4 ,hmmmm,hope they have a > repeat > > > of > > > > > that > > > > > > > show.He likes to put things in > containers > > > and > > > > > shake > > > > > > > them and everything must be done the > same > > > way > > > > > EVERY > > > > > > > time or he gets very upset.He had a > period > > > of > > > > > time > > > > > > > where he also chewed on his clothes.When > he > > > was > > > > > two > > > > > > > he climbed up on the couch and adjusted > a > > > > > picture > > > > > > > that was crooked!He was a headbanger and > > > tooth > > > > > > > grinder also. Carole > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > <rysmum@...> wrote: > > > > > > > They are much appreciated! I am glad I > > > found > > > > > this > > > > > > > site! As I > > > > > > > mentioned, has not officially been > > > dually > > > > > > > diagnosed yet, we are > > > > > > > waiting to get in to the specialist. > Reading > > > > > your > > > > > > > responses, I have > > > > > > > to say that probably is a bit > autistic. > > > > > How's > > > > > > > that for sounding > > > > > > > like I am in denial, LOL. I have had > mixed > > > > > feelings > > > > > > > about the autism, > > > > > > > and realize now that I have seen the > signs > > > for a > > > > > > > couple of years. I > > > > > > > feel badly that I waited this long to > act on > > > > > them. > > > > > > > To be honest, I > > > > > > > either didn't want to see these things, > and > > > > > assumed > > > > > > > that he was a > > > > > > > " lower functioning " DS child. > > > > > > > > > > > > > > Most of the behaviours that > regularily > > > > > displays > > > > > > > have been > > > > > > > mentioned in your posts. He rocks, > lines up > > > his > > > > > > > toys, flaps, slaps, > > > > > > > shakes/twirls an object (such as paper) > for > > > his > > > > > > > amusement. As well, > > > > > > > we have had ongoing feeding problems, > ie. > > > food > > > > > > > refusal and texture > > > > > > > preference. At 5 1/2 years old, he is > still > > > not > > > > > > > feeding himself full- > > > > > > > time. > > > > > > > > > > > > > > Up until December of last year, was > a > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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