Re: Re: carnitine & Carnitor

[Guest guest]

Hi,

Were you found to have a carnitine deficiency or do you have a

Mitochrondrial disease?

Carnitine is given in large doses for these diseases. I'm glad it reduced

your fatigue - are you able to increase your activity or do exercise?

take care,

Chrisite

At 06:34 PM 2/28/00 EST, you wrote:

>From: " Jerry " <jerrycam@...>

>

>Hi, all,

>I have been lurking a while, but thought I should respond to the Carnitor

>posts.

>I have been taking Carnitor, 3 tablets = 1g, 3X/day, for several years. I

>tried with OTC carnitine before this, but found no effect. The move to

>Carnitor (prescription brand) brought noticablely less fatigue and pain

>within a week.

>Carnitor is higher purity l-carnitine than most OTC stuff; a lot of OTC

>stuff has significant amounts of d-carnitine even though advertised as

>l-carnitine. Sigma-Tau (Carnitor manufacturer) has some info on this at

>their web site

><http://www.sigmatau.com/>

>It is also easier to absorb, according to Sigma Tau.

>

>It should be covered by prescription plans, but be prepared to fight for it.

>My own prescription plan would not cover it, calling it " food additive " ,

> " food supplement " , " not a prescription drug " , " not in our formulary " etc. a

>new excuse every month. They finally referred to a " long-standing medical

>policy " that declared it experimental- turns out their long-standing policy

>was made up 4+ years after the fact.

>(The lawsuit is scheduled to be heard in May - already been thru the mill

>with their sleazy lawyers).

>

>____

>Also wanted to add, flax oil (or fish oil) has nti-coagulant properties. It

>makes platelets less sticky. A double-blind study some years ago found that

>flax oil + borage oil (omega-3 and omega-6 fatty acids respectively) helped

>80% of CFS patients, with partial reduction in fatigue and reduced pain.

>

>Jerry

>______________________________________________________

>Get Your Private, Free Email at http://www.hotmail.com

>

>

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>This list is intended for patients to share personal experiences with each

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discussed here, please consult your doctor.

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>

[Guest guest]

I think I remember seeing a double blind study that showed a positive effect of

Carnitine on CFS

steve

" C.Tab. " wrote:

> From: " C.Tab. " <tab@...>

>

> Hi,

>

> Were you found to have a carnitine deficiency or do you have a

> Mitochrondrial disease?

> Carnitine is given in large doses for these diseases. I'm glad it reduced

> your fatigue - are you able to increase your activity or do exercise?

>

> take care,

> Chrisite

>

> At 06:34 PM 2/28/00 EST, you wrote:

> >From: " Jerry " <jerrycam@...>

> >

> >Hi, all,

> >I have been lurking a while, but thought I should respond to the Carnitor

> >posts.

> >I have been taking Carnitor, 3 tablets = 1g, 3X/day, for several years. I

> >tried with OTC carnitine before this, but found no effect. The move to

> >Carnitor (prescription brand) brought noticablely less fatigue and pain

> >within a week.

> >Carnitor is higher purity l-carnitine than most OTC stuff; a lot of OTC

> >stuff has significant amounts of d-carnitine even though advertised as

> >l-carnitine. Sigma-Tau (Carnitor manufacturer) has some info on this at

> >their web site

> ><http://www.sigmatau.com/>

> >It is also easier to absorb, according to Sigma Tau.

> >

> >It should be covered by prescription plans, but be prepared to fight for it.

> >My own prescription plan would not cover it, calling it " food additive " ,

> > " food supplement " , " not a prescription drug " , " not in our formulary " etc. a

> >new excuse every month. They finally referred to a " long-standing medical

> >policy " that declared it experimental- turns out their long-standing policy

> >was made up 4+ years after the fact.

> >(The lawsuit is scheduled to be heard in May - already been thru the mill

> >with their sleazy lawyers).

> >

> >____

> >Also wanted to add, flax oil (or fish oil) has nti-coagulant properties. It

> >makes platelets less sticky. A double-blind study some years ago found that

> >flax oil + borage oil (omega-3 and omega-6 fatty acids respectively) helped

> >80% of CFS patients, with partial reduction in fatigue and reduced pain.

> >

> >Jerry

> >______________________________________________________

> >Get Your Private, Free Email at http://www.hotmail.com

> >

> >

> >------------------------------------------------------------------------

> >FREE ADVICE FROM REAL PEOPLE! Xpertsite has thousands of experts who

> >are willing to answer your questions for FREE. Go to Xpertsite today and

> >put your mind to rest.

> >1/1404/2/_/531724/_/951780861/

> >------------------------------------------------------------------------

> >

> >This list is intended for patients to share personal experiences with each

> other, not to give medical advice. If you are interested in any treatment

> discussed here, please consult your doctor.

> >

> >

> >

>

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> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.