Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 Leah, Yes, lots of prayers for all of you, especially Cameron. It's good that some family was able to come in to help you. Will have a glass of wine for you tonight. God bless, Carole, mom to , 5 in April, DS/autism, g-tube Re: Re: Leah > Leah, > I'll be thinking of you and hope everything goes well for Cameron with > the surgery tomorrow. Staying calm is good!! Maybe keeping busy will help to > keep you that way. You have to watch for the let down though. In your case > maybe there won't be a letdown with all you have going on. Poor Baby! I'm > glad you had such a great weekend. > Marisa > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 my prayers that everything goes well with the surgery, and for your strength. shawna >From: smilinggail@... >Reply- > >Subject: Re: Re: Leah >Date: Tue, 13 Mar 2001 21:52:42 EST > >In a message dated 3/13/01 4:53:59 PM Eastern Standard Time, >okieleah@... writes: > ><< cameron is having surgery > tomorrow and will be there for two or three days............. >> >Leah, >Lots of prayers for Cam too. Glad you got to enjoy a little time with your >Mom and sister before his surgery. Let us know how things went as soon as >you can? >Gail _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2001 Report Share Posted March 16, 2001 Hi Leah, Speaking of prayers, how's it going with Cameron? Terry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2001 Report Share Posted March 16, 2001 terry, they think cameron has van b. something disorder...blood clotting something or other. we were in today for 102 fever and blisters in his mouth....shot of rocephin and back on antibiotics. we see hemotology on monday, until then it's give or take and see what we can get.... i am so worried about him..had a hellva of a day.... had an meeting at ashtons school regarding a fba on her then i opened the garage door and a piece of the metal hinge knocked me in the head and left a whopper of a knot on my forehead and then i also took cammie in.....what a day....tomorrow up early to take both mothers to the airport..... then i am home to build a relationship with my bottle..........tc leah ps if anyone is a pro on fba's please educate me...i have had no time to prepare...... also the new ignorant teacher told me today she doesnt think ashton belongs in the autism class because she is so social .....no shit sherlock, but where else are you going to put her...with the teacher that abused her....I THINK NOT..... >From: Imaddenmom@... >Reply- > >Subject: Re: Leah >Date: Fri, 16 Mar 2001 16:42:11 EST > >Hi Leah, >Speaking of prayers, how's it going with Cameron? >Terry > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2001 Report Share Posted March 19, 2001 Leah, You have all this going on in your life, and yet you sound very calm? Prayers still going up for you. Keep us posted on Cam and the meeting? Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2001 Report Share Posted March 20, 2001 Leah, I wish I could give you a big HUG! At least there is a virtual one coming your way! What do you need to know about the functional behavior analysis? has had two. I will help you with whatever I can. Terry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2001 Report Share Posted March 20, 2001 Dear Leah, Lots of prayers & {{{{{{{{{{hugs}}}}}}}}}}} coming your way. You have given all of us so much support & help with your S of H & your wonderful spirit. Hang in there. It's so awful having to wait for tests & appts - I know - have been there, done that, etc. What's an fba? I presume it's an American thing. Good luck with everything & keep us posted ( I know you will). Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2001 Report Share Posted April 6, 2001 Leah, How are your kids doing? Is Cameron getting medication to help his blood to clot and when is that surgery again? I hope things are settling down with his health problems. Marisa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2001 Report Share Posted April 8, 2001 Hi Leah, the special needs change rooms have over head lifts that are used to move children out of wheelchairs, onto beds to be changed etc. They are just little boxes on the ceiling that have a small chain hanging from it, and it slide along a track when in operation. But this thing wasn't moving and she has seen it sooooo many times before. But like alot of the fears they are unusual as they are sudden and usually are gone the next day. She had this thing about her yellow socks this week. They really freaked her out. For two days she didn't want to see them and was quite upset when she saw them in the sock drawer. but, yesterday she wore them no prob. Go figure. When we drive around town and stop at a light I always say and sign the color and tell her to look at it. We talk about red is stop, when it is green tell mom to 'go'. so she does. Pays very good attention for this. On Friday as we drove to school I turned right on a red light. She freaked out at me and kept yelling stop and signing over and over to me. Wondered why and then realized the light was red and I didn't stop. Boy was she mad at me. I broke the rule. Wonder how I will teach turning right on reds now?? she is just the coolest kid you know. She has taught me a gazillion things. and given me the greatest love ever. Angel was always okay about santa until this year. She didn't want to sit on his lap, took many visits to the store, hoping she would want to go near him. She didn't even want to be on the same floor in the dept store as him. Finally we saw him outside of the store, we had bought tickets to take the girls on a train ride with santa as Angel really loves trains alot, and so dh sat on Santa's knee and me on the other, then our older daughter climbed on, and finally Angel joined us. She thought that was so cool, everyone was sitting on his knee so she joined us. Yet she loves blues clues when he comes to the daycare. Guess that's like disney isn't it. More motivation to like it if it is connected with something you know is fun. Take care, Cheryl Re: does your kid ever do this....... > > > > > > > Cheryl, > > > does hurtful things to people as well and I am not convinced > >that > >he > > > understands that he is " hurting " someone. He can be just as happy as > >can > >be, > > > hugging you, and then either take a chunk out of your shoulder or > >scratch > > > you. He isn't angry or anything and when you react with surprise and/or > > > pain, he just looks at you like " what " ? LOL He also smears and will > >eat > > > feces given the opportunity. Yuck! > > > Terry > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2001 Report Share Posted April 11, 2001 Leah, You keep working on it and good things are bound to happen. Get some other advocates to call also or write letters on your behalf. I'm sure they know you mean business by now and that should help too. Take Care of yourself to {{{{{Hugs}}}} Marisa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2001 Report Share Posted April 11, 2001 marisa, i am so glad your able to be positive on my behalf. i don't feel very positive at this point in my life.. one thing turns into many and many turn into volumes and volumes turn into a whole set of things to do... but i am trying very hard to be sane if only when my kids are watching me with their so very innocent but yet absorbing eyes... thanks for the support.. take care, leah > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2001 Report Share Posted April 18, 2001 Leah, Thanks for the hugs. The same to you. {{{{{HUGS}}}}} I am really sorry you are having such a hard time. Right now, I have two toddlers (That includes Gennie and Brook) that are both very demanding and need constant supervision. It seems that " When it rains it pours " is how it is right now. Get those darn in-laws to help you! I hope Cameron starts to feels much better soon. When Brook had his tonsils and adenoids out at 4 yrs the doctor said there was really major scarring on them indicating he had had many infections. I guess we probably new about a lot of them because he was on a lot of antibiotics. And there are the viral infections too. Get some rest and let your in-laws watch the kids and make their own meals and clean up after themselves!! Maybe if they don't like the service at your house the will decide to go home. Exactly why are they visiting you at this time if not to help? I'm sure you're totally prepared for the IEP. Just stay calm and stick to your guns. Best Wishes and Good Luck too! Hugs, Marisa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2001 Report Share Posted April 18, 2001 marisa, IT'S POURING!!!!!` those inlaws will never help...heck i have spent more time cleaning up and trying to keep peace...everyone is sick...my house is the poop factory and smells nasty..i have lysoled, bleached, febreezed, and lit i don't know how many candles...dh sick, neice sick, baby sick, ashton sick,and poor cameronis quarantined to his room..lmao we are the only healthy ones..god forbid heget the flu, i could see the vomit ripping open his stitches...i THINK and hope and pray they may leave in the am so my neice can benear herdoctor...my opinion is LEAVE NOW!!! lmao and yes i am yelling... i will be so happy to have my house all to myself,,,, as for gennie and brooke, hugs and thoughts and prayers and major sanity pills coming your way... it's still pouring at your house too... when shall we ever have a dry spell... lmao tc leah >From: poggim@... >Reply- > >Subject: Re: Leah >Date: Wed, 18 Apr 2001 12:55:19 EDT > >Leah, > Thanks for the hugs. The same to you. {{{{{HUGS}}}}} I am really sorry >you >are having such a hard time. Right now, I have two toddlers (That includes >Gennie and Brook) that are both very demanding and need constant >supervision. >It seems that " When it rains it pours " is how it is right now. Get those >darn >in-laws to help you! I hope Cameron starts to feels much better soon. When >Brook had his tonsils and adenoids out at 4 yrs the doctor said there was >really major scarring on them indicating he had had many infections. I >guess >we probably new about a lot of them because he was on a lot of antibiotics. >And there are the viral infections too. > Get some rest and let your in-laws watch the kids and make their own >meals and clean up after themselves!! Maybe if they don't like the service >at >your house the will decide to go home. Exactly why are they visiting you at >this time if not to help? I'm sure you're totally prepared for the IEP. >Just >stay calm and stick to your guns. >Best Wishes and Good Luck too! >Hugs, Marisa > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2001 Report Share Posted April 20, 2001 Leah, Oh my gosh, How much can one person bear before they throw the in-laws out of the house for being so extremely inconsiderate. I think I would have had them out of there right away and you are actually taking care of them and your sick children and dh. Unbelievable. Does your dh condone this type of behavior from his family? Maybe a little talk with him is in order. Big Hugs!!!!{{{{{{{{{HUGS}}}}}}}}} I really hope you don't get sick! When I was younger, newly married, etc., I had to have talks with my dh about his family. They don't understand how difficult it is with Brook and want my dh to come over to their house and do their odd jobs, paint their whole house, put up fences, and help move them from one house to another etc. This last one was when Gennie was a little baby too. I don't think so. My dh loves his family and is very good to them, but they haven't helped us with Brook. Anyway I have told my dh at times, that if you can't say no to them that I will call them and explain that you are unable to do what they are asking. And believe me I would have too. Now he is much better about it. As soon as they heard that he was going to be laid off from his job they were lining up jobs for him to do at their house. Now I just stand up to them when they make their demands and say " Sorry, but we can't " They are just always trying to save money by doing everything themselves instead of hiring someone to do the job. And they have plenty of money, they just won't spend any of it. Anyway I hope your in-laws leave soon so you can recover from their invasion and have your house back again. I really empathize with you and all the latest downpour. By the way my dh is still working at his job and it turns out they really didn't want him to leave the company, but they did need him in Montana. So when he said he wouldn't move to Montana they rethought the whole thing. So now it looks like they are actually going to give him a promotion. We are still waiting for the details on their proposal. So I'm really hoping that everything is going to workout okay for us in the end. Love, Marisa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2001 Report Share Posted April 22, 2001 Leah, Sorry you are now sick.But thank god the relatives are gone. I have been having a very hard time because my grandmother is in the hospital, she has a kidney infection, dehydration, bed sores and is non responsive. We have been going everyday and trying to decide what is best for her. It's very hard on all of us since we were all very close to her. Yesterday she was slightly better but still basically nonresponsive. She is 101 years old and has Alzheimer's disease. So we want her to go peacefully and without pain. But if she were to become somewhat alert once the dehydration and kidney infection are better then we have to decide what to do next. Apparently she has been sleeping a lot lately and the board and care home she was in never told my parents what was really going on until the bedsores became severe. If she gets through this episode she will not be going back there. Thank goodness Brook is going back to school tommorrow. Gennie has to go back to Children's Hospital for more X-rays on Tuesday, I have a psych appt. for me on Wed. and Brook's IEP on Thursday. Plus visit Grandma in the hosp everyday. Marisa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2001 Report Share Posted April 22, 2001 In a message dated 4/22/01 4:20:12 PM Eastern Daylight Time, poggim@... writes: << Apparently she has been sleeping a lot lately and the board and care home she was in never told my parents what was really going on until the bedsores became severe. If she gets through this episode she will not be going back there. Thank goodness Brook is going back to school tommorrow. Gennie has to go back to Children's Hospital for more X-rays on Tuesday, I have a psych appt. for me on Wed. and Brook's IEP on Thursday. Plus visit Grandma in the hosp everyday. Marisa >> Marisa, Hope your week goes well. A lot of IEP's on Thursday! LOL I have heard that bed sores can happen in 3 days, don't know if that is true or not. My prayers for your Grandma and that you have a better week this week. How is Gennie doing with the cast? Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2001 Report Share Posted June 19, 2001 Hi Leah, Thrilled that Ashton's party went well! It is a really good feeling,keep that feeling with you and put the hospital incident behind you.Zeb's flipped a few times at the fairs with me over noise issues.One day it's okay and the next day forget it,we keep him home now. The majority of people are ignorant esp. the older population,they just don't understand.My mother-in-law keeps asking me when I am going to send Zeb away,stupid! I just ignore the negative crap and get on with it.I am sending you the IEP magic!! I just happened to be lucky this year.Ct. finally settled this PJ case that has been in litagation for 10 yrs. and will improve school conditions in this state for every child with MR,the timing was right.Thanks to many other parents from this state for paving the way.I am fortunate to be on ARC board,it gives me some leverage with the schol district. Take Care Charlyne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2001 Report Share Posted June 23, 2001 Hi , I know that route , but of course I'm pretty sure alot has changed since I've been there. loved his pool , had fun . He surprised me again by helping out, making up the bed and actually sat at the table to have breakfast , on his own . Normally, he likes to sit in front of the TV . Still working on that toilet training , though . I really wanted him trained by this summer . I know its the beg. of summer , I shall just to have patience . I guess I should be thank- ful that he is getting some sleep and we're actually able to go out with and enjoy our outings . Maybe you could e-mail the camp visuals of Ashton . I'm not a computer wiz , it wouldn't hurt to ck. them out . I'm waiting on my friend to give me an update scoop of her (DS) son , he went for a week to camp . I shall see, if I'm ready to send to camp or not , but it won't happen until next year . Bet, Ashton is having a blast , sounds like alot of fun . We could all use it after we've delt with the schools . Take Care . Irma -- In @y..., " leah leah " <okieleah@h...> wrote: > irma, > the end up my street backs to quantico marine base. i go to the commissary > there and we to Lunga park to feed the ducks and ride in the rowboats. to > drive there it takes about ten minutes because we don't connect by roads, > only a big treeline which is a great place for catching lightning bugs:-) > that is great steven cooperated to go all those places, especially in the > heat.......i think as an adult i would have melted down after the first two > places.. we lived in texas until i was 8 and i remember vividly the > hothothot sticky humid weather..... all was worth it for him i am sure > since now he has a pool to float in... heheh > i do have some camp visuals i made last year, when ashton went to camp > notsogood easter seals... she is not going back there, so we don't look at > them, but if you want them i can fax, email, or snail mail them to you.. > just let me know... ashton is staying close to home this summer... i started > a social swimming group that is meeting twice a week at my house for > swimming and fun...that keeps us busy enough with baseball and > stuff........take care and leave your air conditioner on......lmao take > careleah > > > > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2001 Report Share Posted June 23, 2001 Hi , I know that route , but of course I'm pretty sure alot has changed since I've been there. loved his pool , had fun . He surprised me again by helping out, making up the bed and actually sat at the table to have breakfast , on his own . Normally, he likes to sit in front of the TV . Still working on that toilet training , though . I really wanted him trained by this summer . I know its the beg. of summer , I shall just to have patience . I guess I should be thank- ful that he is getting some sleep and we're actually able to go out with and enjoy our outings . Maybe you could e-mail the camp visuals of Ashton . I'm not a computer wiz , it wouldn't hurt to ck. them out . I'm waiting on my friend to give me an update scoop of her (DS) son , he went for a week to camp . I shall see, if I'm ready to send to camp or not , but it won't happen until next year . Bet, Ashton is having a blast , sounds like alot of fun . We could all use it after we've delt with the schools . Take Care . Irma -- In @y..., " leah leah " <okieleah@h...> wrote: > irma, > the end up my street backs to quantico marine base. i go to the commissary > there and we to Lunga park to feed the ducks and ride in the rowboats. to > drive there it takes about ten minutes because we don't connect by roads, > only a big treeline which is a great place for catching lightning bugs:-) > that is great steven cooperated to go all those places, especially in the > heat.......i think as an adult i would have melted down after the first two > places.. we lived in texas until i was 8 and i remember vividly the > hothothot sticky humid weather..... all was worth it for him i am sure > since now he has a pool to float in... heheh > i do have some camp visuals i made last year, when ashton went to camp > notsogood easter seals... she is not going back there, so we don't look at > them, but if you want them i can fax, email, or snail mail them to you.. > just let me know... ashton is staying close to home this summer... i started > a social swimming group that is meeting twice a week at my house for > swimming and fun...that keeps us busy enough with baseball and > stuff........take care and leave your air conditioner on......lmao take > careleah > > > > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2001 Report Share Posted June 29, 2001 Leah , I guess our prayers were answered on the Houston mom , it was just a rumor . Thank God ! Time is getting near on the ndss conference and I know I have not replied . I guess by now you know it won't happen , THIS TIME ! I know you love conferences so if it ever happens again . I know who to invite for far away trips . Sorry , though . My husband is off to work, so by the time he gets back from his trip . I know I could go out your way , too . Keep me posted on events your way . Take Care . Irma , 12,DS/ASD . > > _________________________________________________________________ > > Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2001 Report Share Posted July 7, 2001 In a message dated 7/7/01 3:51:28 PM Pacific Daylight Time, pastmidvale@... writes: << Elie comes home from camp tomorrow - a big 16 you (birthday was yesterday). They never called even once the whole week!! Life is good. AND YOURS WILL GET BETTER TOO. Sara >> Happy Birthday to Elie!!!!!!! Happy life to Sara! LOL My daughter leaves for music camp tomorrow and I am in tears tonight, but think maybe I will enjoy the week after a couple of days. LOL Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2001 Report Share Posted July 7, 2001 In a message dated 7/7/2001 9:12:08 PM EST, smilinggail@... writes: << I am in tears tonight, but think maybe I will enjoy the week after a couple of days. LOL >> I remember that so well. The first time he went to outdoor school and then camp later that summer. I was a recent widow and he had never been away from me more than overnight one night at a time. The second time he left I went to the beach alone just so I didn't have to be in my house or my office where he spent a lot of time normally. Peggy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2001 Report Share Posted July 7, 2001 In a message dated 7/7/01 8:00:57 PM Pacific Daylight Time, Strider3@... writes: << Y'all keep my half brother in your prayers. He'll be 35 in few months, and he had gallblader surgery yesterday. >> Prayers . Hope everything turns out fine for him. Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2001 Report Share Posted July 7, 2001 Happy B-day to whoever it was. I hope that you had a good birthday and that your wishes come true. I hope that you have a good b-day again. Y'all keep my half brother in your prayers. He'll be 35 in few months, and he had gallblader surgery yesterday. --- smilinggail@... wrote: > In a message dated 7/7/01 3:51:28 PM Pacific > Daylight Time, > pastmidvale@... writes: > > << Elie comes home from camp tomorrow - a big 16 you > (birthday was > yesterday). > They never called even once the whole week!! Life > is good. > > AND YOURS WILL GET BETTER TOO. > > Sara >> > > Happy Birthday to Elie!!!!!!! Happy life to Sara! > LOL My daughter leaves > for music camp tomorrow and I am in tears tonight, > but think maybe I will > enjoy the week after a couple of days. LOL > Gail > > -------------------------------------------------- > Checkout our homepage for information, > bookmarks, and photos of our kids. Share favorite > bookmarks, ideas, and other information by including > them. Don't forget, messages are a permanent record > of the archives for our list. > > -------------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2001 Report Share Posted August 7, 2001 Leah, Interesting on the stuff you made as a guide for the autistic class . Your welcome to share it , this would be nice . I'm glad the magnetic spray on the wall has helped Ashton . Hmm , I guess I will look into it . Nah , I will not be a Martha , either . I'll add this to my husband's To Do List . I know he would not mind . Sounds like it was put to good use . Never heard about the chalkboard spray . I guess , I missed that post . First , I'll take my baby steps starting off . slept at 2:00 AM , again . I hope, I could get him off to let go of the summer mode and put him on the right track . Time to transition to school . I have contacted the Autism Treatment Ctr. , hope to hear from them and see if our health Ins. is accepted . I just want to rule out if there's any medical problems . Ok , I'll be glad to read any ideas , from getting up to bedtime . My so-called brain is running on low at this time . Thank You, for refueling with info . Irma , 13,DS/ASD. > > irma, > sounds like your ready to mark,set, and go full speed ahead with the > schedule/daily planner..... i have used the magnetic paint and i love > it....i painted it low to the floor so ashton can lay down in prone position > and do her abcs, spell her name, etc...i did the same with chalkboard > paint....doesnt look reallly pretty.....but who cares, since when do i care > what people think about my walls..... ((((((( martha stewart is > crinching)))))))) ;-)what kind of ideas do you need...i just made some stuff > for a " model' autistic class for the teachers to use as a guide.... i would > be more than happy to help ya brainstorm.....tc leah > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.