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YOU GO GIRL!!! HEHEH i pulled that " bug " before... i knew at ashton's old

school they werent following her iep.........so i asked them to give me

weekly reports on her iep goals.......... thought the teacher was gonna

die.......lmao but it worked......hang in there and give em h-ll///////////

leah

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no havent seen that nancy!!! i know what you mean by pricey......... i have

spent more money on ashton's little butt in the past two days..... had to

order sarah rosenfield-johnsons stuff for home speech program, ot suggested

to have a ball pit, well i refuse to pay 70-80 bucks for that blowup thing

that the dog would destroy in one chew.....so i went to wally world and

bought a kids camp-tent and bought the balls at toyrus on sale for 9.99 and

made my own......much more roomier as she is a big girl and if she gets to

wild i can put her outside.....lmao she would have shelter.......just

kidding, maybe i will be outside in the tent...... so now i have a swimming

pool with sand in the basement for sensory, a tire swing hanging in garage,

rice in the tub downstairs, and brushes galore,,,,,,,,i am sensoried

out.......and i swear if this doesnt work, your gonna find me swinging on the

tire swing in the garage......lmao is this book available on

line..........good luck at meetings too..........

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Leah,

This post was so funny. It sounds just like my house! I have giant sized

tubs stacked to the ceiling full of sensory things. :-) Not to mention a

hanging swing, sand tub, surgical brushes all over, weighted vests, bottles

of different scents, " wrapping " blanket and vibrating toys. I must say, since

we started bombarding Seth with all this sensory stuff, he has improved a

lot! Sure hope you have as good of luck with it as we have. And with the

IEP.

Gail

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Leah,

Forgot to tell you I love your idea with the ball pit. Seth would bite a

hole in one of those cheap blow-up things in a minute. Boy, where there's a

will there's a way!

Gail

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Leah,

has a book on Getting the right services for an autistic kids. Have

you seen it? His materials are quite pricey. But I ordered it with

instructions that I needed it before April 28 when the boys IEP is.

& Garry, parents of (9), (8), JJ (6), (5), and

Esther (3). All adopted & with Down Syndrome.

----------

>From: okieleah@...

>egroups

>Subject: Re: Leah

>Date: Sat, Apr 15, 2000, 9:14 PM

>

>YOU GO GIRL!!! HEHEH i pulled that " bug " before... i knew at ashton's old

>school they werent following her iep.........so i asked them to give me

>weekly reports on her iep goals.......... thought the teacher was gonna

>die.......lmao but it worked......hang in there and give em h-ll///////////

>leah

>

>------------------------------------------------------------------------

>Get paid for the stuff you know!

>Get answers for the stuff you donít. And get $10 to spend on the site!

>1/2200/6/_/691668/_/955862082/

>------------------------------------------------------------------------

>

>

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gail, what is a wrapping blanket??? scented oils, weighted vest, one could

get a little creative in their thinking....lmao my hubby would be

happy!!!!!!!!!!! not for me.....heheh what do you do with the vest.....we

havent officially seen a ot who specializes in sensory intergration....i

talked to one on phone who grannie works with....... but i am open to ideas

and suggestions....anyone know of a good one in the dc, va, md, penn

area........i will travel far and wide for the canned good stacking

queen......lmao lmao leah

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gail., another question, is there a particular place you order these things

from .....walmart has limited things to do with sensory........ is there an

online catalog or certain company that specializes........... thanks leah

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you got it gail, i thought the same thing with ashton....what if shes mad and

tries to bite....she never has bitten but there's always room in the

future......... lmao the way shes been going lately who knows...did the

sensory stuff help with the behavior's at all and the attention span

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Leah,

LoL !!!!! scented oils are any kind of scent...garlic...banana..clove.. and

we put them in film holders (those little canisters) and we have a smelling

party! A wrapping blanket is any material that you literally " roll " the kid

up in good and tight and leave them there! Seth loves this and usually falls

right to sleep. When Seth wears the weighted vest, we put it on him and keep

him active for about 20 minutes. Then we take it off and he is so calm! We

can get a lot done in these short spurts of calmness.:-) Seth vest is just

cotton material with velcro pockets filled with socks with beans in them. We

rubberband the socks closed and stick them in the pockets and velcro shut.

This way we can add or subtract the weight as needed very easily.

I am having a ball with all this stuff! Trying to come up with stuff is a

challenge, but fun! Well, we are off to Syracuse...Hope I can catch up on

all the posts when I get home...I'm gonna miss this a lot!

Gail

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Leah,

All my stuff is homemade. I buy plastic shoe boxes, with even covers, and

cut holes to hold film canisters. I stick the canisters in the holes and put

all kinds of stuff in them. I also use the same thing for his " task jobs. "

We fill with cotton balls, gummie worms, sand paper and all kids of texture

things to push in..take out..even at 2 step things where he has to take to

things apart and put in matching holes. I have made some of these for

therapists that have asked, and for his teacher who wanted some for kids not

in her class. They cost about $2 to make , but to buy from a catalog, they

are like $400 for a set of 12 ! Yes, Leah, it does help with Seth's behavior

problems. That's why we started it. We had a behavioral therapist come in

for a few months, but to no avail. This works good for Seth, but we know

that kids are all so different.

Gail

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gail lolol whos has the smelling party????? you and dh or you and

seth?????lmao just teasing....i need some humor.......i have tons of those

film things......... i will do that....... have to find some shes not

allergic too......... lmao have fun in sy racuse, if possible......leah

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well so far today ashton has been gung ho sensory.....it was a beautifiul

day, so i filled a rubbermaid container with colored water(food coloring)

adn baby oil.......she slid around like a greasy monkey....but she had fun

pouring and filling......she was in her tent for about two hours, makes me

nervous, i keep checking, she was just standing on her head licking the

balls, sitting and rolling.....lmao this is all so new, my dh is having a

harder time, hes a clean orderly freak, and i am comfy cluttered.....hehehe

but so far hes okay.......... he had probs with her naked on the kitchen

floor rolling in shaving cream on old plastic tablecloth.....heheheh but she

loves it......give him time........ wait until he goes away next month....i

am going to be doing some neat stuff.//////hehe take care and thanks fo

rsharing........keep forwarding all idea..........hehe we should go into

business together.......heehh elah

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We used shaving creme in the bathtub. But fingerpaints are great - can be made

by mixing flour, water and babyoil with food coloring - again in the bathtub.

We also did the Jello stuff in the bathtub, but I HATE the smell of jello, let

alone making HUGE amounts of it for the bathtub!!!

Just color me GREEN.

Sara

>>> okieleah@... - 04/16/0 6:40 PM >>>

well so far today ashton has been gung ho sensory.....it was a beautifiul

day, so i filled a rubbermaid container with colored water(food coloring)

adn baby oil.......she slid around like a greasy monkey....but she had fun

pouring and filling......she was in her tent for about two hours, makes me

nervous, i keep checking, she was just standing on her head licking the

balls, sitting and rolling.....lmao this is all so new, my dh is having a

harder time, hes a clean orderly freak, and i am comfy cluttered.....hehehe

but so far hes okay.......... he had probs with her naked on the kitchen

floor rolling in shaving cream on old plastic tablecloth.....heheheh but she

loves it......give him time........ wait until he goes away next month....i

am going to be doing some neat stuff.//////hehe take care and thanks fo

rsharing........keep forwarding all idea..........hehe we should go into

business together.......heehh elah

------------------------------------------------------------------------

Get paid for the stuff you know!

Get answers for the stuff you don't. And get $10 to spend on the site!

1/2200/6/_/691668/_/955924829/

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Leah,

We all have fun with the smelling party! LOL Seth survived surgery and is

on the mend. He is off the respirator now but I had to insist that he be

restrained. He stayed up for 3 days and nights trying to dig his first tooth

out, so I can only imagine how bad he will be when he comes to. Hope all

goes well with your sensory adventure! I sure miss reading all the posts. I

will have much to catch up on next week.

Gail

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gail, i hope seth is getting better and adjusts without to much turmoil when

he comes to, too!!!! hang in there, just think when you get to the puter you

will have lots to read......ie:sara's new idea with old brushes??????/ leah

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  • 9 months later...

Oh Leah...my thoughts and prayers are with you! Waiting truly sucks!! I

feel for you...any chance you can sort of " sleep " the time away between now

and morning? Hang in there...and let us know what you find out as soon as

you can! Hopefully it's just a stubborn bug and they can give him one of

those new superbug antibiotics! :)

I'll be thinking about ya!

Terry

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  • 4 weeks later...

In a message dated 2/20/01 8:01:16 PM Pacific Standard Time,

writes:

> . cameron's ekg showed his heart to be

> >

Leah, so what does this abnormal mean?? I have been worried sick about you

even though I'm having to deal with my own mess over here.

Please keep us posted...boy, God is sure busy these days...He's gonna have to

put us on callwaiting......

Prayers going out as usual,

Love,

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  • 2 weeks later...
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In a message dated 3/1/01 1:57:44 PM Pacific Standard Time,

writes:

> Leah, I am so sorry. Please keep us updated with regard to Cameron. I hope

> Ashton is feeling better and you, too! We will definitely keep your family

> in our prayers!

> Terry

>

>

>

DITTO from me too , Leah! We are all having a horrible year so

far......prayers being said right now.....hang in there.....wish I could be

there with ya, although you wouldn't want my wild man around right

now....hehe.....

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  • 2 weeks later...
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Leah,

I'll be thinking of you and hope everything goes well for Cameron with

the surgery tomorrow. Staying calm is good!! Maybe keeping busy will help to

keep you that way. You have to watch for the let down though. In your case

maybe there won't be a letdown with all you have going on. Poor Baby! I'm

glad you had such a great weekend.

Marisa

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In a message dated 3/13/01 4:54:32 PM Eastern Standard Time,

okieleah@... writes:

<<

so i am off to pack up cameron for the long haul and to drink a bottle of

wine.....take care all, leag >>

Oh Boy....Good luck Leah!!! I'm so happy you had a fun weekend!!! Please

keep us posted. I am leaving for DW in the early am., but hopefully will be

able to check in with my laptop.

{{{{{{{{{{{{{{{hugs}}}}}}}}}}}}}}}}

Donna

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marisa and everyone,

my life is upside down... i feel like i have no control yet amazingly am

keeping somewhat calm.....i had a great weekend....my mom flew in saturday

and my younger sister, Summer flew in on friday and surprised me...i havent

seen her in ten years, so BIG surprise.....my mom, summer and me went to

holocaust museum, white house and space mus on saturday, then picke dashton

up and went out to eat....then dropped mom and ashton off and me and summer

went to see the mexican with brad pitt.....i laughed and drooled.....hehehe

my mother in law flew in on monday and i spent four hours in a one hour trip

normally going to bwi......got home at midnight and drove two hours in

traffic to walter reed and was there by 6am.... cameron is having surgery

tomorrow and will be there for two or three days..............

my mom misunderstood ashtons meds and gave her 300mg of seroquel instead of

100 last night, so she was q uite comotose this am they said....lmao her

teacher is gone and so today she hit the new teacher twice and was very

cranky.....having said that she is also in new environment with her good old

teacher gone.....heheheh so i am just not putting blame on anyone just yet

but i am getting ready for due process just in case...

as for my sister summer, she is my sperm donors and the woman my spermdonor

had an affar with when married to my mom...... but she is a great person and

didnt turn out at all like them.......she wants to move to va and go to

school and is thinking of living with us in the downstairs//////////PLEASE

PRAY SHE MOVES IN SIOON.....HEHEHEHEHEH

so i am off to pack up cameron for the long haul and to drink a bottle of

wine.....take care all, leag

>From: poggim@...

>Reply-

>

>Subject: Re: Re: Leah

>Date: Tue, 13 Mar 2001 14:43:19 EST

>

>Leah,

> It's time for an update on Ashton and Cameron. How are you guys all

>doing?

>Marisa

>

>

>

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In a message dated 3/13/01 4:53:59 PM Eastern Standard Time,

okieleah@... writes:

<< cameron is having surgery

tomorrow and will be there for two or three days............. >>

Leah,

Lots of prayers for Cam too. Glad you got to enjoy a little time with your

Mom and sister before his surgery. Let us know how things went as soon as

you can?

Gail

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