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I got curious and looked up to see if I was only going on old memory.

This is a link I found on Care Place where welcomed everyone to CarePlace. If you haven't ever read about him, he is quite interesting. He used to post here every once in a while as it seemed like the achalasia group was one of the most active. He says he started with 600 groups, some took off and some didn't, all orphan/rare diseases. Perhaps if you can figure out CarePlace you can find a list of the groups. I remember seeing the list when his website went to TransGlogal something. Now it seems to link over to Care Place.

Not sure what seems difficult about CarePlace, it has pictures and links and all sorts of nice things, but seems like almost too much and can't figure out the order of messages.

http://www.careplace.com/group/662#forum-thread-2364

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