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Wow you all hava a lot on your plate. I hope thing will get better for you all soon adn the gets some relief and a new low stress job very soon. Thanks for the update. in Georgialet45ride <brendacoyle@...> wrote: To those of you who follow my posts about (my hubby withDES), I wanted to let you know that he was officially fired from hisjob just over a week ago for missing time with severe spasms :( . Insome ways this is a blessing

since we felt the stress of his work wasmaking the DES worse, but it's also depressing for him and scarey forme (I worry about our finances). We talked to some attorneys one day last week about his case. Onewas supposed to be the best in our area for employment issues. Shesaid that he doesn't have a case against his company for wrongfultermination (firing him because he's sick). The psychologist that has been seeing told him that he would definitely have a caseagainst his company for worker's comp, though. He said that he hasdocumentation that the stress from his job caused his DES to getworse, to the point that he couldn't work (not very often, anyway). We'll have to mention this to his local GI doc, too, to see if heagrees that the stress may have caused his condition to worsen. Wediscussed this with another attorney (who deals with those issues). He said that cases that involve stress-related illness are hard

toprove. He said that it would probably take 18 mos. for a lawsuit togo through and 18-20 mos. for a Social Security Disability claim (ifhe chose to file for that). He said that in order for to getUnemployment payments, he would have to get a letter from a doctorsaying that he is fit for work, BUT if he did that it would hurt alawsuit for workers' comp. or a disability claim. He advised that wewait 6 weeeks and see how is feeling to determine if he couldjust look for another job at that point. saw his internist last week who reluctantly gave him Valiumto take for the next month (it was his psychologist's idea) and alsoPaxil. He had told the psychologist that he kept replaying his workproblems in his mind. It was definitely keeping him awake at night,too. I hate to see him spaced out on the Valium, but I'm hopingbetween the 2 drugs, it will help him through a tough time. In themeantime, we

wait to see if things will improve enough for him to workagain or if we have to pursue the lawsuit or disability claim. I will try to keep you all updated on the legal issues as it mayapply to someone with A who is unable to work, as well, although thelaws may vary state to state and certainly in other countries. Takecare, everyone! in Michiganwife of with DES (one of the "other E motility disorders")<FONT face="comic sans ms" color=#ff0000 size=5> in Georgia </FONT><IMG src=" 04.gif">

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Im so sorry things are not going well at the moment for you, hope

things improve for you soon.

Pippa

> To those of you who follow my posts about (my

hubby with

> DES), I wanted to let you know that he was officially fired from

his

> job just over a week ago for missing time with severe spasms :( .

In

> some ways this is a blessing since we felt the stress of his work

was

> making the DES worse, but it's also depressing for him and scarey

for

> me (I worry about our finances).

> We talked to some attorneys one day last week about his case. One

> was supposed to be the best in our area for employment issues. She

> said that he doesn't have a case against his company for wrongful

> termination (firing him because he's sick). The psychologist that

> has been seeing told him that he would definitely have a case

> against his company for worker's comp, though. He said that he has

> documentation that the stress from his job caused his DES to get

> worse, to the point that he couldn't work (not very often,

anyway).

> We'll have to mention this to his local GI doc, too, to see if he

> agrees that the stress may have caused his condition to worsen. We

> discussed this with another attorney (who deals with those

issues).

> He said that cases that involve stress-related illness are hard to

> prove. He said that it would probably take 18 mos. for a lawsuit to

> go through and 18-20 mos. for a Social Security Disability claim

(if

> he chose to file for that). He said that in order for to get

> Unemployment payments, he would have to get a letter from a doctor

> saying that he is fit for work, BUT if he did that it would hurt a

> lawsuit for workers' comp. or a disability claim. He advised that

we

> wait 6 weeeks and see how is feeling to determine if he could

> just look for another job at that point.

> saw his internist last week who reluctantly gave him Valium

> to take for the next month (it was his psychologist's idea) and

also

> Paxil. He had told the psychologist that he kept replaying his work

> problems in his mind. It was definitely keeping him awake at night,

> too. I hate to see him spaced out on the Valium, but I'm hoping

> between the 2 drugs, it will help him through a tough time. In the

> meantime, we wait to see if things will improve enough for him to

work

> again or if we have to pursue the lawsuit or disability claim.

> I will try to keep you all updated on the legal issues as it may

> apply to someone with A who is unable to work, as well, although

the

> laws may vary state to state and certainly in other countries. Take

> care, everyone!

>

> in Michigan

> wife of with DES (one of the " other E motility disorders " )

>

>

>

>

>

>

> <FONT face= " comic sans ms " color=#ff0000 size=5> in Georgia

</FONT><IMG

src= " http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/04.gif " >

>

> ---------------------------------

> Stay in the know. Pulse on the new .com. Check it out.

>

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Dear , I can't help thinking that this is such a heartless move from 's employers. Don't you just want to look them in the face and say "There but for the grace of god go you" ?????? It will be interesting to see if improves away from this job which has been such a source of stress to him. I still think it is very likely that this has contirbuted a great deal towards his problems. It would be wonderful, really wonderful, if some good came out of this and he saw a good improvement. The anger and distress now would all be worth it. Let us hope. GOOD LUCK TO YOU BOTH. With love as always from Ann in England XXXlet45ride <brendacoyle@...> wrote: To those of you who follow my posts about (my hubby withDES), I wanted to let you know that he was officially fired from hisjob just over a week ago for missing time with severe spasms :( . Insome ways this is a blessing since we felt the stress of his work wasmaking the DES worse, but it's also depressing for him and scarey forme (I worry about our finances). We talked to some

attorneys one day last week about his case. Onewas supposed to be the best in our area for employment issues. Shesaid that he doesn't have a case against his company for wrongfultermination (firing him because he's sick). The psychologist that has been seeing told him that he would definitely have a caseagainst his company for worker's comp, though. He said that he hasdocumentation that the stress from his job caused his DES to getworse, to the point that he couldn't work (not very often, anyway). We'll have to mention this to his local GI doc, too, to see if heagrees that the stress may have caused his condition to worsen. Wediscussed this with another attorney (who deals with those issues). He said that cases that involve stress-related illness are hard toprove. He said that it would probably take 18 mos. for a lawsuit togo through and 18-20 mos. for a Social Security Disability claim (ifhe chose to file for

that). He said that in order for to getUnemployment payments, he would have to get a letter from a doctorsaying that he is fit for work, BUT if he did that it would hurt alawsuit for workers' comp. or a disability claim. He advised that wewait 6 weeeks and see how is feeling to determine if he couldjust look for another job at that point. saw his internist last week who reluctantly gave him Valiumto take for the next month (it was his psychologist's idea) and alsoPaxil. He had told the psychologist that he kept replaying his workproblems in his mind. It was definitely keeping him awake at night,too. I hate to see him spaced out on the Valium, but I'm hopingbetween the 2 drugs, it will help him through a tough time. In themeantime, we wait to see if things will improve enough for him to workagain or if we have to pursue the lawsuit or disability claim. I will try to keep you all updated on the

legal issues as it mayapply to someone with A who is unable to work, as well, although thelaws may vary state to state and certainly in other countries. Takecare, everyone! in Michiganwife of with DES (one of the "other E motility disorders")

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Ann, , and Pippa,

Thank you all for your kind words! It's helped give me some hope

that maybe we can handle what comes along and that things will get better.

Ann, you wrote: " I can't help thinking that this is such a

heartless move from 's employers. Don't you just want to look

them in the face and say " There but for the grace of god go you "

?????? " You got it right, that's exactly how we've felt! At one

point, when still worked there, and I knew he wouldn't want me

to confront his supervisors directly, I had a letter composed in my

mind to explain what DES is and say just what you wrote! It never

made it to paper, though. Heaven forbid one of THEM or their families

members developed DES or A! I think they would've approached the

situation with MUCH differently then. Thanks for helping me

vent the anger!

in Michigan

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,

I don’t think most people understand the effects of these

kind of disorders. You know why? Because they don’t have to

deal with it. Sometimes people can be so heartless when it comes to

medical problems, they eventually act like you created it, or its something you

did, that has been my experience so far.

C Warren

Co-Founder

www.achalasia.us

From:

achalasia [mailto:achalasia ] On Behalf Of let45ride

Sent: Tuesday, September 19, 2006 8:28 AM

achalasia

Subject: Re: Work Woes Update

Ann, , and Pippa,

Thank you all for your kind words! It's helped give me some hope

that maybe we can handle what comes along and that things will get better.

Ann, you wrote: " I can't help thinking that this is such a

heartless move from 's employers. Don't you just want to look

them in the face and say " There but for the grace of god go you "

?????? " You got it right, that's exactly how we've felt! At one

point, when still worked there, and I knew he wouldn't want me

to confront his supervisors directly, I had a letter composed in my

mind to explain what DES is and say just what you wrote! It never

made it to paper, though. Heaven forbid one of THEM or their families

members developed DES or A! I think they would've approached the

situation with MUCH differently then. Thanks for helping me

vent the anger!

in Michigan

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Thats what we are here for aren't we guys we share our good news bad

news and laughter and tears after all thats what families are

for.

You take care

Love Pippa (Over here in the UK)

" I can't help thinking that this is such a

> heartless move from 's employers. Don't you just want to look

> them in the face and say " There but for the grace of god go you "

> ?????? " You got it right, that's exactly how we've felt! At one

> point, when still worked there, and I knew he wouldn't want

me

> to confront his supervisors directly, I had a letter composed in my

> mind to explain what DES is and say just what you wrote! It never

> made it to paper, though. Heaven forbid one of THEM or their

families

> members developed DES or A! I think they would've approached the

> situation with MUCH differently then. Thanks for helping me

> vent the anger!

>

> in Michigan

>

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Yeah , you go girl !!! Let's all have a jolly good rant, vent, moan, shout - about people who don't try to understand. I had to stand my ground with my last boss who could not understand why I could not work for 5 hours straight through (pre-myotomy) without anything to eat or drink. I did not give up the fight and won my corner, but not everyone had the stamina or the assertiveness to do that. I KNOW that bosses have their profts to make, their targets to keep, but for goodness sake they have real people working for them, not b........y robots !!!!! Warren <juliecwarren@...> wrote: , I don’t think most people understand the effects of these kind of disorders. You know why? Because they don’t have to deal with it. Sometimes people can be so heartless when it comes to medical problems, they eventually act like you created it, or its something you did, that has been my experience so far. C

Warren Co-Founder www.achalasia.us From: achalasia [mailto:achalasia ] On Behalf Of let45rideSent: Tuesday, September 19, 2006 8:28 AMachalasia Subject: Re: Work Woes Update Ann, , and Pippa,Thank you all for your kind words! It's

helped give me some hopethat maybe we can handle what comes along and that things will get better.Ann, you wrote: "I can't help thinking that this is such aheartless move from 's employers. Don't you just want to lookthem in the face and say "There but for the grace of god go you"??????" You got it right, that's exactly how we've felt! At onepoint, when still worked there, and I knew he wouldn't want meto confront his supervisors directly, I had a letter composed in mymind to explain what DES is and say just what you wrote! It nevermade it to paper, though. Heaven forbid one of THEM or their familiesmembers developed DES or A! I think they would've approached thesituation with MUCH differently then. Thanks for helping mevent the anger! in Michigan

All new "The new Interface is stunning in its simplicity and ease of use." - PC Magazine

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Ann

I think in time it’s a lesson that everyone learns.

That people are just that, PEOPLE!!! We all have problems we all have

issues, and while we are not asking them to hold our hands, just to understand

at times, just as we will when they need it!!!

C Warren

Co-Founder

www.achalasia.us

From: achalasia

[mailto:achalasia ] On Behalf Of Ann Higgs

Sent: Tuesday, September 19, 2006 9:50 AM

achalasia

Subject: RE: Re: Work Woes Update

Yeah , you go girl !!!

Let's all have a jolly good

rant, vent, moan, shout - about people who don't try to understand.

I had to stand my ground with my

last boss who could not understand why I could not work for 5 hours straight

through (pre-myotomy) without anything to eat or drink. I did not give

up the fight and won my corner, but not everyone had the stamina or the

assertiveness to do that.

I KNOW that bosses have their

profts to make, their targets to keep, but for goodness sake they have real

people working for them, not b........y robots !!!!!

Warren <juliecwarren@...> wrote:

,

I don’t

think most people understand the effects of these kind of disorders. You

know why? Because they don’t have to deal with it. Sometimes

people can be so heartless when it comes to medical problems, they eventually

act like you created it, or its something you did, that has been my experience

so far.

C Warren

Co-Founder

www.achalasia.us

From: achalasia [mailto:achalasia ]

On Behalf Of let45ride

Sent: Tuesday, September 19, 2006 8:28 AM

achalasia

Subject: Re: Work Woes Update

Ann, , and Pippa,

Thank you all for your kind words! It's helped give me some hope

that maybe we can handle what comes along and that things will get better.

Ann, you wrote: " I can't help thinking that this is such a

heartless move from 's employers. Don't you just want to look

them in the face and say " There but for the grace of god go you "

?????? " You got it right, that's exactly how we've felt! At one

point, when still worked there, and I knew he wouldn't want me

to confront his supervisors directly, I had a letter composed in my

mind to explain what DES is and say just what you wrote! It never

made it to paper, though. Heaven forbid one of THEM or their families

members developed DES or A! I think they would've approached the

situation with MUCH differently then. Thanks for helping me

vent the anger!

in Michigan

All

new " The new Interface is stunning in its simplicity and

ease of use. " - PC Magazine

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Ann///Pippa ,

Yes..you all are right..

but unfortunately, nobody understand this unless they themselves or their

family members have gone through this..

I am a boss of my company, and let me confess that I was exactly the same..not

understanding such difficulties of people..

But, now I understand it....bcoz my son is going through this..

I felt nice to confess this...

Mukesh

Re: Work Woes Update

Ann, , and Pippa,

Thank you all for your kind words! It's helped give me some hope

that maybe we can handle what comes along and that things will get better.

Ann, you wrote: " I can't help thinking that this is such a

heartless move from 's employers. Don't you just want to look

them in the face and say " There but for the grace of god go you "

?????? " You got it right, that's exactly how we've felt! At one

point, when still worked there, and I knew he wouldn't want me

to confront his supervisors directly, I had a letter composed in my

mind to explain what DES is and say just what you wrote! It never

made it to paper, though. Heaven forbid one of THEM or their families

members developed DES or A! I think they would've approached the

situation with MUCH differently then. Thanks for helping me

vent the anger!

in Michigan

---------------------------------

All new " The new Interface is stunning in its simplicity and ease

of use. " - PC Magazine

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Share on other sites

I don't know who wrote this part: 'I KNOW that bosses have their profts to make, their targets to keep, but for goodness sake they have real people working for them, not b........y robots !!!!!'But it certainly rings true in my case, I feel pressure because I am off work and people emailing me asking if I am coming back, stuff like that, it just makes my anxiety worse, I just want to get better. Unfortunately, most companies treat us like a number. le Warren <juliecwarren@...> wrote: Ann I think in time it’s a lesson that everyone learns. That people are just that, PEOPLE!!! We all have problems we all have issues, and while we are not asking them to hold our hands, just to understand at times, just as we will when they need it!!! C Warren Co-Founder www.achalasia.us From: achalasia [mailto:achalasia ] On Behalf Of Ann HiggsSent: Tuesday, September 19, 2006 9:50 AMachalasia Subject: RE: Re: Work Woes Update Yeah , you go girl !!! Let's all have a jolly good rant, vent, moan, shout - about people who don't try to understand. I had to stand my ground with my last boss who could not understand why I could not work for 5 hours straight through (pre-myotomy) without anything to eat or drink. I did not give up the fight and won my corner, but not everyone had the stamina or the assertiveness to do that. I KNOW that bosses have their profts to make, their targets to keep, but for goodness sake they have real people working for them, not b........y robots !!!!! Warren <juliecwarrencomcast (DOT) net> wrote: , I don’t think most people

understand the effects of these kind of disorders. You know why? Because they don’t have to deal with it. Sometimes people can be so heartless when it comes to medical problems, they eventually act like you created it, or its something you did, that has been my experience so far. C Warren Co-Founder www.achalasia.us From: achalasia [mailto:achalasia ] On Behalf Of let45rideSent: Tuesday,

September 19, 2006 8:28 AMachalasia Subject: Re: Work Woes Update Ann, , and Pippa,Thank you all for your kind words! It's helped give me some hopethat maybe we can handle what comes along and that things will get better.Ann, you wrote: "I can't help thinking that this is such aheartless move from 's employers. Don't you just want to lookthem in the face and say "There but for the grace of god go you"??????" You got it right, that's exactly how we've felt! At onepoint, when still worked there, and I knew he wouldn't want meto confront his supervisors directly, I had a letter composed in mymind to explain what DES is and say just what you wrote! It nevermade it to paper, though. Heaven forbid one of THEM or their

familiesmembers developed DES or A! I think they would've approached thesituation with MUCH differently then. Thanks for helping mevent the anger! in Michigan All new "The new Interface is stunning in its simplicity and ease of use." - PC Magazine

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le,

That was Ann from England who wrote that and she is so right! My

husband, , felt a lot of pressure from his work, especially this

past summer and we really think the anxiety made his condition worse.

They all want to know when you're coming back to work and yet they

don't fully understand your disease. For , his foreman seemed to

be lurking about and scrutinizing his work (almost looking for a

reason to get rid of him, so they wouldn't have to deal with his

illness), which only added to his anxiety.

You are in the U.S., right? Have you checked into the Family

Medical Leave Act (FMLA)? had that for a while, which allows

you 12 weeks a year off, unpaid, if you have a documented illness

preventing you from working. took his on an intermittant basis,

when he was having his severe spasms. Good luck with your work issues!

in Michigan

P.S. I kinda like Idol, too. :)

>

> I don't know who wrote this part:

> 'I KNOW that bosses have their profts to make, their targets to

keep, but for goodness sake they have real people working for them,

not b........y robots !!!!!'

> But it certainly rings true in my case, I feel pressure because I am

off work and people emailing me asking if I am coming back, stuff like

that, it just makes my anxiety worse, I just want to get better.

> Unfortunately, most companies treat us like a number.

> le

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I know what A is. What is DES?

From: achalasia [mailto:achalasia ] On Behalf Of let45rideSent: Tuesday, September 19, 2006 5:28 AMachalasia Subject: Re: Work Woes Update

Ann, , and Pippa,Thank you all for your kind words! It's helped give me some hopethat maybe we can handle what comes along and that things will get better.Ann, you wrote: "I can't help thinking that this is such aheartless move from 's employers. Don't you just want to lookthem in the face and say "There but for the grace of god go you"??????" You got it right, that's exactly how we've felt! At onepoint, when still worked there, and I knew he wouldn't want meto confront his supervisors directly, I had a letter composed in mymind to explain what DES is and say just what you wrote! It nevermade it to paper, though. Heaven forbid one of THEM or their familiesmembers developed DES or A! I think they would've approached thesituation with MUCH differently then. Thanks for helping mevent the anger! in Michigan

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wrote:

> ... I wanted to let you know that he was officially fired from his

> job just over a week ago for missing time with severe spasms ...

>

I am sorry about what you have to go through. I hope you will not be

bitter from this, though it is understandable and natural to feel that

way. I wonder how many of us would have been better bosses or coworkers

in a situation like that. I can't say with any certainty that I would

have been. I hope the joy you get from helping others will comfort you

from the bitterness caused by those who don't.

notan

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Notan,

As always your post has given me food for thought. I wonder if I

would've done any better in a similar situation (as 's boss).

We're all human and at times too centered on ourselves to notice

another's plight (especially if we don't understand what they're

suffering from). I'll try to keep that in mind while dealing with

others and thinking of his employer.

Helping others is certainly a therapy! Over the last six years,

when my family has struggled with terrible illnesses for my mother and

now the frustration of not finding a good treatment for , I've

felt that going to work was therapy for me. While I'm working with a

dental patient, sometimes I hear some terrible things that have

happened to them or their family and it puts things in perspective for

me. Some I can actually give advice to, based on my life experiences,

and then I feel great!

Thanks for your support, Notan!

in Michigan

>

> > ... I wanted to let you know that he was officially fired from his

> > job just over a week ago for missing time with severe spasms ...

> >

>

> I am sorry about what you have to go through. I hope you will not be

> bitter from this, though it is understandable and natural to feel that

> way. I wonder how many of us would have been better bosses or coworkers

> in a situation like that. I can't say with any certainty that I would

> have been. I hope the joy you get from helping others will comfort you

> from the bitterness caused by those who don't.

>

> notan

>

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