facing E

[Guest guest]

Tonia and others, I've been on this site for a few weeks now because I've been told that my E is essentially not working at all anymore. The drs. that I've talked too really are not to "up" on their "A" so I'm in the process of finding "my" "A"

dr. My first surgery was in 1971, I was 20 tears old. My parents did most of the talking to the drs., which I now regret because I didn't even know what the disease was called until few months ago. I told drs. over the years about my surgery but they mostly looked at me like I had lost my mind, and I didn't get any satifying answers. Therefore I lived in a fog as to what to expect or do about it, and I figured things out on my own. Obviously not very well, but it did last 35 years, so I guess all in all I did ok. I haven't had anything else done since my surgery in1971 and others have had several procedures so like notan and others have said everyone is different, I admit I've been trying to find a common denominator or time line but it varies widely from person to person. This site has been a Godsend to me and I appreciate all the info. Lots of prayers to all, Jeanie

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