Re: Living with Achalasia

[Guest guest]

Kylie, welcome to the group. There are several members of this group that live in England. I was in Ireland last autumn, to bad we could have not meet up then. I know there are a few that would not have any problems talking to you either by the internet or even on the phone. I have also in the past have set up some meetings to get us together to support each other. If you are interested in something like that let me know. I am looking into having another meet-up in early July. If you have a questions feel free to ask and we will do our best to answer you. You also my call me at any time. my home phone number is 01638 533018 or 011 1638 533018 if you are calling outside of the UK.

Again welcome to the group and I hope everything is well with you and your family.

in Suffolk

In a message dated 5/16/2006 5:30:31 AM GMT Standard Time, kylie_heggarty@... writes:

Hi folks, I have just joined the group. My name is Kylie and I am a 20 year old student from Coleraine, N.Ireland. I was diagnosed with Achalasia last June, had botox injections in August and then had cardiomyotomoy in January of this year. I would love to hear from anyone who is willing to share there experiences of this illness with me. Kylie

[Guest guest]

Sorry I did not give you the full phone number for the international calls. It is

011 44 1368 533018

In a message dated 5/16/2006 5:30:31 AM GMT Standard Time, kylie_heggarty@... writes:

Hi folks, I have just joined the group. My name is Kylie and I am a 20 year old student from Coleraine, N.Ireland. I was diagnosed with Achalasia last June, had botox injections in August and then had cardiomyotomoy in January of this year. I would love to hear from anyone who is willing to share there experiences of this illness with me. Kylie

[Guest guest]

I was told I had this disease back in 1995 but I figure that I started having symptoms back in 1988. I have had dilation's, about 12 in all, botox and two surgeries. My first surgery was in 2003 and it was done laproscopic or keyhole if you like. That surgery helped a little but i continued to have problems. My second surgery was May 21 of last year. That surgery was done open. The moyotmy was extended further onto my stomach and the wrap from the first surgery was taken down and not replaced. I now have no problems eating whatever I want and can drink anything again. I do stay away from popcorn though. I do get spasms every now and then but not to bad.

I will keep you informed about any meet ups that are in the future. Or if you are ever going to be over here just let me know and I can try and meet up with you.

in Suffolk

In a message dated 5/16/2006 12:21:12 PM GMT Standard Time, kylie_heggarty@... writes:

Hi ,

Thanks for your reply. Yes I would definitely be interested in meeting up with members of the group sometime. How long have you had Achalasia for, and what treatments have you had? I had a relatively good result with the botox injections, well it got me drinking properly again and I was able to eat soups and soft food. However it only lasted for a few months. After I had my surgery, I recovered pretty quickly, and I am now able to eat most things without being sick. The only real problem would be the spasms. I found the surgery gave me an excellent result.

Kyliemuellmeris@... wrote:

Kylie, welcome to the group. There are several members of this group that live in England. I was in Ireland last autumn, to bad we could have not meet up then. I know there are a few that would not have any problems talking to you either by the internet or even on the phone. I have also in the past have set up some meetings to get us together to support each other. If you are interested in something like that let me know. I am looking into having another meet-up in early July. If you have a questions feel free to ask and we will do our best to answer you. You also my call me at any time. my home phone number is 01638 533018 or 011 1638 533018 if you are calling outside of the UK.

Again welcome to the group and I hope everything is well with you and your family.

in Suffolk

In a message dated 5/16/2006 5:30:31 AM GMT Standard Time, kylie_heggarty@... writes:

Hi folks, I have just joined the group. My name is Kylie and I am a 20 year old student from Coleraine, N.Ireland. I was diagnosed with Achalasia last June, had botox injections in August and then had cardiomyotomoy in January of this year. I would love to hear from anyone who is willing to share there experiences of this illness with me. Kylie

[Guest guest]

I would ask. That is what seemed to be causing me all my problems after my first surgery. Along with extending the myotomy the surgeon took down the wrap and did not replace it. I was put on Prilosec the day after surgery to reduce any acid reflux problems. I started taking that the day after surgery. I have not had any acid reflux issues but I do get spasms every now and then. If you would like me to call you and talk it over I would be willing to do so.

in Suffolk

In a message dated 5/16/2006 2:07:49 PM GMT Standard Time, juliemimms@... writes:

,

I’m wondering if they would try that with me first? Taking out the wrap and so forth before removal?

From: achalasia [mailto:achalasia ] On Behalf Of muellmeris@...Sent: Tuesday, May 16, 2006 8:21 AMachalasia Subject: Re: Living with Achalasia

I was told I had this disease back in 1995 but I figure that I started having symptoms back in 1988. I have had dilation's, about 12 in all, botox and two surgeries. My first surgery was in 2003 and it was done laproscopic or keyhole if you like. That surgery helped a little but i continued to have problems. My second surgery was May 21 of last year. That surgery was done open. The moyotmy was extended further onto my stomach and the wrap from the first surgery was taken down and not replaced. I now have no problems eating whatever I want and can drink anything again. I do stay away from popcorn though. I do get spasms every now and then but not to bad.

I will keep you informed about any meet ups that are in the future. Or if you are ever going to be over here just let me know and I can try and meet up with you.

in Suffolk

In a message dated 5/16/2006 12:21:12 PM GMT Standard Time, kylie_heggarty@... writes:

Hi ,

Thanks for your reply. Yes I would definitely be interested in meeting up with members of the group sometime. How long have you had Achalasia for, and what treatments have you had? I had a relatively good result with the botox injections, well it got me drinking properly again and I was able to eat soups and soft food. However it only lasted for a few months. After I had my surgery, I recovered pretty quickly, and I am now able to eat most things without being sick. The only real problem would be the spasms. I found the surgery gave me an excellent result.

Kyliemuellmeris@... wrote:

Kylie, welcome to the group. There are several members of this group that live in England. I was in Ireland last autumn, to bad we could have not meet up then. I know there are a few that would not have any problems talking to you either by the internet or even on the phone. I have also in the past have set up some meetings to get us together to support each other. If you are interested in something like that let me know. I am looking into having another meet-up in early July. If you have a questions feel free to ask and we will do our best to answer you. You also my call me at any time. my home phone number is 01638 533018 or 011 1638 533018 if you are calling outside of the UK.

Again welcome to the group and I hope everything is well with you and your family.

in Suffolk

In a message dated 5/16/2006 5:30:31 AM GMT Standard Time, kylie_heggarty@... writes:

Hi folks, I have just joined the group. My name is Kylie and I am a 20 year old student from Coleraine, N.Ireland. I was diagnosed with Achalasia last June, had botox injections in August and then had cardiomyotomoy in January of this year. I would love to hear from anyone who is willing to share there experiences of this illness with me. Kylie

[Guest guest]

Hi , Thanks for your reply. Yes I would definitely be interested in meeting up with members of the group sometime. How long have you had Achalasia for, and what treatments have you had? I had a relatively good result with the botox injections, well it got me drinking properly again and I was able to eat soups and soft food. However it only lasted for a few months. After I had my surgery, I recovered pretty quickly, and I am now able to eat most things without being sick. The only real problem would be the spasms. I found the surgery gave me an excellent result. Kyliemuellmeris@... wrote: Kylie, welcome to the group. There are several members of this group that live in England. I was in Ireland last autumn, to bad we could have not meet up then. I know there are a few that would not have any problems talking to you either by the internet or even on the phone. I have also in the past have set up some meetings to get us together to support each other. If you are interested in something like that let me know. I am looking into having another meet-up in early July. If you have a questions feel free to ask and we will do our best to answer you. You also my call me at any time. my home phone number is 01638 533018 or 011 1638 533018 if you are calling outside of the UK. Again welcome to the group and I hope everything is well with you and your family. in Suffolk In a message dated 5/16/2006 5:30:31 AM GMT Standard Time, kylie_heggarty@... writes: Hi folks, I have just joined the group. My name is Kylie and I am a 20 year old student from Coleraine, N.Ireland. I was diagnosed with Achalasia last June, had botox injections in August and then had cardiomyotomoy in January of this year. I would love to hear from anyone who is willing to share there experiences of this illness with me. Kylie

[Guest guest]

,

I’m wondering if they would try that

with me first? Taking out the wrap and so forth before removal?

From: achalasia [mailto:achalasia ] On Behalf Of muellmeris@...

Sent: Tuesday, May 16, 2006 8:21

AM

achalasia

Subject: Re: Living

with Achalasia

I was told I had this disease back in

1995 but I figure that I started having symptoms back in 1988. I have had

dilation's, about 12 in all, botox and two surgeries. My first surgery was

in 2003 and it was done laproscopic or keyhole if you like. That surgery

helped a little but i continued to have problems. My second surgery was

May 21 of last year. That surgery was done open. The moyotmy was

extended further onto my stomach and the wrap from the first surgery was taken

down and not replaced. I now have no problems eating whatever I want and

can drink anything again. I do stay away from popcorn though. I do

get spasms every now and then but not to bad.

I will keep you informed about any meet

ups that are in the future. Or if you are ever going to be over here just

let me know and I can try and meet up with you.

in Suffolk

In a message dated 5/16/2006 12:21:12 PM

GMT Standard Time, kylie_heggarty@... writes:

Hi ,

Thanks for your

reply. Yes I would definitely be interested in meeting up with members of

the group sometime. How long have you had Achalasia for, and what

treatments have you had? I had a relatively good result with the botox

injections, well it got me drinking properly again and I was able to eat soups

and soft food. However it only lasted for a few months. After I had

my surgery, I recovered pretty quickly, and I am now able to eat most things

without being sick. The only real problem would be the spasms. I

found the surgery gave me an excellent result.

Kylie

muellmeris@...

wrote:

Kylie, welcome to the group. There

are several members of this group that live in England. I was in Ireland last

autumn, to bad we could have not meet up then. I know there are a few

that would not have any problems talking to you either by the internet or even

on the phone. I have also in the past have set up some meetings to get us

together to support each other. If you are interested in something like

that let me know. I am looking into having another meet-up in early

July. If you have a questions feel free to ask and we will do our best to

answer you. You also my call me at any time. my home phone number is

01638 533018 or 011

1638 533018 if you are calling outside of the UK.

Again welcome to the group and I hope

everything is well with you and your family.

in Suffolk

In a message dated 5/16/2006 5:30:31 AM

GMT Standard Time, kylie_heggarty@... writes:

Hi

folks,

I have just joined the group. My name is Kylie and I am a 20

year

old student from Coleraine, N.Ireland. I was diagnosed with Achalasia

last June, had botox injections in August and then had cardiomyotomoy

in January of this year.

I would love to hear from anyone who is willing to share there

experiences of this illness with me.

Kylie

[Guest guest]

,

While a phone call would be great LOL I

would hate for either of us to have to foot the bill!!! I’m cheap LMAO.

Although you can email me directly at juliemimms@...

and we could chat easier that way!!

From: achalasia [mailto:achalasia ] On Behalf Of muellmeris@...

Sent: Tuesday, May 16, 2006 9:21

AM

achalasia

Subject: Re: Living

with Achalasia

I would ask. That is what seemed to

be causing me all my problems after my first surgery. Along with

extending the myotomy the surgeon took down the wrap and did not replace

it. I was put on Prilosec the day after surgery to reduce any acid reflux

problems. I started taking that the day after surgery. I have not

had any acid reflux issues but I do get spasms every now and then. If you

would like me to call you and talk it over I would be willing to do so.

in Suffolk

In a message dated 5/16/2006 2:07:49 PM

GMT Standard Time, juliemimms@... writes:

,

I’m wondering if they would try that with me first? Taking

out the wrap and so forth before removal?

From: achalasia [mailto:achalasia ] On

Behalf Of muellmeris@...

Sent: Tuesday, May 16, 2006 8:21

AM

achalasia

Subject: Re: Living

with Achalasia

I was told I had this disease back in 1995 but I figure that I

started having symptoms back in 1988. I have had dilation's, about 12 in

all, botox and two surgeries. My first surgery was in 2003 and it was

done laproscopic or keyhole if you like. That surgery helped a little but

i continued to have problems. My second surgery was May 21 of last

year. That surgery was done open. The moyotmy was extended further

onto my stomach and the wrap from the first surgery was taken down and not

replaced. I now have no problems eating whatever I want and can drink

anything again. I do stay away from popcorn though. I do get spasms

every now and then but not to bad.

I will keep you informed about any meet ups that are in the

future. Or if you are ever going to be over here just let me know and I

can try and meet up with you.

in Suffolk

In a message dated 5/16/2006 12:21:12 PM GMT Standard Time,

kylie_heggarty@... writes:

Hi ,

Thanks for your reply. Yes I would

definitely be interested in meeting up with members of the group

sometime. How long have you had Achalasia for, and what treatments have

you had? I had a relatively good result with the botox injections, well

it got me drinking properly again and I was able to eat soups and soft

food. However it only lasted for a few months. After I had my surgery,

I recovered pretty quickly, and I am now able to eat most things without being

sick. The only real problem would be the spasms. I found the

surgery gave me an excellent result.

Kylie

muellmeris@...

wrote:

Kylie, welcome to the group. There are several members of

this group that live in England. I was in Ireland last autumn, to bad we could have not

meet up then. I know there are a few that would not have any problems

talking to you either by the internet or even on the phone. I have also

in the past have set up some meetings to get us together to support each

other. If you are interested in something like that let me know. I

am looking into having another meet-up in early July. If you have a

questions feel free to ask and we will do our best to answer you. You

also my call me at any time. my home phone number is 01638 533018

or 011 1638 533018

if you are calling outside of the UK.

Again welcome to the group and I hope everything is well with you

and your family.

in Suffolk

In a message dated 5/16/2006 5:30:31 AM GMT Standard Time,

kylie_heggarty@... writes:

Hi folks,

I have just joined the group. My name is Kylie and I am a 20

year

old student from Coleraine, N.Ireland. I was diagnosed with Achalasia

last June, had botox injections in August and then had cardiomyotomoy

in January of this year.

I would love to hear from anyone who is willing to share there

experiences of this illness with me.

Kylie

[Guest guest]

Hi Seems like you are older than me, 81 now. Yes I am living with Achalasia and

have found out how to manage it. Mine came on near age 75 and found classical

Achalasia after a manometry test.

I have been on Lotrel generic 5/20 twice a day for blood pressure, which has a

calcium channel blocker in it. I never have any tingling.

Notan recently posted the swallowing problems came on as we get older. See his

recent posts on this.

What is your age and location and did you have a manometry test?

Suggest you go back a few months on these postings, maybe a year and look at

postings of notan and . A lot of info has been posted.

I never eat items like you do, mine is basically the same every day.

Ray CA OC 81

>

> Living with achalasia. February 2012

>

> First of all, I am not a physician; these are just personal experiences.

>

> I have had achalasia since age 65 in1995. I first was aware of swallowing

difficulties, simultaneous with a collection of other bothers: weakness of the

legs, mild tingling over much of the torso, and a generalized mild rash. I

chatted about it with a colleague, a professor of pharmacology with a specific

interest in swallowing (for which, tongue-in-cheek, he has adopted the term

neurocataposeology). He asked what medications I was on, and found possible

concern only with a calcium channel blocker that I had recently begun to take to

lower blood pressure.

>

> I quit taking the Ca channel blocker. The weakness, tingling and rash

subsided, but a balloon-swallowing test performed by a gastroenterologist showed

clearly that I completely lacked innervation (and hence peristalsis) in the

esophagus. The trouble with the lack of peristalsis is that the ring of muscle

that is the lower esophageal sphincter (LES) usually does not open and allow

food to pass into the stomach till it gets a signal from an arriving wave of

constriction of the esophagus.

>

> Did the Ca channel blocker have anything to do with the set of symptoms, or

was it just a coincidence? I don't know.

>

> I had botox injections into the LES to relax it. This seemed to help with

allowing food to go from the esophagus into the stomach, though after a few

months the effect seemed to wear off, and over the years I have occasional

repeats of the botox. I have not had Heller-type or any other surgery.

>

> I have occasional bouts of what I call " achalasia attacks " when I have been

" adventurous " , or maybe rash, in my eating. The trouble is caused by things

that are fibrous, such as steak, tuna, salads. Foods that are liquid, or that I

can " mush " are generally OK, but before I eat I have a large glass of milk or

other liquid. I can eat liquid soups, well-cooked stews, mashed vegetables,

meat pies (Melton-Mowbray pies that have finely-ground pork in them are

particularly easy to chew to a mush!). Also good is corned- beef hash, Spam,

and things like that. Fish and chips is almost always OK. Ice cream,

smoothies, crème brulee, custards, fruit pies are great. Beer and wine are

fine, but I find myself more sensitive to acidic drinks than I used to be, so I

often settle for a soft drink or tea.

>

> If I do get an attack of achalasia, the first warning that I get is that I

produce copious saliva, and soon thereafter a very uncomfortable pain in the

esophagus. I find that the pain is much alleviated if I can lie down for an

hour or more, but I have been warned that this may cause food to get in to the

airways. It doesn't seem to do so in my case, but I realize that the

consequences would be so severe that I hesitate to recommend that others try it.

>

> An oddity is that I can tell within a minute or so when the LES has relaxed,

and the food has at least partially gone into the stomach. The feeling of

relief is great when it happens!

>

> I find that the LES seems to constrict overnight, so in the morning I often

have a glass of milk or a " milk + instant breakfast " drink, or a mug of warm

tea first. Thereafter, an omelet, toasted English muffin or crumpet + butter

and jam is usually no trouble.

>

> Sources of reliable professional information that I have found include:

> 1) A site related to the science magazine " Nature " :

http://www.nature.com/gimo/index.html

> 2) Pubmed: http://www.ncbi.nlm.nih.gov/sites/entrez

>

[Guest guest]

Hi,

Anyone else experience a rash and tingling,

and weakness?

Sent from my iPod

On Jun 5, 2012, at 13:24, " jcorr@... " <jcorr@...> wrote:

> Living with achalasia. February 2012

>

> First of all, I am not a physician; these are just personal experiences.

>

> I have had achalasia since age 65 in1995. I first was aware of swallowing

difficulties, simultaneous with a collection of other bothers: weakness of the

legs, mild tingling over much of the torso, and a generalized mild rash. I

chatted about it with a colleague, a professor of pharmacology with a specific

interest in swallowing (for which, tongue-in-cheek, he has adopted the term

neurocataposeology). He asked what medications I was on, and found possible

concern only with a calcium channel blocker that I had recently begun to take to

lower blood pressure.

>

> I quit taking the Ca channel blocker. The weakness, tingling and rash

subsided, but a balloon-swallowing test performed by a gastroenterologist showed

clearly that I completely lacked innervation (and hence peristalsis) in the

esophagus. The trouble with the lack of peristalsis is that the ring of muscle

that is the lower esophageal sphincter (LES) usually does not open and allow

food to pass into the stomach till it gets a signal from an arriving wave of

constriction of the esophagus.

>

> Did the Ca channel blocker have anything to do with the set of symptoms, or

was it just a coincidence? I don't know.

>

> I had botox injections into the LES to relax it. This seemed to help with

allowing food to go from the esophagus into the stomach, though after a few

months the effect seemed to wear off, and over the years I have occasional

repeats of the botox. I have not had Heller-type or any other surgery.

>

> I have occasional bouts of what I call " achalasia attacks " when I have been

" adventurous " , or maybe rash, in my eating. The trouble is caused by things that

are fibrous, such as steak, tuna, salads. Foods that are liquid, or that I can

" mush " are generally OK, but before I eat I have a large glass of milk or other

liquid. I can eat liquid soups, well-cooked stews, mashed vegetables, meat pies

(Melton-Mowbray pies that have finely-ground pork in them are particularly easy

to chew to a mush!). Also good is corned- beef hash, Spam, and things like that.

Fish and chips is almost always OK. Ice cream, smoothies, crème brulee,

custards, fruit pies are great. Beer and wine are fine, but I find myself more

sensitive to acidic drinks than I used to be, so I often settle for a soft drink

or tea.

>

> If I do get an attack of achalasia, the first warning that I get is that I

produce copious saliva, and soon thereafter a very uncomfortable pain in the

esophagus. I find that the pain is much alleviated if I can lie down for an hour

or more, but I have been warned that this may cause food to get in to the

airways. It doesn't seem to do so in my case, but I realize that the

consequences would be so severe that I hesitate to recommend that others try it.

>

> An oddity is that I can tell within a minute or so when the LES has relaxed,

and the food has at least partially gone into the stomach. The feeling of relief

is great when it happens!

>

> I find that the LES seems to constrict overnight, so in the morning I often

have a glass of milk or a " milk + instant breakfast " drink, or a mug of warm

tea first. Thereafter, an omelet, toasted English muffin or crumpet + butter and

jam is usually no trouble.

>

> Sources of reliable professional information that I have found include:

> 1) A site related to the science magazine " Nature " :

http://www.nature.com/gimo/index.html

> 2) Pubmed: http://www.ncbi.nlm.nih.gov/sites/entrez

>

>

[Guest guest]

faith~

me!   went to doctor yesterday.   waiting for the blood results.   my

feet/legs and to some degree my pelvis feel numb and tingly non-stop.   also

just noticed a small rash on leg near ankles.    doctor suspects a b-12

decifiency.....will see what the results show, i guess.    yesterday when i

was driving, my right foot was so numb that i could not make the connection

between the pedal and my foot on the pedal.  pretty scary.  

christa

ohio

>________________________________

> From: Faith Weiss <weissf@...>

> " achalasia " <achalasia >

>Sent: Tuesday, June 5, 2012 8:42 PM

>Subject: Re: Living with achalasia

>

>

>

> 

>

>Hi,

>

>Anyone else experience a rash and tingling,

>and weakness?

>

>Sent from my iPod

>

>On Jun 5, 2012, at 13:24, " jcorr@... " <jcorr@...> wrote:

>

>> Living with achalasia. February 2012

>>

>> First of all, I am not a physician; these are just personal experiences.

>>

>> I have had achalasia since age 65 in1995. I first was aware of swallowing

difficulties, simultaneous with a collection of other bothers: weakness of the

legs, mild tingling over much of the torso, and a generalized mild rash. I

chatted about it with a colleague, a professor of pharmacology with a specific

interest in swallowing (for which, tongue-in-cheek, he has adopted the term

neurocataposeology). He asked what medications I was on, and found possible

concern only with a calcium channel blocker that I had recently begun to take to

lower blood pressure.

>>

>> I quit taking the Ca channel blocker. The weakness, tingling and rash

subsided, but a balloon-swallowing test performed by a gastroenterologist showed

clearly that I completely lacked innervation (and hence peristalsis) in the

esophagus. The trouble with the lack of peristalsis is that the ring of muscle

that is the lower esophageal sphincter (LES) usually does not open and allow

food to pass into the stomach till it gets a signal from an arriving wave of

constriction of the esophagus.

>>

>> Did the Ca channel blocker have anything to do with the set of symptoms, or

was it just a coincidence? I don't know.

>>

>> I had botox injections into the LES to relax it. This seemed to help with

allowing food to go from the esophagus into the stomach, though after a few

months the effect seemed to wear off, and over the years I have occasional

repeats of the botox. I have not had Heller-type or any other surgery.

>>

>> I have occasional bouts of what I call " achalasia attacks " when I have been

" adventurous " , or maybe rash, in my eating. The trouble is caused by things that

are fibrous, such as steak, tuna, salads. Foods that are liquid, or that I can

" mush " are generally OK, but before I eat I have a large glass of milk or other

liquid. I can eat liquid soups, well-cooked stews, mashed vegetables, meat pies

(Melton-Mowbray pies that have finely-ground pork in them are particularly easy

to chew to a mush!). Also good is corned- beef hash, Spam, and things like that.

Fish and chips is almost always OK. Ice cream, smoothies, crème brulee,

custards, fruit pies are great. Beer and wine are fine, but I find myself more

sensitive to acidic drinks than I used to be, so I often settle for a soft drink

or tea.

>>

>> If I do get an attack of achalasia, the first warning that I get is that I

produce copious saliva, and soon thereafter a very uncomfortable pain in the

esophagus. I find that the pain is much alleviated if I can lie down for an hour

or more, but I have been warned that this may cause food to get in to the

airways. It doesn't seem to do so in my case, but I realize that the

consequences would be so severe that I hesitate to recommend that others try it.

>>

>> An oddity is that I can tell within a minute or so when the LES has relaxed,

and the food has at least partially gone into the stomach. The feeling of relief

is great when it happens!

>>

>> I find that the LES seems to constrict overnight, so in the morning I often

have a glass of milk or a " milk + instant breakfast " drink, or a mug of warm

tea first. Thereafter, an omelet, toasted English muffin or crumpet + butter and

jam is usually no trouble.

>>

>> Sources of reliable professional information that I have found include:

>> 1) A site related to the science magazine " Nature " :

http://www.nature.com/gimo/index.html

>> 2) Pubmed: http://www.ncbi.nlm.nih.gov/sites/entrez

>>

>>

>

>

[Guest guest]

Bizarre. How could tingly extremities hve anything to do with A. B u t. I hve

for years had tingly on my feel and legs it literally would feel as though an

ant bit me or something was crawling on my and nothing is ever there. Also. For

many many years especially when I laid down my (goozle). Lol my throat would

make. Boing noises. Like bah-ooing. Like a sling almost or something on a

comedy. Hmmmm

Sent from my iPhone

[Guest guest]

Sounds a bit like peripheral neuropathy. The tingling and numbness in

extremities. Have u ever had your blood sugar tested? Feeling u describe is

common with diabetics. My son has been experiencing issues with sleeping. When

he uses his wedge pillow at night he doesn't wake the next morning with spasms,

simple solution right. The problem is when he sleeps on the wedge he wakes with

back pain. Each night he has to choose between spasms or back pain. Either way

he doesn't feel rested. I have mentioned shock blocks for his bed

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Re: Living with achalasia

> >

> >

> >

> >

> >

> >Hi,

> >

> >Anyone else experience a rash and tingling,

> >and weakness?

> >

> >Sent from my iPod

> >

> >On Jun 5, 2012, at 13:24, " jcorr@... " <jcorr@...> wrote:

> >

> >> Living with achalasia. February 2012

> >>

> >> First of all, I am not a physician; these are just personal experiences.

> >>

> >> I have had achalasia since age 65 in1995. I first was aware of swallowing

difficulties, simultaneous with a collection of other bothers: weakness of the

legs, mild tingling over much of the torso, and a generalized mild rash. I

chatted about it with a colleague, a professor of pharmacology with a specific

interest in swallowing (for which, tongue-in-cheek, he has adopted the term

neurocataposeology). He asked what medications I was on, and found possible

concern only with a calcium channel blocker that I had recently begun to take to

lower blood pressure.

> >>

> >> I quit taking the Ca channel blocker. The weakness, tingling and rash

subsided, but a balloon-swallowing test performed by a gastroenterologist showed

clearly that I completely lacked innervation (and hence peristalsis) in the

esophagus. The trouble with the lack of peristalsis is that the ring of muscle

that is the lower esophageal sphincter (LES) usually does not open and allow

food to pass into the stomach till it gets a signal from an arriving wave of

constriction of the esophagus.

> >>

> >> Did the Ca channel blocker have anything to do with the set of symptoms, or

was it just a coincidence? I don't know.

> >>

> >> I had botox injections into the LES to relax it. This seemed to help with

allowing food to go from the esophagus into the stomach, though after a few

months the effect seemed to wear off, and over the years I have occasional

repeats of the botox. I have not had Heller-type or any other surgery.

> >>

> >> I have occasional bouts of what I call " achalasia attacks " when I have been

" adventurous " , or maybe rash, in my eating. The trouble is caused by things that

are fibrous, such as steak, tuna, salads. Foods that are liquid, or that I can

" mush " are generally OK, but before I eat I have a large glass of milk or other

liquid. I can eat liquid soups, well-cooked stews, mashed vegetables, meat pies

(Melton-Mowbray pies that have finely-ground pork in them are particularly easy

to chew to a mush!). Also good is corned- beef hash, Spam, and things like that.

Fish and chips is almost always OK. Ice cream, smoothies, crème brulee,

custards, fruit pies are great. Beer and wine are fine, but I find myself more

sensitive to acidic drinks than I used to be, so I often settle for a soft drink

or tea.

> >>

> >> If I do get an attack of achalasia, the first warning that I get is that I

produce copious saliva, and soon thereafter a very uncomfortable pain in the

esophagus. I find that the pain is much alleviated if I can lie down for an hour

or more, but I have been warned that this may cause food to get in to the

airways. It doesn't seem to do so in my case, but I realize that the

consequences would be so severe that I hesitate to recommend that others try it.

> >>

> >> An oddity is that I can tell within a minute or so when the LES has

relaxed, and the food has at least partially gone into the stomach. The feeling

of relief is great when it happens!

> >>

> >> I find that the LES seems to constrict overnight, so in the morning I often

have a glass of milk or a " milk + instant breakfast " drink, or a mug of warm

tea first. Thereafter, an omelet, toasted English muffin or crumpet + butter and

jam is usually no trouble.

> >>

> >> Sources of reliable professional information that I have found include:

> >> 1) A site related to the science magazine " Nature " :

http://www.nature.com/gimo/index.html

> >> 2) Pubmed: http://www.ncbi.nlm.nih.gov/sites/entrez

> >>

> >>

> >

> >

[Guest guest]

kotacj@... wrote:

>

> ...The problem is when he sleeps on the wedge he wakes with back pain. ...

>

The wedge may not be long enough. I believe you can even find full body

ones. Perhaps someone knows of a good source.

notan

[Guest guest]

I need to sleep with my head elevated sometimes, mostly to avoid coughing during

the night when food caught in my esophagus comes up and tries to go down my

trachea. I found that pillows don't work too well because they slip.

The first solution was to put the legs at the head of my bead on concrete blocks

- big enough that the bed is not going to slip off and high enough to give you

the angle you need. Then you will have a nice long gradual elevation of the

head.

Eventually, I bought an adjustable bed. I love it - along with the sleep

benefits, it is the greatest place in the world to watch TV. You can raise and

lower both the head and the foot of the bed. Raising the foot has come in handy

when I have had sciatica. I think you also get a longer more gradual slope with

one of these beds.

Bea

> > >

> > >> Living with achalasia. February 2012

> > >>

> > >> First of all, I am not a physician; these are just personal experiences.

> > >>

> > >> I have had achalasia since age 65 in1995. I first was aware of swallowing

difficulties, simultaneous with a collection of other bothers: weakness of the

legs, mild tingling over much of the torso, and a generalized mild rash. I

chatted about it with a colleague, a professor of pharmacology with a specific

interest in swallowing (for which, tongue-in-cheek, he has adopted the term

neurocataposeology). He asked what medications I was on, and found possible

concern only with a calcium channel blocker that I had recently begun to take to

lower blood pressure.

> > >>

> > >> I quit taking the Ca channel blocker. The weakness, tingling and rash

subsided, but a balloon-swallowing test performed by a gastroenterologist showed

clearly that I completely lacked innervation (and hence peristalsis) in the

esophagus. The trouble with the lack of peristalsis is that the ring of muscle

that is the lower esophageal sphincter (LES) usually does not open and allow

food to pass into the stomach till it gets a signal from an arriving wave of

constriction of the esophagus.

> > >>

> > >> Did the Ca channel blocker have anything to do with the set of symptoms,

or was it just a coincidence? I don't know.

> > >>

> > >> I had botox injections into the LES to relax it. This seemed to help with

allowing food to go from the esophagus into the stomach, though after a few

months the effect seemed to wear off, and over the years I have occasional

repeats of the botox. I have not had Heller-type or any other surgery.

> > >>

> > >> I have occasional bouts of what I call " achalasia attacks " when I have

been " adventurous " , or maybe rash, in my eating. The trouble is caused by things

that are fibrous, such as steak, tuna, salads. Foods that are liquid, or that I

can " mush " are generally OK, but before I eat I have a large glass of milk or

other liquid. I can eat liquid soups, well-cooked stews, mashed vegetables, meat

pies (Melton-Mowbray pies that have finely-ground pork in them are particularly

easy to chew to a mush!). Also good is corned- beef hash, Spam, and things like

that. Fish and chips is almost always OK. Ice cream, smoothies, crème brulee,

custards, fruit pies are great. Beer and wine are fine, but I find myself more

sensitive to acidic drinks than I used to be, so I often settle for a soft drink

or tea.

> > >>

> > >> If I do get an attack of achalasia, the first warning that I get is that

I produce copious saliva, and soon thereafter a very uncomfortable pain in the

esophagus. I find that the pain is much alleviated if I can lie down for an hour

or more, but I have been warned that this may cause food to get in to the

airways. It doesn't seem to do so in my case, but I realize that the

consequences would be so severe that I hesitate to recommend that others try it.

> > >>

> > >> An oddity is that I can tell within a minute or so when the LES has

relaxed, and the food has at least partially gone into the stomach. The feeling

of relief is great when it happens!

> > >>

> > >> I find that the LES seems to constrict overnight, so in the morning I

often have a glass of milk or a " milk + instant breakfast " drink, or a mug of

warm tea first. Thereafter, an omelet, toasted English muffin or crumpet +

butter and jam is usually no trouble.

> > >>

> > >> Sources of reliable professional information that I have found include:

> > >> 1) A site related to the science magazine " Nature " :

http://www.nature.com/gimo/index.html

> > >> 2) Pubmed: http://www.ncbi.nlm.nih.gov/sites/entrez

> > >>

> > >>

> > >

> > >

[Guest guest]

Have blood work regularly. No sugar not even borderline. Very healthy except for

A.

Sent from my iPhone