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Hi , I have it on right now and am waiting for her to talk about it.. she's

been talking about the New York incident right now... so I can't wait to hear

about her book. I tried to find it at Costcos today (the book) usually they have

up to date books, but that one was not there.. but I do plan on getting it!

hugs,

Shar

mom to 3, w/ DS.. age 5

Shriver

Hi everyone,

Shriver was on Oprah today. She talked about her new book-What's

wrong with Timmy? (among many other things)

If you go to the Oprah.com website you can read her explanation of why she

wrote the book, her touching dedication (well, I like it) etc. Just thought

I'd let you all know.

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Hi , I have it on right now and am waiting for her to talk about it.. she's

been talking about the New York incident right now... so I can't wait to hear

about her book. I tried to find it at Costcos today (the book) usually they have

up to date books, but that one was not there.. but I do plan on getting it!

hugs,

Shar

mom to 3, w/ DS.. age 5

Shriver

Hi everyone,

Shriver was on Oprah today. She talked about her new book-What's

wrong with Timmy? (among many other things)

If you go to the Oprah.com website you can read her explanation of why she

wrote the book, her touching dedication (well, I like it) etc. Just thought

I'd let you all know.

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In a message dated 10/26/01 5:04:19 PM Central Daylight Time, dlneff@...

writes:

> Hi everyone,

> Shriver was on Oprah today. She talked about her new book-What's

> wrong with Timmy? (among many other things)

> If you go to the Oprah.com website you can read her explanation of why she

> wrote the book, her touching dedication (well, I like it) etc. Just thought

> I'd let you all know.

>

>

,

I saw that and was very impressed with what she had to say. I'm interested in

seeing the book since she talks a lot about how it explains differences and

the title comes for what her children used to say to her when they saw

someone with a disability or difference and she is explaining that they are

different, not that there is something wrong with them. (yikes, what a run on

sentence)

Karyn

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In a message dated 10/26/01 5:04:19 PM Central Daylight Time, dlneff@...

writes:

> Hi everyone,

> Shriver was on Oprah today. She talked about her new book-What's

> wrong with Timmy? (among many other things)

> If you go to the Oprah.com website you can read her explanation of why she

> wrote the book, her touching dedication (well, I like it) etc. Just thought

> I'd let you all know.

>

>

,

I saw that and was very impressed with what she had to say. I'm interested in

seeing the book since she talks a lot about how it explains differences and

the title comes for what her children used to say to her when they saw

someone with a disability or difference and she is explaining that they are

different, not that there is something wrong with them. (yikes, what a run on

sentence)

Karyn

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In a message dated 10/27/01 10:53:59 AM Central Daylight Time,

KVanRyzin@... writes:

> . (yikes, what a run on

> sentence)

>

> Karyn

>

Heehee I love it lololol

Kathy mom to Sara 9

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In a message dated 10/27/01 10:53:59 AM Central Daylight Time,

KVanRyzin@... writes:

> . (yikes, what a run on

> sentence)

>

> Karyn

>

Heehee I love it lololol

Kathy mom to Sara 9

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In a message dated 10/27/01 12:08:31 PM Central Daylight Time,

shars@... writes:

> One thing that bothered me in the interview on Oprah... is that kept

> saying " menally retarded " ... I just feel that the label " retarded " just

doesn'

> t sit well with me.. is it just me? I know it's the actual term, but we

just

> don't use it.. we say " mentally challenged " in our house.. said

> Retarded a lot in that segment.

> Shar

HI Shar :)

I think (me thinking again lol) that the label wears on you in some time. I

know when Sara was young I had stomach twinges when I heard it. Now I throw

it around, especially when the school staff thinks Sara knows all and

understands all lol I have to point out to them that " YES... she is MR and

this is why she receives sped services, so get off her back " .

Truthfully even if she wasn't MR she'd never be typical lololol she's such a

pip lol

Kathy mom to Sara 9.........ooh I did NOT let them put other descriptive

words with the MR, like mild, moderate or severe.....MR is classification

enough to receives services.

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In a message dated 10/27/01 12:08:31 PM Central Daylight Time,

shars@... writes:

> One thing that bothered me in the interview on Oprah... is that kept

> saying " menally retarded " ... I just feel that the label " retarded " just

doesn'

> t sit well with me.. is it just me? I know it's the actual term, but we

just

> don't use it.. we say " mentally challenged " in our house.. said

> Retarded a lot in that segment.

> Shar

HI Shar :)

I think (me thinking again lol) that the label wears on you in some time. I

know when Sara was young I had stomach twinges when I heard it. Now I throw

it around, especially when the school staff thinks Sara knows all and

understands all lol I have to point out to them that " YES... she is MR and

this is why she receives sped services, so get off her back " .

Truthfully even if she wasn't MR she'd never be typical lololol she's such a

pip lol

Kathy mom to Sara 9.........ooh I did NOT let them put other descriptive

words with the MR, like mild, moderate or severe.....MR is classification

enough to receives services.

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In a message dated 10/27/2001 1:08:44 PM Eastern Daylight Time,

shars@... writes:

<< One thing that bothered me in the interview on Oprah... is that kept

saying " menally retarded " ... I just feel that the label " retarded " just

doesn't sit well with me.. is it just me? >>

I noticed it too in the interview. In a way I was happy that she didn't say

Down Syndrome like she did in a previous interview, because I felt the

implication was that (only) people with DS were different from everyone else.

I also realize retarded just means delayed. I always think of Liam as

delayed compared to how he would have been developing if he didn't have the

extra chromosone. So the concept of delayed or retarded is very relative.

I like what she said about inclusion and acceptance.

Kathy, Liam's mom (3 1/2)

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In a message dated 10/27/2001 1:08:44 PM Eastern Daylight Time,

shars@... writes:

<< One thing that bothered me in the interview on Oprah... is that kept

saying " menally retarded " ... I just feel that the label " retarded " just

doesn't sit well with me.. is it just me? >>

I noticed it too in the interview. In a way I was happy that she didn't say

Down Syndrome like she did in a previous interview, because I felt the

implication was that (only) people with DS were different from everyone else.

I also realize retarded just means delayed. I always think of Liam as

delayed compared to how he would have been developing if he didn't have the

extra chromosone. So the concept of delayed or retarded is very relative.

I like what she said about inclusion and acceptance.

Kathy, Liam's mom (3 1/2)

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I don't like " retarded " either but I like " challenged " even less.

Everything is a challenge these days. People are even height challenged and

could be width challenged I guess. It's applied to everything. I guess I'm

age challenged. A challenge should be something that a person can do

something about, like a dare or an invitation to defy. Our friend, ,

with spina bifida has been called physically challenged. What kind of

challenge is it when there is no way he could get out of a wheechair, or

improve his mobility? That's a challenge? There is nothing he can do about

it.

Whatever terms are used eventually come to mean the same thing anyway.

I don't consider retarded, or challenged. As far as I know he's

never been called Retard or any of those terms by other kids. He considers

himself special, in a good way. And I agree. Once I was asked at a parent's

meeting what I would answer if someone asked me if he was special child. I

said " He certainly is, very special!! " . One mother called me the next day

and said her husband laughed all the way home at that one, he loved it.

And I agree, Sara is a " pip " no matter what you call her.

Jessie

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I don't like " retarded " either but I like " challenged " even less.

Everything is a challenge these days. People are even height challenged and

could be width challenged I guess. It's applied to everything. I guess I'm

age challenged. A challenge should be something that a person can do

something about, like a dare or an invitation to defy. Our friend, ,

with spina bifida has been called physically challenged. What kind of

challenge is it when there is no way he could get out of a wheechair, or

improve his mobility? That's a challenge? There is nothing he can do about

it.

Whatever terms are used eventually come to mean the same thing anyway.

I don't consider retarded, or challenged. As far as I know he's

never been called Retard or any of those terms by other kids. He considers

himself special, in a good way. And I agree. Once I was asked at a parent's

meeting what I would answer if someone asked me if he was special child. I

said " He certainly is, very special!! " . One mother called me the next day

and said her husband laughed all the way home at that one, he loved it.

And I agree, Sara is a " pip " no matter what you call her.

Jessie

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Here's a weird twist......I grew up with and Timmy. I can't remember

the other brother. But the parts about her Mom and her brothers

friends...how true. The overnights at their house and pillow fight with

.

Anyway, when we found out had DS I got involved in Special Olympics.

What a surprise to see my ole K-3 grade buddy running the thing. Anyway,

kind of funny how time comes back around. Even though is no longer

with us, I am staying involved on the local level and when I retire,

hopefully Timmy will have a job for me on the national level!! Anyway, just

had to reminisce a little bit. Hope everyone is well!!

Mac

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Here's a weird twist......I grew up with and Timmy. I can't remember

the other brother. But the parts about her Mom and her brothers

friends...how true. The overnights at their house and pillow fight with

.

Anyway, when we found out had DS I got involved in Special Olympics.

What a surprise to see my ole K-3 grade buddy running the thing. Anyway,

kind of funny how time comes back around. Even though is no longer

with us, I am staying involved on the local level and when I retire,

hopefully Timmy will have a job for me on the national level!! Anyway, just

had to reminisce a little bit. Hope everyone is well!!

Mac

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In a message dated 10/27/01 1:46:55 PM Central Daylight Time,

hamastroni@... writes:

> Anyway, just

> had to reminisce a little bit. Hope everyone is well!!

>

> Mac

HI Mac :)

Ive been thinking a lot about you all lately (I know more thinking lol) and

I'm so glad you are still here with us!!!! Please reminisce more often OK :)

Kathy mom to Sara 9

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In a message dated 10/27/01 1:46:55 PM Central Daylight Time,

hamastroni@... writes:

> Anyway, just

> had to reminisce a little bit. Hope everyone is well!!

>

> Mac

HI Mac :)

Ive been thinking a lot about you all lately (I know more thinking lol) and

I'm so glad you are still here with us!!!! Please reminisce more often OK :)

Kathy mom to Sara 9

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One thing that bothered me in the interview on Oprah... is that kept

saying " menally retarded " ... I just feel that the label " retarded " just doesn't

sit well with me.. is it just me? I know it's the actual term, but we just don't

use it.. we say " mentally challenged " in our house.. said Retarded a lot

in that segment.

Shar

,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,

,

I saw that and was very impressed with what she had to say. I'm interested in

seeing the book since she talks a lot about how it explains differences and

the title comes for what her children used to say to her when they saw

someone with a disability or difference and she is explaining that they are

different, not that there is something wrong with them. (yikes, what a run on

sentence)

Karyn

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One thing that bothered me in the interview on Oprah... is that kept

saying " menally retarded " ... I just feel that the label " retarded " just doesn't

sit well with me.. is it just me? I know it's the actual term, but we just don't

use it.. we say " mentally challenged " in our house.. said Retarded a lot

in that segment.

Shar

,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,

,

I saw that and was very impressed with what she had to say. I'm interested in

seeing the book since she talks a lot about how it explains differences and

the title comes for what her children used to say to her when they saw

someone with a disability or difference and she is explaining that they are

different, not that there is something wrong with them. (yikes, what a run on

sentence)

Karyn

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That's the Special Olympics lingo she's used to hearing. When we were

trying to start one up in our county...the website, the phamplets....all

talk about mental retardation. It's used in their mission statement, goal,

and philosophy. I personally don't have a problem anymore when it's used in

this context. In fact, I didn't even notice when used it. But I do

NOT use it around children. They hear retardation or mentally retarded and

think it's okay to then say Hey,Retard! and that's not acceptable.

To tell you the truth, the word " special " is just as irritating to me.

She's a " special " girl, she has " special " parents, she is in the " special "

class, she rides the " special bus " . She has " special needs " . aarrgghhh!

mommy to plain ole' Caty (fourth grader, brownie, ballerina, & artist)

----------

> From: Shar*Ü* <shars@...>

> < >

> Subject: Re: Shriver

> Date: Saturday, October 27, 2001 1:06 PM

>

> One thing that bothered me in the interview on Oprah... is that

kept saying " menally retarded " ... I just feel that the label " retarded "

just doesn't sit well with me.. is it just me? I know it's the actual term,

but we just don't use it.. we say " mentally challenged " in our house..

said Retarded a lot in that segment.

> Shar

> ,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,

>

> ,

> I saw that and was very impressed with what she had to say. I'm

interested in

> seeing the book since she talks a lot about how it explains differences

and

> the title comes for what her children used to say to her when they saw

> someone with a disability or difference and she is explaining that they

are

> different, not that there is something wrong with them. (yikes, what a

run on

> sentence)

>

> Karyn

>

>

>

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That's the Special Olympics lingo she's used to hearing. When we were

trying to start one up in our county...the website, the phamplets....all

talk about mental retardation. It's used in their mission statement, goal,

and philosophy. I personally don't have a problem anymore when it's used in

this context. In fact, I didn't even notice when used it. But I do

NOT use it around children. They hear retardation or mentally retarded and

think it's okay to then say Hey,Retard! and that's not acceptable.

To tell you the truth, the word " special " is just as irritating to me.

She's a " special " girl, she has " special " parents, she is in the " special "

class, she rides the " special bus " . She has " special needs " . aarrgghhh!

mommy to plain ole' Caty (fourth grader, brownie, ballerina, & artist)

----------

> From: Shar*Ü* <shars@...>

> < >

> Subject: Re: Shriver

> Date: Saturday, October 27, 2001 1:06 PM

>

> One thing that bothered me in the interview on Oprah... is that

kept saying " menally retarded " ... I just feel that the label " retarded "

just doesn't sit well with me.. is it just me? I know it's the actual term,

but we just don't use it.. we say " mentally challenged " in our house..

said Retarded a lot in that segment.

> Shar

> ,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,

>

> ,

> I saw that and was very impressed with what she had to say. I'm

interested in

> seeing the book since she talks a lot about how it explains differences

and

> the title comes for what her children used to say to her when they saw

> someone with a disability or difference and she is explaining that they

are

> different, not that there is something wrong with them. (yikes, what a

run on

> sentence)

>

> Karyn

>

>

>

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I don't like " special " used that way either. But the way uses

it is different, and he only says it to me. Too bad any word that's used

soon has the same connotation. Jessie

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I don't like " special " used that way either. But the way uses

it is different, and he only says it to me. Too bad any word that's used

soon has the same connotation. Jessie

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In a message dated 10/27/01 6:44:48 PM Central Daylight Time, JB66111@...

writes:

> I don't like " special " used that way either. But the way

uses

>

> it is different, and he only says it to me. Too bad any word that's used

> soon has the same connotation. Jessie

Now what I hear from the school is that our kids are sweet and stubborn lol

Sara is the stubborn one and her buddy is the sweet one........boy glad

they didn't have my other kids, ALL here are stubborn lol

Kathy mom to Sara 9

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In a message dated 10/27/01 6:44:48 PM Central Daylight Time, JB66111@...

writes:

> I don't like " special " used that way either. But the way

uses

>

> it is different, and he only says it to me. Too bad any word that's used

> soon has the same connotation. Jessie

Now what I hear from the school is that our kids are sweet and stubborn lol

Sara is the stubborn one and her buddy is the sweet one........boy glad

they didn't have my other kids, ALL here are stubborn lol

Kathy mom to Sara 9

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In a message dated 10/27/01 1:25:15 PM Central Daylight Time, Mom2lfm@...

writes:

>

> << One thing that bothered me in the interview on Oprah... is that

> kept

> saying " menally retarded " ... I just feel that the label " retarded " just

> doesn't sit well with me.. is it just me? >>

>

> I noticed it too in the interview. In a way I was happy that she didn't

> say

> Down Syndrome like she did in a previous interview, because I felt the

> implication was that (only) people with DS were different from everyone

> else.

> I also realize retarded just means delayed. I always think of Liam as

> delayed compared to how he would have been developing if he didn't have the

> extra chromosone. So the concept of delayed or retarded is very relative.

>

> I like what she said about inclusion and acceptance.

>

> Kathy, Liam's mom

The term mentally retarded doesn't bother me but " retard " does. It also

depends on what else is being said. In other words are they using to devalue

someone. I really felt that she wasn't and has put her money where her mouth

is with her involvement with people with disablilies. I really want to see

the interview with her brother about the buddy program he started.

Karyn

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