Re: Digest Number 226

[Guest guest]

In a message dated 8/14/99 5:49:07 AM Central Daylight Time,

onelist writes:

>

> Thanks for the encouragement. I go to the doctor Monday and have made up

my

>

> mind to tell him exactly how I feel...I hurt. I will let yall know how

the

> visit turns out...my hubby is going with me for moral support. Drs. don't

> like to prescribe pain meds and I know it...I didn't want to be labled one

> of

> his " problem patients " .

> It's gone beyond that now...I was some relief.

Good for you, Annette! Tell him just how much the pain limits your everyday

activities. I think having your husband there may make it easier for you.

If your regular doctor doesn't want to prescribe pain meds, maybe he will

recommend a pain doctor. That's what mine did, and I think it's going to

work out well. She's extremely knowledgeable about what types and doses of

pain meds work best for different types of problems. She also recommends

physical therapy sometimes, too.

Good luck....I'll keep my fingers crossed for you.

Dwanna

[Guest guest]

>Message: 3

> Date: Sat, 01 Jan 2000 15:07:25 -0800

> From: saint_samantha <bayla@...>

>Subject: Re: Digest Number 225

>

>oh please dont be another MicHELLe....You r just a kid...>>

I'm 19 , almost 20. i don't see how that's relevant to anything though ,

yeast infections don't discriminate.

please someone asked nicely what

>all this meant....do u have HIV and wanting to warn us? like explain urself

>please

>thanx

>sammy

no i do not have HIV. HIV patients frequently have yeast infections. This is

a yeast infection list. It's quite possible an HIV patient subscribes , and

I assumed people interested in women's health on a women's health list would

like to read the article. Excuse me for trying to start a conversation or

contributing. I'll go back to lurking.

>

>Message: 7

> Date: Sat, 1 Jan 2000 17:32:24 -0400

> From: " rcrosby " <rcrosby@...>

>Subject: Re: HIV & Yeast infections

>

>HI a:

>

>I think he did not mean to imply that anyone with a yeast infection has

>HIV.>>>

I'm a she , actually , and no , *she* did not mean to imply that.

>To think that would be silly. However, the results of HIV destroying

>immune

>function could easily lead to yeast infections and do.

>

which is why i posted it . ..

>Message: 9

> Date: Sat, 01 Jan 2000 16:50:55 -0800

> From: a Perza <chestnutt@...>

>Subject: HIV & YEAST

>

>It was not you Russ who made the connection to that. It was our new

>member who has not introduced herself. I believe she calls herself

>Monarch Butterfly. Or is FlamingRedHair. Sounds like a beautiful young

>woman. She sent that note to us and sort of threw me or a loop. Why

>the anger MB?

>

I'm not angry. I just assumed that the list would recognize the connection

/relevance and want to read it.

>And..this quotation from .. Can you please explain for us. >>

My name is carrie. the quote is from a song called " medication " by garbage.

Maybe

>we can be of help. I think you have thrown some stuff at us that has no

>background and for me at least is causing some confusion.>>

i apologize. i'm on so many gynecological and depression lists that i can't

remember who i've introduced myself to and who i haven't.

i'm carrie , i'm 19 , and in the past year i've had problems with bacterial

vaginitis , cervicitis, and multiple yeast infections - which is why i

joined this particular list. i do not have HIV , i tested negative in april

and have had the same partner for 2 years anyway.

If you need

>to talk, we are here for you.

>Please exlain this. You always include it. Is it your signature poem?

yes it's part of my signature.

i suppose you should also know that i've got unipolar depression and low

natural serotonin levels , so i'm on antidepressants. i use that song's

quote to illustrate my resentment towards my mood disorder , it wasn't meant

to disturb anyone.

x~~CARRiE~~x

They got me on some medication

My point of balance was askew

It keeps my temperature from rising

My blood is pumping through my veins

Somebody get me out of here . .

I'm tearing at myself . . .

~GARBAGE~

http://www.geocites.com/cyanidekoolaid

http://www.geocities.com/paxilstreet

bodyofavenus

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[Guest guest]

Oh sweety you are having a rough time. E-mail me personally at

jdrsr@... I will try to help you. Cheerfully, Myra

HIV & YEAST

>

>It was not you Russ who made the connection to that. It was our new

>member who has not introduced herself. I believe she calls herself

>Monarch Butterfly. Or is FlamingRedHair. Sounds like a beautiful young

>woman. She sent that note to us and sort of threw me or a loop. Why

>the anger MB?

>

I'm not angry. I just assumed that the list would recognize the connection

/relevance and want to read it..

>And..this quotation from .. Can you please explain for us. >>

My name is carrie. the quote is from a song called " medication " by garbage..

Maybe

>we can be of help. I think you have thrown some stuff at us that has no

>background and for me at least is causing some confusion.>>

i apologize. i'm on so many gynecological and depression lists that i can't

remember who i've introduced myself to and who i haven't..

i'm carrie , i'm 19 , and in the past year i've had problems with bacterial

vaginitis , cervicitis, and multiple yeast infections - which is why i

joined this particular list. i do not have HIV , i tested negative in april

and have had the same partner for 2 years anyway..

If you need

>to talk, we are here for you..

>Please exlain this. You always include it. Is it your signature poem?

yes it's part of my signature..

i suppose you should also know that i've got unipolar depression and low

natural serotonin levels , so i'm on antidepressants. i use that song's

quote to illustrate my resentment towards my mood disorder , it wasn't meant

to disturb anyone..

x~~CARRiE~~x

They got me on some medication

My point of balance was askew

It keeps my temperature from rising

My blood is pumping through my veins

Somebody get me out of here . ..

I'm tearing at myself . . ..

~GARBAGE~

http://www.geocites.com/cyanidekoolaid

http://www.geocities.com/paxilstreet

bodyofavenus

- - - - - - - - - - - - - - - - - - - - - - - - - - - - -

ICQ# 55743557

A0L IM:

TheAntiSpice0000

FlamingRedHair

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[Guest guest]

Hi All,

, way to go!!!!

Judi, what a fright. Sounds like you did all the right things. Hope you

never get tested again!!

Gotta go find my Red Cross emergency guide, I think I know where it is but

maybe I'll just make sure it's in plain sight.......

love to all from Debbi and Logan, 5 1/2 Eli (DS) and Milo 3 1/2

[Guest guest]

Hey, I have a question for anyone out there that might want to answer. I

have been doing a parasite cleanse for a few weeks now, and although I

notice nausea on and off, I've noticed nothing else (no parasites that is).

I have noticed things getiing a little better though overall, but maybe

that's occurred on it's own. Anyway, are parasites always visible? Or does

it usually take more than a few weeks before they die off. (I do have some

side effects of the herbs, well any sort of medication/vitamins, so I'd

like to stop taking it after the usual stop time either way.

Thank you so much,

[Guest guest]

:

<< Hey, I have a question for anyone out there that might want to answer. I

have been doing a parasite cleanse for a few weeks now, and although I

notice nausea on and off, I've noticed nothing else (no parasites that is).

I have noticed things getiing a little better though overall, but maybe

that's occurred on it's own. Anyway, are parasites always visible?

No. Many are too tiny to see. It takes some practice to distinguish them from

undigested food.

Or does

it usually take more than a few weeks before they die off. (I do have some

side effects of the herbs, well any sort of medication/vitamins, so I'd

like to stop taking it after the usual stop time either way.

Thank you so much,

>>

You should just stay on the once a week maintance dose. You should also be

zapping.

Jan

[Guest guest]

Tami,

I am so surprised that with the heart problems, you can still do LL..that is

good news.

I sometimes think that there is something wrong with me cuz I get so tired

doing it!!

I am trying..that is about all I can do.

Glad you are feeling better.,

Ellen

[Guest guest]

Ellen,

The thing about LL, is that if you do a nice gentle breath, and only a few at

a time to start. Done this way, it is very heart healthy! The thing about

my heart disease is that I don't have any problem with high cholesterol, or

true clogging of the arteries. It has been discovered that my heart problem

is a little different, and was brought on by long term, poorly controlled

diabetes, as well as, 20+ years of bulimia and anorexia. At this point, most

days, I do as many breathes as I can at one time, and usually from bed.

Rashelle has worked very closely with me, teaching me that the key to

success, if you are unable to make it through your entire workout, is to

start with very gentle breathing and work up to a little bit more vigor.

Even if you find yourself never getting past the gentle part, you are still

reaping the wonderful benefits of the oxygen in a big way!

Don't worry if you are unable to do the positions with the breath at this

time. Right now, I can barely do the pelvic tilt, lying down! It's just too

exhausting. But after about 5 or 10 gentle breathes, I find it gets much

easier, as the stamina builds.

Keep up the good work and let your body do what it can, in it's own time

frame. We are all individuals with different tolerances and abilities. You

wouldn't try to fit into a size 6 shoe if you wore a size 9! ooo ouch!

Hope this helps and let me know how you're progressing. Most of all, 5

breathes at a time, is better than none!

Sincerely,

Tami

[Guest guest]

Oh Tami,

What a joy it is to see your name and messages from you here. I wanted to give an update to the precious people on the list who are offering their prayers for my family and for me and I wanted to include a message to you telling you of how much it lightens my spirits to see messages from you here.

I hope you are taking good care of yourself and that you will continue to improve daily.

Take good care of yourself and know how loved you are.

Rashelle

Be sure to check out all of the great specials available on my web sites. Save $30 on the Large Body Wrap package. The sale has been extended until May 31stVisit us at http://www.lifelift.com or http://www.angelmagic.com. All other web sites belong to distributors, these are my personal web sites.Join our discussion group at LifeLift-subscribe@...

----- Original Message -----

From: Emailtamihere@...

LifeLiftegroups

[Guest guest]

Welcome to the Norton family.

We have Josiah, who is 8, and is nonverbal, mostly potty trained. Would

be all the way if I had time to take him every hour. Times his BM's

at 1:00 and 6:00. Will not go in his pants *at all*. I'm not

complaining here. Just began to take him at a regular time everyday and

would say " Push Josiah " and he got the idea and has been regular for a

couple of years now. Wish I could do the some with peeing.

It's been slow going for Josiah, but, he's full of smiles and know he

could do better if I could just tap into that little mind of his and

figure him out. I do one day, then, I don't the next! You all know how

it goes.

Glad your here.

Lesa,

Mom to 10 and, yes, they are all mine. (and Dear Hubby's!) Just glad I

had them one at a time. I couldn't imagine more then one two year old,

or, more then one Josiah. =8-O

________________________________________________________________

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[Guest guest]

Hi This is just saying I'm still here reading every digest. My son is

31 yrs old and living on campus of residential community in Chicago, Il. where

the autistic piece of the puzzle was put in place about a year and a half ago

when we had Barb Doyle evaluate his behaviors. His most profound disability is

communication. Because doesn't live at home I have freedoms and luxuries

many of you do not but I am still driven by fears of 's unhappiness and

hopes for resolution of problems. This doesn't mean he does not have a life that

he enjoys. He does. So, just wanted to put myself out there, say hello to new

joiners and thanks to everyone for sharing. just started Risperdol. Mixed

results so far. We are building on visual communication - taken from seeing how

Joan and communicate. Still on the roller coaster but I feel we know more

about now then ever. I feel we have something to build on. He had a more

normal childhood than adulthood. Things seemed to spin out at puberty. He's a

remarkable man who I am extremely proud of and admire a great deal. I just wish

I could make things easier for him and myself as well. Worst thing probably was

that we lost our sense of humor. Best thing is we realized it - coming back in

fits and starts.

[Guest guest]

hi karen, nice to meet you, my nathan is 8yrs with ds pdd, i agree never lose

one's sense of humor, with out it our family would have never made it this

far i dont think, and we have a ways to go yet, shawna, mom to nathan 8yrs

w/ds pdd and nicholas 7yrs.

[Guest guest]

oh yes, the schedule is the most important, i forgot to add yesterday, it

helped nathan 8yrs w/ds pdd to be in the bathroom when other family members

are going , especially since he is a huge mimicker, but this is entirely up

to the family and how modesty or private issues are there, i do now have the

problem of nathan just barging in the bathroom, but he is learning to knock

like his little brother does, and he will do the little yaaaa paaaarty dance,

you did a good job for us too the silly. make it a fun time. shawna.

[Guest guest]

Hi, . Thanks for introducing yourself. I live in Naperville and was

wondering where you are. My daughter (DS-ASD, numerous medical

problems) is nine. I'm glad that there are some parents of " older " children

with DS on this list. It is good for we parents of the younger ones to hear

your input. If it wouldn't be a breach of your privacy, I was wondering

which residential facility is living at and what you think of his

experiences there. I'm wondering what the Chicago area has to offer when we

get there in the future. Feel free to write me privately if you prefer.

Thanks,

Maureen

[Guest guest]

In a message dated 7/15/00 6:19:43 AM, egroups writes:

<< Why do you care? They will not do these until half or more of parents

have

already cured their auties. >>

Hi Andy,

I don't mean to be rude but, I think you used too strong of wording to Dr.

Jane El-Dahr's posts. She is really trying to help her child and other

children. Andy I think sometimes we have to face reality...Dr. Jane is

right........we do need more " studies " ...it really is the only way to get the

word out. I think on this issue we need to work on both fronts..inside

mainline medical community and outside mainline medical community. I think

it is a legitimate goal to convince the mainline medical community of this

very real problem of mercury and autism. I too am frustrated with how slow

it takes mainline medicine to see the light but, I think we need to help good

researcher-MD's like Dr. El-Dahr and Dr. Holmes to gather data. I am sure

Dr. Jane can speak for herself but, I just wanted to let you know that Dr.

Jane does indeed CARE! By the way Dr. El-Dahr is at Tulane University

Medical Center in New Orleans and she is indeed know Dr. Amy Holmes here in

Baton Rouge.

Sincerely,

Sharon Howell

Baton Rouge, LA

[Guest guest]

<<<If it didn't take a prescription to get DMSA, then who would care about

getting a doc? With the number of affected kids, the few of us who believe in

this could spend every waking minute seeing these kids, or

talking/emailing/faxing individual pediatricians who contact us for how to do

it, and still never make a dent in the number of children in need.....>>>

I agree 100% Dr. Jane....this is why we have to get the word out to

mainstream doctor's & * that takes data! The handful of doctors like yourself

and Dr. Amy..etc. can not possibly treat every child!!

Well..listmates....for once I am proud to be a resident of the great state of

Louisiana

(ha:-)....actually I am an LSU grad..my dad was stationed in NO when I grad.

from HS.). My husband and I have lived here off and off for 15 years. This

last move back..Dec 1999 seemed like a great idea...job wise for him...so we

came back. Now I know God's plan ....for us to have Dr. Amy to help with my

sons!

Sharon Howell

Baton Rouge, LA

[Guest guest]

In a message dated 7/15/00 7:19:03 AM, showell10@... writes:

<< <<<If it didn't take a prescription to get DMSA, then who would care about

getting a doc? With the number of affected kids, the few of us who believe in

this could spend every waking minute seeing these kids, or

talking/emailing/faxing individual pediatricians who contact us for how to do

it, and still never make a dent in the number of children in need.....>>>

I agree 100% Dr. Jane....this is why we have to get the word out to

mainstream doctor's & * that takes data! The handful of doctors like yourself

and Dr. Amy..etc. can not possibly treat every child!! >>

Call your local chiropractor and ask him if he can get you some Captomer,

and if he is willing to do so.

Andy Cutler

[Guest guest]

<< Given that we are spending $1000 to $1500 a week

(cash) on ABA I'd like to try to cut some costs on the biomedical stuff if

possible. >>

Be very careful here. Pay what it takes for the CURATIVE stuff and cut costs

in the ameliorative stuff. The most valuable thing you can get is

information - which often comes from medical tests - and you do have to

expect to pay for value.

Andy Cutler

[Guest guest]

<< BTW, my dad is a chemical engineer and he's never heard of the company that

manufactures Thimerosal (Sigma -- out of Missouri). Anyone know any thing

about them? >>

I'm surprised he hasn't heard of Sigma. Sigma is now Sigma-Aldrich after a

merger.

Sigma was the 900 pound gorilla of specialty chemical supply in the biochem

arena and Aldrich was the 900 pound gorilla of specialty chemical supply for

chemists. I've seen their catalogues around in everyone's offices since I

started doing chemist things 20 some years ago.

Andy Cutler

[Guest guest]

<< As best I know the Lovaas method (applied behavioral analysis) has the most

persuasive data on " indistinguishing autistic kids from their peers' " that

exists. Honestly, I think Lovaas and ABA is " mopping up " the ravages of

thimerosal poisoning. This is awful and we have at least two years to go

in this program!!! >>

Finding out how to reduce the ABA costs from $1,500 a week to $1,400 a week

buys LOTS of supplements and a reasonable amount of medical services even if

you don't have insurance coverage.

Andy Cutler

[Guest guest]

<< Andy, I respect you big time and I appreciate the hours and effort that

you've devoted to this catastrophe. But $%# Almighty, where should we spend

our money? >>

A big bottle of alpha lipoic acid costs $20 bucks. I am sure you can find

some cheaper than that. Even if almost all of your money is committed to the

ABA program, I am sure you could come up with at least $20 to get some LA

and see if it helps your kid.

The same argument applies to a lot of other things too.

Andy

[Guest guest]

<< I'll buy the LA -- no problem -- but shouldn't we do the hair and urine

testing to find out what exactly what heavy metals and what concentrations

are problematic? And thus, what the particular treatment should be? If not,

hey, I'll by the LA tomorrow -- just tell me how much to give a 30 pund kid.

>>

I was more making the point that it is inexpensive to try LA than insisting

people should do it without testing if they were able to do some tests.

Andy

[Guest guest]

Hi fellow listserve members,

I met with our son's physician on Friday (for at least 30 minutes) and

showed him all the " stuff " ( Binstock et al.'s materials, lists from

Lynn Redwood's site,...). Clearly, he was not pleased with what I was

showing him. He seemed disappointed that his specialty society had been

" whitewashing " the vaccine/thimerosal/autism contraversy. He wants to help

us and do whatever he can. Given that we are spending $1000 to $1500 a week

(cash) on ABA I'd like to try to cut some costs on the biomedical stuff if

possible.

I promised our doc two things: (1) to provide him with the protocol for

diagnosing and chelating mercury and whatever other heavy metals show up in

Sam's hair/urine analyses (I've ordered Andy's book); and (2) to provide him

with names, contact info, and phone numbers of physicians who are skilled in

chelating young boys with autism for thimerosal poisoning. Our doc is

really a good guy. He's spending the weekend reading the " autism: mercury

poisoning paper " by Binstock and colleagues and is contacting a close friend

who is a local news anchor to get the word out.

Thanks everyone. If you'd like, you could e-mail me directly

vdebold@... ). Dr Amy and Dr. Jane -- would you all be willing to

have a conversation with our doc?

Vicky Debold, RN, PhD

[Guest guest]

Andy, I respect you big time and I appreciate the hours and effort that

you've devoted to this catastrophe. But $%# Almighty, where should we spend

our money?

We're older parents -- we went through years of infertility treatment -- we

aren't idiots -- we're trying, what should we do? Where's the data, where

the " & #$%@ & *%$ " is evidence that we should go this way or that way? We're

reasonable people, we're scared -- we're people of science -- AND we're hold

the bag.

Given that I spend my life in " science " -- I understand that the science

that gets funded is as based on politics as much as it is on merit. Help

me to understand -- what we're going through has the potential to really

ruin what should have been a happy and much-desired family.

As best I know the Lovaas method (applied behavioral analysis) has the most

persuasive data on " indistinguishing autistic kids from their peers' " that

exists. Honestly, I think Lovaas and ABA is " mopping up " the ravages of

thimerosal poisoning. This is awful and we have at least two years to go

in this program!!!

BTW, my dad is a chemical engineer and he's never heard of the company that

manufactures Thimerosal (Sigma -- out of Missouri). Anyone know any thing

about them?

Vicky Debold

Re: [ ] Digest Number 226

> << Given that we are spending $1000 to $1500 a week

> (cash) on ABA I'd like to try to cut some costs on the biomedical stuff if

> possible. >>

>

> Be very careful here. Pay what it takes for the CURATIVE stuff and cut

costs

> in the ameliorative stuff. The most valuable thing you can get is

> information - which often comes from medical tests - and you do have to

> expect to pay for value.

>

> Andy Cutler

>

> ------------------------------------------------------------------------

> Life's too short to send boring email. Let SuperSig come to the rescue.

> 1/6809/9/_/705339/_/963704884/

> ------------------------------------------------------------------------

>

>

[Guest guest]

Hi Andy,

My Dad worked in high-density (polyethylene) plastics for 40 years (Dow,

Chemplex, Quantum, ...). Is the field so big that plastics people wouldn't

know biochem people? I'm forwarding this to my Dad. There's something

wrong with this picture. vicky

Re: [ ] Digest Number 226

> << BTW, my dad is a chemical engineer and he's never heard of the company

that

> manufactures Thimerosal (Sigma -- out of Missouri). Anyone know any

thing

> about them? >>

>

> I'm surprised he hasn't heard of Sigma. Sigma is now Sigma-Aldrich after

a

> merger.

>

> Sigma was the 900 pound gorilla of specialty chemical supply in the

biochem

> arena and Aldrich was the 900 pound gorilla of specialty chemical supply

for

> chemists. I've seen their catalogues around in everyone's offices since I

> started doing chemist things 20 some years ago.

>

> Andy Cutler

>

> ------------------------------------------------------------------------

> Life's too short to send boring email. Let SuperSig come to the rescue.

> 1/6809/9/_/705339/_/963710088/

> ------------------------------------------------------------------------

>

>