Guest guest Posted July 11, 2006 Report Posted July 11, 2006 -----Oprindelig meddelelse----- Fra: notify [mailto:notify ] På vegne af sylvester2603 Sendt: 9. juli 2006 00:03 Til: sbjoglise.jensen@... Emne: Confused?! I have now been reading all your answers and I`m a little confused. some of you write that your kids have surgery before they are 1 year old and some when they are about 3 or even older. how do we know when the right moment has accured? I know he can see, but has to tilt his head a lot. And he sleeps a lot, I think it is because he cant se very well. we go to check-ups often, but I dont think we get much information. they have taken some blod-test, but it takes forever to get the results, because they have to send them abroad. It`s like there is no history for them to look back on. they ask us a lot of questions, but I dont have the answers. and i can not find any one in Denmark with this same condition. we really feel alone with this, so I`m glad that I havd found you all. now I know that we are not alone. thanks. I still think that my baby-boy is georgeus, but I miss that eye-contact. he has an older brother and sister, they dont have BPES. Could it be, that we (the mothers) are old when we give birth? I would love to know why this happens right out of the blue? thanks again. Lise. Quote
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