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update on Lily

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hello all

enjoyed reading all of your posts. today Lily had a check up with

Dr.Gavaris, the surgeon who did her silicon slings at 6 mos. She will

be 2 at the end of this month.

Dr. G. advised us that she will probably have canthioplasty in the

spring, and the slings with fascia lata one year after the

canthioplasty. Her vision is developing well, with the exception that

her narrow eye openings limit the horizontal movement of her eyes, so

she sometimes closes one eye and focused with only the other eye,

usually when she is looking to the side.

I am very nervous about the canthioplasty, I am excited because I know

it will improve her vision and appearance 1`but worried about hte

surgery, especially since this time she is a " person " who understands

things, talks, looks in the mirror, etc.,

The surgery will be at Children's National Medical Center in DC. I

know some new people have joined the group, anyone else have any

experience with any hospitals or surgeons in the area?

Beth and Lily

PS will post a pic soon

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