Guest guest Posted July 16, 2006 Report Share Posted July 16, 2006 Hi Beth, Thanks for the update. Here's wishing you and Lily all the very best with the surgery. Happy birthday Lily! --- In blepharophimosis , " bethgordon03 " <bethgordon03@...> wrote: > > hello all > > enjoyed reading all of your posts. today Lily had a check up with > Dr.Gavaris, the surgeon who did her silicon slings at 6 mos. She will > be 2 at the end of this month. > > Dr. G. advised us that she will probably have canthioplasty in the > spring, and the slings with fascia lata one year after the > canthioplasty. Her vision is developing well, with the exception that > her narrow eye openings limit the horizontal movement of her eyes, so > she sometimes closes one eye and focused with only the other eye, > usually when she is looking to the side. > > I am very nervous about the canthioplasty, I am excited because I know > it will improve her vision and appearance 1`but worried about hte > surgery, especially since this time she is a " person " who understands > things, talks, looks in the mirror, etc., > > The surgery will be at Children's National Medical Center in DC. I > know some new people have joined the group, anyone else have any > experience with any hospitals or surgeons in the area? > > Beth and Lily > > PS will post a pic soon > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2006 Report Share Posted July 20, 2006 HI Beth & Lily :-) Glad all is well. I haven;t been keeping up with posts ...it is hard enough keeping up with 3 extrememly active children! I know it is hard knowing she will have the surgery and going through the unknown ....but we have had so many wonderful surgeries here ...I wish you nothing but the best! Hope all is well. I think of you often. Sharon PS is walking and talking and understanding so much it amazes me ! (13 months already) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2006 Report Share Posted July 20, 2006 Thanks for your message. I think of you,also, with 3 kids who are thriving. take care --- In blepharophimosis , " Sharon " <besilly12000@...> wrote: > > HI Beth & Lily :-) > > Glad all is well. I haven;t been keeping up with posts ...it is hard > enough keeping up with 3 extrememly active children! > > I know it is hard knowing she will have the surgery and going through > the unknown ....but we have had so many wonderful surgeries here ...I > wish you nothing but the best! Hope all is well. I think of you > often. Sharon > > PS is walking and talking and understanding so much it amazes > me ! (13 months already) > Quote Link to comment Share on other sites More sharing options...
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