updating the BPES database

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blepharophimosis/database?method=reportRows & tbl=2 & sortBy=5

Hi all

The above link takes you to the BPES Database,

There are 548 members of our group.

There are 135 people who have chosen to put information about themselves, or their kids, in the database.

There are 118 photo albums.

This is amazing! Enormous thanks are due to (who set up for all rare conditions) and Lynne Schauble (who started off the BPES Family Network before the days of the Internet).

It would help if you consider the following:

If you are already in the database: is your information up-to-date? where you live, if you supplied surgery info (maybe that needs updating), perhaps you have ID you'd like to supply.

If you are not in the database: perhaps you'd like to add some information about yourself or your family. You don't have to put information in all of the columns. Also, if you don't want to participate then that's cool.

Lastly, may I ask people (this is only a request) that when you post messages ... please put your name and where you are from at the bottom of the message.

Many thanks

Shireen Mohandes

London, England