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Hi Hannah

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Hi Hannah,

I'm sorry you don't feel as if anyone is talking to you and hope you know

that people are 'listening' to you by way of reading your emails.

There are a lot of people who read but don't write. I guess the other thing

is that we have a lot of parents of children as opposed to younger people

like yourself and don't always know how to respond.

It's tough enough being a 13 year old girl - not to mention having BPES.

Is there any specific question you want people to answer? Like how they

felt growing up? How did they deal with questions? What did they do when

it came time for makeup? etc? Or did you just want to chat with someone who

has BPES?

My 8 year old son Keaton has BPES and this group didn't exist back then so

I'm learning so much. Keaton doesn't go on-line at all as he's usually

playing with his Game Boy, Transformers and Lego - not that much in common

with a 13 year old girl. You can always email me or the group though.

I hope you feel better after reading this email and remember, as Bryonny

pointed out, there are a bunch of people to whom you can turn to for support

along with talking to your parents.

Take care.

el.

Evergreen Lee

397 Freeman Crescent,

Oakville, ON Canada L6H 4R4

Phone: 905 338-8762

Cell: 416 526-7581

>From: blepharophimosis

>[mailto:blepharophimosis ] On Behalf Of h.jameson

>Sent: 12 October 2006 20:23

>blepharophimosis

>Subject: blepharophimosis anyone out there

>

>

>

>hi my name is hannah . i am 13 . i was woundering if anyone out there

>would like to talk to me .

>i feel like no is writing to me.

>well hope someone out ther will come and talk to me and save my life.

>

>hannah

>

>

>

>

>--

>No virus found in this incoming message.

>Checked by AVG Free Edition.

>Version: 7.1.408 / Virus Database: 268.13.2/472 - Release Date: 11/10/2006

>

>

>

>--

>No virus found in this outgoing message.

>Checked by AVG Free Edition.

>Version: 7.1.408 / Virus Database: 268.13.2/472 - Release Date: 11/10/2006

>

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