Guest guest Posted June 27, 2004 Report Share Posted June 27, 2004 1 - yes this is possible but maybe not at the beginning. depending on how long you were HOH, this is not only a hearing skill but a 'focusing' skill. there were plenty of times where i had this kind of delayed reaction because i just wan't used to the idea of hearing anything behind my back. 2 - this will be your best motivation, won't it?! 3 - possible 4 - possible 5 - possible..................just go for it!! In a message dated 6/26/2004 11:16:15 PM Eastern Standard Time, tarynbriggs@... writes: I am hoping to obtain the following goals with CI... do you think these are possible? 1. Hear people call me behind my back. 2. Hear my son talking in a dark place (rocking him at night, driving in a car). 3. Use the phone a little better than I do now. 4. Here people without total lipreading . 5. Hear people in noisy situations (restaraunts, mall, etc.) Please feel free to give me honest expectations and comments! Thanks! Taryn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2006 Report Share Posted October 12, 2006 Hi Hannah My name is Bryony; I am 28 and have BPES. Do you have BPES or is it member/s of your family? There are loads of members with so much information you can find out anything you need. This is a really supportive group and I promise you’re not on your own!! From: blepharophimosis [mailto:blepharophimosis ] On Behalf Of h.jameson Sent: 12 October 2006 20:23 blepharophimosis Subject: blepharophimosis anyone out there hi my name is hannah . i am 13 . i was woundering if anyone out there would like to talk to me . i feel like no is writing to me. well hope someone out ther will come and talk to me and save my life. hannah -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.408 / Virus Database: 268.13.2/472 - Release Date: 11/10/2006 -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.408 / Virus Database: 268.13.2/472 - Release Date: 11/10/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2006 Report Share Posted October 13, 2006 Hi Hannah, oh please don't feel alone, we are all here for you and we will talk any time you need to!! I have a son who is only 5 years old with BPES, so he is not really in to talking on the internet, but I think I speak for all of us writers that we are very interested in what you may have to say, seeings you have BPES at age 13 you can have a lot of input on the way our kids may feel someday!! How has this affected you so far? Have you had surgeries? How many? I am interested in knowing so I can understand? Talk to ya soon, Karla"h.jameson" <h.jameson@...> wrote: hi my name is hannah . i am 13 . i was woundering if anyone out there would like to talk to me . i feel like no is writing to me.well hope someone out ther will come and talk to me and save my life.hannah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2006 Report Share Posted October 13, 2006 hi Hannah. My name is . I dont have children with BPES, but I DO have the "love of my life", my nephew , with BPES. He is almost 2 years old. Welcome to our group. I am sorry I didnt write sooner, but, I havent checked my mail in a while, and I just saw your post. Please keep writing! I'm sure I can speak for everyone in saying we LOVE to get input from EVERYONE! I'll be looking for your reply!Karla Mesman <mkmesman@...> wrote: Hi Hannah, oh please don't feel alone, we are all here for you and we will talk any time you need to!! I have a son who is only 5 years old with BPES, so he is not really in to talking on the internet, but I think I speak for all of us writers that we are very interested in what you may have to say, seeings you have BPES at age 13 you can have a lot of input on the way our kids may feel someday!! How has this affected you so far? Have you had surgeries? How many? I am interested in knowing so I can understand? Talk to ya soon, Karla"h.jameson" <h.jameson > wrote: hi my name is hannah . i am 13 . i was woundering if anyone out there would like to talk to me . i feel like no is writing to me.well hope someone out ther will come and talk to me and save my life.hannah Stay in the know. Pulse on the new .com. Check it out. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.