Guest guest Posted October 2, 2006 Report Share Posted October 2, 2006 Hello, When the UK BPES gang met up last Sunday (great to meet you all!) I promised I would let you know how Bipin's first surgery went and I'm only just getting round to it, sorry! I've had a hectic few days at work, but mostly it was because I didn't feel too much like writing last week. The op went ahead and everything is fine now, and Bipin is on fine form, but it took Jakesh and I a few days to get over the whole thing! We had almost assumed that it wouldn't happen because Bipin had a bit of a cough, but the anaesthetist said he was fine and then everything moved quite fast, which left us feeling a bit powerless. Having him go under the anaesthetic was upsetting and then when he came out he yelled and yelled and looked very swollen and one eye looked much bigger than the other. By this time I was a wreck. Once he had slept off the anaesthetic he was fine, still tired and a bit clingy but fine and very hungry. And by day 3 the swelling had gone down almost completely and he was learning to use the muscles round his eyes and it's now not nearly as noticeable that one eye is bigger than the other. I suppose it has also been a matter of us getting used to his 'new look'. We had his follow-up appointment today and all seems fine and hopefully he won't need any more surgery, and his eyesight should be able to develop a lot better. He'll have regular check ups. So we're now happy that we made the right decision, and it's true that his eyes look more like other people's, although we like to think that he hasn't lost any of his uniqueness! I'll post some photos up as soon as I get a chance. I hope it's alright that I've been quite open about how difficult it was - I don't mean to scare anyone. I suppose what I found most difficult was that the decision to put him through surgery needed to be ours and not the doctors. In his case it was recommended but not a case of him not being able to see without it. And he is so young and vulnerable! Anyway, as I said, we're now happy that we did the right thing. Best wishes to all, and good luck to everyone else that is taking decisions about surgery and going through it! Tessa Quote Link to comment Share on other sites More sharing options...
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