RE : RE: BPES french group

[Guest guest]

Hi Shireen Sorry I forgot to note my name!I am Caroline Dupichaud, and I thank you for your answer. Here is the link of my group : http://fr./group/bpes_information/ Groupe de discussion, d'échange d'informations et de soutien en français concernant le Blépharophimosis épicanthus inversus syndrome. I have not a lot of information in French for the moment, because I learnt that I was touched by the disease one week ago hardly. Your group is a very good thing, thank you for the credit note creates. I think that a lot of people feels less isolated. Best regards Caroline DupichaudShireen Mohandes <andy.bowles@...> a écrit : Hi (sorry but I don't know your name) You are very welcome to join this group and to provide a link with your group. If you can provide me with some information in

French, I can post it on the "BPES Family Network" page. This will help to promote your group to French speakers. Best wishes Shireen Mohandes London, England From: blepharophimosis

[mailto:blepharophimosis ] On Behalf Of bpesunionSent: 19 September 2006 10:49blepharophimosis Subject: blepharophimosis BPES french group I created a group of discussion in French about the BPES because I am myself affected by this disease. Do you authorize me to add your group in link?It could help French who do not speak about English to be found more information.Without the existence of your group I would not maybe have thought of worrying one in French so thank you very much for all that you make.

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