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benjamin

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My son turned 2 in August. He has gone to two genetic doctors who

diagnosed him with BPES. The ophthalmologist does not see it as

a " classic case " and thinks he may have some form of BPES.

Do you guys see other symptoms/syndromes associated with BPES and your

children? Mental retardation? Developmental delays? My son walked

at 18 months. He was late hitting most developmental milestones. He

says single words now. He says some 2 words phrases but that is about

it. He had physical therapy and now receives speech therapy.

Thanks

Maureen

Charlotte NC

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