Blepharophimosis and ptosis

[Guest guest]

My nephew, who is 5 weeks old was just diagnosed with

blepharophimosis, ptosis and nanophthalmos. My sister in law and

brother were both concerened as well as the pediatrician because he

didnt seem to be opening his eyes enough so they went to a specialist

and thats what they were told. The dr. does want to see him back in

two months to re-evaluate him but in the meantime both parents are a

wreck over this and are really trying to find out what this actually

means. Can anybody help me. They asked me to look stuff up on the

internet about it but there's so much to read and I thought it might

be better to hear some feedback from someone who has actually gone

through this. Anything will help. Thanks.