Guest guest Posted October 29, 2006 Report Share Posted October 29, 2006 Hi Everyone, from Ireland here again. Sorry to ask the same question again, but I didn't get any response from my last message. Our 5 month old daughter has just seen the geneticist last week and he said she has BPES, so we are wondering if there is anyone we can chat to that knows about BPES here in Ireland, as it's not a condition that there is much information really available on, and we'd really love to hear from parents in Ireland if possible. If not... I'm so grateful to you all out there for sharing your stories and photos. If anyone out there has a daughter that was seen at around 5 months, who then was refered to an eye surgeon for Ptosis surgery, I'd really appreciate any help/information/photos/suggestions!!! As I am very nervous about my little angel going for surgery. Thanks again. County Kildare, Ireland Quote Link to comment Share on other sites More sharing options...
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