Re: Hollys Surgery Cancelled

[Guest guest]

Hi Everybody Just a quick note to thank everybody for all their nice e-mails wishing us good luck etc. It was very kind of you. Well bad news. Holly started with a cold and bad cough at 4am this morning which means they will not operate tomorrow at Moorfields. We are absolutely gutted and can't believe that our worst fears came true! Not sure when they will re-schedule, just hope it isn't too long away. Holly has never suffered with a cough and we can't believe that she gets one a day before surgery!!! Need major cheering up. Lucy xxxClare Teale <clareteale@...> wrote: Hi Lucy, and Holly The Teales are thinking of all three of

you.... You are a truly amazing mum, and the info share is a great support for all of those going through the same thing.... Please let us know how she gets on - I The picture we have is of Holly as a delicate little china doll - just like emy used to be, now emy is 10 as you know and over all of the ops. This will be you really really soon. Love and support to all three of you... Clare and Emy - Herts UK Lucy Chidgey <lcgosport@...> wrote: Hi Thanks for the message, it means a lot. We are just praying that Holly does not catch a cough or cold between now and then otherwise they may not operate!! It is so

hard not to wrap her up in cotton wool but I am sure everything will be fine. Garry and I are nervous wrecks but Holly is absolutely fine! Will let you know how it goes Lucy xx <parsonsfamily108@...> wrote: Hi LucyGood luck for Monday and for a speedy and uneventful recovery. Holly will be in my prayers. Let us know how she is.Regards P> My nephew, who is 5 weeks old was just diagnosed with> blepharophimosis, ptosis and nanophthalmos. My sister in law and> brother were both concerened as well as the pediatrician because he> didnt seem to be opening his eyes enough so they went to a specialist> and thats what they were told. The dr. does want to see him back in> two months to re-evaluate him but in the meantime both parents

are a> wreck over this and are really trying to find out what this actually> means. Can anybody help me. They asked me to look stuff up on the> internet about it but there's so much to read and I thought it might> be better to hear some feedback from someone who has actually gone> through this. Anything will help. Thanks.> > > > > >

[Guest guest]

Hi Lucy I'm so sorry that Holly's surgery has been cancelled. It's just typical that she gets her cold now! It must be so frustrating for you. Anyway try to keep smiling. Nicola and Grace.Lucy Chidgey <lcgosport@...> wrote: Hi Everybody Just a quick note to thank everybody for all their nice e-mails wishing us good luck etc. It was very kind of you. Well bad news. Holly started with a cold and bad cough at 4am this morning which means they will not operate tomorrow at Moorfields. We are absolutely gutted and can't believe that our worst fears came true! Not sure when they will re-schedule, just hope it isn't too long away. Holly has never suffered with a cough and we can't

believe that she gets one a day before surgery!!! Need major cheering up. Lucy xxxClare Teale <clareteale@...> wrote: Hi Lucy, and Holly The Teales are thinking of all three of you.... You are a truly amazing mum, and the info share is a great support for all of those going through the same thing.... Please let us know how she gets on - I The picture we have is of Holly as a delicate little china doll - just like emy used to be, now emy is 10 as you know and over all of the ops. This will be you really really soon. Love and support to all three of you... Clare and Emy - Herts UK Lucy Chidgey <lcgosport@...> wrote: Hi Thanks for the message, it means a lot. We are just praying that Holly does not catch a cough or cold between now and then otherwise they may not operate!! It is so hard not to wrap her up in cotton wool but I am sure everything will be fine. Garry and I are nervous wrecks but Holly is absolutely fine! Will let you know how it goes Lucy xx <parsonsfamily108@...> wrote: Hi LucyGood luck for Monday and for a speedy and uneventful recovery. Holly will be in my prayers. Let us know how she

is.Regards P> My nephew, who

is 5 weeks old was just diagnosed with> blepharophimosis, ptosis and nanophthalmos. My sister in law and> brother were both concerened as well as the pediatrician because he> didnt seem to be opening his eyes enough so they went to a specialist> and thats what they were told. The dr. does want to see him back in> two months to re-evaluate him but in the meantime both parents are a> wreck over this and are really trying to find out what this actually> means. Can anybody help me. They asked me to look stuff up on the> internet about it but there's so much to read and I thought it might> be better to hear some feedback from someone who has actually gone> through this. Anything will help. Thanks.> > > > > >

[Guest guest]

Hi Lucy

so sorry to hear about Holly's surgery. I know how you feel - Bipin got

a cold and cough 2 days before his appointment at Moorfields on March

27th. We're now rescheduled to July 10th - so if that's anything to go

by, Holly's new appointment might come through in about 3 months or so.

I asked if we could get a cancellation appointment at short notice but

they said it would be unlikely because of NHS cuts (not really sure what

that means.)

It's so frustrating when you're all geared up for it. That's the thing

with one year olds and teething (it's teething -never mind BPES! -

that's causing our family dramas at the moment..). The way Bipin's teeth

are causing him trouble I wouldn't be at all surprised if he comes down

with another cold in July..

Anyway fingers crossed for both of them. I suppose in the grand scheme

of things a few months is not much, but it can definitely seem like it

when you're worrying about something.

All the best to all of you

Tessa

On Sun, 21 May 2006 20:13:54 +0100 (BST), " Lucy Chidgey "

<lcgosport@...> said:

> Hi Everybody

>

> Just a quick note to thank everybody for all their nice e-mails wishing

> us good luck etc. It was very kind of you.

> Well bad news. Holly started with a cold and bad cough at 4am this

> morning which means they will not operate tomorrow at Moorfields. We

> are absolutely gutted and can't believe that our worst fears came true!

> Not sure when they will re-schedule, just hope it isn't too long away.

>

> Holly has never suffered with a cough and we can't believe that she

> gets one a day before surgery!!!

>

> Need major cheering up.

>

> Lucy xxx

>

> Clare Teale <clareteale@...> wrote:

> Hi Lucy, and Holly

>

> The Teales are thinking of all three of you....

>

> You are a truly amazing mum, and the info share is a great support for

> all of those going through the same thing....

>

> Please let us know how she gets on - I The picture we have is of Holly

> as a delicate little china doll - just like emy used to be, now emy is

> 10 as you know and over all of the ops. This will be you really really

> soon.

>

> Love and support to all three of you...

>

> Clare and Emy - Herts UK

>

>

>

> Lucy Chidgey <lcgosport@...> wrote:

> Hi

>

> Thanks for the message, it means a lot. We are just praying that Holly

> does not catch a cough or cold between now and then otherwise they may

> not operate!! It is so hard not to wrap her up in cotton wool but I am

> sure everything will be fine. Garry and I are nervous wrecks but Holly

> is absolutely fine!

>

> Will let you know how it goes

>

> Lucy xx

>

> <parsonsfamily108@...> wrote:

> Hi Lucy

> Good luck for Monday and for a speedy and uneventful recovery. Holly

> will be in my prayers. Let us know how she is.

> Regards

> P

>

>

> > My nephew, who is 5 weeks old was just diagnosed with

> > blepharophimosis, ptosis and nanophthalmos. My sister in law and

> > brother were both concerened as well as the pediatrician because he

> > didnt seem to be opening his eyes enough so they went to a

> specialist

> > and thats what they were told. The dr. does want to see him back

> in

> > two months to re-evaluate him but in the meantime both parents are

> a

> > wreck over this and are really trying to find out what this

> actually

> > means. Can anybody help me. They asked me to look stuff up on the

> > internet about it but there's so much to read and I thought it

> might

> > be better to hear some feedback from someone who has actually gone

> > through this. Anything will help. Thanks.

> >

> >

> >

> >

> >

> >

[Guest guest]

Lucy i am feeling for you. I would just tell myself that there is some reason Holly got that cough and let it go. So sorry for it though.

[Guest guest]

Thanks Nicola! It is very frustrating but hey, that is life I suppose. Holly is starting to get a little better now and has also took a few steps in walking so we are really happy about that. I hope you are all well. Lucy xxNicola Horsley <nicola_horsley@...> wrote: Hi Lucy I'm so sorry that Holly's surgery has been cancelled. It's just typical that she gets her cold now! It must be so frustrating for you. Anyway try to keep smiling. Nicola and Grace.Lucy Chidgey <lcgosport@...> wrote: Hi Everybody Just a quick

note to thank everybody for all their nice e-mails wishing us good luck etc. It was very kind of you. Well bad news. Holly started with a cold and bad cough at 4am this morning which means they will not operate tomorrow at Moorfields. We are absolutely gutted and can't believe that our worst fears came true! Not sure when they will re-schedule, just hope it isn't too long away. Holly has never suffered with a cough and we can't believe that she gets one a day before surgery!!! Need major cheering up. Lucy xxxClare Teale <clareteale@...> wrote: Hi Lucy, and Holly The Teales are thinking of all three of you.... You are a truly amazing

mum, and the info share is a great support for all of those going through the same thing.... Please let us know how she gets on - I The picture we have is of Holly as a delicate little china doll - just like emy used to be, now emy is 10 as you know and over all of the ops. This will be you really really soon. Love and support to all three of you... Clare and Emy - Herts UK Lucy Chidgey <lcgosport@...> wrote: Hi Thanks for the message, it means a lot. We are just praying that Holly does not catch a cough or cold between now and then otherwise they may not operate!! It is so hard not to wrap her up in cotton wool but I am sure everything

will be fine. Garry and I are nervous wrecks but Holly is absolutely fine! Will let you know how it goes Lucy xx <parsonsfamily108@...> wrote: Hi LucyGood luck for Monday and for a speedy and uneventful recovery. Holly will be in my prayers. Let us know how she is.Regards P> My nephew, who is 5 weeks old was just diagnosed with> blepharophimosis, ptosis and nanophthalmos. My sister in law and> brother were both concerened as well as the pediatrician because he> didnt seem to be opening his eyes enough so they went to a specialist> and thats what they were told. The dr. does want to see him back in> two months to re-evaluate him but in the meantime both parents are a> wreck over this and are

really trying to find out what this actually> means. Can anybody help me. They asked me to look stuff up on the> internet about it but there's so much to read and I thought it might> be better to hear some feedback from someone who has actually gone> through this. Anything will help. Thanks.> > > > > >

[Guest guest]

Hi Tessa Thanks for your message, at least we don't feel on our own so much now knowing you went through the same thing!! We are a bit like you too in that we go on holiday at the beginning of September and hope that the new date doesn't fall then. Mind you, the holiday is only in this country so we would still have the surgery and maybe leave the holiday earlier or go later?? I have just said to Garry that I feel quite bad that if I had known your telephone number we could have let you know on Sunday that Holly was unwell so maybe you could have had Hollys surgery appointment, but not sure if that would have been allowed. I can't see why we can't have cancellation appointments to be honest especially if we are prepared to only have a days notice. I think they must happen quite often especially if children are being operated on!!!

Take care and keep in touch Lucy xxtessa mackenzie <tessamackenzie@...> wrote: Hi Lucyso sorry to hear about Holly's surgery. I know how you feel - Bipin gota cold and cough 2 days before his appointment at Moorfields on March27th. We're now rescheduled to July 10th - so if that's anything to goby, Holly's new appointment might come through in about 3 months or so.I asked if we could get a cancellation appointment at short notice butthey said it would be unlikely because of NHS cuts (not really sure whatthat means.)It's so frustrating when you're all geared up for it. That's the thingwith one year olds and teething (it's teething -never mind BPES! -that's causing our family dramas at the moment..). The way Bipin's teethare causing him trouble I

wouldn't be at all surprised if he comes downwith another cold in July..Anyway fingers crossed for both of them. I suppose in the grand schemeof things a few months is not much, but it can definitely seem like itwhen you're worrying about something.All the best to all of youTessaOn Sun, 21 May 2006 20:13:54 +0100 (BST), "Lucy Chidgey"<lcgosport@...> said:> Hi Everybody> > Just a quick note to thank everybody for all their nice e-mails wishing> us good luck etc. It was very kind of you.> Well bad news. Holly started with a cold and bad cough at 4am this> morning which means they will not operate tomorrow at Moorfields. We> are absolutely gutted and can't believe that our worst fears came true!> Not sure when they will re-schedule, just hope it isn't too long

away.> > Holly has never suffered with a cough and we can't believe that she> gets one a day before surgery!!!> > Need major cheering up.> > Lucy xxx> > Clare Teale <clareteale@...> wrote:> Hi Lucy, and Holly> > The Teales are thinking of all three of you....> > You are a truly amazing mum, and the info share is a great support for> all of those going through the same thing....> > Please let us know how she gets on - I The picture we have is of Holly> as a delicate little china doll - just like emy used to be, now emy is> 10 as you know and over all of the ops. This will

be you really really> soon.> > Love and support to all three of you...> > Clare and Emy - Herts UK> > > > Lucy Chidgey <lcgosport@...> wrote:> Hi > > Thanks for the message, it means a lot. We are just praying that Holly> does not catch a cough or cold between now and then otherwise they may> not operate!! It is so hard not to wrap her up in cotton wool but I am> sure everything will be fine. Garry and I are nervous wrecks but Holly> is absolutely fine!> > Will let you know how it goes> > Lucy xx> >

<parsonsfamily108@...> wrote:> Hi Lucy> Good luck for Monday and for a speedy and uneventful recovery. Holly > will be in my prayers. Let us know how she is.> Regards> P> > > > My nephew, who is 5 weeks old was just diagnosed with> > blepharophimosis, ptosis and nanophthalmos. My sister in law and> > brother were both concerened as well as the pediatrician because he> > didnt seem to be opening his eyes enough so they went to a > specialist> > and thats what they were told. The dr. does want to see him back > in> > two months to re-evaluate him but in the meantime both parents are > a> > wreck over this and are really trying to find out what this > actually> >

means. Can anybody help me. They asked me to look stuff up on the> > internet about it but there's so much to read and I thought it > might> > be better to hear some feedback from someone who has actually gone> > through this. Anything will help. Thanks.> > > > > > > > > > > >

[Guest guest]

Hi guys

Don't be too upset. It could be a blessing in disguise.

Joyce

[Guest guest]

Hi Lucy,

This is Amy, 's mom. I can only echo what everyone else has

said. Hopefully you will get another appointment soon. The waiting

and not knowing is the hardest part sometimes. Hope Holly is feeling

better. Congratulations on the few steps of walking!

Amy

> > My nephew, who is 5 weeks old was just diagnosed with

> > blepharophimosis, ptosis and nanophthalmos. My sister in law and

> > brother were both concerened as well as the pediatrician because

he

> > didnt seem to be opening his eyes enough so they went to a

> specialist

> > and thats what they were told. The dr. does want to see him back

> in

> > two months to re-evaluate him but in the meantime both parents

are

> a

> > wreck over this and are really trying to find out what this

> actually

> > means. Can anybody help me. They asked me to look stuff up on

the

> > internet about it but there's so much to read and I thought it

> might

> > be better to hear some feedback from someone who has actually gone

> > through this. Anything will help. Thanks.

> >

> >

> >

> >

> >

> >