Guest guest Posted July 9, 2006 Report Share Posted July 9, 2006 Hi (and everyone) Kirsten is doing really well, thanks. Her incisions aren't too red for now, although the bridge of her nose is still a little swollen 12 days after surgery. She didn't need nasal wiring, the surgeon just shortened the tendon and did the Y-V canthoplasty. I am expecting the scars to become red especially around 3 - 4 months. Thanks for the advice on Mederma cream. I've checked it out and discovered it is readily available in the States, I will find out if it is also available here in the UK. It can't do any harm to try it. For now I am just using chloramphenicol ointment on the areas with stitches in and it is looking great. I have posted 2 new pics in her photo album for all to see the result so far. It will be interesting to see how her eyes change over the next 6 months, but we are delighted with the result. Take care P > > Hi all > > > > Wow, I've had to catch up on a lot of news since I last posted! What > > fabulous discussions there have been lately. > > > > Welcome to all the new members. I am sure you will find this group > > as supportive and helpful as I have. To fill you in on my story, my > > daughter, Kirsten (3yrs) is the first and only person in our family > > to have BPES. She was born in South Africa and we moved to the UK > > when she was 1 year old. Mr Collin at Moorfields Eye Hospital in > > London was recommended to us by 2 surgeons in RSA, one was a plastic > > surgeon and the other her ophthalmologist. So his reputation spreads > > far. Although we now live in North Yorkshire, we still travel to > > London for Kirsten's check-ups and surgery. Her photos are > > under 'Kirsten Parsons' and I will post some new ones soon. > > > > A big thank you for all the kind words and prayers for Kirsten > > recently. She had her Y-V canthoplasty done on Tues, 27th and it > > went very well. We found out that one of her tear ducts is not > > patent which surprised us as she has never had watery eyes. Her eyes > > are still fairly swollen but improving. She was up and about as > > normal the next day and today has been asking to go to nursery > > school! > > > > I have been warned by Mr Collin that she will look worse before she > > looks better. He said that the scars will look particularly red > > about 3 months after surgery and we will appreciate the result after > > six months. It certainly took six months for her eyes to settle > > after her lid lift. > > > > Regards > > P > > > > > > > > > > > > > > --------------------------------- > > To help you stay safe and secure online, we've developed the all new Security > Centre. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2006 Report Share Posted July 10, 2006 Hi Oh wow! What a difference the last op has made to Kirstens eyes, she looks so grown up too! I remember what Kirsten looked like in December at the London meeting and the results are fantastic, even more beautiful cos you can see more of her lovely blue eyes. Holly is now due her 1st operation on Monday 4th September so hopefully we can come along to the next London meeting with her eyes bigger! Fingers crossed no illnesses this time. Take care and thanks again for posting the photos of Kirsten. Send her a big kiss from me Lucy xxx <parsonsfamily108@...> wrote: Hi (and everyone)Kirsten is doing really well, thanks. Her incisions aren't too red for now, although the bridge of her nose is still a little swollen 12 days after surgery. She didn't need nasal wiring, the surgeon just shortened the tendon and did the Y-V canthoplasty. I am expecting the scars to become red especially around 3 - 4 months. Thanks for the advice on Mederma cream. I've checked it out and discovered it is readily available in the States, I will find out if it is also available here in the UK. It can't do any harm to try it. For now I am just using chloramphenicol ointment on the areas with stitches in and it is looking great.I have posted 2 new pics in her photo album for all to see the result so far. It will be interesting to see how her eyes change over the next 6 months, but we are delighted with the result.Take care P> > Hi all> > > > Wow, I've had to catch up on a lot of news since I last posted! What > > fabulous discussions there have been lately.> > > > Welcome to all the new members. I am sure you will find this group > > as supportive and helpful as I have. To fill you in on my story, my > > daughter, Kirsten (3yrs) is the first and only person in our family > > to have BPES. She was born in South Africa and we moved to the UK > > when she was 1 year old. Mr Collin at Moorfields Eye Hospital in > > London was recommended to us by 2 surgeons in RSA, one was a plastic > > surgeon and the other her ophthalmologist. So his reputation spreads > > far. Although we now live in North Yorkshire, we still travel to > > London for Kirsten's check-ups and surgery. Her photos are > > under 'Kirsten Parsons' and I will post some new ones soon.> > > > A big thank you for all the kind words and prayers for Kirsten > > recently. She had her Y-V canthoplasty done on Tues, 27th and it > > went very well. We found out that one of her tear ducts is not > > patent which surprised us as she has never had watery eyes. Her eyes > > are still fairly swollen but improving. She was up and about as > > normal the next day and today has been asking to go to nursery > > school!> > > > I have been warned by Mr Collin that she will look worse before she > > looks better. He said that the scars will look particularly red > > about 3 months after surgery and we will appreciate the result after > > six months. It certainly took six months for her eyes to settle > > after her lid lift.> > > > Regards> > P> > > > > > > > > > > > > > ---------------------------------> > To help you stay safe and secure online, we've developed the all new Security > Centre.> >> All new "The new Interface is stunning in its simplicity and ease of use." - PC Magazine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2006 Report Share Posted July 11, 2006 Hi Lucy Thanks for your note and kind words. It is an advantage having surgery in the summer so no colds and flu to worry about. I look forward to seeing you and Holly again in September for a good natter. Holly should be back to her normal self the day after surgery. It is amazing how well they recover. Take care P > > > Hi all > > > > > > Wow, I've had to catch up on a lot of news since I last posted! > What > > > fabulous discussions there have been lately. > > > > > > Welcome to all the new members. I am sure you will find this > group > > > as supportive and helpful as I have. To fill you in on my story, > my > > > daughter, Kirsten (3yrs) is the first and only person in our > family > > > to have BPES. She was born in South Africa and we moved to the > UK > > > when she was 1 year old. Mr Collin at Moorfields Eye Hospital in > > > London was recommended to us by 2 surgeons in RSA, one was a > plastic > > > surgeon and the other her ophthalmologist. So his reputation > spreads > > > far. Although we now live in North Yorkshire, we still travel to > > > London for Kirsten's check-ups and surgery. Her photos are > > > under 'Kirsten Parsons' and I will post some new ones soon. > > > > > > A big thank you for all the kind words and prayers for Kirsten > > > recently. She had her Y-V canthoplasty done on Tues, 27th and it > > > went very well. We found out that one of her tear ducts is not > > > patent which surprised us as she has never had watery eyes. Her > eyes > > > are still fairly swollen but improving. She was up and about as > > > normal the next day and today has been asking to go to nursery > > > school! > > > > > > I have been warned by Mr Collin that she will look worse before > she > > > looks better. He said that the scars will look particularly red > > > about 3 months after surgery and we will appreciate the result > after > > > six months. It certainly took six months for her eyes to settle > > > after her lid lift. > > > > > > Regards > > > P > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > > To help you stay safe and secure online, we've developed the > all new Security > > Centre. > > > > > > > > > > > > --------------------------------- > All new " The new Interface is stunning in its simplicity and ease of use. " - PC Magazine > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2006 Report Share Posted July 11, 2006 Hi , Thank you for sharing Kirsten's photos. WHOA!!! I'm totally blown away! She looks wonderful. Like Lucy, my mental image of Kirsten is still that cute little girl I met in London. Sorry to be an echo but wow, she looks great and all grown up!! I'm so happy for you and Kirsten. We have Mederma here in Singapore, saw it before. I'll be happy to mail you a tube if you like. It'll be our pressie for Kirsten for being such a champion. Just let me know if you'll like me to mail it. The instructions on the box says not to apply on broken skin. So may be good that you don't do it right now anyway. The antibiotic cream you are currrently using will help reduce risk of scarring due to possible infection (at least that's what I understand). We are still waiting for Naomi to grow taller! Becasue the tapes are serving their pupose Mr and our doctor here are advising us to wait...She's happy though, her friends and teachers at school are great. Like Kirsten, she's also grown 'up' (not so much UPwards - darn it). I'll get Ern to post one of her latest photos, maybe the one that won her the prize, ha!ha! Take care now and hugs to all at home. > > > > Hi all > > > > > > > > Wow, I've had to catch up on a lot of news since I last > posted! > > What > > > > fabulous discussions there have been lately. > > > > > > > > Welcome to all the new members. I am sure you will find this > > group > > > > as supportive and helpful as I have. To fill you in on my > story, > > my > > > > daughter, Kirsten (3yrs) is the first and only person in our > > family > > > > to have BPES. She was born in South Africa and we moved to the > > UK > > > > when she was 1 year old. Mr Collin at Moorfields Eye Hospital > in > > > > London was recommended to us by 2 surgeons in RSA, one was a > > plastic > > > > surgeon and the other her ophthalmologist. So his reputation > > spreads > > > > far. Although we now live in North Yorkshire, we still travel > to > > > > London for Kirsten's check-ups and surgery. Her photos are > > > > under 'Kirsten Parsons' and I will post some new ones soon. > > > > > > > > A big thank you for all the kind words and prayers for Kirsten > > > > recently. She had her Y-V canthoplasty done on Tues, 27th and > it > > > > went very well. We found out that one of her tear ducts is not > > > > patent which surprised us as she has never had watery eyes. > Her > > eyes > > > > are still fairly swollen but improving. She was up and about > as > > > > normal the next day and today has been asking to go to nursery > > > > school! > > > > > > > > I have been warned by Mr Collin that she will look worse > before > > she > > > > looks better. He said that the scars will look particularly > red > > > > about 3 months after surgery and we will appreciate the result > > after > > > > six months. It certainly took six months for her eyes to > settle > > > > after her lid lift. > > > > > > > > Regards > > > > P > > > > > > > > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > > > To help you stay safe and secure online, we've developed the > > all new Security > > > Centre. > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > All new " The new Interface is stunning in its > simplicity and ease of use. " - PC Magazine > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2006 Report Share Posted July 11, 2006 Hi Lucy, Just wanted to say ALL THE BEST with 4th September. We'll pray for good health and quick recovery for dear Holly. Do give the cutie a big kiss from us > > > > Hi all > > > > > > > > Wow, I've had to catch up on a lot of news since I last > posted! > > What > > > > fabulous discussions there have been lately. > > > > > > > > Welcome to all the new members. I am sure you will find this > > group > > > > as supportive and helpful as I have. To fill you in on my > story, > > my > > > > daughter, Kirsten (3yrs) is the first and only person in our > > family > > > > to have BPES. She was born in South Africa and we moved to the > > UK > > > > when she was 1 year old. Mr Collin at Moorfields Eye Hospital > in > > > > London was recommended to us by 2 surgeons in RSA, one was a > > plastic > > > > surgeon and the other her ophthalmologist. So his reputation > > spreads > > > > far. Although we now live in North Yorkshire, we still travel > to > > > > London for Kirsten's check-ups and surgery. Her photos are > > > > under 'Kirsten Parsons' and I will post some new ones soon. > > > > > > > > A big thank you for all the kind words and prayers for Kirsten > > > > recently. She had her Y-V canthoplasty done on Tues, 27th and > it > > > > went very well. We found out that one of her tear ducts is not > > > > patent which surprised us as she has never had watery eyes. > Her > > eyes > > > > are still fairly swollen but improving. She was up and about > as > > > > normal the next day and today has been asking to go to nursery > > > > school! > > > > > > > > I have been warned by Mr Collin that she will look worse > before > > she > > > > looks better. He said that the scars will look particularly > red > > > > about 3 months after surgery and we will appreciate the result > > after > > > > six months. It certainly took six months for her eyes to > settle > > > > after her lid lift. > > > > > > > > Regards > > > > P > > > > > > > > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > > > To help you stay safe and secure online, we've developed the > > all new Security > > > Centre. > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > All new " The new Interface is stunning in its > simplicity and ease of use. " - PC Magazine > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2006 Report Share Posted July 12, 2006 Hi , I just saw Kirstens pics. My daughter is 4 years old, we live in Germany and we are thinking about having R. Collin performing surgery on her. Could you please explain to me, what Collin exactly did? What kind of surgery technique? Levator resection or Brow Suspension (Sling procedure)? Which surgery did he do first? The pictures look as if he did the Ptosis first and the Epicanthus after. This is unusual. Thanks for your reply, Anja > > > > > Hi all > > > > > > > > > > Wow, I've had to catch up on a lot of news since I last > > posted! > > > What > > > > > fabulous discussions there have been lately. > > > > > > > > > > Welcome to all the new members. I am sure you will find this > > > group > > > > > as supportive and helpful as I have. To fill you in on my > > story, > > > my > > > > > daughter, Kirsten (3yrs) is the first and only person in our > > > family > > > > > to have BPES. She was born in South Africa and we moved to the > > > UK > > > > > when she was 1 year old. Mr Collin at Moorfields Eye Hospital > > in > > > > > London was recommended to us by 2 surgeons in RSA, one was a > > > plastic > > > > > surgeon and the other her ophthalmologist. So his reputation > > > spreads > > > > > far. Although we now live in North Yorkshire, we still travel > > to > > > > > London for Kirsten's check-ups and surgery. Her photos are > > > > > under 'Kirsten Parsons' and I will post some new ones soon. > > > > > > > > > > A big thank you for all the kind words and prayers for Kirsten > > > > > recently. She had her Y-V canthoplasty done on Tues, 27th and > > it > > > > > went very well. We found out that one of her tear ducts is not > > > > > patent which surprised us as she has never had watery eyes. > > Her > > > eyes > > > > > are still fairly swollen but improving. She was up and about > > as > > > > > normal the next day and today has been asking to go to nursery > > > > > school! > > > > > > > > > > I have been warned by Mr Collin that she will look worse > > before > > > she > > > > > looks better. He said that the scars will look particularly > > red > > > > > about 3 months after surgery and we will appreciate the result > > > after > > > > > six months. It certainly took six months for her eyes to > > settle > > > > > after her lid lift. > > > > > > > > > > Regards > > > > > P > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > > > > To help you stay safe and secure online, we've developed the > > > all new Security > > > > Centre. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > > All new " The new Interface is stunning in its > > simplicity and ease of use. " - PC Magazine > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2006 Report Share Posted July 12, 2006 Hi Anja Mr Collin did a frontalis sling (lid lift) first as Kirsten's vision was being affected. Her right eye was becoming weaker than the left, but she was lucky never to have a squint. She had the lid lift at 2 yrs and 4 months of age. He used a suture material (I don't know exactly what) and not fascia from her leg. I don't think he used silicone either. The plan is to repeat the lid lift once she is 4 years old and at least 6 months after the canthoplasty, using fascia from her leg. One thing he did say to me was that it was not a good idea to do both procedures at once as each operation pulls the eye in a different direction. The lid lift pulls it up and the canthoplasty will pull the eye inwards, so to get a good result he feels they should be done at 2 different times. It is my understanding that the canthoplasty is usually done first if the pupil is not obstructed and vision is developing normally, but if the pupil is even partly obstructed then to allow vision to develop, the lid lift will be done first. Surgery for BPES is fairly individualised even though the principles remain the same. Best of luck for your daughter's surgery. Regards P > > > > > > Hi all > > > > > > > > > > > > Wow, I've had to catch up on a lot of news since I last > > > posted! > > > > What > > > > > > fabulous discussions there have been lately. > > > > > > > > > > > > Welcome to all the new members. I am sure you will find > this > > > > group > > > > > > as supportive and helpful as I have. To fill you in on my > > > story, > > > > my > > > > > > daughter, Kirsten (3yrs) is the first and only person in > our > > > > family > > > > > > to have BPES. She was born in South Africa and we moved to > the > > > > UK > > > > > > when she was 1 year old. Mr Collin at Moorfields Eye > Hospital > > > in > > > > > > London was recommended to us by 2 surgeons in RSA, one was > a > > > > plastic > > > > > > surgeon and the other her ophthalmologist. So his > reputation > > > > spreads > > > > > > far. Although we now live in North Yorkshire, we still > travel > > > to > > > > > > London for Kirsten's check-ups and surgery. Her photos are > > > > > > under 'Kirsten Parsons' and I will post some new ones soon. > > > > > > > > > > > > A big thank you for all the kind words and prayers for > Kirsten > > > > > > recently. She had her Y-V canthoplasty done on Tues, 27th > and > > > it > > > > > > went very well. We found out that one of her tear ducts is > not > > > > > > patent which surprised us as she has never had watery eyes. > > > Her > > > > eyes > > > > > > are still fairly swollen but improving. She was up and > about > > > as > > > > > > normal the next day and today has been asking to go to > nursery > > > > > > school! > > > > > > > > > > > > I have been warned by Mr Collin that she will look worse > > > before > > > > she > > > > > > looks better. He said that the scars will look particularly > > > red > > > > > > about 3 months after surgery and we will appreciate the > result > > > > after > > > > > > six months. It certainly took six months for her eyes to > > > settle > > > > > > after her lid lift. > > > > > > > > > > > > Regards > > > > > > P > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > > > > > To help you stay safe and secure online, we've developed > the > > > > all new Security > > > > > Centre. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > > > All new " The new Interface is stunning in its > > > simplicity and ease of use. " - PC Magazine > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2006 Report Share Posted July 12, 2006 Hi , thanks for your reply. I have some more questions, if you don´t mind. Did Mr. Collin do anything about the lidfold? Did he do a cut to reconstruct the fold? Do you know what I mean? Usually children with BPES dont´t have a lidfold before surgery. And the pictures I saw from german surgeons ... the kids did not have lidfolds after the brow suspension either ....And Kirstens lidfold looks great now!!! How was the hospital stay? How was the staff??? How long had Kirsten to stay in hospital? How long was the recovery period before she was able to go to school again? Did NHS take over the surgery costs? Or did you pay by yourselfes? Thanks so much for your reply, Regards, Anja > > > > > > > Hi all > > > > > > > > > > > > > > Wow, I've had to catch up on a lot of news since I last > > > > posted! > > > > > What > > > > > > > fabulous discussions there have been lately. > > > > > > > > > > > > > > Welcome to all the new members. I am sure you will find > > this > > > > > group > > > > > > > as supportive and helpful as I have. To fill you in on > my > > > > story, > > > > > my > > > > > > > daughter, Kirsten (3yrs) is the first and only person in > > our > > > > > family > > > > > > > to have BPES. She was born in South Africa and we moved > to > > the > > > > > UK > > > > > > > when she was 1 year old. Mr Collin at Moorfields Eye > > Hospital > > > > in > > > > > > > London was recommended to us by 2 surgeons in RSA, one > was > > a > > > > > plastic > > > > > > > surgeon and the other her ophthalmologist. So his > > reputation > > > > > spreads > > > > > > > far. Although we now live in North Yorkshire, we still > > travel > > > > to > > > > > > > London for Kirsten's check-ups and surgery. Her photos > are > > > > > > > under 'Kirsten Parsons' and I will post some new ones > soon. > > > > > > > > > > > > > > A big thank you for all the kind words and prayers for > > Kirsten > > > > > > > recently. She had her Y-V canthoplasty done on Tues, > 27th > > and > > > > it > > > > > > > went very well. We found out that one of her tear ducts > is > > not > > > > > > > patent which surprised us as she has never had watery > eyes. > > > > Her > > > > > eyes > > > > > > > are still fairly swollen but improving. She was up and > > about > > > > as > > > > > > > normal the next day and today has been asking to go to > > nursery > > > > > > > school! > > > > > > > > > > > > > > I have been warned by Mr Collin that she will look worse > > > > before > > > > > she > > > > > > > looks better. He said that the scars will look > particularly > > > > red > > > > > > > about 3 months after surgery and we will appreciate the > > result > > > > > after > > > > > > > six months. It certainly took six months for her eyes to > > > > settle > > > > > > > after her lid lift. > > > > > > > > > > > > > > Regards > > > > > > > P > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > > > > > > To help you stay safe and secure online, we've developed > > the > > > > > all new Security > > > > > > Centre. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > > > > All new " The new Interface is stunning in its > > > > simplicity and ease of use. " - PC Magazine > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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