more questions about sling surgery and recovery

February 28, 2006

Hi all

I've mentioned before that our son Bipin is having his first surgery at

in a month's time at Moorfields. As it gets closer I'm getting a bit

nervous and finding that I have more questions about what happens post-

op. Several of you have written about arm restraints... scary thought.

Bipin's a very active and cheekly little 1 year old and I just can't

imagine him dealing at all with arm restraints - but is this the only

way of stopping him scratching at his eyes? Is he likely to try and

scratch his eyes? And how delicate is the area that they operate on?

and how long for? Also he sleeps on his front, and generally rubs his

face into the bed for a while before falling asleep, what does that

mean for his eyes healing?

I'd really appreciate some feedback from any of you who have had

experience of this.

Also, Mr Collin described the surgery as temporary but I'm wondering

what that really means. If his eyesight develops properly after this op

and we decided for him not to have any more surgery after this one is

it going to look like he's had half the job done? or will his eyes

really just go back to looking like they do now? My husband Jakesh has

BPES and had the whole series of ops as a kid (but older than 1), as

did his brother, but his sister has not had any. So I'm wondering what

it would be like to just have the first one and then no others.

anyway would be great to read your thoughts.

Tessa

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