Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 My son Aedan does not have a blink reflex like we do but it is so amazing , he does blink using I guess, his brow muscles. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 Micah does not blink at all. He can close his eyes intentionally if he wants to. But he does not have a blink " reflex " like the rest of my kids do. And he sleeps with his eyes wide open at night. We put an ointment in every night before he goes to sleep to keep them moist. It sounds strange, but really it is no big deal at all. I know from videos of him that his vision was very limited prior to his surgery. He tilted his head WAY back to be able to see past his lids. The head tilt was gone the very day he had his sling surgery (according to the pictures I have of him suddenly looking straight at the camera instead of tilting back). Hope that helps you some. :)April --- JULIE IKEN <kookie61@...> wrote: > April thank you for your response. Can you also tell > me if this surgery has affected the ability to close > his eyes properly and is blinking normal? > > > april Eisele <aprileisele@...> wrote: > Hi , > I am NOT the expert on this as I only have one child > who has BPES and was not with him during his > surgery. > (He was still in Korea - before we adopted him.) > But > what I do know is that they implanted silicone rods > or > slings in his eyebrows that hold his eyelids open. > The doctor explained it to me as a little loop tied > from the eyebrow to the eyelid and back up to the > eyebrow. It corrected the ptosis part of BPES. You > can see pictures of him under " Eisele Family " . > Hopefully someone else will have more technical info > for you. April > > --- julie <kookie61@...> wrote: > > > Could anyone tell me more about 'sling surgery?' > for > > eye lid > > correction please. > > > > > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 Yes it does April thanks again from april Eisele <aprileisele@...> wrote: Micah does not blink at all. He can close his eyesintentionally if he wants to. But he does not have ablink "reflex" like the rest of my kids do. And hesleeps with his eyes wide open at night. We put anointment in every night before he goes to sleep tokeep them moist. It sounds strange, but really it isno big deal at all.I know from videos of him that his vision was verylimited prior to his surgery. He tilted his head WAYback to be able to see past his lids. The head tiltwas gone the very day he had his sling surgery(according to the pictures I have of him suddenlylooking straight at the camera instead of tiltingback).Hope that helps you some.:)April--- JULIE IKEN <kookie61@...> wrote:> April thank you for your response. Can you also tell> me if this surgery has affected the ability to close> his eyes properly and is blinking normal?> > > april Eisele <aprileisele@...> wrote:> Hi ,> I am NOT the expert on this as I only have one child> who has BPES and was not with him during his> surgery. > (He was still in Korea - before we adopted him.) > But> what I do know is that they implanted silicone rods> or> slings in his eyebrows that hold his eyelids open. > The doctor explained it to me as a little loop tied> from the eyebrow to the eyelid and back up to the> eyebrow. It corrected the ptosis part of BPES. You> can see pictures of him under "Eisele Family". > Hopefully someone else will have more technical info> for you. April> > --- julie <kookie61@...> wrote:> > > Could anyone tell me more about 'sling surgery?'> for> > eye lid > > correction please. > > > > > > > > > > > > > __________________________________________________> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2006 Report Share Posted February 24, 2006 It is early days for us yet, but I think both my girls are able to blink, I think they use the brows to control the movement. They re both able to shut their eyes when they sleep. Once fast asllep I can see a little of her white eyeballs. I spoke to the doctor about this and they said it is not a big issue as long as the pupils are not exposed. Hope this helps Joyce Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2006 Report Share Posted February 24, 2006 Me and my daughter - emy both blink, our eyes sometimes dont shut completely, but the reflex is there. My doctor said when we were little our eyebrow muscles helped our eyes blink in the absence of eyelid muscles. We both sleep with our eyes open, and my left eye has a little bit of scaring due to dryness, but it doesnt bother either of us at all. Clarejoyceaibitoye@... wrote: It is early days for us yet, but I think both my girls are able to blink, I think they use the brows to control the movement. They re both able to shut their eyes when they sleep. Once fast asllep I can see a little of her white eyeballs. I spoke to the doctor about this and they said it is not a big issue as long as the pupils are not exposed. Hope this helps Joyce Relax. virus scanning helps detect nasty viruses! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 > It is early days for us yet, but I think both my girls are able to blink, I think they use the brows to control the movement. They re both able to shut their eyes when they sleep. Once fast asllep I can see a little of her white eyeballs. I spoke to the doctor about this and they said it is not a big issue as long as the pupils are not exposed. > > Hope this helps > > Joyce > > > Quote Link to comment Share on other sites More sharing options...
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