Re: Update on Visit to Moorfields - Take 2 ( Not sure if people received ok)

[Guest guest]

Hi Lucy,

I'm not sure if you remember me or not, you had emailed me a few

months ago. I have a daughter, , who just turned 10 months

old. We also just took her to an occular surgeon for a second

opinion on Monday. It sounds like we have pretty much the same plan

as Holly, execpt they didn't tell us anything about permanent lifts.

had developed some nastagmus (eyes twitching from side to side)

and that is the reason they wanted to do the lift so soon. They told

us the more the eye is exposed the greater the vision develops. Keep

us posted about when her surgery is, etc. and I'll let you know how

we get along. I'm hoping isn't too uncomfortable. We have a

four hour drive home.

Glad to hear you had a good appointment and you were pleased. Peace

of mind means a lot!

Amy

>

> Hi All

> Sorry it has taken me so long to get back to you all but because

our appointment was just before Christmas, it has been so hectic

until now!!

>

> Our daughter Holly is now nearly 11 months old and we were going

to Mr Collin at Moorfields to see what they felt was the best for

Holly. Well where shall I start....the hospital was great, really

set up for children with different play areas and everybody was

really friendly. Holly even got a little teddy bear given to her

from staff which came from Father Christmas who had visited

Moorfields the day before!!

>

> Mr Collin was also a very nice man and made us feel very

comfortable. He said that due to research done in the last 18 months

that if any part of the pupil is covered by the eyelid then they

would do a temporary lift straight away. This means that Holly will

be operated as soon as an appointment is available, probably between

April - May this year. Then aged 3 to 3 and a half they will operate

on her epicanthus inversus. This then leaves the permamnent lifts

using the muscle from her leg aged approx 4 years old. It is so nice

to now know what will be happening and we have every faith in Mr

Collin and Moorfields Eye Hospital. We are even allowed to stay at

the hospital overnight because it will be too far to do in one day.

>

> We are due to go back in March for a check-up appointment and

even though it means travelling to London a few times a year, it is

really worth it for the best quality of care.

>

> I will keep you all updated when her first operation is due.

>

> Take care all and Happy New Year!!

>

> Regards

> Lucy

> Hampshire, UK.

>

>

>

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