New to this website

[Guest guest]

Hi

I have blepharophimosis. I am 27 years old and have just been

diagnosed with premature ovarian failure related to the syndrome. I

am luck enough to already have a 3 year old daughter but am sad to

know she will be an only child.

I have my eye surgery at Great Ormond Street and all treatments were

carried out by Mr .

Does anyone else have the related ovarian failure? I feel very alone

as not many people have even heard of the syndrome.

Thanks

B

xx

[Guest guest]

Lucky for you that you have a child, I have ovarian failure due to this condition which started early for me. I n fact I wasted thirteen years of my life going through infertility tests finally to be told by the well known Professor Winston gynacologist that I could never have children of my own. When I questioned if my early menapause was to do with my eyes he said there was no evidence of it but then I doubt even he or his team had any knowledge of Bleph. It broke my heart so I understand how you must feel. bry_thomps <bryony2@...> wrote: HiI have blepharophimosis. I am 27 years old and have just been diagnosed with premature ovarian failure related to the syndrome. I am luck enough to already have a 3 year old daughter but am sad to know she will be an only child.I have my

eye surgery at Great Ormond Street and all treatments were carried out by Mr .Does anyone else have the related ovarian failure? I feel very alone as not many people have even heard of the syndrome.ThanksBxx