Guest guest Posted April 8, 2006 Report Share Posted April 8, 2006 Hello, I am so excited I finally found a support network for BPES. My daughter is going to be 18 years old next month and she as BPES. She has it to the extreme that she had to have skin graphs added to the area around the top and bottom of her eyes as she had no skin coverage at all when she was born. Now over the past two years, we have found that this has also affected her female reproductive system. Is there anyone here who is familar with this extent of the disorder? I would love to talk to someone. Thank you very much. Quote Link to comment Share on other sites More sharing options...
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