Hi Clare and all

[Guest guest]

Hi Clare, and everyone

We are all fine thanks. Kirsten started standing on her leg 7 weeks

after breaking it and now 11 weeks later is walking instead of

crawling. Her little calves are so wasted they look like sticks!

She was scheduled to have her Y-V canthoplasty at the end of June,

but Mr Collin is now out of town on that date and it has been

brought forward to the 27th April. It suddenly seems so soon and I

am getting the usual pre-op jitters together with being pleased that

the ball is rolling.

There are now 3 families in/ near Harrogate (Hi Nicola!) I have been

introduced to a mum in Harrogate who has a child with BPES. We had a

lovely long phone chat and will be meeting up after the half-term

break. What a small world we live in!

I was bowled over by how gorgeous Emy is when I met you both in

London. I am praying that Kirsten's surgery has as good a result.

Take care

> > >

> > >

> > > WOW! You've got a big heart, to offer up an explanation to

> > people who even have the nerve to ask you about Aedan's eyes, my

> > hats off to you.

> > > First - you owe no one an explanation about your child's

eyes

> or

> > nose or feet and to even take the time to explain any reason for

> > them is detrimental to Aedan and your self.

> > > That's why he needs a machine to stop the idiots from asking

> > mommy stupid questions, he feels embarrassed and he is very

aware

> of

> > what's going on.

> > > If you continue to address questions about his eyes he will

> > withdraw and not enjoy being in your presence in public, we all

go

> > through the idiot questions sometimes it's better to walk away .

> > > Second - every thing he believes in will come from you, the

> > stronger you are the stronger he will become your only as strong

> as

> > your weakest link.

> > > Third - explaining to him in a manner a child can understand

> > about his eyes and the need for surgery and then ending this

cycle

> > of explanations and excuses to stupid people who have no right

to

> > even think they can ask.

> > > Finally (when you can't walk away) learn to divert stupid

> > questions especially if your son is in your presence, if the

lady

> at

> > the check out counter asks about your son's eyes ask her (how

much

> > was that).

> > > She will get the message.

> > >

> > > I'm sorry if I sound a little upset, I remember how much I

> hated

> > being with my mother in public. Every time I started feeling

good

> > about my self some idiot would ask about my eyes and I became

> > embarrassed when she started giving reasons.

> > > I was comfortable with my eyes, it gave the impression she

was

> > not!

> > > My father always had his mean face on in public no one asked

> him

> > anything and if someone dared to ask, he would ask them ( " is

that

> > any of your business " ).

> > > So guess who made me feel good about my self and who I

enjoyed

> > being in public with.

> > >

> > >

> > >

> > > ---------------------------------

> > > Brings words and photos together (easily) with

> > > PhotoMail - it's free and works with .

> > >

> >

>

>

>

>

>

>

>

>