Re: Just making contact

[Guest guest]

Welcome ,

Yes you have come to a great place & you are not alone - you will meet

lots of people who either have BPES or have children with BPES from

all over the world - just curious is BPM another abbrev. of BPES??

You can ask questions, share experiences, tell jokes (good ones),

encourage, find a listening ear..........whatever. Hope you`ll post

again sometime.

I`m Maree, 49yrs with BPES, live in New Zealand, have daughter 19yrs

also with BPES.

Bye for now

Maree

--- In blepharophimosis , " julie753270 " <kookie61@...>

wrote:

>

> Now I really do understand just how fantasic the web is. For years

> (I'm now 44yrs old) I have lived with BPM and have always felt alone

> with it so, It is really great to have found you.

>

[Guest guest]

> >

> > Now I really do understand just how fantasic the web is. For

years

> > (I'm now 44yrs old) I have lived with BPM and have always felt

alone

> > with it so, It is really great to have found you.

> >

>

[Guest guest]

Hi, ! Welcome to this site! I'm 43 but I don't have BPES. My daughter (20) does. It sure is nice finding others that have gone through or are going through what you have already been through...I thought 20 years was a long time being all alone with no one to talk to about everything that has gone on in my daughter's life. So you just talk away girlfriend! I want so much to know about others' experiences and what if anything I can do to help or tell her about BPES that she doesn't already know. To her, it's no big deal and she thinks I'm weird that I'm involved in this site at all. But, like most parents on this site, I'm just looking for support, advice and answers... if they're out there. Take Care Now, Terry julie753270

<kookie61@...> wrote: Now I really do understand just how fantasic the web is. For years (I'm now 44yrs old) I have lived with BPM and have always felt alone with it so, It is really great to have found you.

Brings words and photos together (easily) with PhotoMail - it's free and works with .

[Guest guest]

Lovely to hear from you, if isn't concerned about her eyes then why should you be? Half my battle was about accepting the difference between myself and others so if is comfortable with her looks I think that's great. Take care and just be proud of her. Terry Helgestad <terryahelge@...> wrote: Hi, ! Welcome to this site! I'm 43 but I don't have BPES. My daughter (20) does. It sure is nice finding others that have gone through or are going through what you have already been through...I thought 20 years was a long time being all alone with no one to talk to about everything that has gone on in my daughter's life. So

you just talk away girlfriend! I want so much to know about others' experiences and what if anything I can do to help or tell her about BPES that she doesn't already know. To her, it's no big deal and she thinks I'm weird that I'm involved in this site at all. But, like most parents on this site, I'm just looking for support, advice and answers... if they're out there. Take Care Now, Terry julie753270 <kookie61@...> wrote: Now I really do understand just how fantasic the web is. For years (I'm now 44yrs old) I have lived with BPM and have always felt alone with it so, It is really great to have found you. Brings words and photos together (easily) withPhotoMail - it's free and works with .