Guest guest Posted February 21, 2006 Report Posted February 21, 2006 Hi all (again) Would you say sunglasses were an essential item for our kids with BPES? Kirsten (3) does seem more photophobic than her brother, but only if the sun is directly in her eyes, e.g in her car seat. How many pairs of sunglasses have you all been through? Judging by the number of hats, gloves and scarves we lose in our family, I will probably be adding sunglasses to the weekly shopping list! P Quote
Guest guest Posted February 22, 2006 Report Posted February 22, 2006 Hi Oh yes, I have a pair for every place in my house, car, work etc etc. Emy is only just starting to complain about the sun, even though it has been bothering her for a while. Ive promised to take her to get some sunglasses at weeked. Love clare <parsonsfamily108@...> wrote: Hi all (again)Would you say sunglasses were an essential item for our kids with BPES? Kirsten (3) does seem more photophobic than her brother, but only if the sun is directly in her eyes, e.g in her car seat. How many pairs of sunglasses have you all been through? Judging by the number of hats, gloves and scarves we lose in our family, I will probably be adding sunglasses to the weekly shopping list! P What are the most popular cars? Find out at Autos Quote
Guest guest Posted February 22, 2006 Report Posted February 22, 2006 Todd has always wanted and used sunglasses, in the car especially - he absolutely hates the sun in his eyes. however as he has now been presribed glasses to correct his vision I am unsure what to do. The optometrist disagrees with children having sunglasses as it limits the amount of light and visual stimulation they get - which is what he needs and why he has glasses. He is supposed to wear the glasses for all his waking hours. But I am dreading the summer and the complaints I know I am going to get. anyone else got experience of this? do you buy prescription sunglasses? thanks Caroline Quote
Guest guest Posted February 23, 2006 Report Posted February 23, 2006 I don't think light sensitivity is a universal BPES issue. I never wore (nor needed) sunglasses at all until I was about 40, and I still don't wear them as much as I'm told I should by the Cancer Council (Australian sunlight is deadly - literally). And my son (13) hates them. But I'd be prepared to believe that more BPES-enhanced folks are light-sensitive than not, but I've never seen any figures around that. Rob W wrote: > Hi all (again) > > Would you say sunglasses were an essential item for our kids with > BPES? Kirsten (3) does seem more photophobic than her brother, but > only if the sun is directly in her eyes, e.g in her car seat. How many > pairs of sunglasses have you all been through? Judging by the number > of hats, gloves and scarves we lose in our family, I will probably be > adding sunglasses to the weekly shopping list! > > P Quote
Guest guest Posted February 23, 2006 Report Posted February 23, 2006 It's really interesting, since I joined this support site I've learnt so much about BPES and now I know why I loathe bright light! Clearly there is a need for research in this area as it appears to be fairly common. Rob <r.watson@...> wrote: I don't think light sensitivity is a universal BPES issue. I never wore (nor needed) sunglasses at all until I was about 40, and I still don't wear them as much as I'm told I should by the Cancer Council (Australian sunlight is deadly - literally). And my son (13) hates them. But I'd be prepared to believe that more BPES-enhanced folks are light-sensitive than not, but I've never seen any figures around that.Rob W wrote:> Hi all (again)> > Would you say sunglasses were an essential item for our kids with > BPES? Kirsten (3) does seem more photophobic than her brother, but > only if the sun is directly in her eyes, e.g in her car seat. How many > pairs of sunglasses have you all been through? Judging by the number > of hats, gloves and scarves we lose in our family, I will probably be > adding sunglasses to the weekly shopping list!> > P Quote
Guest guest Posted February 23, 2006 Report Posted February 23, 2006 One of the first things I learned in Korean from Micah was " It's too bright! " LOL! He is VERY light sensitive and we have suglasses everywhere - in the car, in the stroller, in the wagon, in his backpack, in my purse. We lose them and break them all the time - he's three! But he does want them and never forgets to ask for them if it's bright outside. April --- Clare Teale <clareteale@...> wrote: > Hi I dont really know much about what research > has or hasnt been done - it would be interesting > though. > > My eyes are light sensitive, to the extent that > when I go out in any sunshine, and sometimes it just > has to be light - my eyes hurt, and i feel very > strange! The severity of this depends on me though > (not the light) some days it is better than others. > If im tired or had a really deep sleep my eyes are > more sensitive that usual. Its not a problem at > all, I just have sunglasses everywhere. > > Caroline - have you thought about react-er- light > prescription sunglasses, the ones that get darker in > the sunlight. They make quite dark ones nowadays. > and it means they will only be dark when needed. > Its what I had as a child, they seamed to do the > trick. > > Hope this helps - let us know how you get on. > > Love clare - Herts UK > > JULIE IKEN <kookie61@...> wrote: > It's really interesting, since I joined this > support site I've learnt so much about BPES > and now I know why I loathe bright light! Clearly > there is a need for research in this area as it > appears to be fairly common. > > Rob <r.watson@...> wrote: > I don't think light sensitivity is a universal > BPES issue. I never wore > (nor needed) sunglasses at all until I was about 40, > and I still don't > wear them as much as I'm told I should by the Cancer > Council (Australian > sunlight is deadly - literally). And my son (13) > hates them. But I'd be > prepared to believe that more BPES-enhanced folks > are light-sensitive > than not, but I've never seen any figures around > that. > > Rob W > > wrote: > > > Hi all (again) > > > > Would you say sunglasses were an essential item > for our kids with > > BPES? Kirsten (3) does seem more photophobic than > her brother, but > > only if the sun is directly in her eyes, e.g in > her car seat. How many > > pairs of sunglasses have you all been through? > Judging by the number > > of hats, gloves and scarves we lose in our family, > I will probably be > > adding sunglasses to the weekly shopping list! > > > > P > > > > > > Quote
Guest guest Posted February 24, 2006 Report Posted February 24, 2006 thanks for the replies about sunglasses for Todd everyone. I can see I need to push this subject further!! The optometrist clearly has no idea about BPES - really must work on getting a referral to Moorfields and some proper info. Thanks again Caroline Quote
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