For people who have joined recently (good links)

[Guest guest]

Hi

This is for people who have joined the group recently.

One of the best overall source of information on BPES is here:

http://www.geneclinics.org/servlet/access?db=geneclinics & site=gt & id=8888891 &

key=yvyThuThGZXK5 & gry= & fcn=y & fw=suti & filename=/profiles/bpes/index.html

One of the best sources on surgery information is here:

http://www.emedicine.com/ent/topic97.htm

Please note that these are updated regularly. They are intended for people

in the medical profession and, therefore, sometimes a bit difficult to

understand. However, they are well worth reading and taking along to meeting

with your healthcare team as prompts for asking for more information.

Regards

Shireen

London, England