Re: Beautiful Mallory

[Guest guest]

HI SARAH I'M NINA MALLORYS MOM WE LIVE IN THE BAHAMAS. WHEN MALLORY WAS BORN WE NOTICED THAT HER FACIAL FEATURES WERE SMALLER THAN NORMAL SHE HAD A LOT OF TROUBLE BREATHING AND ALSO LATCHING ON TO THE BREAST OR BOTTLE. THE FIRST PEDIATRICIAN TOLD THERE WAS NOTHING WRONG. AT TWO WEEKS SHE HAD A SINIUS INFECTION AND COULD NOT BREATHE AT ALL SHE STAYED AT 8 POUNDS FOR TWO WEEKS. SO WE FOUND FURTHER HELP. THE NEXT PEDIATRICIAN TOLD US THAT HER NASAL PASSAGES AND EAR PASSAGES WERE SMALL AND SHE ALSO HAD A HIGH CLEFT PALATTE. SHE GOT A LOT BETTER AS SHE GREW BUT HER FACIAL FEATURES NEVER CHANGED. SO AT TWO WE TOOK HER TO SEE A GENE SPECIALIST IN MIAMI FL WHO DIAGNOSED HER WITH BLEPHAROPHIMOSIS. NO TESTING WAS DONE JUST MEASURING OF HER FACIAL FEATURES. THE TESTING FOR US WOULD BE REALLY EXPENSIVE BECAUSE WE LIVE IN THE BAHAMAS. SHE IS NOW FOUR PRETTY MUCH GROWING NORMALLY THE DOCTOR SUGGESTED SURGERY TO FIX THE FOLDS UNDER EYES AND ALSO THE TELECANTHUS AT AGE

FIVE BUT WE HAVE NOT MADE THAT DECISION AS YET. SHE HAS ALOT OF TROUBLE WITH HER TEETH SHE IS STILL MISSING TWO FRONT TEETH. WE HAVE HAD A LOT OF TRIALS BUT WOULD NOT CHANGE HER FOR THE WORLD. NINA

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[Guest guest]

HI APRIL, ACTUALLY THE TEETH ARE THERE THEY JUST HAVE NOT COME OUT SHE IS ALSO MISSING HER TWO YEAR OLD MOLARS. WHAT KIND OF ORAL SURGERY WILL MICAH BE HAVING? WE HAVE BEEN SEEING A PEDIATRIC DENTIST FOR TWO YEARS AND WE KEEP ASKING WHAT WE COULD DO BUT HE KEEPS SAYING WAIT UNTIL HER PERMANENT TEETH COME IN . MAYBE WE NEED A SECOND OPINION. NINA

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[Guest guest]

Hi Nina

Thanks for your response. My daughter, Kirsten (3yrs), has BPES and

is scheduled for a Y-V canthoplasty in June so I have been spending

some time looking at before and after photos. Mallory's eyes look so

fantastic that I was curious if she had had surgery. I can

understand why you are not having to make a decision about surgery

to her eyes yet, if at all.

You mention that she has a high 'cleft' palate. Kirsten is having

investigations this Monday and Tues to assess if she has a submucous

cleft palate. This a basically a defect in her soft palate that is

covered and therefore not obviously visible. Her speech is

signigicantly delayed as far as clarity is concerned, although

content is age appropriate. She has had 2 sets of grommets because

of chronic ear infections which she has had from a baby.

As far as her teeth are concerned, she had an underbite. Her lower

teeth were infront of her top teeth when they first came out, like a

bulldog, but as she has grown her bite has corrected. But it is

something we are monitoring especially as her permanent teeth come

out later. I am not a dentist, but your dentist's advice about

waiting till her permanent teeth come out seems sensible.

All the best and again, thanks for telling us more about Mallory.

She looks so sweet.

Regards

Parsons

>

> HI SARAH

> I'M NINA MALLORYS MOM WE LIVE IN THE BAHAMAS. WHEN MALLORY WAS

BORN WE NOTICED THAT HER FACIAL FEATURES WERE SMALLER THAN NORMAL

SHE HAD A LOT OF TROUBLE BREATHING AND ALSO LATCHING ON TO THE

BREAST OR BOTTLE. THE FIRST PEDIATRICIAN TOLD THERE WAS NOTHING

WRONG. AT TWO WEEKS SHE HAD A SINIUS INFECTION AND COULD NOT BREATHE

AT ALL SHE STAYED AT 8 POUNDS FOR TWO WEEKS.

> SO WE FOUND FURTHER HELP. THE NEXT PEDIATRICIAN TOLD US THAT HER

NASAL PASSAGES AND EAR PASSAGES WERE SMALL AND SHE ALSO HAD A HIGH

CLEFT PALATTE. SHE GOT A LOT BETTER AS SHE GREW BUT HER FACIAL

FEATURES NEVER CHANGED. SO AT TWO WE TOOK HER TO SEE A GENE

SPECIALIST IN MIAMI FL WHO DIAGNOSED HER WITH BLEPHAROPHIMOSIS. NO

TESTING WAS DONE JUST MEASURING OF HER FACIAL FEATURES. THE TESTING

FOR US WOULD BE REALLY EXPENSIVE BECAUSE WE LIVE IN THE BAHAMAS. SHE

IS NOW FOUR PRETTY MUCH GROWING NORMALLY THE DOCTOR SUGGESTED

SURGERY TO FIX THE FOLDS UNDER EYES AND ALSO THE TELECANTHUS AT AGE

FIVE BUT WE HAVE NOT MADE THAT DECISION AS YET. SHE HAS ALOT OF

TROUBLE WITH HER TEETH SHE IS STILL MISSING TWO FRONT TEETH. WE

HAVE HAD A LOT OF TRIALS BUT WOULD NOT CHANGE HER FOR THE WORLD.

> NINA

>

>

> ---------------------------------

>

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>