Information about treatment

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Hi to all the new people.Please take a moment to look at this article:http://www.geneclinics.org/servlet/access?db=geneclinics & site=gt & id=8888891 & key=yvyThuThGZXK5 & gry= & fcn=y & fw=suti & filename=/profiles/bpes/index.html

This article is comprehensive, and was written by the people in Belgium who carry out most the the testing that we here about.

If you have some difficulty understanding parts, then you might like to consider sending a copy to your doctor, and to ask them to explain it to you.

Regards

Shireen

~ ~ ~ ~ ~ ~ ~ ~ ~ here is an extract from the article

Management. Timing of eyelid surgery involves weighing the balance of early surgery to prevent deprivation amblyopia and late surgery to allow for more reliable ptosis measurements. Surgery involves a medial canthoplasty for correction of the blepharophimosis, epicanthus inversus, and telecanthus at three to five years of age, followed a year later by ptosis correction, usually requiring brow suspension. Autogeneous fascia lata is not reliable before 3.5 to four years of age; in younger children, silastic slings can be used. For individuals with severe ptosis, surgical ptosis repair is recommended before the age of three years; for individuals with moderate ptosis, correction may be deferred until the age of five years. Ovum donation is the only possible therapy for the female infertility resulting from premature ovarian failure. Endocrinologic and gynecologic follow-up are advised in affected females in whom the BPES type is unknown or in whom BPES type I is suspected.