Re: Re: newly diagnosed...scared...anxious

February 2, 2006

Hi Crystal,

Where are you located? Welcome to the group. Our

son, Micah, is three (almost four) and was born with

bleph. We adopted him from S. Korea last May. You

can see his pictures under " Eisele Family " . He had

one surgery right before he turned three years old.

You'll find lots of support here and the group has

really helped me know what kind of questions I should

be asking the doctors, etc.

April Eisele, Colorado, USA

Wife to Jon

Mommy to Mira, Micah & Misha

>

> >

> > Hello...Our pediatric optham. just diagnosed our

> 15 month old

> Miles

> > with bleph. She wrote it down so casually on a

> slip of paper that

> I

> > didn't think too much of it other than that the

> " syndrome " part

> > sounded very scary. I did some research and long

> story short we

> are

> > now going to geneticist and a children's special

> care center. What

> we

> > first thought was just paw paw and daddy's droopy

> lids has now

> turned

> > into this big scary word. I am glad that this

> group exists. I will

> > post some pictures and look forward to your words

> of

> encouragement.

> > This has been a difficult week.

> >

> > crystal

> >

>

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