Guest guest Posted February 1, 2006 Report Posted February 1, 2006 Hi! We have a son, Ali, who will be three in May. He was diagnosed with Bleph in December 2003, in Leicester. Since then we've seen a consultant about three or four times and had lots of 10 minute eye appointments with opticians etc. His vision is normal for his age and he is developing normally although he does sometimes seem to put his chin up and head back to look upwards. I still feel a little in the dark about the future treatment for Ali and have a long list of questions for the consultant, who we are seeing in March. So far we have been told that Ali will need an operation taking tissue from his leg and knitting it into the area under his eyebrows, when he's about four years of age. I have recently read that this may depend on his leg length because of the amount of tissue that may be needed, does anyone know if this is correct and can anyone suggest any questions that I should be asking at our next appointment? Thanks, Steph Sodiq Quote
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