(no subject)

[Guest guest]

Hey Nettie, I agree with you. It is all about being together as a family and

sharing the moments wherever and however they occur. {The best moments

usually happen in the most unlikely places anyway,} I like the way you think

girl!!

Loree

[Guest guest]

--- Nettie619@... wrote:

> I agree I have tried it all too baby wipes,

> bacterial soap works well too and

> sometimes just wearing itself off a couple times in

> the tub.. I think its

> funny at least its just not my daughter who loves to

> decorate her body head

> to toe. Baby wipes do work for alot of things on

> bodies and furniture for

> cleaning markers off. have fun and goodluck

> nettie619

>

Hair spray is wonderful for removing markers, ink,

etc. from most surfaces....

sissy

__________________________________________________

[Guest guest]

I was in the supermarket the other day and this lady kept meeting us coming down

the opposite direction in the ailes.

She kept admiring tim who was being his usual 'helpful' self and putting stuff

in the trolley for me (even when not

asked for!). I told to watch it or she'd end up going home with her if she

offered, so she did and he was off like

lightening, just turning round in time to say 'see you later' to me!

Fortunately I know he will do this and she wasn't

really intent on taking him but its still a scarey prospect if he ever wanders

off out of sight. He rarely hangs onto

me in supermarkets and is relatively safe checking out the contents of the

shelves and wandering up and down the aile I

am on but in other shops that are not so straightforwardly laid out he hold my

hand or gets in his buggy tho he does

create about either option. Generally tho I am blessed that he loves shopping

and sees it as a highlight of the

weekend!! We do ocasionally do other things to to spark such enthusiasm!!

sue wong

linman42@... wrote:

> Sue,

> Hi. amanda is now 11 and still cant cross the streets alone. She had no

> fear or knowledge of strangers for a really long time either. I always worry

> that someone will call her by her name and say something like, " I'm a friend

> of your mommy's and she said to come and get you " . Or they will lure her

> with a kitty cat. She loves cats.

>

> Shes gotten better in stores and will stay by us or if its a small store, i

> can send her for something - like go get the milk. We have worked on her

> going to a store alone and paying for a soda or a bag of chips. When she had

> a worker, that was one of the goals. It was so cute one day. I met them on

> the ave and the worker said stay here and watch what happens.

>

> So, amanda goes into the bagel store to buy her own diet soda and all the

> workers in there know her by name and she was flirting with them big time!

> So i let her do her thing and then go in and introduce myself as amanda's

> mom. They were so excited to meet me. they carried on about her so much!

>

> I know let her and my 7 year old son go to the corner together to buy milk.

> but no street crossing. When we are in a busy parking lot like at the

> supermarket and we have a wagon, she always holds on.

>

> I cant imagine that soon she will be wandering around with a girlfriend or 2

> in a mall or to the movies together. i dont think so for a really long time.

> Hey this is New York City, ya know!!!!!

>

> Karrie is only 5. youve got a good 5 years to go.... and then it will be

> something else!

>

> ~ Mom to 11 DS and 7 NY

>

>

> Click reply to all for messages to go to the list. Just hit reply for

messages to go to the sender of the message.

>

>

[Guest guest]

In a message dated 1/4/02 10:16:23 PM Central Standard Time,

mom2bridget@... writes:

> >>>>she still loves music and sings herself, even

> tells me to be quiet its her turn to sing! What a joy! Nettie619

> >>>>>

>

> LOL...

>

> Bridget is always telling her dad and me not to sing so hse cansing.

>

> mom to Bridget 8ds

>

> at one time wanted to be an opera singer. Then one day I heard him

> sort of listening to himself and he said quietly, " Sounds awful " . Never

> mentioned opera singing againg. Still likes to listen to it though. Jessie

>

>

>

[Guest guest]

>>>>she still loves music and sings herself, even

tells me to be quiet its her turn to sing! What a joy! Nettie619

>>>>>

LOL...

Bridget is always telling her dad and me not to sing so hse cansing.

mom to Bridget 8ds

---------------------------------

[Guest guest]

Jessie, That is absolutely hysterical, gave me a great laugh, and after

having everyone dropping like flies around here with the stomach bug this

week, I needed it.

As my six year old Caleb said this morning when he found that dear old dad

was down and out (#3}, he said " only three poor little lambs left to go " LOL

I hope not me or this whole house of cards is about to topple!! Loree

[Guest guest]

is the only person in this world who appreciates my singing

Ok....and maybe God when I get around to

church hehehehe

Nettie619@... wrote:

> I think singing and talking to a new baby is upmost important, I have sang

> to my daughter since the day she was born and it doesnt matter what you sing,

> the top 12 if you like , they will just enjoy your voice it has made my

> daughter and I so close and she still loves music and sings herself, even

> tells me to be quiet its her turn to sing! What a joy! Nettie619

>

>

[Guest guest]

In a message dated 1/5/02 11:04:12 AM Pacific Standard Time, sue@...

writes:

> Wow, am I feeling better, reading this thread!! Karrie has become a

> nightmare to take shopping!! Since I am single, with no family around

> here, and also can't afford to pay a baby-sitter so I can get groceries,

> it gets extremely frustrating!

> Is this a forever type thing, or will this, too, pass?

> Sue mom to Kate 12 and Karrie 5 w/ds (definitely not related to Sam

> Walton)

>

>

Sue,

was a terror in the store. He still at (13 today) isn't great but we've

got most of the kinks worked out. I don't take him to the mall. He can handle

walmart super-center if I show him the list and we can play in the toys when

done. I don't expect that we could do an hour shopping trip.

My favorite store is a local grocery store because they are very tolerant and

understanding about . They let him help pack the groceries and once he

dropped/threw a container of laundry detergent on the floor and they weren't

upset. They didn't give it any attention and just kept going. They also

employ people with disabilities so I like to support them.

I remember a scene when he was 8 years old and we were at the mall. Hubby was

along and we walked through Sears and hit the floor and was not moving.

My husband was fuming but, he wasn't moving. I ended up getting him to walk

back through the store to leave but that was it.

You may want to try more frequent shorter trips with Karrie and make sure

that there is a pay off for her helping you get it done-like a favorite video

she can watch after shopping. always liked those stupid little quarter

rides and it was a small price to pay for getting my stuff done. Now he is

too big and instead of a ride he gets to push my car remote and make the car

honk once. The things we do.

Karyn

[Guest guest]

In a message dated 1/5/02 1:03:56 PM Canada Central Standard Time,

sue@... writes:

> Wow, am I feeling better, reading this thread!! Karrie has become a

> nightmare to take shopping!! Since I am single, with no family around

> here, and also can't afford to pay a baby-sitter so I can get groceries,

> it gets extremely frustrating!

> Is this a forever type thing, or will this, too, pass?

> Sue mom to Kate 12 and Karrie 5 w/ds (definitely not related to Sam

> Walton)

>

>

Sue,

It's a this to shall pass. :-) but it will seem to last forever. ugh.

depending on what Karrie is working on in school you might want to include

goals for crossing streets and what to do if you're separated from whoever

you're with. I'm going to order a med. alert ID bracelet (or do they have

some other type that would work the same way?) Mostly because while

being 12yo's, doesn't talk well enough to give her name or number to someone

for help. They've been working on the bracelet thing in ST at school. So

hopefully she'll except it when with one of us (she'll do things inschool

that she sometimes refuses to do at home...cause they're school things or

something. lol)

another thing is you will probably need to think of for her learn is not ot

go with stangers, to tell how successful you are in getting the point across

here they plan on letting wander off by herself in a grocery store or

someplace public, with the teacher following, out of sight and have some one

that doesn't know (but the teacher does) approach her and try to get her

to go with her/him. This is evidently the way at least one school district

determines how well their safty training is going with kids with disablities.

I suppose these trials could also be done with you taking her into the store

and the teacher being there to help follow and provide the 'stranger', since

it's you she wants to run from. LOL

As far as when you begin something like that? Whenever you feel it's time I

guess. I wish we had started before now. sigh. but I just didn't take mary

shopping alot when she was really awful.

Joy

[Guest guest]

Wow, am I feeling better, reading this thread!! Karrie has become a

nightmare to take shopping!! Since I am single, with no family around

here, and also can't afford to pay a baby-sitter so I can get groceries,

it gets extremely frustrating!

Is this a forever type thing, or will this, too, pass?

Sue mom to Kate 12 and Karrie 5 w/ds (definitely not related to Sam

Walton)

[Guest guest]

In a message dated 1/5/02 6:56:30 PM Canada Central Standard Time,

sue@... writes:

> I don't really know to phrase this, so I'll just " blurt " it out!! Karrie

> is really beginning to talk clear (today, while I was driving, she said,

> " Mom, come here. I need you " ). She is very strong and only has PT to

> address learning the rules to play in PE. While I am so thankful so is

> making this progress, what frustrates me is the fact that she just

> doesn't seem to " get it " . Crossing streets, the dangers of running off

> in a parking lot, strangers (she doesn't know any of these!!), just

> doesn't sink in. She thinks it is all a big joke. When I try to work

> with her on these things, she stares at me blankly. The stove is hot she

> knows, but she doesn't really " get it " that it will hurt her, though I

> tell her repeatedly.

> Boy, do I sound whiny

Hi Sue,

Glad to hear Karrie is doing so well. :-) and talking so clearly, do you

think she's answer someone if they asked her for her name or phone number or

whatever is she got lost?

If I (you know me the mom, hehe) try to teach something regarding

safety.....she never gets it. :-( I'm very jealous of those of you who can

work on the safety issues and actually get responses. It's one reason we

also have the school working on them, she does seem to 'get it' more quickly

when they work on it. (what ever it may be) silly child. :-)

I can't even sit down and play a board game or uno with her because when I

try she refuses to follow the rules. :-( Oh well...........

Joy

[Guest guest]

Sue,

Hi. amanda is now 11 and still cant cross the streets alone. She had no

fear or knowledge of strangers for a really long time either. I always worry

that someone will call her by her name and say something like, " I'm a friend

of your mommy's and she said to come and get you " . Or they will lure her

with a kitty cat. She loves cats.

Shes gotten better in stores and will stay by us or if its a small store, i

can send her for something - like go get the milk. We have worked on her

going to a store alone and paying for a soda or a bag of chips. When she had

a worker, that was one of the goals. It was so cute one day. I met them on

the ave and the worker said stay here and watch what happens.

So, amanda goes into the bagel store to buy her own diet soda and all the

workers in there know her by name and she was flirting with them big time!

So i let her do her thing and then go in and introduce myself as amanda's

mom. They were so excited to meet me. they carried on about her so much!

I know let her and my 7 year old son go to the corner together to buy milk.

but no street crossing. When we are in a busy parking lot like at the

supermarket and we have a wagon, she always holds on.

I cant imagine that soon she will be wandering around with a girlfriend or 2

in a mall or to the movies together. i dont think so for a really long time.

Hey this is New York City, ya know!!!!!

Karrie is only 5. youve got a good 5 years to go.... and then it will be

something else!

~ Mom to 11 DS and 7 NY

[Guest guest]

Maybe because we are primary caregivers, they can exasperate and annoy us

quicker......or maybe they just love us more

*chortle* *chortle*

I know when I go to work, BJ kicks up the biggest stink, but not when daddy goes

I also hate the " just get him to do it " . My sil says " he is just a child-he

should do what you say " she had NO idea

and she has 2 kids-they must have behaved-that may be why their heads are at

different angels to ours...oops

sorry... hehehehe...seriuosly tho, my MIL once said to me, BJ is wearing shoes 3

sizes too big. I said I know-he won't

let me change them. She said try harder. So I said If you can get them off him,

I will give you a medal. She chased him

around our house and garden for an hour hour before giving in-she then said to

me " you were right0-he wants to wear

them. " No she doesn't question my " judgment " she now knows that BJ is stubborn,

and that I do sometimes know best ( I

am only 30-my dh is the youngest in his family-so all is family have all had

kids etc. so I sometimes feels as if they

know better than me somehow as they rarely listen to what I ask them to do in

regards to BJ..........but now MIL stick

up for me )

> and others telling me , well

> she behaves for me ,, Why do y ou have such a hard time?? That would totally

> inflame me and make me feel like the worst mommy in the world! Which I knew

> I was not!

--

Leis

Mum to BJ 4 (19th Nov) and Jellybean due early Feb 2002

ICQ# 8168619

" Wise men never sit and wail their loss, but cheerily seek how to redress their

harms. "

Henry the Sixth-Part Three 5 iv

Shakespeare

[Guest guest]

In a message dated 1/5/02 3:58:24 PM Central Standard Time, KVanRyzin@...

writes:

> was a terror in the store. He still at (13 today) isn't great but

> we've

> got most of the kinks worked out. I don't take him to the mall. He can

> handle

> walmart super-center if I show him the list and we can play in the toys

> when

> done. I don't expect that we could do an hour shopping trip.

>

I guess I've been lucky but has always loved to shop. Still

does, in fact he likes it more than I do. I didn't realize how much of a

blessing it has been. jessie

[Guest guest]

In a message dated 1/5/02 7:07:16 PM Central Standard Time,

JTesmer799@... writes:

> Glad to hear Karrie is doing so well. :-) and talking so clearly, do you

> think she's answer someone if they asked her for her name or phone number

> or

> whatever is she got lost?

>

>

I know I've told this story before but you might have missed it.

's private school when he was about 10 was kind of an offshoot of a

university and right on the edge of the campus. Sometimes on warm days the

teacher would take the kids onto the campus to work under a tree in the

shade. One day as they were walking along was lagging behind and the

campus police came along and asked him if he was lost. He said yes (just

going along with it I think) so they picked him up and took him to their

office. His speech was still not great and the name of the school was

Operation Discovery so you can imagine how that came out. It took awhile

before they figured it out, but he had a fine time, drinking coke and

everything. They finally got him back to school but it scared the bejabbers

out of the teacher,a s it should have. They told me when I picked him up a

little later. He told the other kids he'd been to jail and made it sound

like so much fun, the head teacher said it was a good thing school was almost

out or they'd have been losing kids all over. But it could have been someone

else, which is what makes it scary.

And I hate to say this but no matter how much you teach your kids

about strangers and all it might not be enough. I had it drummed into me as

a kid but I was kidnapped, a guy talked me into getting into his car, and his

intentions were not good. I was lucky, he got cold feet and I jumped out of

the car going around a corner. I came close to being a statistic. Now I

think we are teaching kids more specifically how to handle things like that,

more than just not to go with strangers and all. I knew better but did it

anyway. Don't ever assume any of your kids are safe. Jessie

[Guest guest]

Sue,

You are watching toooooo much TV!!!! It's not like that here at all. well a

little, but in Brooklyn, its different than NYPD Blue!

[Guest guest]

In a message dated 1/5/02 4:57:05 PM Pacific Standard Time, sue@...

writes:

> She seems to be doing so well with the things I would

> really expect her to have trouble with, but the common sense type things

> just aren't sinking in. Am I expecting too much from her? While I want

> to challenge her, sometimes I think I push too much.

> I think I need to go back to school, get a job, do something!!

> BTW, thanks for all the stress relieving tips! Never knew I would relax

> playing computer solitare!

> Sue mom to Kate 12 and Karrie 5.7 w/ds

>

>

Sue,

Keep pushing her and pointing things out. It will come. has always been

the kid that will do Anything for attention. He actually doesn't touch hot

pans. Of course, it took a small burn to do the trick. He rarely runs into

the road. He used to lunge toward the road when I was holding his hand. I can

walk in parking lots without major concerns about running in front of a car.

I'm still very cautious but I'm able to let go a bit. It will come.

Karyn

[Guest guest]

In a message dated 1/5/02 6:25:25 PM Pacific Standard Time, sue@...

writes:

> I always worry

> that someone will call her by her name and say something like, " I'm a

> friend

> of your mommy's and she said to come and get you " .

>

> ,

> I worry that if Karrie gets away from me, someone stops her and asks her

> name, she'd tell them. She wouldn't understand then, if they said, Oh,

> your mom said you're to come with me.

>

>

We work on safety issues often. is soooo oppositional though that he

probably would refuse to go anywhere someone told him. Actually he has been

known to attach himself to other families and go walking off with them to see

if I notice. Scary!!

Karyn

[Guest guest]

still does not cross the street safely. It's like he's oblivious to

traffic. Does anyone have a creative way that works to teach crossing the

street? Over the summer I tried (I think it was suggested on this list)

counting out loud, 1-look one way, 2-look the other, is it safe? then cross.

still doesn't consistently look both ways. Help!

Jackie, Mom to 14ds, , 11, and Bradley 7

[Guest guest]

I don't really know to phrase this, so I'll just " blurt " it out!! Karrie

is really beginning to talk clear (today, while I was driving, she said,

" Mom, come here. I need you " ). She is very strong and only has PT to

address learning the rules to play in PE. While I am so thankful so is

making this progress, what frustrates me is the fact that she just

doesn't seem to " get it " . Crossing streets, the dangers of running off

in a parking lot, strangers (she doesn't know any of these!!), just

doesn't sink in. She thinks it is all a big joke. When I try to work

with her on these things, she stares at me blankly. The stove is hot she

knows, but she doesn't really " get it " that it will hurt her, though I

tell her repeatedly.

Boy, do I sound whiny Can you all tell that patience isn't really my

strong suit? She seems to be doing so well with the things I would

really expect her to have trouble with, but the common sense type things

just aren't sinking in. Am I expecting too much from her? While I want

to challenge her, sometimes I think I push too much.

I think I need to go back to school, get a job, do something!!

BTW, thanks for all the stress relieving tips! Never knew I would relax

playing computer solitare!

Sue mom to Kate 12 and Karrie 5.7 w/ds

[Guest guest]

Hi,

Someone told me to walk behind her like I wasnt with her. well that really

doesnt work out well. Then she has no concept of which way the traffic is

coming. Like i will not stop at a corner on purpose to see what she will do,

and if she looks, its always the wrong way.

One day, I was on my steps and my dh and kids were coming up the block.

well the light changed and he was ahead of amanda and she was slower and

behind. he wasnt paying attention and the light changed to red in the

process and there was a car coming that almost didnt stop. So that is

another prob. amanda is a bit slow crossing the street and i worry that the

cars wouldnt wait for her!

So any ideas would surely be appreciated indeed!!

~ Mom to 11 DS and 7 NY

[Guest guest]

Joy,

Friday, Karrie had a horrible morning before she left for school. Since

the school is 3 houses from ours, we walk to and from. She yelled no,

no, no all the way to school. We walked into the building and she

stopped about 10 feet from her classroom door. She yelled, " No school, I

watch Barney " . Her teacher stuck her head out the door and said she

couldn't believe that was Karrie! She said Karrie never tells them no or

refuses to do what she's asked. I guess that's a good thing, but makes

me feel like a rotten mom!

Karrie will tell people her name (Kawwie Bown). Phone number and address

are foreign to her Maybe the school WILL work with her more on those

things!

Karrie makes up her own rules for games we play. It is always " Kawwie's

turn " . LOL

Sue

[Guest guest]

My son doesn't listen to me much either.......musty be a mum thing

JTesmer799@... wrote:

> In a message dated 1/5/02 6:56:30 PM Canada Central Standard Time,

> sue@... writes:

>

> > I don't really know to phrase this, so I'll just " blurt " it out!! Karrie

> > is really beginning to talk clear (today, while I was driving, she said,

> > " Mom, come here. I need you " ). She is very strong and only has PT to

> > address learning the rules to play in PE. While I am so thankful so is

> > making this progress, what frustrates me is the fact that she just

> > doesn't seem to " get it " . Crossing streets, the dangers of running off

> > in a parking lot, strangers (she doesn't know any of these!!), just

> > doesn't sink in. She thinks it is all a big joke. When I try to work

> > with her on these things, she stares at me blankly. The stove is hot she

> > knows, but she doesn't really " get it " that it will hurt her, though I

> > tell her repeatedly.

> > Boy, do I sound whiny

>

> Hi Sue,

> Glad to hear Karrie is doing so well. :-) and talking so clearly, do you

> think she's answer someone if they asked her for her name or phone number or

> whatever is she got lost?

>

> If I (you know me the mom, hehe) try to teach something regarding

> safety.....she never gets it. :-( I'm very jealous of those of you who can

> work on the safety issues and actually get responses. It's one reason we

> also have the school working on them, she does seem to 'get it' more quickly

> when they work on it. (what ever it may be) silly child. :-)

>

> I can't even sit down and play a board game or uno with her because when I

> try she refuses to follow the rules. :-( Oh well...........

>

> Joy

>

>

[Guest guest]

Not only does Bridget (8) think this is a joke, she has almost gotten hit by a

car on 3 different occasions. She also will not answer when you call her name.

We finally put a chime on the door, because she disappears in the house and I

cannot find her. Occasionally she has been outside. I guess an IEP goal for

next year needs to include safety. It is pretty scary. It just doesn't seem

like Bridget will ever catch on either, Sue.

mom to Bridget 8 ds

---------------------------------

[Guest guest]

Leis,

Great to have you back!! How are you feeling? I love the name

" Jellybean " !! When I was pregnant with Kate, I called her Rastus and

Karrie was called Bubba. Don't ask me why!!! LOL

Sue