Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 U N I T E D N A T I O N S Office for the Coordination of Humanitarian Affairs Integrated Regional Information Network CONTENT: 1 - AFRICA: PlusNews Web Special - Gender and HIV/AIDS 2 - ANGOLA: Empowering girls at heart of AIDS strategy 3 - SWAZILAND: All about hope 4 - SWAZILAND: Unregulated ARVs cause health havoc 5 - ZAMBIA: The ultimate sacrifice 1 - AFRICA: PlusNews Web Special - Gender and HIV/AIDS JOHANNESBURG, 5 March (PLUSNEWS) - PlusNews, IRIN's HIV/AIDS news service, has launched a new Web Special to mark International Women's Day on 8 March 2004. A series of features from Angola, Swaziland and Zambia examines the connection between gender and HIV/AIDS. The Web Special also links to a campaign by the UN's Regional Inter-Agency Coordination Support Office for the Special Envoy for Humanitarian Needs in Southern Africa, which explores the region's humanitarian crisis " Through the Eyes of Women " . Kofi n, the UN Secretary-General, has highlighted the connection between women's empowerment and the global response to HIV/AIDS. " As AIDS strikes at the lifeline of society that women represent, a vicious cycle develops. Poor women are becoming even less economically secure as a result of AIDS, often deprived of rights to housing, property or inheritance, or even adequate health services. In rural areas, AIDS has caused the collapse of coping systems that for centuries have helped women to feed their families during times of drought and famine - leading in turn to family break-ups, migration, and yet greater risk of HIV infection, " n said in a statement to mark this year's International Women's Day. " As AIDS forces girls to drop out of school - whether they are forced to take care of a sick relative, run the household, or help support the family - they fall deeper into poverty. Their own children in turn are less likely to attend school - and more likely to become infected. Thus, society pays many times over the deadly price of the impact on women of AIDS, " he added. The Web Special can be viewed at: http://www.plusnews.org/webspecials/womensday/default.asp [ENDS] 2 - ANGOLA: Empowering girls at heart of AIDS strategy LUANDA, 5 March (PLUSNEWS) - One pristine building stands out along a dusty street in the Angolan capital, Luanda. With its sparkling tiles and laboratory technicians in spotless white coats, the Centro de Apoio aos Juvens (CAJ), or youth support centre, looks like a clinic, but the laughter and noisy debate sound more like a youth club or boisterous classroom - in fact, it's a combination of all three. In Angola, where 60 percent of the population are under the age of 18, teenagers shoulder a massive responsibility in helping to rebuild the country after a devastating 27-year civil conflict. And it is the Angolan youth who are again on the frontline in the battle against HIV/AIDS. " We all need to be aware of what adolescents are doing. If it wasn't for them, we would be steps behind in the fight against HIV/AIDS. They are the best advocates, " said Luick, HIV/AIDS project officer at the UN Children's Fund (UNICEF). UNICEF partners the UN Population Fund (UNFPA) in running this centre, 10 others in Luanda and another nine in the southern provinces of Benguela and Huila, where youngsters aged 10 to 24 are tested for sexually transmitted diseases, including HIV/AIDS, and receive counselling. The support programme does not stop there. " An important part of our strategy is debate. We're not here to lay down the law, " explained Doctor Isobel Massocolo Neves, one of four doctors who work at the centre. " We adopt a peer group strategy, so we have youth talking to youth about all kinds of issues – relationships, equality, safe sex, unwanted pregnancies and general reproductive health, " she said. Studies at the centres show there is an urgent need to encourage teenagers to be tested; to equip them with the knowledge they need to protect themselves, and remove some of the stigma surrounding HIV/AIDS. Ironically, Angola's civil war may have helped curb the spread of the disease, but with the end of the conflict allowing greater mobility, the danger is that people are taking the virus with them. Humanitarian organisations and NGOs have been saying for some time that Angola must grasp this window of opportunity and prevent a leap in the relatively low prevalence rate, which four-year-old figures put at 5.5 percent. A low level of knowledge about the disease, coupled with a high fertility rate – the average Angolan woman has seven children – create ideal conditions for an epidemic on the scale of neighbouring Botswana, where UNAIDS estimates that almost 39 percent of the population is infected. Neves believes the rate in Angola is already climbing - figures from a 2003 survey by the US Agency for International Development, the US Centres for Disease Control, Population Services International, the National AIDS Control Programme and UNICEF would appear to reinforce her fears. Of around 14,000 people tested for the disease at voluntary counselling and testing (VCT) sites, a startling 10.4 percent were HIV-positive. UNICEF's Luick acknowledged the numbers could be artificially inflated, with many of those seeking VCT doing so because they suspected they might have the disease - but they nevertheless illustrate a need to move fast. The hope is that the young will create a virtuous cycle, helping to ease the problem rather than exacerbating it. Changing the behaviour of girls and their way of thinking form the crux of future strategy. In the past, the ABC of HIV prevention – Abstinence, Be faithful and consistent, and correct use of Condoms – was the message, explained Antonica Hembe, national programme officer for UNFPA. " But now we're moving onto D and E – Delay and Empowerment of girls, " she told PlusNews. " If we can give girls alternatives - provide them with enough information to make their own decisions, then they have a choice, " she said. They will have their work cut out in Angola, where becoming a wife or a mother is often considered the ultimate achievement; where it is not uncommon for young girls to have sex as young as aged 14; and where women typically give up the most for the good of the family. " Girls in Angola, and across the region, are traditionally the first to make sacrifices for the betterment of the family. That often means they are the first to miss out on education; they are the most vulnerable; they only look at their personal concerns once everyone else in the family is taken care of, " said UNICEF's Luick. Eighteen-year-old Vanya is an example: she is pregnant, thanks to a burst condom, and has had to put her ambitions on hold. " I wanted to be a doctor - then this happened, " she said, pointing to her bump. " At first I was sad, but now I'm okay about it, and my boyfriend is helping. And I can still be a doctor later, I'm sure. " That Vanya now feels on an equal footing with her partner and, perhaps more importantly, has not let go of her goal, indicate changing attitudes. " When girls have dreams for the future, that changes the game. They stop saying 'I want to have a baby by the time I'm 18, so I that have my place in society as a mother,' " said Luick. " That can change to 'Yes, I would like kids one day, but I want to do x, y, z first.' It's not so much about their position in society as a wife and a mother, it's about their own merit and doing something for themselves, " she added. As the 2003 survey showed, women are both more infected and affected by the HIV/AIDS virus - of the 10.4 percent of people found to be HIV-positive, more than two-thirds were women. " There is this sense that somehow it is all the girls' fault: they are associated with prostitutes and promiscuity, " said Luick. " But the truth is, they're not having more partners; they're not having more sex, but they are more affected because they are more biologically at risk, and they live in a country where traditionally women don't have the same opportunities as men. " Neves argues that inspiring girls, who make up 86 percent of attendees at the clinics, and changing the way they and their partners think, are key objectives, but lack of funds may yet hamper their activities. With adolescents' interest piqued by community-level youth centres, run by UNICEF as part of the UN's " Telling The Story " programme, as well as a twice-monthly national TV programme on the project, Neves hopes that intense in-country fundraising and support by the Southern African Youth Initiative for HIV/AIDS (SAY) will allow their work to continue and expand. " We try to be a motivation. In our society, girls don't have the power to make decisions - women do what men say, " she said. " We have more girls here because the men think reproductive health is the sole responsibility of the woman. But now we're beginning to see that more girls and boys are coming to the centre together, acknowledging that it is the couple's responsibility. " That's already a big improvement, but we have to keep working at this, and for that we need more money, " she said. For a series of Special Reports on Gender and HIV/AIDS by IRIN/PlusNews to mark International Women's Day visit: http://www.plusnews.org/webspecials/womensday/default.asp [ENDS] 3 - SWAZILAND: All about hope MBABANE, 5 March (PLUSNEWS) - Swaziland's most innovative and motivated HIV/AIDS mitigation programme has sprung from five traumatised, middle-aged HIV-positive women, and their efforts offer a blueprint for coping with the epidemic. " We call our group Swaziland Positive Living [sWAPOL], and it was forged from the suffering our the founding members. That may be why people respond to what we are doing, and we are getting so many requests to help communities where HIV is rampant. We are not an NGO that works out of a plush office. We are people who know what it means to face discrimination and rejection, but who have the will to live, " founding member Siphiwe Hlope told IRIN. She spoke at the edge of an extensive field where vegetables are grown to meet the nutritional needs of members living with HIV/AIDS, and which generate income to sustain a host of projects. The farm itself is a testament to the way the women's group has changed attitudes, as well as prolonged lives. In an extraordinary breach of custom, the 11-hectare farm at Mahlangatsha, 40 km southeast of the capital Mbabane, was given to the women by local chiefs. " Since time immemorial, only men have been given land by chiefs to cultivate for their families. But the chiefs saw how we were helping their communities, and we needed land to grow crops for our projects. This land was their vote of confidence in us, " said Thelma Dlamini, who founded SWAPOL, along with Hlope, Nonhlanhla Dlamini, Elina Hltatshwako, and Gugu Mbata (who died last year). All five women were HIV-positive; all had similar stories of rejection by their loved ones when their medical condition became known in a country where stigma still makes it difficult to admit one's HIV-positive status. Hlope's experience was typical. " I wanted to continue my schooling. I was 39, and I had studied in Zambia from 1995 to 1998. It was all set that I get a scholarship, but a requirement was that I take a blood test. The results came back that I was HIV-positive. I was denied the scholarship. I was terribly disappointed, and I also had to understand the medical news, " she explained. " I went to tell my husband I was HIV-positive. We were at home, in the bedroom - we were just sitting and chatting. He asked me about school, because I was supposed to leave the next month. I told him I was no longer going; I told him why. There was a dark cloud inside that room. " I really needed his love and support, but he said, 'If you are HIV-positive, that means you are the one who has come home with the disease, because you were out of the country for a long time.' He blamed me, " said Hlope. " I never had an affair - he was trying to shift the blame from him to me. In the morning, he went to work without talking to me. He wouldn't eat the breakfast I prepared for him. He came in the evening, and he told me he was moving out. It was no answer if he was trying to escape HIV. He was just going to spread it by infecting others. " The five HIV-positive women from the rural area of Makanyane somehow found each other, despite an absence of HIV/AIDS support groups outside urban centres. As they shared their experiences, they decided it was time to act. " We thought, 'Why can't we form an organisation for the women living with HIV/AIDS, so we can share our experiences, and educate our families?' " said Hlope. " We called ourselves Swaziland Positive Living, because life goes on even if you are HIV-positive. " SWAPOL was set up as a cooperative where members volunteer on income-generating projects. Half the profits are used to recapitalise projects, 25 percent is shared among the members, and the remaining 25 percent goes directly to HIV-positive people or AIDS patients in need of assistance. The group has a sewing project, making school uniforms and tracksuits for schools that work with SWAPOL. The big farm at Mahlangatsha, about to yield its second harvest, provides food for child-headed households who have lost their parents to AIDS, while also producing vegetables for sale. The women are encouraging HIV-positive people to establish small gardens next to their homes. Though measuring only three metres by one metre, the gardens can be managed by children or an ailing person, who often find that leaving their sickbed to do a little watering is therapeutic. To get the project off the ground, the women approached the UN Children's Fund (UNICEF) in Swaziland in 2001, and won the support of the agency's representative, Alan Brody. " These were rural, middle-aged women who wanted their own support group. At that time, at least 150,000 to 200,000 people were living with HIV, mostly unknowingly. We felt every community needed a support organisation, and we decided to give them some help by sponsoring information workshops in their areas, to get them going. It's like venture capital - you try to get something going because you think it has promise, " Brody recalled. From the initial meeting of three women at the UNICEF office, SWAPOL today has 400 members, including 50 men, in nine communities. " We open up our membership to anyone. Those who are HIV-positive are 250. The others are those who are affected by HIV, like parents who say their children are HIV-positive, " said Hlope. Fifty to 100 people usually attend SWAPOL community meetings. At a gathering IRIN attended in a church at Sibovu, 80 people were being instructed on how to stay healthy and active while HIV-positive. Many middle-aged parents had children who were HIV-positive, and their apprehension was apparent, but the listeners were assured that the virus was not an immediate death sentence. The topic of stigma and discrimination was also broached, and attitudes about traditional Swazi life were addressed. SWAPOL is against polygamy, which is legal in a country ruled by a king with eleven wives, because of the risk of spreading HIV. After the meeting, some community members privately told SWAPOL representatives that they were HIV-positive, and asked for nutritional information and other assistance. Some people wanted to have a blood test arranged. With growing funding from non-governmental sources and its own projects, SWAPOL has trained 30 caregivers and 30 counsellors to work in their communities. The caregivers assist with the material needs of families affected by HIV and AIDS. " The counsellors are trained and busy, because more and more children are taking care of parents. They see their mothers dying, their fathers are dying. The counsellors talk to them. They assist people to learn their HIV status, communicate it to their loved ones, and give them advice on how to live, " said Hlope. " We are all about hard work, and hope. We are examples ourselves that if you are HIV-positive, you don't just curl up and wait to die. Life goes on, and there is no reason to be afraid, " she said. In a country with the world's second highest HIV-infection rate - close to 40 percent - and persistent denial about the disease, it is a message that needs to be heard. For a series of Special Reports on Gender and HIV/AIDS by IRIN/PlusNews to mark International Women's Day visit: http://www.plusnews.org/webspecials/womensday/default.asp [ENDS] 4 - SWAZILAND: Unregulated ARVs cause health havoc MBABANE, 5 March (PLUSNEWS) - After years of resisting the introduction of antiretroviral drugs (ARVs) in Swaziland, the government bowed to pressure from international donor organisations last year and permitted their distribution. However, what followed has been a confusing and dangerous free-for-all which has reached the point where some activists have called for the drugs to be banned. In some cases pharmacies are dispensing ARVS without prescription or instructions informing patients of how to take the medication, and no warning of possible side effects. " There are pharmacies in Mbabane that sell ARVs to anyone coming off the street. They do not dispense instructions, because the queue of people wishing to buy [the drugs] is so long, " Siphiwe Hlope, co-director of the AIDS support group Swazis for Positive Living, told IRIN. " We concur with government's policy to permit ARVs, but a law regulating their distribution is needed - anyone can sell ARVs. Taxi drivers going to clinics to pick up ARVs for people get an extra supply, and they sell them to passengers, " Hlope said. AIDS activists have expressed concern that the lack of guidance in taking ARVs had led to patients starting a treatment regimen and then stopping, risking treatment resistance and further endangering their lives. " People are not told to expect side effects. When they become nauseous, dizzy and develop flu-like symptoms, which is to be expected with ARVs, they tell us they stop taking the pills because they think they are poisoning them. Once the regime of taking the medicine in proper and regular doses is broken, it cannot be effectively renewed, " said one health worker. Widespread claims for AIDS cures published in the local press are also causing alarm among health workers. Advocates of such cures usually insist they are better than the " unsafe " ARVs. Hannie Dlamini, president of the Swaziland AIDS Support Organisation (SASO), has come out against the government's policy in promoting ARVS. " These drugs are not the way to go - the only reliable treatment is the adoption of a healthy diet, which entails eating mostly vegetables such as spinach and sweet potatoes, " he said. An international aid worker told IRIN: " People are confusing nutrition with medicine. These should go hand in hand: nutrition to boost bodily strength, and ARVs to counter HIV. " But the problem in Swaziland is that some nutritional products are being advertised and sold as " treatments " , or even as " AIDS cures " . When contacted, the ministry of health said a statement would be prepared to address the improper distribution of ARVs. Dr Kunene, principal secretary at the health ministry, noted in a recent statement: " There is no known cure for AIDS. People seeking over-the-counter treatments must consult their physicians. " UNAIDS estimates that 38.6 percent of adult Swazis are HIV positive. The National Emergency Response Committee on HIV/AIDS, set up by government to dispense United Nations Global Fund grants to local programmes dealing with the disease, said half of people in their twenties were HIV positive. [ENDS] 5 - ZAMBIA: The ultimate sacrifice LUNDAZI, 5 March (PLUSNEWS) - The Zambian government's antiretroviral (ARV) drug programme has managed to provide cheap, life-prolonging AIDS treatment, but many HIV-positive Zambian women, denied access by a tradition of subservience and sacrifice, are not benefiting. Last year the government made available over US $2 million for the purchase of 10,000 doses of ARV drugs. The Geneva-based Global Fund gave Zambia a further $42.5 million to boost government efforts in the fight against HIV/AIDS, tuberculosis and malaria. Before the ARV rollout last August, combination AIDS therapy typically cost around Kwacha 300,000 (US $63) per month, a colossal amount in a country where 80 percent of people earn less than a dollar a day. About 5,000 people - of a targeted 10,000 - have now qualified for the subsidised programme, with each paying around $8 for a four-week course of medication, delivered through the public health system. A National AIDS Council report shows that of the 870,000 HIV-positive Zambians, 70 percent are women. But that gender ratio is not reflected in the statistics of those receiving ARVs. Instead, the majority enrolled in the programme appear to be men. In Petauke, a small rural town in eastern Zambia, for example, of the 40 people who are receiving ARVs, only three are women. Dr Muchango Siwale, who works at the local hospital, is perplexed. Although fewer women than men come into his surgery, " a lot more than three should be on treatment. " While it is generally difficult for rural people to access decent and timely health care, it is doubly difficult for women, who are more often poor, voiceless and defer to customs that expect them to sacrifice for their families. The problem, says Siwale, is that women traditionally try and ignore their health needs. " Women do not know their own value. They are real beasts of burden. They get sick but, as long as they are able to pick up a hoe and till the land, they carry on till they drop dead. " His assistant, nurse Alyce Banda, also blamed the expectations heaped on women if they are to be considered " good " wives. " When last did elders or even neighbours sit a man down and tell him to take his wife to the clinic because she does not look well? And yet women are chastised by society if they do not take their husbands to the clinic for the slightest ailment. They are accused of trying to kill him. " Banda, a midwife, said in her 10 years at the clinic she had seen women bringing their husbands on wheelbarrows, bicycles and even on their backs, like babies. But she has yet to see a man even offer the support of his arm and bring his wife for treatment. A group of women attending antenatal classes in Petauke frankly explained that if they were HIV-positive, their husbands would be unwilling to spend money on lifelong ARV treatment for them. They would rather divorce a wife considered too " expensive " . " When I am pregnant, my husband gives me money for transport to the clinic and other things because he knows this will pass. He will not spend on indefinite treatment for me. Anyway, as a family we cannot afford it, " said Mwanida Phiri. Like many in the group, Phiri believes the situation would be, somehow, " different " if her children or husband were sick. Traditionally women are taught that they should not be a burden to their family. " How would I feel if there is no food in the house to feed the children because the money has been spent on medication which is only for me? " asked Agnes Zulu. But it appears that the men in Petauke have no such qualms. Harriet Munjira and her husband, Benson, are both HIV-positive. But as they can only afford treatment for one person, naturally, Benson is receiving the ARVs. " I can look after the children - she will have problems. My family will take everything from her [due to inheritance customs] if I die, and she and the children will just remain suffering, " he explained. He feels bad that they cannot afford the additional US $8 for his wife, but is confident that " she will manage " . " She is the stronger of the two of us. Look at me, " he said, displaying his thin, gangly legs, " I am the one on drugs, but I am in bed - Harriet is outside making a fire to cook food. " Though Harriet does not dispute she is physically the stronger of the two, she is not as healthy as her husband suggests. She also does not believe women should always be the ones who sacrifice. " I have no choice but to get up and do my chores, tend the needs of my husband, even though my body is telling me to rest. " Blinking back tears, Harriet says Benson has not changed in their 19 years of marriage. He is still selfish. " Why couldn't I have gone on the treatment? I am the one who tends to the fields and looks after the children. Benson only came to me when he was sick - he has not supported this family in the last 12 years. As for the property that his family is likely to grab - two small huts and a few pots and pans - is that worth safeguarding? " Still, she feels she cannot push the issue with the family elders. " People will accuse me of wanting my husband to die ... that I should defer to him, even though I am the one that has been holding this family together. " Holder Chama, a single mother of five, has a different set of concerns. She balked at taking her daily three-drug cocktail when she was told about the importance of eating a balanced diet. Displaying the medicines still tightly wrapped in her chitenge (traditional cloth) she said food was an issue in her home. " On most occasions we go without food ... as women, we eat last and there usually is not enough to go around. So how can we go on the medication? We need food to go with it. I tried to take the medication on a stomach full of water and I vomited everything, " she said. Another time, after taking the drugs she had such bad stomach cramps, she gave up. Now she has left everything " in the hands of God " . For a series of Special Reports on Gender and HIV/AIDS by IRIN/PlusNews to mark International Women's Day visit: http://www.plusnews.org/webspecials/womensday/default.asp [ENDS] [This Item is Delivered to the English Service of the UN's IRIN humanitarian information unit, but may not necessarily reflect the views of the United Nations. For further information, free subscriptions, or to change your keywords, contact e-mail: Irin@... or Web: http://www.irinnews.org . If you re-print, copy, archive or re-post this item, please retain this credit and disclaimer. Reposting by commercial sites requires written IRIN permission.] Copyright © UN Office for the Coordination of Humanitarian Affairs 2004 IRIN Contacts: IRIN-Asia Tel: +92-51-2211451 Fax: +92-51-2292918 Email: IrinAsia@... To make changes to or cancel your subscription visit: http://www.irinnews.org/subscriptions Subscriber: AIDS treatments Quote Link to comment Share on other sites More sharing options...
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