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In a message dated 4/2/02 1:48:02 PM Central Standard Time, mfroof@...

writes:

> Hi, Everyone.....Karyn.....I'd LOVE to utilize respite only we don't have it

>

> here. I think you're in a minority where respite is concerned. Enjoy

> yourself...guilt free for me!!!

> Take care, Everyone.

> Margaret

>

>

>

>

>

Margaret,

MOst families here don't use respite. Most of them don't know it is available

or where to find it. Of the families that use it many utilize a babysitter or

another family. is too good at pushing people's buttons so I don't want

him alone with someone. He can't tell me what has happened.

I also think that another family would burn out too soon and I'd be right

back at square one. At least with the group home he goes to the same place

each time and not all the staff are new. I do send him regularly not just for

my piece of mind but so he stays familiar with the place.

Karyn

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In a message dated 4/2/02 1:48:02 PM Central Standard Time, mfroof@...

writes:

> Hi, Everyone.....Karyn.....I'd LOVE to utilize respite only we don't have it

>

> here. I think you're in a minority where respite is concerned. Enjoy

> yourself...guilt free for me!!!

> Take care, Everyone.

> Margaret

>

>

>

>

>

Margaret,

MOst families here don't use respite. Most of them don't know it is available

or where to find it. Of the families that use it many utilize a babysitter or

another family. is too good at pushing people's buttons so I don't want

him alone with someone. He can't tell me what has happened.

I also think that another family would burn out too soon and I'd be right

back at square one. At least with the group home he goes to the same place

each time and not all the staff are new. I do send him regularly not just for

my piece of mind but so he stays familiar with the place.

Karyn

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In a message dated 4/2/02 9:49:20 PM Pacific Daylight Time,

writes:

> . is too good at pushing people's buttons so I don't want

> him alone with someone. He can't tell me what has happened.

> I also think that another family would burn out too soon and I'd be right

> back at square one. At least with the group home he goes to the same place

> each time and not all the staff are new. I do send him regularly not just

> for

> my piece of mind but so he stays familiar with the place.

>

>

Karyn, same here too, although does have a " regular " that watches him,

however, he takes OUT to Mc's Chuck E. Cheese, etc., unless it's

late at night he's watching him. On weekends and school holidays, goes

to " day rehab " at the group home, while this same caretaker goes to and works

one on one with . Everybody at the home has four sets of eyes and ears.

I feel comfortable leaving him there.

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In a message dated 4/3/2002 9:35:32 AM Eastern Standard Time, mfroof@...

writes:

> On a brighter note, Gareth started

> horseback riding lessons last night (through Easter Seals). He had a lot of

> gagging in the barn area....he's got to get use to that smell!!!

Hi Margaret,

I was laughing too. We have a camp an hour away that offers this and I was

thinking about having Zeb start riding. My worst fear is that he would want

his own horse to bring home. We have been through the horse stuff in our

younger days and my shoveling days are over.Years ago my husband's teen

cousins spent the summer with us. I asked one of them to clean the stalls.

Forgetting that they were city kids, I looked out the window and he had his

t-shirt wrapped around his face.LOL Let us know how his riding progresses.

Charlyne

Mom to Zeb 9 DS/OCD ?

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we use respite and scl, i doget worried for nathan

too, but its good for him to be out in the community,

the lord knows i dont have the time, often i dont even

get home unitl supper time, then i have to cook and

clean up and laundry and maybe get to watch a show

with the family, and then its off readying for bed for

the kidddies and then finally, i get tolay down,

wheew!! shawna

=====

shawna

__________________________________________________

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In a message dated 4/3/02 10:35:35 AM Eastern Daylight Time, mfroof@...

writes:

> He's been hooked up with this HUGE quarterhorse named

> Bob!!! It was hilarious watching him trying to get on at first. Just like

> the cartoon movies where the person climbs on from one side and falls off

> the

> other!!! I know, I know.....I should not have been laughing...but....what

> can I say!!!

LOLOL Margaret!!! Nah, laugh away!!!!! We'd laugh whether they had

DS/autism or not!!!!! Sounds like a great experience for Gareth!!!!

Bob the horse, eh??? Well, give Gareth credit!!! You should have seen ME

the first and ONLY time I went horse-back riding!!! I've no doubt I make

Gareth look like a jockey!!! ;-)

Donna

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  • 1 month later...
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In a message dated 5/23/02 9:57:17 PM Central Daylight Time,

writes:

>

> > The best thing I've found as got

> > older, was to let him go to one of the group homes in our immediate area.

>

> > You're guaranteed help that way much quicker than if you had to make

> > arrangements for them to come to YOU. Of course, I have help at home

> too,

> > but when you go away for vacation or weekend, it's nice to know your

> child

> > can stay somewhere. I wouldn't trust someone in my home for that long.

> >

> >

>

> See now, I'm the opposite. I'd rather have Maddie home if I'm away.

> Course, I have other kids (read SPIES) and the people I've used so far to

> babysit while we're away are 1000% trustworthy....oh and it helps to have

> your SIL live across the street...;-)

> Donna

>

>

has respite at a group home for a couple of reasons.

1. I want to stay home and rest sometimes when he is at respite.

2. If he is in our home and someone is coming in to care for him he has " the

upper hand " . He has more behavioral issues. I also don't want my home

destroyed because someone else isn't careful.

I have people in our home every day working with and I take no

precautions to prevent theft. If someone could steal from me they would do

other things and I don't want them here. Let them take my cash and then I can

keep them away from my child.

One of the reasons I chose to do ABA with rather than use home health

care respite is that all my staff now are college students. No one can work

for the agency unless they have finished one year of college. I also can say

yes or no to any staff person. With the home health agencies in our area you

have no say over staff unless you have a complaint about someone after they

are in your home. You also have no control over turnover or training. Most

staff coming into the home have no college education and just basic CNA

training. There is also no one to train them to deal with behaivoral issues.

I'm not trying to bash CNAs or home health organizations. Each has its rule

but it wasn't appropriate for our needs.

Karyn

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In a message dated 5/24/02 11:38:27 AM Eastern Daylight Time,

KVanRyzin@... writes:

> I have people in our home every day working with and I take no

> precautions to prevent theft. If someone could steal from me they would do

> other things and I don't want them here. Let them take my cash and then I

> can

> keep them away from my child.

Yes, I can understand that. I guess the difference is I don't really have

respite. WE hire Maddie's ex-teacher and ex-aide and we know them very

well. (or family) So it's not strangers coming in. The other thing is I

know Maddie would not sleep one second if she were in someone else's house

without us. And she'd be absolutely terrified the entire time. We're just

not there yet.

Donna

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In a message dated 5/24/02 4:25:54 PM Central Daylight Time,

writes:

>

> Yes, I can understand that. I guess the difference is I don't really

> have

> respite. WE hire Maddie's ex-teacher and ex-aide and we know them very

> well. (or family) So it's not strangers coming in. The other thing is I

>

> know Maddie would not sleep one second if she were in someone else's house

> without us. And she'd be absolutely terrified the entire time. We're

> just

> not there yet.

> Donna

I used to have staff that had worked with in the group home but they

gradually moved on. 's sp. ed. teacher watched him a few times after I

had but I hate to ask her when she has him all week.

Going to the group home is hard on . He doesn't sleep much there. They

are wonderful though and have pretty much quit insisting he go and " sleep " in

his bed. Now they just throw a sheet on the couch and he sleeps right there

by the over night staff. . didn't go until he was 10 years old. I still

cried on my way home. Still do sometimes. I also have his home therapy team

go there each day and work with him so he has some consistency (and I have

spies). Hey, if he slept good then I probably wouldn't need the respite so

bad.

Going to the group home does have its benefits for . He comes back using

more sentences and speaking more clearly. He also enjoys the energy of the

young staff. Of course that is now that he has one on one staff assigned to

him.

Karyn

Karyn

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In a message dated 5/25/02 9:51:41 PM Eastern Daylight Time,

KVanRyzin@... writes:

> didn't go until he was 10 years old. I still

> cried on my way home. Still do sometimes. I also have his home therapy team

> go there each day and work with him so he has some consistency (and I have

> spies). Hey, if he slept good then I probably wouldn't need the respite so

> bad.

>

That's for sure Karyn. Thanks for sharing this.

Donna

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Karyn, it is a blessing to hear what a loving mom you are, Dawn s mom

Re: respite

In a message dated 5/24/02 4:25:54 PM Central Daylight Time,

writes:

>

> Yes, I can understand that. I guess the difference is I don't really

> have

> respite. WE hire Maddie's ex-teacher and ex-aide and we know them very

> well. (or family) So it's not strangers coming in. The other thing is I

>

> know Maddie would not sleep one second if she were in someone else's house

> without us. And she'd be absolutely terrified the entire time. We're

> just

> not there yet.

> Donna

I used to have staff that had worked with in the group home but they

gradually moved on. 's sp. ed. teacher watched him a few times after I

had but I hate to ask her when she has him all week.

Going to the group home is hard on . He doesn't sleep much there. They

are wonderful though and have pretty much quit insisting he go and " sleep " in

his bed. Now they just throw a sheet on the couch and he sleeps right there

by the over night staff. . didn't go until he was 10 years old. I still

cried on my way home. Still do sometimes. I also have his home therapy team

go there each day and work with him so he has some consistency (and I have

spies). Hey, if he slept good then I probably wouldn't need the respite so

bad.

Going to the group home does have its benefits for . He comes back using

more sentences and speaking more clearly. He also enjoys the energy of the

young staff. Of course that is now that he has one on one staff assigned to

him.

Karyn

Karyn

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  • 7 months later...

Hi All,

I just wanted to say bye for a few weeks. I am off to Aruba for a desperately

needed break. I have never left my family other than to go to work. I am

feeling somewhat guilty but not that guilty,LOL. I will miss all of you, stay

well. Off to pack and pray the bathing suit still fits.

Charlyne

Mom to Zeb 10 DS/OCD ?

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In a message dated 1/25/2003 3:00:46 AM Eastern Standard Time,

charlyne1121@... writes:

> Hi All,

> I just wanted to say bye for a few weeks. I am off to Aruba for a

> desperately

> needed break. I have never left my family other than to go to work. I am

> feeling somewhat guilty but not that guilty,LOL. I will miss all of you,

> stay

> well. Off to pack and pray the bathing suit still fits.

> Charlyne

>

Oh Charlyne!!!! NEVER feel guilty!!!! Hope you are soaking up some warm

sunshine right now, with a tropical drink in hand!!!!!

Donna

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  • 3 years later...

I use focus they are very nice and I just start to use Georgia Comunity Support & Solutions. (404) 634-4222 www.gacommunity.org Good Luck godsmercysaidno <godsmercysaidno@...> wrote: Hi everyone,I'm in ding County and was wondering if anyone knows about respite in this area. I received an email from FOCUS, and I am waiting on the package so I might be able to use their respite. Is there anything

else out there? Thanks,

Simon, Mother of Luke 6years old (PDD)

Stay in the know. Pulse on the new .com. Check it out.

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I use focus they are very nice and I just start to use Georgia Comunity Support & Solutions. (404) 634-4222 www.gacommunity.org Good Luck godsmercysaidno <godsmercysaidno@...> wrote: Hi everyone,I'm in ding County and was wondering if anyone knows about respite in this area. I received an email from FOCUS, and I am waiting on the package so I might be able to use their respite. Is there anything

else out there? Thanks,

Simon, Mother of Luke 6years old (PDD)

Stay in the know. Pulse on the new .com. Check it out.

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I am not sure how far you are from Lee or Dougherty County, but there is respite care for children here called 's House. If you are interested, please email to me and I can connect you with someone from Easter Seals. dheard73@...

RespiteHi everyone, I'm in ding County and was wondering if anyone knows about respite in this area. I received an email from FOCUS, and I am waiting on the package so I might be able to use their respite. Is there anything else out there? Thanks,

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  • 1 year later...

Here is a link I have found useful!

_Illinois Respite Programs_ (http://www.chtop.com/istates.htm)

In a message dated 9/3/2008 6:58:08 P.M. Central Daylight Time,

bladinbern451@... writes:

Where can I find out information about respite? My son is currently 18

and has never received any services. Where do I begin? Anyone's help

would be appreciated. Thank you

**************It's only a deal if it's where you want to go. Find your travel

deal here.

(http://information.travel.aol.com/deals?ncid=aoltrv00050000000047)

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This link has been changed.  This link (part of the same web site) should work:

http://chtop.org/Search-For-Respite.html

From: nechapasi@... <nechapasi@...>

Subject: Re: respite

IPADDUnite

Date: Wednesday, September 3, 2008, 7:30 PM

Here is a link I have found useful!

_Illinois Respite Programs_ (http://www.chtop. com/istates. htm)

In a message dated 9/3/2008 6:58:08 P.M. Central Daylight Time,

bladinbern451@ sbcglobal. net writes:

Where can I find out information about respite? My son is currently 18

and has never received any services. Where do I begin? Anyone's help

would be appreciated. Thank you

************ **It's only a deal if it's where you want to go. Find your travel

deal here.

(http://information. travel.aol. com/deals? ncid=aoltrv00050 000000047)

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  • 3 years later...

From: Diane Wheeler

Sent: Friday, January 27, 2012 7:08 AM

diwheeler@...

Subject: Respite

EMERGENCY RESPITE AVAILABLE FOR CAREGIVERS WHO ARE CARING FOR

CHILDREN WITH SPECIAL NEEDS OR ADULTS WITH SPECIAL NEEDS

What is respite?

Respite Care: means the planned or unplanned provision of intermittent and

temporary substitute care or supervision of a child with special needs or adult

with special needs on behalf of and in the absence of the primary caregiver for

the purpose of providing temporary relief from the stress or responsibilities

concomitant with providing constant care, so as to enable the caregiver to

continue the provision of care in the home.

The goal of the Lifespan Emergency Respite Program is to offer funding and

resources to support caregivers of children with special needs or adults with

special needs who have an urgent need for respite care in the absence of any

other funding source.

The program supports the caregiver’s decision to request emergency respite

care and determine where the care will be delivered and by whom.

WHO IS ELIGIBLE?

a.. Caregivers (unpaid family member or other adult or foster parent) who

provides in-home monitoring, management, supervision or treatment of a child

with special needs or an adult with special needs. (Caregiver may, but need

not, reside in the same household as the care recipient.)

b.. Caregivers with the greatest emotional, medical or economic need

(targeting low income caregivers) are given priority for service.

c.. Caregivers of a child with special needs or adult with special needs that

cannot be cared for by other individuals or organizations within the community

due to the complexity of their special needs.

Contact: Fidler, Illinois Respite Coalition at nfidler@... or

630-529-2871 Ext. 3231 or visit us online at www.illinoisrespite.org under the

Emergency Respite tab

Fidler – Lifespan Respite Project Assistant

164 S. Prairie Ave. 630.529.2871 ext. 3231

DIRECT

Bloomingdale, IL 60108 630.529.3266 FAX

nfidler@... www.marklund.org

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