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Welcome ! What a nice introduction!! I am Lee, a single mom with 2 teen boys (one autistic, one learning disabled). I have spasmodic torticollis (cervical dystonia). My main prob is chronic pain and fatigue. Blessings to you, your mum and girlfriend.

Whitehead <stephen.whitehead@...> wrote:

My name is and I have been ill for 6 years along with my mum (we fell ill within a week of each other). We've both been diagnosed with ME (we live in England, and CFS is often referred to as ME if you're not used to the term). I'm 18 and between the ages of 12-17 I went to a hospital school. Now I do 4 lessons a week at college. I go in a wheelchair and someone pushes me to and out of the classes.My girlfriend, , has ACM (Anold Chiari Malformation)and had the surgery for that in July. She is slowly recovering from the op but we do not know if the op has helped yet. There will be a 2 year period while everything is healing...hopefully all the improvememnts will show up in that period.Anyway, just a very brief intro I know, but I just wanted to say hi and let you all know who I am. I am on messenger at stephen_whitehead_uk and can be emailed at stephen.whitehead@....

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I've talked to a few people with cervical dystonia before...often seems liked to chiari. My dad used to work in special schools, so I'm quite used to learning disabilities and autism. I can imagine how hard it must be on you. I find the chronic pain to be my worst symptom. I think if they made the distinction in England they'd probably diagnose FM rather than CFS. Its interesting how many different types of pain there is...

Anyway, I hope to talk to you more soon.

Love and hugs + Blessings to you and yours

Re: Introduction

Welcome ! What a nice introduction!! I am Lee, a single mom with 2 teen boys (one autistic, one learning disabled). I have spasmodic torticollis (cervical dystonia). My main prob is chronic pain and fatigue. Blessings to you, your mum and girlfriend.

Whitehead <stephen.whitehead@...> wrote:

My name is and I have been ill for 6 years along with my mum (we fell ill within a week of each other). We've both been diagnosed with ME (we live in England, and CFS is often referred to as ME if you're not used to the term). I'm 18 and between the ages of 12-17 I went to a hospital school. Now I do 4 lessons a week at college. I go in a wheelchair and someone pushes me to and out of the classes.My girlfriend, , has ACM (Anold Chiari Malformation)and had the surgery for that in July. She is slowly recovering from the op but we do not know if the op has helped yet. There will be a 2 year period while everything is healing...hopefully all the improvememnts will show up in that period.Anyway, just a very brief intro I know, but I just wanted to say hi and let you all know who I am. I am on messenger at stephen_whitehead_uk and can be emailed at stephen.whitehead@....

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Hi ,

I like your website. It has a lot of good information which is well

organized and presented in a way that easy to understand. Have you

checked out Ken's CFS site at www.folkarts.com ? It is awfully good too

and I think you'll like it.

Bonnie B

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Hi

Welcome to our crazy group, I am Nerys I live in Australia and care for my hubby. Rich (hubby) has been diagnosed with fibromyalgia, chronic fatigue and has thyroid problems too.

do you and your mum get much help and support? Must be very hard. It is a hard illness to have and to make others understand what you are going through *hugs*

I haven't heard of what is wrong with your girlfriend but I hope the surgery helps improves things for her.

Where abouts in England are you? I was born there and all my family still live over there.

Anyway tis Christmas day here it is 2am and I am rambling *giggles*, just wanted to say hi and welcome and feel free to jump right in.

Take care and merry Christmas

Lots of love

Nerys

nerick@...

Messenger nerick27

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Hi Nerys,

The docs are rather lax when it comes to looking after me and my mum. I saw a neuro recently who was rather nasty to us both. I tend to get rather nervous of docs now...don't want any more pain. We look after each other and my dad works very hard to support us. I get so upset at myself putting that strain on him. He has so much to deal with. Mind you, sounds like you have your hands full too. How is your husband doing? Is he on any meds for the thyroid condition? Oh, and *hugs* back at you ;o)

I live in Surrey...little town called Egham...most people have never heard of it ;o)

Anyway, you have a really good day and enjoy your xmas....I still have hours to wait :o( Take care and I hope to talk to you soon.

Love and hugs and marry Ho Ho Ho's to you all ;o)

Re: Introduction

Hi

Welcome to our crazy group, I am Nerys I live in Australia and care for my hubby. Rich (hubby) has been diagnosed with fibromyalgia, chronic fatigue and has thyroid problems too.

do you and your mum get much help and support? Must be very hard. It is a hard illness to have and to make others understand what you are going through *hugs*

I haven't heard of what is wrong with your girlfriend but I hope the surgery helps improves things for her.

Where abouts in England are you? I was born there and all my family still live over there.

Anyway tis Christmas day here it is 2am and I am rambling *giggles*, just wanted to say hi and welcome and feel free to jump right in.

Take care and merry Christmas

Lots of love

Nerys

nerick@...

Messenger nerick27

The Being Sick CommunityVisual problems with colors?Click the link below and select the modify link to your right. Then select the **Send Plain Text Email** option. This will stop you receiving emails with colored or enlarged fonts. Members Lounge:-Photo Album, memorial page, members profiles, birthdays, locations, medical resources, counselling via email and a whole bunch of free things.http://www.elderwyn.com/members Message Archives and Digest Attachment Pictures:-messages/Chat:- Scheduled Daily Chats at # on IRC DALnet./chat.htmSharing our resources:-Add a website URL you have found useful. Personal Complaints or problems:-Please contact a moderator either via email <-owneregroups> or visit:-/Moderators.htmSubscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.To modify your subscription settings please visit mygroupsTo subscribe or unsubscribesubscribe/ ~~~~~~~~~~~~~~~“Hold on to what is good, even if it's a handful of earth. Hold on to what you believe, even if it's a tree that stands by itself. Hold on to what you must do even, if it's a long way from here. Hold on to your life, even if it's easier to let go. " - Pueblo Prayer

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Guest guest

Hi .

Sorry to be so late in welcoming you to the group! I've been on a bit of a leave

from replying to posts lately.

I'm , and I joined this group as a caregiver for my son, . I'm so

sorry that you have the need to be here, but I'm glad that you found us!!

*hugs*

Whitehead wrote:

> hi everyone,

>

> My name is and I have been ill for 6 years along with my mum

> (we fell ill within a week of each other). We've both been diagnosed

> with ME (we live in England, and CFS is often referred to as ME if

> you're not used to the term). I'm 18 and between the ages of 12-17 I

> went to a hospital school. Now I do 4 lessons a week at college. I

> go in a wheelchair and someone pushes me to and out of the classes.

>

> My girlfriend, , has ACM (Anold Chiari Malformation)and had

> the surgery for that in July. She is slowly recovering from the op

> but we do not know if the op has helped yet. There will be a 2 year

> period while everything is healing...hopefully all the improvememnts

> will show up in that period.

>

> Anyway, just a very brief intro I know, but I just wanted to say hi

> and let you all know who I am. I am on messenger at

> stephen_whitehead_uk and can be emailed at

> stephen.whitehead@....

>

> Take care and I hope to talk to some of you soon.

>

> Love and hugs

>

>

>

> The Being Sick Community

>

> Visual problems with colors?

> Click the link below and select the modify link to your right. Then select the

**Send Plain Text Email** option. This will stop you receiving emails with

colored or enlarged fonts.

>

>

> Members Lounge:-

> Photo Album, memorial page, members profiles, birthdays, locations, medical

resources, counselling via email and a whole bunch of free things.

> http://www.elderwyn.com/members

>

> Message Archives and Digest Attachment Pictures:-

> messages/

>

> Chat:-

> Scheduled Daily Chats at # on IRC DALnet.

> /chat.htm

>

> Sharing our resources:-

> Add a website URL you have found useful.

>

>

> Personal Complaints or problems:-

> Please contact a moderator either via email <-owneregroups> or

visit:-

> /Moderators.htm

>

> Subscription Details:-

> 1) Individual email - means that every email sent to the list you receive.

> 2) Daily Digest - sends you 25 messages in one single email for you to browse.

This is an excellent option if you receive alot of email.

> 3) Web only/No mail - means that you can pop into eGroups at your convenience

and receive no email.

> To modify your subscription settings please visit

mygroups

>

> To subscribe or unsubscribe

> subscribe/

>

> ~~~~~~~~~~~~~~~

>

> “Hold on to what is good, even if it's a handful of earth. Hold on to what you

believe, even if it's a tree that stands by itself. Hold on to what you must do

even, if it's a long way from here. Hold on to your life, even if it's easier to

let go. " - Pueblo Prayer

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Guest guest

That is really good news that you have an egroup for practice nurses. I

have spent the last five years on practice nurse development which is

slow but growing. Often practice nurses are isolated and confined

because of the way they are employed but I would be happy to pass on

information for other practice nurses who would be interested to share

information and ideas with other practice nurses in our area and who

have access to the Internet.

In message <002c01c07e0c$89d7c320$15e11ac3@stevehaines>, Haines

<haines@...> writes

>Hi

>I have just found out about your discussion group through the RCN Research &

>Development bulletin. I moderate an e mail discussion list for practice

>nurses and since 1997 we have grown to over 200 members. I thought it would

>be useful in terms of networking to have some interaction between the lists

>on Primary Care issues. So if there is anything you would like me to forward

>to the practice nurse list or any information you would like please let me

>know.

>We have utilised the egroups facility for sharing standards, protocols,

>carrying out polls and responding to government consultation papers. The

>recent consultation on the extension of nurse prescribing provoked over 350

>e mails and we were able to summarise the discussion in an official list

>response.

>

>Regards

>

>Maresah Haines

>Senior Practice Nurse

>Manager practicenurseegroups

>

>

>

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Welcome Maresah. We have found the egroup very useful for discussing specific

issues too: we collated a response to the consultation on the new nursing and

midwifery council 'on line'.

I wondered why we had suddenly got a small spurt of new members and should have

registered that SENATE was mentioned on the RCN R & D bulletin. We have a bit

of catching up to do though; we have only 93 against your 200, having started

in March last year. Not that it is any kind of competition: we just enjoy

generally swapping news and information, occasionally having some quite

interesting and thoughtful debates. Would be pleased to hear from the other

'new recruits' about their interests. Best wishes

Haines wrote:

> Hi

> I have just found out about your discussion group through the RCN Research &

> Development bulletin. I moderate an e mail discussion list for practice

> nurses and since 1997 we have grown to over 200 members. I thought it would

> be useful in terms of networking to have some interaction between the lists

> on Primary Care issues. So if there is anything you would like me to forward

> to the practice nurse list or any information you would like please let me

> know.

> We have utilised the egroups facility for sharing standards, protocols,

> carrying out polls and responding to government consultation papers. The

> recent consultation on the extension of nurse prescribing provoked over 350

> e mails and we were able to summarise the discussion in an official list

> response.

>

> Regards

>

> Maresah Haines

> Senior Practice Nurse

> Manager practicenurseegroups

>

>

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Guest guest

> That is really good news that you have an egroup for practice nurses. I

> have spent the last five years on practice nurse development which is

> slow but growing. Often practice nurses are isolated and confined

> because of the way they are employed but I would be happy to pass on

> information for other practice nurses who would be interested to share

> information and ideas with other practice nurses in our area and who

> have access to the Internet.

> Rowe

Hi Jean

If you have the time perhaps you could do a precis of what you have been

doing and I'll forward it to the PN list. Practice nurses working in your

area can then get in touch.

You are right about practice nurses often being isolated and confined

because of their employment.and also having little or no management support.

I think that is why the e mail list has been such a lifeline. Nurses have

changed practice because of information they have gained from one another.

The exciting thing has been the amount of innovation and enthusiasm that is

out there.

Regards

Maresah Haines

Manager practicenurseegroups

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Dear Maresah,

In our two, embryonic local PCTs we hope to investigate the

integration of school nursing expertise (and opportunites in

schoolchildren for the early detection of problems) with surgery-based

Primary Care activities. Do any of your members have experience of

looking at the interface between practice nurses and school nurses

involved with the same families ?

Yours,

Woody Caan

(Barking and Havering HA)

>

>

> > That is really good news that you have an egroup for practice

nurses. I

> > have spent the last five years on practice nurse development which

is

> > slow but growing. Often practice nurses are isolated and confined

> > because of the way they are employed but I would be happy to pass

on

> > information for other practice nurses who would be interested to

share

> > information and ideas with other practice nurses in our area and

who

> > have access to the Internet.

> > Rowe

>

> Hi Jean

> If you have the time perhaps you could do a precis of what you have

been

> doing and I'll forward it to the PN list. Practice nurses working in

your

> area can then get in touch.

> You are right about practice nurses often being isolated and

confined

> because of their employment.and also having little or no management

support.

> I think that is why the e mail list has been such a lifeline. Nurses

have

> changed practice because of information they have gained from one

another.

> The exciting thing has been the amount of innovation and enthusiasm

that is

> out there.

>

> Regards

>

> Maresah Haines

> Manager practicenurseegroups

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Guest guest

My latest project is making natural parfum and eau de toilettes. There

is a lot to learn in that arena. I hope to share my knowledge and learn

from all of you.

JoAnne

Dear JoAnne:

Hi! My interests also encompass essential oil perfumery. There is so much to

learn that I have read it takes a mimimum of SEVEN years to be an adequate

perfumier! I love to learn, and I hope we can share many ideas and become

friends. I am interested in hearing more about your company, also. You must be

very proud, and rightfully so. I look forward to your postings, and wish you

the best of luck in all you do.

God bless,

Tina Marie

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In a message dated 1/26/2001 10:55:05 AM Eastern Standard Time,

heacamar@... writes:

> Hi, My name is and I have three children: 13, 6

> (has DS), and 3. Life is extremely busy but I find the need for

> some reinforcement or encouragement about issues with Chris. I am new to

> this group. Do you just email back and forth? Is there a chat room? How

> do you get to it? I look forward to becoming a part of your group.

>

>

Welcome! Yes, we email back and forth. If you want to reply to the original

author only, you hit reply. If you want to reply to the group, hit reply to

all.

YOu joined us at a bad time..lol. Read my previous message concerning the

ID. You have to have this to access the web site which does have the

chat room. We dont' have any scheduled chats at this moment. Usually if

someone post that they will be in the chat room at a certain time and date,

others will come. Saturday late night seems to be a good time for many.

Anyway, welcome and you will find this list extremely resourceful and

supportive for any concerns you have with and even your other family

members!! There is also a sibling group that may enjoy..my 13 year

old daughter will be on another chat site tonight talking to sibs from this

list. Hopefully, Tina will post a reminder about the sib chat. (HINT HINT

TINA!!). The sibling chats are safe..an adult is nearby to intervene if need

be.

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In a message dated 1/26/01 9:54:59 AM Central Standard Time,

heacamar@... writes:

<< Hi, My name is >>

welcome :)

Barbara

Jimmy 13

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Hi , Welcome to the list. You will find a lot of information and

support here. My son is 14 and has DS. He spent all day yesterday

playing softball and swimming with his Special Olympics team. He is a

little jock and has been bored to tears with no athletics. We are a

military family and are stationed in Hawaii for the next 5 1/2 months. We

still have no clue where we're going next. Hope to hear more about you and

yours.

Elaine Mom to 17 and 14 (DS)

introduction

> Hi, My name is and I have three children: 13,

6

> (has DS), and 3. Life is extremely busy but I find the need for

> some reinforcement or encouragement about issues with Chris. I am new to

> this group. Do you just email back and forth? Is there a chat room? How

> do you get to it? I look forward to becoming a part of your group.

>

>

>

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In a message dated 2/10/01 5:56:16 PM Central Standard Time, cherique@...

writes:

> Hello everyone,

>

> We are Rene 33 yrs and 31 yrs and have two beautiful daughters.

> Cherique 4 yrs and Frederique 9 months with DS.

> We live in The Hague in Holland

>

> Last thursday we singed up for the group and today were a litle

> surprised that we had receided 205 emails

>

> We have a lot of reading to do this weekend

>

> regards

>

> Rene, , Cherique and Frederique

HI Rene :)

Welcome to the list :) So funny, you just came in when we had a major

discussion going on, well really two if you count the movie that aired this

week :)

You will have to tell us about your family when you catch up on mail Heehee

Kathy mom to Sara 9

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Welcome! Joanne,

Glad to have you with us. My name is , I am a widow an

have 3 kids, teenagers. I am engaged to a wonderful man. I

have my own bath products and soap business and am enjoying

life. I have many pets too, too many to list. I just

bought my own home and 5 acres in Fl. I have learned alot

being on this list so will you.

--- Joanne <grandmajones6@...> wrote:

>

> Hi There: My name is Joanne. I am married to my soulmate

> whose name is Jim.

> I have 2 grown loving and caring daughters. I also have

> been blessed with 6

> wonderful grandchildren 4 boys Bobby, , ,

> Elisha and 2 girls

> and Autumn. I have 2 pet cats Tabby and Maggie.

> We all reside here

> in Indiana. My daughters have encouraged me to join some

> groups for I am

> disabled and they thought this might help me to keep my

> spirits up. I look

> forward to hearing from you in hopes that we may bring

> some sunshine into

> each of our lives and make our days a little brighter.

> TAKE CARE

> JOANNE

>

>

> Learn how to work at home and make money I

> DID!!!!!!!!!!!!!

> http://teamideals.com/leaders.cgi/joanne

>

>

_________________________________________________________________

> Get your FREE download of MSN Explorer at

> http://explorer.msn.com

>

>

>

=====

Problem Skin? Soap harsh! Try my soap....Natural Glycerin. What is truly unique

about my soaps and entire product line,is that I custom-design them just for

YOU! You pick-design, color, fragrance! And Pay ONLY for what you want in your

soap. I have a full line of Lotions,Glitter Gels,Lip Gloss,Tub Tea,Bubble

Bath,Candles,Potpourri! Check Out the Store -

http://stores.bizblast.com/stores/bunnylady01

__________________________________________________

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Guest guest

Hi !

where are you at in Florida?

I am in Suwannee county

Lucinda

(Listmom)

Glenbrook Farms Herbs and Such

Living Healthy! Living Well!

http://www.glenbrookfarm.com/herbs

Re: INTRODUCTION

> Welcome! Joanne,

>

> Glad to have you with us. My name is , I am a widow an

> have 3 kids, teenagers. I am engaged to a wonderful man. I

> have my own bath products and soap business and am enjoying

> life. I have many pets too, too many to list. I just

> bought my own home and 5 acres in Fl. I have learned alot

> being on this list so will you.

>

>

>

>

> --- Joanne <grandmajones6@...> wrote:

> >

> > Hi There: My name is Joanne. I am married to my soulmate

> > whose name is Jim.

> > I have 2 grown loving and caring daughters. I also have

> > been blessed with 6

> > wonderful grandchildren 4 boys Bobby, , ,

> > Elisha and 2 girls

> > and Autumn. I have 2 pet cats Tabby and Maggie.

> > We all reside here

> > in Indiana. My daughters have encouraged me to join some

> > groups for I am

> > disabled and they thought this might help me to keep my

> > spirits up. I look

> > forward to hearing from you in hopes that we may bring

> > some sunshine into

> > each of our lives and make our days a little brighter.

> > TAKE CARE

> > JOANNE

> >

> >

> > Learn how to work at home and make money I

> > DID!!!!!!!!!!!!!

> > http://teamideals.com/leaders.cgi/joanne

> >

> >

> _________________________________________________________________

> > Get your FREE download of MSN Explorer at

> > http://explorer.msn.com

> >

> >

> >

>

>

> =====

> Problem Skin? Soap harsh! Try my soap....Natural Glycerin. What is truly

unique about my soaps and entire product line,is that I custom-design them j

ust for YOU! You pick-design, color, fragrance! And Pay ONLY for what you

want in your soap. I have a full line of Lotions,Glitter Gels,Lip Gloss,Tub

Tea,Bubble Bath,Candles,Potpourri! Check Out the Store -

http://stores.bizblast.com/stores/bunnylady01

>

> __________________________________________________

>

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Guest guest

Isa wow, ive seen your site before. what you think you lack with cp and hp

you well make up for that with your MP style. Very nice soaps!

Welcome!

Shaye

The Soap Shack

www.mysoapshack.com

introduction

hello all, I am new to this list and not really in central NY, closer to nyc

(westchester county).

I have been making M & P for 14 or 15 months, and I have tried CP and HP in

the last few days.( it was pathetic.)

I am on the verge of starting a company (I got the business certificate, but

no tax idea or liability insurance yet) and any tip about those in NY state

would be very welcome!.

what else? I am french, almost 43, i have a husband, 2 daughters and a cat.

since i am an addicted chatter and soaper, i would love to have the password

to the chat place too :-)

isa

www.grenouillebleue.net

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..Hi Isa

And welcome to the group.You have great mp .You are very creative.The best

way to talk in the chat room is to post a time you would like to talk and

invite every one to join you.then .

Kim Fuoco

www.honeybearsoap.com

introduction

> hello all, I am new to this list and not really in central NY, closer to

nyc

> (westchester county).

> I have been making M & P for 14 or 15 months, and I have tried CP and HP in

> the last few days.( it was pathetic.)

> I am on the verge of starting a company (I got the business certificate,

but

> no tax idea or liability insurance yet) and any tip about those in NY

state

> would be very welcome!.

> what else? I am french, almost 43, i have a husband, 2 daughters and a

cat.

> since i am an addicted chatter and soaper, i would love to have the

password

> to the chat place too :-)

> isa

> www.grenouillebleue.net

>

>

>

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Welcome nne (what a pretty name!)

Im over here just east of Rochester.. Nice to meet you!

Shaye

The Soap Shack

www.mysoapshack.com

Introduction

Hey, Everyone! My name is nne, and I just joined this group. I'm really

excited about it. My husband and I live near Albany, NY, and we just moved

here from Indiana about nine months ago. We're getting our first taste of

New York winters, that's for sure! haha :-) Anyway, I'm just getting into

melt-and-pour soap, and I'm really having fun with it so far. I also enjoy

making my own homemade bath and body products. I look forward to

participating in this group and exchanging ideas! Anyone else from the

Albany area?

nne :-)

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Welcome nne

We always like to have new people join us. And a new New Yorker to boot.

We don't always have winters like this. So don't let it scare you. I live in

a small town called Ilion and it's about an hour west of you. I also do M & P

just starting up a business the last few months.

Enjoy the list and don't be shy. We're a pretty outgoing group - hey girls?

M

Introduction

Hey, Everyone! My name is nne, and I just joined this group. I'm really

excited about it. My husband and I live near Albany, NY, and we just moved

here from Indiana about nine months ago. We're getting our first taste of

New York winters, that's for sure! haha :-) Anyway, I'm just getting into

melt-and-pour soap, and I'm really having fun with it so far. I also enjoy

making my own homemade bath and body products. I look forward to

participating in this group and exchanging ideas! Anyone else from the

Albany area?

nne :-)

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> From: nne V. Jensen

> here from Indiana Anyone else from the

> Albany area?

>

Hi and Welcome...my husband Bob and I travel out to your area quite often as

he is a sales rep who has many stores & distributers out your way. Where

abouts near albany are you?

Deb

>

>

>

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Louis...

Welcome to the list!! An Aussie.....How exciting....would love to see your

home land someday!!!!

Toodles,

Kelley

Join me at Soapies-GoLocal @ !!

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--- Kees Braam <redactie@...> wrote:

> I'm a 50 year old man. In 1996 the doctors told me

> mthe cancer in my tongue and throath was too big too

> operate and incurable. Because a friend of mine had

> very good experiences with an alternative diet and

> complemantary nutruitional supplements I went to his

> docotr, a medical doctor and biologist. To make a

> long story short: I'm still alive and already since

> ocober 1997 cancerfree. I work again, plays tennis

> and excepot a minor problem with talking (the

> doctors cut finally part of my tongue), I feel

> healthy and happy.

>

> About my story and the stories of Antoon my friend

> (with Waldenström) and Shifra a child with leukemia

> (ALL) I've made a documentary, The Will to Live, and

> this is broadcasted already two times in the

> Netherlands.

>

> Beside that film I've made a website

> www.kanker-actueel.nl (the word kanker is in english

> cancer) where we tell about the way we handled our

> cancerprocess and a lot of more information.

>

> I would like to discuss with people who think that

> cancer hasn't always to mean to die. There's so much

> more than the regular doctors tell you. So I hope in

> this group to exchange information about how to

> fight cancer en to support others in their fight

> against their illness.

>

> ''m sorry for my schoolenglish, but I hope you

> understand my words.

>

> With kindly regards, Kees Braam

>

Dear Kees Braam

Please tell us more of your story. Details please!

Thanks in advance.

__________________________________________________

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