Introduction

[Guest guest]

$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$JgffjjmkSent on the Now Network™ from my Sprint® BlackBerryFrom: wharrison@...Date: Wed, 25 Nov 2009 02:16:14 +0000 (GMT)<Vaccinations >Subject: Re: Introduction Welcome, Meghan! It is smart of you to have been cautious about vaccines from the start. That's more than I was, and a lot of us fully vaccinated our babies without question. There is so much info, you are right. One of the most important pieces of info to get out there is that there are exemptions for school. You don't have be a radical non-vaxer to appreciate knowing that. Mentioning that wherever you go is a great way to start being an activist. I drop the fact randomly to strangers and I've never been slapped yet. Most people are shocked and grateful to learn it. Anyway, glad to have you here! Your neighbor from CT,Winnie IntroductionVaccinations > Hello All,> > My name is Meghan and I have just become a part of this group. > I have two children (so far) who I have selectively vaccinated, > unfortunately. I have stopped vaccinating them and made the > decision not to vaccinate at all, but have fears of the damage > that may have been done by the few they have received.> I am grateful for the wealth of information available here, as I > often run into people that think I have no basis for my decision > not to vaccinate. I would love to become an activist against > vaccines, just not sure where to start!> I look forward to learning and sharing with you all.> > Meghan> Massachusetts> >

[Guest guest]

welcome to the group pat....  I know you will find a lot of support here...  I'm really sorry about the job loss... Post as your able too... SerenaFrom: Pat N <prose826@...>Subject: Introduction100-plus Date: Sunday, March 28, 2010, 6:49 PM

 

Hi Ladies

Thank you for letting me join your group.  I am looking forward to some sparkling repartee:-)

My name is Pat and I live about 30 miles west of Chicago IL.  I moved here about 10 years ago from Canada. 

I have been dieting and regaining my whole life.  You know the story. 

I am now 58 years old and I weigh well over 300 lbs. 

I was a svelte 277 back in 2008 just before they rushed me in for heart surgery.  I had been going to WW off and on for about 30 years and had just lost 60 lbs.  Well I had to quit smoking after the surgery and I found every ounce of it. 

3 weeks ago I hauled myself over to an OA meeting and I've been having a go at that. 

So I've lost about 10 lbs and I'm just counting calories and trying to watch it. 

I lost my job shortly after the surgery....and I'm still out of work. 

I guess that's it for now. 

Thanks again,

Pat

 

 

[Guest guest]

Hi Pat!! Welcome to the group : ) thats great that u have lost 10 lbs already.

Be proud of it and continue to move forward. And we are always here to help in

any way we can.

>

> Hi Ladies

> Thank you for letting me join your group.  I am looking forward to some

sparkling repartee:-)

> My name is Pat and I live about 30 miles west of Chicago IL.  I moved here

about 10 years ago from Canada. 

> I have been dieting and regaining my whole life.  You know the story. 

> I am now 58 years old and I weigh well over 300 lbs. 

> I was a svelte 277 back in 2008 just before they rushed me in for heart

surgery.  I had been going to WW off and on for about 30 years and had just lost

60 lbs.  Well I had to quit smoking after the surgery and I found every ounce of

it. 

> 3 weeks ago I hauled myself over to an OA meeting and I've been having a go at

that. 

> So I've lost about 10 lbs and I'm just counting calories and trying to watch

it. 

> I lost my job shortly after the surgery....and I'm still out of work. 

> I guess that's it for now. 

> Thanks again,

> Pat

>  

>  

>

[Guest guest]

Hi Pat! Welcome to the group! It sounds like you are well on your way! I lost my job when the school I worked at closed it's doors. That was the first time I ever lost a job in my life, and it was really upsetting and took nearly a year to let go of. Calorie counting works for me too.

Ann HStarted 09/01/09307/254/157 poundsMy Weightloss Journal:http://threeherring.wordpress.com/

From: Pat N

Sent: Sunday, March 28, 2010 5:49 PM

100-plus

Subject: Introduction

Hi Ladies

Thank you for letting me join your group. I am looking forward to some sparkling repartee:-)

My name is Pat and I live about 30 miles west of Chicago IL. I moved here about 10 years ago from Canada.

I have been dieting and regaining my whole life. You know the story.

I am now 58 years old and I weigh well over 300 lbs.

I was a svelte 277 back in 2008 just before they rushed me in for heart surgery. I had been going to WW off and on for about 30 years and had just lost 60 lbs. Well I had to quit smoking after the surgery and I found every ounce of it.

3 weeks ago I hauled myself over to an OA meeting and I've been having a go at that.

So I've lost about 10 lbs and I'm just counting calories and trying to watch it.

I lost my job shortly after the surgery....and I'm still out of work.

I guess that's it for now.

Thanks again,

Pat

[Guest guest]

HI Pat-

Welcome to the group and congrats on the 10 lbs you have lost most recently.

Other than being out of work, are things going alright following your surgery?

Introduction

Hi Ladies

Thank you for letting me join your group. I am looking forward to some sparkling repartee:-)

My name is Pat and I live about 30 miles west of Chicago IL. I moved here about 10 years ago from Canada.

I have been dieting and regaining my whole life. You know the story.

I am now 58 years old and I weigh well over 300 lbs.

I was a svelte 277 back in 2008 just before they rushed me in for heart surgery. I had been going to WW off and on for about 30 years and had just lost 60 lbs. Well I had to quit smoking after the surgery and I found every ounce of it.

3 weeks ago I hauled myself over to an OA meeting and I've been having a go at that.

So I've lost about 10 lbs and I'm just counting calories and trying to watch it.

I lost my job shortly after the surgery....and I'm still out of work.

I guess that's it for now.

Thanks again,

Pat

[Guest guest]

Well they fixed my heart but my lungs were damaged as a result of complications after the surgery. Both lungs collapsed due to pleural effusion. I now have COPD. I think losing weight will help my breathing a lot.

From: ABrite@... ABrite@...

Date: Tuesday, March 30, 2010, 8:20 PM

HI Pat-

Welcome to the group and congrats on the 10 lbs you have lost most recently.

Other than being out of work, are things going alright following your surgery?

[Guest guest]

I now have COPD. I think losing weight will help my breathing a lot.

Don't know much about COPD but part of me wonders if my mother has it. To sit and listen to her breathe...

She needs to lose weight too, but I can't tell her that...

[Guest guest]

Hi, Dawn. Thea here, from Hawaii.

Welcome to the list.

I don't have a stimulator myself ... I still use medications. But most of the

people here have them, and I've heard all sorts of good things about them.

Glad yours is working out.

Thea

From: Dawn Horton

Sent: Wednesday, July 07, 2010 6:56 AM

Stimulator

Subject: Introduction

Hi there,

After struggling with back and hip pain for the past 8 years, multiple

surgeries, nerve ablations, medications, etc. I finally had a spinal cord

stimulator trial about two months ago and was amazed at how much relief from the

pain it gave me. I was able to walk without a cane and for the first time in

years able to sleep through the night without waking up multiple times in pain.

I was originally scheduled for surgery for the permanent device tomorrow, but

got a call from my doctor a little while ago telling me that I'm now rescheduled

for 7/27.

Since I don't personally know anyone who has a stimulator, I figured joining

this group might be a good way to network with other people who have the device.

Dawn

[Guest guest]

Welcome to the group, Dayna! You sound like an ambitious lady. I will check

out the websites you mentioned soon.

How old is Luke now? Our son w/ds is Josiah, and he is 21 years old now and

doing very well. He is the greeter at our church (along with one of the

elders), opening the doors and shaking hands. More info later.

Best wishes to you and your family.

Shirley

From: Dayna

Sent: Saturday, July 10, 2010 12:34 PM

Subject: introduction

Hi Everyone,

I'm new to the group and thought I'd introduce myself and my family.

I'm Dayna, my wonderful husband is Tommy and we have the most adorable son,

Luke (Ds).

We live in North Carolina near the Virginia border and close to the Outer

Banks.

We have a couple of acres with chickens and a very friendly goat.

We found out early in the pregnancy that Luke had Ds and Tetrology of Fallot

(repaired at 4 months) and kidney issues.

Luke has been such a blessing and our biggest joy! We've wanted to have

another baby since he was born. We are now searching for a baby domestically

with Ds to adopt. Our home study is complete and we are registered with Robin.

If we find a surrogate we'd also like to have another baby.

My heart yearns to stop the termination of babies with Ds and that led to my

website: WWW.alifeworthliving.us which I hope will encourage new parents by

giving them lots of positive information.

I also started a local support group for parents who have children with

special needs. WWW.snapgroupinfo.Com

If I was younger when I had Luke I think we would have ended up adopting a

dozen or so children with Ds!

Blessings,

Dayna Chandler

------------------------------------------------------------------------------

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01:36:00

[Guest guest]

Thanks Shirley!

Luke is 4 yrs old and loves school and the beach.

I bet Josiah makes an awesome greeter at church! Looking forward to hearing

more about him.

Dayna

<><

-- introduction

Hi Everyone,

I'm new to the group and thought I'd introduce myself and my family.

I'm Dayna, my wonderful husband is Tommy and we have the most adorable son,

Luke (Ds).

We live in North Carolina near the Virginia border and close to the Outer

Banks.

We have a couple of acres with chickens and a very friendly goat.

We found out early in the pregnancy that Luke had Ds and Tetrology of Fallot

(repaired at 4 months) and kidney issues.

Luke has been such a blessing and our biggest joy! We've wanted to have

another baby since he was born. We are now searching for a baby domestically

with Ds to adopt. Our home study is complete and we are registered with

Robin.

If we find a surrogate we'd also like to have another baby.

My heart yearns to stop the termination of babies with Ds and that led to my

website: WWW.alifeworthliving.us which I hope will encourage new parents by

giving them lots of positive information.

I also started a local support group for parents who have children with

special needs. WWW.snapgroupinfo.Com

If I was younger when I had Luke I think we would have ended up adopting a

dozen or so children with Ds!

Blessings,

Dayna Chandler

----------------------------------------------------------

No virus found in this incoming message.

Checked by AVG - www.avg.com

Version: 9.0.830 / Virus Database: 271.1.1/2993 - Release Date: 07/10/10

01:36:00

[Guest guest]

Hi Dayna,

Welcome to the group. I love your website.

(7), Riley (4) and Lacey (2 ds)

_____

From: [mailto: ] On Behalf

Of Dayna

Sent: Saturday, July 10, 2010 10:34 AM

Subject: introduction

Hi Everyone,

I'm new to the group and thought I'd introduce myself and my family.

I'm Dayna, my wonderful husband is Tommy and we have the most adorable son,

Luke (Ds).

We live in North Carolina near the Virginia border and close to the Outer

Banks.

We have a couple of acres with chickens and a very friendly goat.

We found out early in the pregnancy that Luke had Ds and Tetrology of Fallot

(repaired at 4 months) and kidney issues.

Luke has been such a blessing and our biggest joy! We've wanted to have

another baby since he was born. We are now searching for a baby domestically

with Ds to adopt. Our home study is complete and we are registered with

Robin.

If we find a surrogate we'd also like to have another baby.

My heart yearns to stop the termination of babies with Ds and that led to my

website: WWW.alifeworthliving.us which I hope will encourage new parents by

giving them lots of positive information.

I also started a local support group for parents who have children with

special needs. WWW.snapgroupinfo.Com

If I was younger when I had Luke I think we would have ended up adopting a

dozen or so children with Ds!

Blessings,

Dayna Chandler

[Guest guest]

Thanks !

If you 'd like to put a pix of Lacey on my website just send me a favorite

and I'll add it next time I update the site.

Dayna

<><

-- introduction

Hi Everyone,

I'm new to the group and thought I'd introduce myself and my family.

I'm Dayna, my wonderful husband is Tommy and we have the most adorable son,

Luke (Ds).

We live in North Carolina near the Virginia border and close to the Outer

Banks.

We have a couple of acres with chickens and a very friendly goat.

We found out early in the pregnancy that Luke had Ds and Tetrology of Fallot

(repaired at 4 months) and kidney issues.

Luke has been such a blessing and our biggest joy! We've wanted to have

another baby since he was born. We are now searching for a baby domestically

with Ds to adopt. Our home study is complete and we are registered with

Robin.

If we find a surrogate we'd also like to have another baby.

My heart yearns to stop the termination of babies with Ds and that led to my

website: WWW.alifeworthliving.us which I hope will encourage new parents by

giving them lots of positive information.

I also started a local support group for parents who have children with

special needs. WWW.snapgroupinfo.Com

If I was younger when I had Luke I think we would have ended up adopting a

dozen or so children with Ds!

Blessings,

Dayna Chandler

[Guest guest]

Welcome to the group, Litha! Sounds like it was a long hard road to find all the answers you needed. Glad the doctor was able to help diagnose the problem. Are you on any type of weight loss plan?

   elisaannh

    317/242/157 (started Sept 26, 2009)

My Weight Loss Journal: The Little Bowl

-------Original Message-------

From: Faithfully Litha

Date: 10/6/2010 1:04:35 PM

Finally the doctor sent me to an endocrinologist. And FINALLY, I had an answer! It was PCOS. I began medicine and started losing weight immediately.

Litha

http://www.facebook.com/faithfullylitha

[Guest guest]

Just the one my doctor gave me... Which is very simple...

--Exercise at least 3 times a week (preferably 5 times if possible)

--Do not exceed 1800 calories in a day (preferably closer to 1500 calories).

--Take my meds daily (which I had not been doing)

She advised that I not give up the foods I like, but instead eat them in moderation (within my allowed calories for the day)... She told me that if I deprive myself of stuff I like, I will definitely fail.

She also told me to get with a support group, like you guys, for accountability.

And she told me to not try to lose a bunch at a time, but aim for only a pound a week but not be discouraged if I don't lose that (most times with PCOS, weight loss can be very slow... But it goes in spirts).

And lastly, as far as drinks go... Compromise... For instance, I used to drink soft drinks all the time. I hate water. So we compromised and I only drink soft drinks if I'm at a restaurant... At home I drink G2 (which in 12 ounces has only 30 calories... Whereas a 12 ounce soft drink has about 150) So I don't have to drink water (blah!) but I also save 120 calories per 12 ounces! And G2 does not taste diet at all! Love it! G2 is Gatorade 2 for those of you who don't know.

-- Re: Introduction

Welcome to the group, Litha! Sounds like it was a long hard road to find all the answers you needed. Glad the doctor was able to help diagnose the problem. Are you on any type of weight loss plan?

   elisaannh

    317/242/157 (started Sept 26, 2009)

My Weight Loss Journal: The Little Bowl

-------Original Message-------

From: Faithfully Litha

Date: 10/6/2010 1:04:35 PM

Finally the doctor sent me to an endocrinologist. And FINALLY, I had an answer! It was PCOS. I began medicine and started losing weight immediately.

Litha

http://www.facebook.com/faithfullylitha

[Guest guest]

Hi Litha. Welcome. We PCOS gals. Yes I am one to. For whatever weird reason I had no problem conceiving BUT it sucks now that my tubes are tied and I am back on the low estron. Remember portions, water, and exercise. I may look into those meds you listed.

N.H.

[Guest guest]

Smart mother. Follow those instincts. It could be months or years before you are completely confident in your decision, and in fact, many parental decisions are not made with a full 100% confidence. You do your best after researching and following your instincts, and hope you're right.

I think you'll find most illness your child gets will be unrelated to "childhood diseases" anyway. Most of my kids were sick either from vaccines, directly and indirectly, and the pediatricians' treatments OR from short-lived, vomiting/diarrhea type illnesses--nothing a vaccine would have helped prevent (even if they did work) and nothing we couldn't get through with just me and my box of magic.

Your concern remains about tetanus, and I felt the same way. It's not a communicable disease so it's different. So, here is something very important to remember while you read up on it: you are not immune if you get it naturally. You can get it again and again. A vaccine won't prevent it, either.

Anyway, welcome!

Winnie

Introduction"Vaccinations " > I have an almost 5 month old daughter, so far unvaccinated. I > was considering a few vaccines (Hib, pcv, tetanus) until > recently but I am inclined not to vaccinate at all and trying to > make sure I feel confident in this decision. The only one I'm > really feeling indecisive over at the moment is tetanus. I have > a feeling I'll eventually decide against it but I have a while > before I need to make that decision.> > Jen in WA> >

[Guest guest]

Hi and big welcome too.

It goes with out saying that no parent wants their child to be sick. I would even suppose that IS the reason why parents choose to not vaccinate!

Vaccine immunity is a theory that after reseach you also may find is seriously flawed.

It's good that you have stopped vaccinating your child in order to learn more. You will find support and a wealth of knowledge here.

~F

From: <swansong825@...>Vaccinations Sent: Wed, January 5, 2011 3:14:12 AMSubject: Introduction

I'm new to this list. I have a 4 year old daughter and I did not get her her last round of vaccinations. I found out about the concerns late. I still may get them because I am concerned about the illnesses. I don't want her to get something potentially fatal. I think I need to do more research. I really thought a group would be helpful because I can get other people's input and find out some more information in the discussions. If anyone has ever been in my position and has some advice that would be helpful. I wonder if she still has a fair amount of immunity, or maybe all her immunity, because she's gotten most of the vaccines. That's a question I haven't been able to answer.

[Guest guest]

If she is already 4, she is way past the age when the childhood illnesses are

dangerous - for example, you rarely hear of a 4 year old dying of whooping

cough. All the childhood illnesses are treatable with nutrition and homeopathy,

if you do the research.

You say you don't want her to get something potentially fatal - but every

vaccine is potentially fatal. People forget that - until it's their kid that has

the bad reaction. As someone who is vaccine-injured myself, I can tell you I

would give anything to go back and take a chance on getting an illness, rather

than getting the vaccine that I did.

And sadly, vaccines don't guarantee immunity. Some vaccines, in fact, only

create antibodies in 50%-60% of those vaccinated! And antibodies don't always

correlate to disease immunity. There is a lot to learn - stick around here and

trust your gut. Don't give more shots until you are sure it is the right thing

to do.

Melinda C.

>

> I'm new to this list. I have a 4 year old daughter and I did not get her her

last round of vaccinations. I found out about the concerns late. I still may

get them because I am concerned about the illnesses. I don't want her to get

something potentially fatal. I think I need to do more research. I really

thought a group would be helpful because I can get other people's input and find

out some more information in the discussions. If anyone has ever been in my

position and has some advice that would be helpful. I wonder if she still has a

fair amount of immunity, or maybe all her immunity, because she's gotten most of

the vaccines. That's a question I haven't been able to answer.

>

[Guest guest]

Welcome, ! Yes, I'm sure many, if not most of us here, began vaccinating our children then got nervous about it--some because our child had a reaction. You are very smart to question this at all.

I agree with what was previously said, that any vaccine is potentially fatal. That is what you have to protect your child from first, not diseases. You need to protect them from immediate danger, and not pay to deliberately cause it. It is difficult to change our mindsets to what we've been brought up to believe, I know.

As long as you believe vaccines work, then you will be weighing the risks and benefits. Once you understand what a crock it is, then you will find that it is all risk and no benefit. This took me years to absorb so I understand if you don't see that right now.

You can nurse through illnesses when they are contracted naturally. You cannot nurse through vaccine reactions easily at all, and doctors won't help because, first, they don't admit to reactions, and second, all they can do is give drugs to fix what they caused.

I suggest you read Neil 's books. He has a few and I have only read the older ones, but that's what woke me up to this whole issue. He has a newer one called Vaccine Safety Manual. Also, check out Moskowitz's articles: (http://doctorrmosk.com/Site/Articles.html). The titles are blurred but articles # 2, 3 and 4 are about vaccines.

Anyway, glad to have you here!

Winnie

IntroductionVaccinations > I'm new to this list. I have a 4 year old daughter and I did > not get her her last round of vaccinations. I found out about > the concerns late. I still may get them because I am concerned > about the illnesses. I don't want her to get something > potentially fatal. I think I need to do more research. I > really thought a group would be helpful because I can get other > people's input and find out some more information in the > discussions. If anyone has ever been in my position and has > some advice that would be helpful. I wonder if she still has a > fair amount of immunity, or maybe all her immunity, because > she's gotten most of the vaccines. That's a question I haven't > been able to answer. > >

[Guest guest]

Hi ,

Welcome to our very friendly, knowledgeable group:-) The first specialist who

gave you Amitriptyline obviously thought it was " all in your head " . My 13 year

old foster son has OCD and social phobia / anxiety disorder from trauma, and he

is on this medication. I'm so glad you have moved on to another Doctor, but

please make sure they are very experienced with Achalasia. Botox injections are

not very successful, but a few people have found them helpful.

How old are you and where are you from?

(44)

Thunder Bay, Ontario

achalasia

From: ravenstorm2008@...

Date: Sat, 19 Mar 2011 09:28:15 -0400

Subject: Introduction

I just wanted to introduce myself. My name is s. I was just

recently diagnosed with Achalasia. I never knew there were support groups

for this. It has been a long road to the diagnosis but I am glad to know

what I have and can now seek out proper treatment. During my journey to the

diagnosis it was thought that my gall bladder was to blame so it was removed

in August 2009. When my symptoms didn't go away I went back the doctor who

prescribed acid reflux meds. None worked. I was finally sent to a specialist

The first one just gave me amitriptlyne(sp) which didn't do anything to

ease the symptoms. The second doctor I saw has been great. He told me how

things were going to progress in the search for a diagnosis. Now I will be

seeing him in a few months to discuss surgery.

I have had the botox injection which has led him to be more certain that

what I have is achalasia.

I look forward to getting to know everyone and learning more about this

condition and seeing others experiences with surgery and how successful it

was.

s

[Guest guest]

Hi ,

I was put on Prozac which also didn't do any good I was mis-diagnosed for 3.5

years at various doctors here in Dallas. They tried to remove my gall bladder

too, but when I met the surgeon and informed him that I had zero pain, he said

it wasn't the gall bladder that was the problem.

In October 2010 we all figured it out and I had my Heller-Dor in December. So

far it has been a smashing success! I have only had a couple of minor blips

since surgery. I gained 15 lbs after surgery (I had lost 65 from the condition)

but I'm back on an eating plan and have lost all of that just about. Good luck!

>

> I just wanted to introduce myself. My name is s. I was just

> recently diagnosed with Achalasia. I never knew there were support groups

> for this. It has been a long road to the diagnosis but I am glad to know

> what I have and can now seek out proper treatment. During my journey to the

> diagnosis it was thought that my gall bladder was to blame so it was removed

> in August 2009. When my symptoms didn't go away I went back the doctor who

> prescribed acid reflux meds. None worked. I was finally sent to a specialist

> The first one just gave me amitriptlyne(sp) which didn't do anything to

> ease the symptoms. The second doctor I saw has been great. He told me how

> things were going to progress in the search for a diagnosis. Now I will be

> seeing him in a few months to discuss surgery.

>

> I have had the botox injection which has led him to be more certain that

> what I have is achalasia.

>

> I look forward to getting to know everyone and learning more about this

> condition and seeing others experiences with surgery and how successful it

> was.

>

> s

>

>

[Guest guest]

Sorry to hear that you were misdiagnose. My daughter was the same but found

another doctor and hooray he told us that  she has Achalasia not CHARLIE

HORSE!.

She had her surgery 3 weeks ago and so far THANK GOD she is doing excellent no

more throwing up after each meal is gone. She has minor chest spasms but her GI

doc gave her a low dose of anthidepressant to relax her esophagus and hooray to

that it is helping her. NO  more spasm.. Pls try to avoid BOTOX becoz it will

cause more damages (scar tissues) and also dilation. I have talk to quite a few

A patients who had the myotomy with Dor fundoplication and where happy about

this procedure. Please find a doctor who is familiar with the disease and

treatment... Thanks and good luck.

________________________________

From: s <ravenstorm2008@...>

Achalasia Group <achalasia >

Sent: Sat, March 19, 2011 9:28:15 AM

Subject: Introduction

 

I just wanted to introduce myself. My name is s. I was just

recently diagnosed with Achalasia. I never knew there were support groups

for this. It has been a long road to the diagnosis but I am glad to know

what I have and can now seek out proper treatment. During my journey to the

diagnosis it was thought that my gall bladder was to blame so it was removed

in August 2009. When my symptoms didn't go away I went back the doctor who

prescribed acid reflux meds. None worked. I was finally sent to a specialist

The first one just gave me amitriptlyne(sp) which didn't do anything to

ease the symptoms. The second doctor I saw has been great. He told me how

things were going to progress in the search for a diagnosis. Now I will be

seeing him in a few months to discuss surgery.

I have had the botox injection which has led him to be more certain that

what I have is achalasia.

I look forward to getting to know everyone and learning more about this

condition and seeing others experiences with surgery and how successful it

was.

s

[Guest guest]

I'm 39 will be 40 in August. I live in Corinth Maine.

The doctor I am seeing seems to be fairly experienced with Achalasia. He

says they see 1 to 2 cases a year. This doctor has been good about keeping

me informed on what is going on. He told me what tests to expect and what

the next steps would be based on test results. The only problem is that he

doesn't perform the surgery and there is no one in Maine who does the

laparoscopic(sp) surgery. I would have to go to Boston or Dartmouth for that

type of surgery.

The botox was used to see if we could be more certain about the diagnosis

before considering surgery. The manometry test wasn't conclusive enough for

a surgeon. The botox has helped. I had it done in October and at least I can

eat. It is starting to wear off now and I will be seeing the doctor either

in May or June to discuss surgery.

One question I have is do you know anyone who has experienced really bad

muscle spasms on their right side that radiate into the jaw and ears. These

spasms go away with drinking water. They used to be infrequent until the

botox injection, now they happen all the time. They usually wake me up at

least once a night. Is this common?

-- Introduction

I just wanted to introduce myself. My name is s. I was just

recently diagnosed with Achalasia. I never knew there were support groups

for this. It has been a long road to the diagnosis but I am glad to know

what I have and can now seek out proper treatment. During my journey to the

diagnosis it was thought that my gall bladder was to blame so it was removed

in August 2009. When my symptoms didn't go away I went back the doctor who

prescribed acid reflux meds. None worked. I was finally sent to a specialist

The first one just gave me amitriptlyne(sp) which didn't do anything to

ease the symptoms. The second doctor I saw has been great. He told me how

things were going to progress in the search for a diagnosis. Now I will be

seeing him in a few months to discuss surgery.

I have had the botox injection which has led him to be more certain that

what I have is achalasia.

I look forward to getting to know everyone and learning more about this

condition and seeing others experiences with surgery and how successful it

was.

s

[Guest guest]

Thanks. I have suffered for almost two years now. My gall bladder was

removed because I was having pain which I still have and believe it is due

to muscle spasms which strangely enough go away with drinking water. Another

strange thing for me is that I didn't lose much weight. I may have lost 10

pounds tops. I think it is because I am overweight to begin with that my

body is trying to store the fat because I am not getting enough nutrition

from eating. Once they did the botox injection I started to lose inches but

not really any pounds. I will just be glad when I can eat normally without

worrying about the pain and other effects of this.

-- Re: Introduction

Hi ,

I was put on Prozac which also didn't do any good I was mis-diagnosed for

3.5 years at various doctors here in Dallas. They tried to remove my gall

bladder too, but when I met the surgeon and informed him that I had zero

pain, he said it wasn't the gall bladder that was the problem.

In October 2010 we all figured it out and I had my Heller-Dor in December.

So far it has been a smashing success! I have only had a couple of minor

blips since surgery. I gained 15 lbs after surgery (I had lost 65 from the

condition) but I'm back on an eating plan and have lost all of that just

about. Good luck!

>

> I just wanted to introduce myself. My name is s. I was just

> recently diagnosed with Achalasia. I never knew there were support groups

> for this. It has been a long road to the diagnosis but I am glad to know

> what I have and can now seek out proper treatment. During my journey to

the

> diagnosis it was thought that my gall bladder was to blame so it was

removed

> in August 2009. When my symptoms didn't go away I went back the doctor who

> prescribed acid reflux meds. None worked. I was finally sent to a

specialist

> The first one just gave me amitriptlyne(sp) which didn't do anything to

> ease the symptoms. The second doctor I saw has been great. He told me how

> things were going to progress in the search for a diagnosis. Now I will be

> seeing him in a few months to discuss surgery.

>

> I have had the botox injection which has led him to be more certain that

> what I have is achalasia.

>

> I look forward to getting to know everyone and learning more about this

> condition and seeing others experiences with surgery and how successful it

> was.

>

> s

>

>

[Guest guest]

Thank you. The reason I had to have Botox was that the tests weren't

conclusive enough for a surgeon to go ahead and do anything. I had the mild

dilation but refused to go with the more serious dilation because I had read

that it would make surgery more difficult. I am looking forward to getting

this resolved. I don't know how people with anorexia force themselves to

throw up. If I never throw up again, I would be happy. I'm afraid that

someone is going to mistake this as anorexia or some eating disorder at the

college I go to. It is the most unpleasant feeling to have to rush to the

restroom several times during a meal. I am glad that your daughter is doing

well. Hopefully things go as well for me.

-- Introduction

I just wanted to introduce myself. My name is s. I was just

recently diagnosed with Achalasia. I never knew there were support groups

for this. It has been a long road to the diagnosis but I am glad to know

what I have and can now seek out proper treatment. During my journey to the

diagnosis it was thought that my gall bladder was to blame so it was removed

in August 2009. When my symptoms didn't go away I went back the doctor who

prescribed acid reflux meds. None worked. I was finally sent to a specialist

The first one just gave me amitriptlyne(sp) which didn't do anything to

ease the symptoms. The second doctor I saw has been great. He told me how

things were going to progress in the search for a diagnosis. Now I will be

seeing him in a few months to discuss surgery.

I have had the botox injection which has led him to be more certain that

what I have is achalasia.

I look forward to getting to know everyone and learning more about this

condition and seeing others experiences with surgery and how successful it

was.

s