advice please

August 27, 2006

CHRISO,

GET HIS BOWEL X-RAYED I GOTTA FEELING HE IS IMPACTED...

LUV CAROLINE

XXX

August 28, 2006

I would like to second what Mandi is suggesting here. Do try some

CS to see if it helps.

We had a problem recently with Oxypowder stirring up loads of

nasties in our ds gut. We had to stop using the Oxypowder cos he

was in such a bad way, he improved a bit by doing this, but the

thing that got him back to his normal happy self was a 5 day course

of CS, its wonderful stuff!!!

Nikki

>

> In a message dated 28/08/2006 08:22:17 GMT Daylight Time,

> tryfonas@... writes:

>

> Remember i mentioned the ice cream and the little fizzy drink

stephanos had

> taken and now we have a wild screaming aggressive out of

control 8 year

> old well after 4 days of flucanozol 100 mg per day it isnt

getting better, I

> feel like pulling my hair out . Die off that i have read about

how long does

> that last for 2to 5 days?

>

> >>>>I guess it could be bacterial, agressive comes with bacteria

for Sam. I

> htink many of the DAN! docs do Flagyl with the antifungals so

bacteria

> doesn;t rear up while the bacteria is down.

>

> This sort of situation is when I go in with the short sharp course

of

> Collodial Silver which seems to bring it all back in line. Did you

hear back from

> Dr B?

>

> Mandi x

>

August 9, 2007

Go above her. Talk to the principal, and have your state's exemptions ready and

at hand. In fact, I would print them out and hand them to him and tell him you

are concerned that this school nurse may faze a mom of lesser stubborness. It

pisses me off to no end to be pushed into something and then regret it later

because I didn't want to " make waves. "

Make the waves, baby. All states have some sort of an exemption. When you talk

to the principal and/or district administrator I would be very clear how upset

you are that the school nurse, who should be informed, is pushing you to do

something against your wishes.

Stand strong.

Advice Please

Well I thought taht everything was okay for my son to start public

Pre-

K this Sept. I sent in our religious exemption at sign up time. Then

sent in the forms from his last physical. My son only has 2

vaccinations from his 3 month checkup. Then we decided to not vax

anymore. The Dr is aware of it and is okay with it, he does not argue

with me.

Well my point is today I recieved a letter from the school nurse(who

was very upset with us at sign up) saying that we need to send in his

immunization record or it will keep him from entering school. I don't

know what to do. I want to call her and scream at her but that will not

help. Is she doing this make me crazy and waht should I DO WITHOUT

LOSING MY COOL. We are in NJ if that helps. Thanks Beth

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August 9, 2007

Beth,

I understand how you could see this as a personal attack from this school

nurse, but you might want to cut her some slack. Probably, she has on her TO

DO List: " Mail reminder to all parents of children who are not fully

vaccinated, so we don't have to throw them out after school starts. " Then she

asks

her computer to give her a list, and your name is on the list of maybe 50

names...even though she has your exemption on file, and she knows you won't be

getting any shots, the computer spits it out. She doesn't check the list, she

just mails off the form letters. If this is the case, and you call and

remind her, she'll probably say " Oh, yes. I remember. You're fine. " Of

course,

she may use the opportunity to try to convince you again.

But, what I am saying is, don't yell at her too much. You don't want to

make an enemy if you don't have to. Be firm, but friendly. Maybe she's just

trying to do her job! Here's hoping that's the case! Best wishes for you and

your son as he begins school this year!

Carolyn P

Mother of 4 boys, ages 10-1/2 yrs, 8-1/2 yrs, 6-1/2 yrs, and 2-1/2 yrs old

1 drug free vaginal birth, vaxxed up to 6 mos.

3 water births, not vaxxed

First two breastfed 18 months each, last two breastfed 2-1/2 years each

(yes, I'm newly free, and once again, just about as flat as a pancake....Our

family is complete now, but it sure was nice to have breasts for 10-1/2 years of

my life!)

************************************** Get a sneak peek of the all-new AOL at

http://discover.aol.com/memed/aolcom30tour

August 9, 2007

ly, I would not cut her slack.

The reason I would see this as a personal attack is

because the nurse can and will toss your children out

of school, but she can also contact CPS and make your

life miserable. I have been there and done that. I

have four children. The youngest is in high school;

whenever I enrolled them, I took a copy of the law

with me in case I had a secretary who thought it was

her business to tell me what to do with my children.

I never had a problem.

My mom had nine of us in public school in Burbank.

The nurse sent home a note reminding my mom that we

needed to be vaccinated. DUH! Nine of us in public

school and she just noticed we were not vaccinated?

She looks at those vaccination papers all day and it

says clearly on the California vax paper that you can

sign a philosophical or religious exemption. Why

didn't she check the paper?

--- Family6Pac@... wrote:

> Beth,

> I understand how you could see this as a personal

> attack from this school

> nurse, but you might want to cut her some slack.

> Probably, she has on her TO

> DO List: " Mail reminder to all parents of children

> who are not fully

> vaccinated, so we don't have to throw them out after

> school starts. " Then she asks

> her computer to give her a list, and your name is on

> the list of maybe 50

> names...even though she has your exemption on file,

> and she knows you won't be

> getting any shots, the computer spits it out. She

> doesn't check the list, she

> just mails off the form letters. If this is the

> case, and you call and

> remind her, she'll probably say " Oh, yes. I

> remember. You're fine. " Of course,

> she may use the opportunity to try to convince you

> again.

> But, what I am saying is, don't yell at her too

> much. You don't want to

> make an enemy if you don't have to. Be firm, but

> friendly. Maybe she's just

> trying to do her job! Here's hoping that's the

> case! Best wishes for you and

> your son as he begins school this year!

>

> Carolyn P

> Mother of 4 boys, ages 10-1/2 yrs, 8-1/2 yrs, 6-1/2

> yrs, and 2-1/2 yrs old

>

> 1 drug free vaginal birth, vaxxed up to 6 mos.

> 3 water births, not vaxxed

> First two breastfed 18 months each, last two

> breastfed 2-1/2 years each

> (yes, I'm newly free, and once again, just about as

> flat as a pancake....Our

> family is complete now, but it sure was nice to have

> breasts for 10-1/2 years of

> my life!)

>

> ************************************** Get a sneak

> peek of the all-new AOL at

> http://discover.aol.com/memed/aolcom30tour

>

> [Non-text portions of this message have been

> removed]

>

Maureen R. Gradvohl

________________________________________________________________________________\

____

Moody friends. Drama queens. Your life? Nope! - their life, your story. Play

Sims Stories at Games.

http://sims./

August 10, 2007

I’d just call her back and say “I sent in the exemption form already.

Find it and put that in his file” and then just for good measure, copy

in the law and say “here!? See that. I did that” if they’ve lost it,

tell them to find it

Nita, yes my hands are full, but not my heart: 14, Jon 12,

10, 8, 6, Christian (RIP: 7/16/03 to 8/22/04), 1,

and due 2/08

Some minds are like concrete:

Thoroughly mixed up and permanently set.

_,_._,___

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8/9/2007 2:44 PM

August 10, 2007

And yk what else, why does he need PRE K anyway?! Age 6 is plenty old

enough for them to leave mom.. before that. Nope. I wouldn’t do it.

You don’t need their services.

Nita, yes my hands are full, but not my heart: 14, Jon 12,

10, 8, 6, Christian (RIP: 7/16/03 to 8/22/04), 1,

and due 2/08

Some minds are like concrete:

Thoroughly mixed up and permanently set.

No virus found in this incoming message.

Checked by AVG Free Edition.

Version: 7.5.476 / Virus Database: 269.11.11/944 - Release Date:

8/9/2007 2:44 PM

No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.5.476 / Virus Database: 269.11.11/944 - Release Date:

8/9/2007 2:44 PM

December 11, 2007

Bruce, you didn't give us any particulars as to what kind of tea, how much tea,

what kind of sugar, how much sugar

how large is your brew, etc. This info will help trace your problem.

zoe

> Hi,

> I have brewed two batches so far, number three is brewing now.

> The tea produced tastes good, but it does not have any bubbles. The

> commercial Kombucha I tried needed to be opened very carefully, but my

> brews are pretty much flat.

> Should I try brewing for longer? The first brew I left for 12 days,

> the second for 10 days. There were bubbles under the scoby.

> Or should I bottle the brew and leave the bottles out of the

> refrigerator for a day or so. I use bottles with the Grolsch type cap.

> Any advice would appreciated.

> Thanks

> Bruce

December 11, 2007

Bruce, you didn't give us any particulars as to what kind of tea, how much tea,

what kind of sugar, how much sugar

how large is your brew, etc. This info will help trace your problem.

zoe

> Hi,

> I have brewed two batches so far, number three is brewing now.

> The tea produced tastes good, but it does not have any bubbles. The

> commercial Kombucha I tried needed to be opened very carefully, but my

> brews are pretty much flat.

> Should I try brewing for longer? The first brew I left for 12 days,

> the second for 10 days. There were bubbles under the scoby.

> Or should I bottle the brew and leave the bottles out of the

> refrigerator for a day or so. I use bottles with the Grolsch type cap.

> Any advice would appreciated.

> Thanks

> Bruce

December 11, 2007

Might not be enough sugar. I tend to use a little over 1 cup sugar for 10 cups

of tea. Let us know what type of tea you're using and how much sugar.

-

-------------- Original message ----------------------

From: zoe w <ilovegrafix@...>

> Bruce, you didn't give us any particulars as to what kind of tea, how much

tea,

> what kind of sugar, how much sugar

> how large is your brew, etc. This info will help trace your problem.

> zoe

>

> > Hi,

>

> > I have brewed two batches so far, number three is brewing now.

>

> > The tea produced tastes good, but it does not have any bubbles. The

> > commercial Kombucha I tried needed to be opened very carefully, but my

> > brews are pretty much flat.

>

> > Should I try brewing for longer? The first brew I left for 12 days,

> > the second for 10 days. There were bubbles under the scoby.

>

> > Or should I bottle the brew and leave the bottles out of the

> > refrigerator for a day or so. I use bottles with the Grolsch type cap.

>

> > Any advice would appreciated.

>

> > Thanks

> > Bruce

>

December 11, 2007

Might not be enough sugar. I tend to use a little over 1 cup sugar for 10 cups

of tea. Let us know what type of tea you're using and how much sugar.

-

-------------- Original message ----------------------

From: zoe w <ilovegrafix@...>

> Bruce, you didn't give us any particulars as to what kind of tea, how much

tea,

> what kind of sugar, how much sugar

> how large is your brew, etc. This info will help trace your problem.

> zoe

>

> > Hi,

>

> > I have brewed two batches so far, number three is brewing now.

>

> > The tea produced tastes good, but it does not have any bubbles. The

> > commercial Kombucha I tried needed to be opened very carefully, but my

> > brews are pretty much flat.

>

> > Should I try brewing for longer? The first brew I left for 12 days,

> > the second for 10 days. There were bubbles under the scoby.

>

> > Or should I bottle the brew and leave the bottles out of the

> > refrigerator for a day or so. I use bottles with the Grolsch type cap.

>

> > Any advice would appreciated.

>

> > Thanks

> > Bruce

>

December 11, 2007

Whoops, sorry about the lack of details.

I used the following:

2 litre glass jug for brewing (0.53 US gallons)

160 grams sugar (5.62 ounces)

3 organic tea bags (standard black tea) brewed for 10 minutes.

I cover the jug with a close weave tea towel, place the jug in a box

(with open top) and put it on top of a wardrobe in a warm room.

Thanks again

Bruce

>

> Bruce, you didn't give us any particulars as to what kind of tea,

how much tea, what kind of sugar, how much sugar

> how large is your brew, etc. This info will help trace your problem.

> zoe

>

> > Hi,

>

> > I have brewed two batches so far, number three is brewing now.

>

> > The tea produced tastes good, but it does not have any bubbles. The

> > commercial Kombucha I tried needed to be opened very carefully, but my

> > brews are pretty much flat.

>

> > Should I try brewing for longer? The first brew I left for 12 days,

> > the second for 10 days. There were bubbles under the scoby.

>

> > Or should I bottle the brew and leave the bottles out of the

> > refrigerator for a day or so. I use bottles with the Grolsch type cap.

>

> > Any advice would appreciated.

>

> > Thanks

> > Bruce

>

December 11, 2007

Whoops, sorry about the lack of details.

I used the following:

2 litre glass jug for brewing (0.53 US gallons)

160 grams sugar (5.62 ounces)

3 organic tea bags (standard black tea) brewed for 10 minutes.

I cover the jug with a close weave tea towel, place the jug in a box

(with open top) and put it on top of a wardrobe in a warm room.

Thanks again

Bruce

>

> Bruce, you didn't give us any particulars as to what kind of tea,

how much tea, what kind of sugar, how much sugar

> how large is your brew, etc. This info will help trace your problem.

> zoe

>

> > Hi,

>

> > I have brewed two batches so far, number three is brewing now.

>

> > The tea produced tastes good, but it does not have any bubbles. The

> > commercial Kombucha I tried needed to be opened very carefully, but my

> > brews are pretty much flat.

>

> > Should I try brewing for longer? The first brew I left for 12 days,

> > the second for 10 days. There were bubbles under the scoby.

>

> > Or should I bottle the brew and leave the bottles out of the

> > refrigerator for a day or so. I use bottles with the Grolsch type cap.

>

> > Any advice would appreciated.

>

> > Thanks

> > Bruce

>

February 2, 2008

-Stick to your ASIAN traditional diet. Lots of fish, veggies, etc.

Fish oil and Vitamin E are good blood thinners. Asians who stick to

their traditional diets are way more healthier than folks with a

Western Diet.

220 TC is not high at all and statins have a multitude of harmful side

effects (congestive heart failure, memory loss, muscle loss, etc)

phine.

>

> What to do about this cholestrol? 220 - I am kind of concerned!

> (225 lbs- 5'9 " - 55 years- Asian Male -only other medication is

" walrafrin " for blood clots)

>

February 2, 2008

>bommer,read my other post I just posted,on what I take ,mervyn

> Two years ago- when I tried the Statins (Crestor and the Lipitor),

I ended up with 'dead' legs and 'painful' ankles. I realized this

quickly since I run regularly to keep fit and not get fatter. After

consulting with my physician, I discontinued the Statin therapy and

started Niaspan (slow relase Niacin). There was minimal reduction,

albeit a reduction, in the cholestrol. Niapsin gave me lots of energy.

>

> Two weeks ago- a friend of mine convinced me to give another try of

the STATINS. I started with Lipitor. And.. BINGO.,. ankle pain

started. I started to feel funny in the head. I could not

concentrate. I had to stop everything in the middle of the day and

slept.

>

> Two days ago- I stopped taking Lipitor. I feel back to normal (in

the head department). My ankles still hurt - but hurt less.

>

> What to do about this cholestrol? 220 - I am kind of concerned!

> (225 lbs- 5'9 " - 55 years- Asian Male -only other medication

is " walrafrin " for blood clots)

>

February 2, 2008

bommer ,sorry didnt read your message correct ,serrapeptase ,an

nattokinase will take care of the blood clots

>

> -Stick to your ASIAN traditional diet. Lots of fish, veggies, etc.

> Fish oil and Vitamin E are good blood thinners. Asians who stick to

> their traditional diets are way more healthier than folks with a

> Western Diet.

> 220 TC is not high at all and statins have a multitude of harmful

side

> effects (congestive heart failure, memory loss, muscle loss, etc)

> phine.

>

> >

> > What to do about this cholestrol? 220 - I am kind of concerned!

> > (225 lbs- 5'9 " - 55 years- Asian Male -only other medication is

> " walrafrin " for blood clots)

> >

>

February 12, 2008

Shirley. There are many ways to go. I am no lawyer. I will just tell

you what our family did. There are so many different options. This is

only one....

Beth is 26. She is her own guardian but she has a Power Of Attorney for

Health Care and I am her named advocate for health care for her. She

also has named me Rep payee for SSI. We have a joint checking account

and a joint credit card, as Beth can't read or write. There are many

solutions but this is working for us right now.

We set up a special needs trust for her. I am the trustee and my

husband is the " funder " of the trust. (I am sure there is a better legal

word for that, but I don't remember it). My oldest daughter wanted to

be named successor trustee. Her god father wanted to be named successor

trustee. My brother wanted to be named successor trustee. As you can

see, Beth is well loved. So we decided to name a special needs pooled

trust as successor trustee. That way the pool knows all the laws and

knows how to handle payouts. The pooled trust can serve as trustee and

her sister, god father and uncle can be her family, friends, and

advocates. Your attorney can advise you about all the many options.....

Good luck.

Plus we never had problem getting invited to the IEP after age 18. The

notices came to our house. We read them to Beth. She said, your coming

with, right?

Terrill

From: IPADDUnite [mailto:IPADDUnite ] On

Behalf Of momofchris2007

Sent: Tuesday, February 12, 2008 9:27 AM

IPADDUnite

Subject: Advice Please

Good Morning everyone. We have an appointment with Rubin next

week and I thought I would ask your adivce. Many of you have done this

already and may have a few ideas for us. I want to get a SN Trust, a

will and whatever else I may need. My son is 26 with DS (and his own

guardian) and I have a son who is 22 who is still at home working full

time. Their father passed away and I have been married to their step

father for almost 15 years. He has no other children. How would you

set up a will and SN trust without any hurt feelings? If something

happens to me I want to make sure my boys are taken care of. Don't get

me wrong my husband loves them but what if he ever got married again?

I know will answer any questions we have but I just wanted a few

things to think about before we go. Any ideas or advice would be

great. Thanks, Shirley

February 12, 2008

I was in a similar situtation and has set up myself as my daughter's trustee.

In the event of my passing, I put my husband (not her father) and my brother as

co-trustees. I know he was hurt but I explained to him that should something

happen to me, my brother would always be part of her life where as much as he

loves her, I could not take a chance on my husband remarrying and his

spouse...well what happens if he then passes. I have also set up basically two

life insurance policies. One for my spouse and one for my kids. This way each

one can be separted for two specific needs. Hope this helps you.

jean

-------------- Original message --------------

From: " momofchris2007 " <slpanda2@...>