Guest guest Report post Posted February 10, 2009 Hi Jan, Please understand that with any of the other ZAP list subscribers, if it's a normal list post and I reply to it, my reply automatically goes to the listserv to be posted to the ZAP list. it's just automatic. Now sometimes a person I know on the list may wish to send me a private email to discuss something they prefer to correspond about privately, but when someone does that, the headers of the message look different, plus because they know I'm blind they often type off List in the beginning of the subject line, so I know that replying will go directly to only them. in other words, something like what happened twice with you never happens otherwise on the ZAp lists, and I don't know why. In future, each message I receive that seems to be from you, I'll examine the full headers with a special command to learn whether your message was actually sent to the ZAP list or sent directly to me for any reason. And no matter what I learn in this way, I'll reply by using forward (not Reply) command and posting ZAP List in the line of the header. In other words, there's something unusual happening here, in our case, but I know how to be careful of it and not just use Reply as I do for other posts on the ZAP list. thank you very much, For Hi , I didn't know I was replying to you privately. I didn't intend to. I think it's ok to address the posts/replies to individuals and still post them to the group. The reason you didn't get through to my mailbox is I have my profile set at receiveing mails to a address which in fact I don't use in practice. I'm a member to different and so I prefere to read and post directly on the Internet. Sorry I didn't mension it earlier. Tank you for your answer to my post! Janne (smile) ------------------------------------ Be sure to visit and use other ZapLife.org services: The ZapperBBS at http://zaplife.org/phpBB2/viewforum.php?f=1 1 - Email list forum at / 2 - Email delivery of the Zapper Newsletter at 2/ 3 - Email list forum for those involved in ICD litigation at 3/ ZapChat - Real time online support group (Thursdays 8PM EST) at http://www.zaplife.org/chat.html ZapFAQs - A glossary of ICD/arrhythmia terms and abbreviations at http://www.zaplife.org/zap4.htm The ZAPPER Home page at http://www.zaplife.org/ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 11, 2009 Hi, this is a test of using the reply button. I did use that button also when my reply to your group post went to you privately. How comes? Anyway, I have changed my profile mail address to the mail box I'm using, to be able to receive special notes as listed. At least all this made me notice (smile) By the way, I'm a femail. You are right, Jan is a male's name in Norway. But my name is spelled J A N N E, which I think is pronounced Jan in the US. Should't be easy (smile). In fact, Janne is a shortening for my birth name Johanne, like Johanna by you. Janne > > Hi Jan, > > Please understand that with any of the other ZAP list subscribers, if it's a > normal list post and I reply to it, my reply automatically goes to the > listserv to be posted to the ZAP list. it's just automatic. > > Now sometimes a person I know on the list may wish to send me a private > email to discuss something they prefer to correspond about privately, but > when someone does that, the headers of the message look different, plus > because they know I'm blind they often type off List in the beginning of the > subject line, so I know that replying will go directly to only them. > > in other words, something like what happened twice with you never happens > otherwise on the ZAp lists, and I don't know why. In future, each message I > receive that seems to be from you, I'll examine the full headers with a > special command to learn whether your message was actually sent to the ZAP > list or sent directly to me for any reason. And no matter what I learn in > this way, I'll reply by using forward (not Reply) command and posting ZAP > List in the line of the header. > > In other words, there's something unusual happening here, in our case, but > I know how to be careful of it and not just use Reply as I do for other > posts on the ZAP list. > > thank you very much, > > For > > > Hi , I didn't know I was replying to you privately. I didn't > intend to. I think it's ok to address the posts/replies to individuals > and still post them to the group. The reason you didn't get through to > my mailbox is I have my profile set at receiveing mails to a > address which in fact I don't use in practice. I'm a member to > different and so I prefere to read and post directly on > the Internet. Sorry I didn't mension it earlier. > > Tank you for your answer to my post! > > Janne (smile) > > > > > > ------------------------------------ > > Be sure to visit and use other ZapLife.org services: > > The ZapperBBS at > http://zaplife.org/phpBB2/viewforum.php?f=1 > 1 - Email list forum at > / > 2 - Email delivery of the Zapper Newsletter at > 2/ > 3 - Email list forum for those involved in ICD litigation at > 3/ > ZapChat - Real time online support group (Thursdays 8PM EST) at > http://www.zaplife.org/chat.html > ZapFAQs - A glossary of ICD/arrhythmia terms and abbreviations at > http://www.zaplife.org/zap4.htm > The ZAPPER Home page at > http://www.zaplife.org/ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 11, 2009 hello Jan, thanks very much. I understand. Yes, it's certain that you did accidentally reply to my own personal address rather than to the list, and that was the beginning of the trouble. It's all fine, now, of course. thanks for investigation the problem. Thank you also for explaining your name. I'm sure it sounds very nice in Swedish. I realize I haven't heard the sound of the Swedish language since the last of many movies I saw by Ingmar Bergman. Probably Fanny and . I saw so many of his films before then, all the way back to the classics The Seventh Seal and Wild Strawberries. I'm nearly blind now because of a hereditary retinal degeneration, but I'm grateful that Bergman's films have been part of my LIFE. My surgery scars don't hurt as much as before, and the stitches are beginning to dry up and break off. And I haven't yet, after nearly two weeks, been hit by any lightning storms. I'll be seeing that doctor near the end of this month, and I know there will be an interrogation (not involving torture, I'm pretty sure), so I'll get to learn how my heart has been behaving and how the ICD has responded, if at all. We shall see. We shall see. very Swediwh For > > > Hi , I didn't know I was replying to you privately. I didn't > intend to. I think it's ok to address the posts/replies to individuals > and still post them to the group. The reason you didn't get through to > my mailbox is I have my profile set at receiveing mails to a > address which in fact I don't use in practice. I'm a member to > different and so I prefere to read and post directly on > the Internet. Sorry I didn't mension it earlier. > > Tank you for your answer to my post! > > Janne (smile) > > > > > > ------------------------------------ > > Be sure to visit and use other ZapLife.org services: > > The ZapperBBS at > http://zaplife.org/phpBB2/viewforum.php?f=1 > 1 - Email list forum at > / > 2 - Email delivery of the Zapper Newsletter at > 2/ > 3 - Email list forum for those involved in ICD litigation at > 3/ > ZapChat - Real time online support group (Thursdays 8PM EST) at > http://www.zaplife.org/chat.html > ZapFAQs - A glossary of ICD/arrhythmia terms and abbreviations at > http://www.zaplife.org/zap4.htm > The ZAPPER Home page at > http://www.zaplife.org/ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 26, 2010 , good luck with your surgery tomorrow, please let us know how it went. The pain is very manageable, not bad. They give you lots of meds so you will be doing fine. Just remember that the first few days are " soreness " and then it will get better and better. I was in the hospital bed most of the first day. The next morning I was starting to move around more. Today, I am walking up and down my stairs and just feel like I had a heavy chest workout type of pain. Listen to your doctor, and don't eat anything unless they let you. I have now been on clear liquids for almost a week. But I want to make sure that I heal right. It feels wonderful to swallow like normal. Best regards, Julee So Calif. ________________________________ From: e <xabishaix@...> achalasia Sent: Thu, August 26, 2010 8:36:39 AM Subject: Re: Had Surgery!!!! Am home!  So happ y to hear that you are doing well post-op!  I go in for my surgery tomorrow morning.  Any advice/  How has your ability to function been post-operatively? Can you move around or is the pain pretty tough? From: anna <medhelpinfo@...> Subject: Had Surgery!!!! Am home! achalasia Date: Wednesday, August 25, 2010, 5:49 PM  I so happy to report that I am home and resting up after surgery at UCLA. It was a jammed pack grueling 24hrs, with a 5 star treatment at UCLA, very nice hospital and staff. My surgery was scheduled at 4:45 am, surgery began at 7:30am. I met with my entire team before surgery, felt very good in their care. Dr. Maish is SUPER, she has such compassion about achalasia. She said the surgery went great, my spincter was " thick " and I really needed this done. She's extremely professional. I had a lovely private room on the 7th floor, great staff looked after me. (I call it my Zsa Zsa treatment). Okay, pain wise, it was very do-able. The pain meds keep you comfortable, the first night is probably the toughest, already I am feeling better. I am on only liquids for the next couple of days, but THEY GO DOWN!!!!! It's a surreal moment for me. So far so good. By Friday or Saturday, I get to add a few more things to my diet, and then I switch to the soft food for another 2 weeks. A process! Thanks for all your good wishes, I am so thankful and happy! Julee So Calif. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 4, 2011 Thank you. I have a few questions. why does the coke work like that? what is the LES opening? I will try mag. My vitamin D has been low for the last 3 years. I thought it was due to my Crohns It could be but I have been reading how vitamin D and Mag both help with inflamation. (I think that's right...I have so much info swimming in my head...I have it written down and circled. I have found a spray for vitamin D now am looking for a liquid mag so I can get them down easier) thanks for helping me > > > > first, I want to thank everyone who has been answering my questions and > > helping me. I've gotten more help in the last month, from being on this > > group, then I have the last three years of dealing with this. > > I have a few other questions. First, what can I eat when I'm so hungry > > and NOTHING will go down!! There are some days nothing will go down. > > I've been trying different suggestions but so far I haven't found the > > right thing. I've been trying to make smoothies with protein and > > vitamins but they just don't seem to want to go down. > > I went and had a endoscopy done and the dr stretched my throat while > > there. I had a whole week of eating before the pain and choking started > > back. Has anyone tried the natural course with this? Is there anything > > naturally that will work? I'm wondering what to do because to me it > > seems I might be trading in one set of problems for another. since I > > know what I'm dealing with now, would it be easier to try and deal with > > these problems? I would really like to know what you think. > > thank you, > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 7, 2011 Ray wrote: > ... When the food wont go down it means something is blocking the LES > opening. ... > Sometimes the LES is the block, not the food there. Unless you can relax it there isn't always much you can do to get past it. For some people some food or drugs will relax it, but not for all. For some people putting more weight on top by doing something like drinking will force things through, but not for everyone. For some people carbonation will help, but not for everyone. Some people have higher LES pressure. Some people have more ability left for the LES to relax. Some have dilated esophagi and some don't. Some have an intact burp reflex and some don't. It all makes a difference. For some people a spasm higher than the LES can be the blockage. People with DES who don't even have a problem at the LES may not be able at times to get food down because of the spasms. notan Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 29, 2011 Hey , I had the same problem some years ago, had both hands done - first one then the other, then I had less movement than before the surgery, then one day as I was typing (4 months later) I was suddenly aware all my feeling had come back right to the tips of my fingers, it was so gradual, I never even knew it was healing up. Did your surgery work for you?From: Aandraya Da Silva <aandraya@...>bird mites Sent: Thursday, September 29, 2011 2:29 PMSubject: Re: For Aandraya LInda- sorry I never responded to this. I don't take The Core. I take all the ingredients to that protocol individually. I started at 250 mg Zinc for 8 months and 100 mg the last 4 mos. It is common for it to make you nauseous especially if you are deficient. Apparently zinc picolinate is the form to cause the least amount of nausea. I take Manganese, Zinc 100mg, B6 25mg, P5P 50 mg, Taurine 500mg 3x a day, Omega 6. Then I take the optional ones- LIthium orotate, Boron, and Molybdenum. Klinghardt also recommends for all Lyme treatments- Magnesium, fish oil for Omega 3's, and Niacin. I buy the powder supplements from PureBulk.com and the Lith. oro. powder at Beyond a Century.AandrayaOn Sep 18, 2011, at 12:47 AM, Goldstein@... wrote: Aandraya,Are you taking The Core Mineral Supplement for the HPU? Did you actually see a doctor to get diagnosed for it and did you get the testing done for it? I'm interested in all of that. I increased my Zinc levels the last few days and notice an increase in energy, but I know there is more to it than just adding in zinc. The first dayI increased the zinc I was nauseous until about 12:30 a.m. I have some of the symptoms... I've always needed more B6 than most people I know and I have carpal tunnel syndrome. Had surgery for that in right hand and should get the left done at some point, maybe some time soon. B6 really helps carpal tunnel syndrome. How much zinc are you taking if you are not on The Core Mineral Supplement. That supplement is kind of expensive too, so do you know where to get it more cheaply? Lots of questions... thanks Aa. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 29, 2011 Hi Doris, I think the surgery on the right for carpal tunnel was successful too. I have less pain and numbness on the right and am still considering getting the left hand done, but right now I'm so involved in starting meds and doing new protocols I don't think the time is right. Yes, I agree with you... it was a gradual improvement. Last winter I started knitting and I type a lot; my left hand goes numb still and that has to get fixed before I can seriously learn to knit which I want to do! But my hands are not what they were pre-carpal tunnel. They are almost always tight. Just not in pain with it. I filed a workers' compensation claim and really had to get ergonomic to go back to work which I did for years; but in the end I could not work well with Lyme disease and too many other issues causing disability.I know Marie had severe carpal tunnel going on. I wonder what she did about it? Hope she is okay. So glad to hear that YOU got much better and you are still working! Yeah! You've been through a lot!From: "Doris Kennedy" <kean2465@...>bird mites Sent: Thursday, September 29, 2011 7:14:34 PMSubject: Re: For Hey , I had the same problem some years ago, had both hands done - first one then the other, then I had less movement than before the surgery, then one day as I was typing (4 months later) I was suddenly aware all my feeling had come back right to the tips of my fingers, it was so gradual, I never even knew it was healing up. Did your surgery work for you?From: Aandraya Da Silva <aandraya@...>bird mites Sent: Thursday, September 29, 2011 2:29 PMSubject: Re: For Aandraya LInda- sorry I never responded to this. I don't take The Core. I take all the ingredients to that protocol individually. I started at 250 mg Zinc for 8 months and 100 mg the last 4 mos. It is common for it to make you nauseous especially if you are deficient. Apparently zinc picolinate is the form to cause the least amount of nausea. I take Manganese, Zinc 100mg, B6 25mg, P5P 50 mg, Taurine 500mg 3x a day, Omega 6. Then I take the optional ones- LIthium orotate, Boron, and Molybdenum. Klinghardt also recommends for all Lyme treatments- Magnesium, fish oil for Omega 3's, and Niacin. I buy the powder supplements from PureBulk.com and the Lith. oro. powder at Beyond a Century.AandrayaOn Sep 18, 2011, at 12:47 AM, Goldstein@... wrote: Aandraya,Are you taking The Core Mineral Supplement for the HPU? Did you actually see a doctor to get diagnosed for it and did you get the testing done for it? I'm interested in all of that. I increased my Zinc levels the last few days and notice an increase in energy, but I know there is more to it than just adding in zinc. The first dayI increased the zinc I was nauseous until about 12:30 a.m. I have some of the symptoms... I've always needed more B6 than most people I know and I have carpal tunnel syndrome. Had surgery for that in right hand and should get the left done at some point, maybe some time soon. B6 really helps carpal tunnel syndrome. How much zinc are you taking if you are not on The Core Mineral Supplement. That supplement is kind of expensive too, so do you know where to get it more cheaply? Lots of questions... thanks Aa. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 1, 2011 Hi testing 1,2,3,4 .. I haven't seen ?y posts since ' Thu Sep 29th, 2011 10:26 PM EDT ... Anybody there ? God bless you all , Thanks for saving my life with all you tips & care , Bill ps before there was a word called carpel tunnel my gym teacher said for example if you get a cramp from painting with your right hand , switch & use your left hand & if the left cramps change the grasp technique while painting the house with a brush. It works for me On Thu Sep 29th, 2011 10:26 PM EDT Goldstein@... wrote: >Hi Doris, I think the surgery on the right for carpal tunnel was successful too. I have less pain and numbness on the right and am still considering getting the left hand done, but right now I'm so involved in starting meds and doing new protocols I don't think the time is right. Yes, I agree with you... it was a gradual improvement. Last winter I started knitting and I type a lot; my left hand goes numb still and that has to get fixed before I can seriously learn to knit which I want to do! But my hands are not what they were pre-carpal tunnel. They are almost always tight. Just not in pain with it. I filed a workers' compensation claim and really had to get ergonomic to go back to work which I did for years; but in the end I could not work well with Lyme disease and too many other issues causing disability. > > >I know Marie had severe carpal tunnel going on. I wonder what she did about it? Hope she is okay. So glad to hear that YOU got much better and you are still working! Yeah! You've been through a lot! > > > > > Re: For Aandraya > > > > >LInda- sorry I never responded to this. I don't take The Core. I take all the ingredients to that protocol individually. I started at 250 mg Zinc for 8 months and 100 mg the last 4 mos. It is common for it to make you nauseous especially if you are deficient. Apparently zinc picolinate is the form to cause the least amount of nausea. I take Manganese, Zinc 100mg, B6 25mg, P5P 50 mg, Taurine 500mg 3x a day, Omega 6. Then I take the optional ones- LIthium orotate, Boron, and Molybdenum. Klinghardt also recommends for all Lyme treatments- Magnesium, fish oil for Omega 3's, and Niacin. I buy the powder supplements from PureBulk.com and the Lith. oro. powder at Beyond a Century. > > >Aandraya > > > >On Sep 18, 2011, at 12:47 AM, Goldstein@... wrote: > > > > > > >Aandraya, > > >Are you taking The Core Mineral Supplement for the HPU? Did you actually see a doctor to get diagnosed for it and did you get the testing done for it? I'm interested in all of that. I increased my Zinc levels the last few days and notice an increase in energy, but I know there is more to it than just adding in zinc. The first dayI increased the zinc I was nauseous until about 12:30 a.m. I have some of the symptoms... I've always needed more B6 than most people I know and I have carpal tunnel syndrome. Had surgery for that in right hand and should get the left done at some point, maybe some time soon. B6 really helps carpal tunnel syndrome. > > >How much zinc are you taking if you are not on The Core Mineral Supplement. That supplement is kind of expensive too, so do you know where to get it more cheaply? > > >Lots of questions... thanks Aa. > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 1, 2011 Hi Bill,I'm here... going through so much Herx reaction and it has made me pretty sicko. It has only been a week so far on these new drugs. I've been reading a lot this week about Lyme Disease and coinfections since that is what I am dealing with now. Did you ever get anything internally, infection-wise from the mites? Not everyone does or if they catch it early on, like Zoe, they can get rid of it and more or less back to normal (if there is anything really normal). I found references this week in one book on Lyme Disease I'm reading that LD was and is found in mites. I started to wonder when bird mites infect chickens are we getting exposed to LD through our chicken, turkeys, etc.? Birds are one of the most common carriers of LD, wild birds, but what about our farmed animals like chickens, turkeys, etc.? Any idea about any of this?Hugs to all, From: " Doe" <doe1769@...>bird mites Sent: Saturday, October 1, 2011 1:50:41 AMSubject: Re: For Hi testing 1,2,3,4 .. I haven't seen ?y posts since ' Thu Sep 29th, 2011 10:26 PM EDT ... Anybody there ? God bless you all , Thanks for saving my life with all you tips & care , Bill ps before there was a word called carpel tunnel my gym teacher said for example if you get a cramp from painting with your right hand , switch & use your left hand & if the left cramps change the grasp technique while painting the house with a brush. It works for me On Thu Sep 29th, 2011 10:26 PM EDT Goldstein@... wrote: >Hi Doris, I think the surgery on the right for carpal tunnel was successful too. I have less pain and numbness on the right and am still considering getting the left hand done, but right now I'm so involved in starting meds and doing new protocols I don't think the time is right. Yes, I agree with you... it was a gradual improvement. Last winter I started knitting and I type a lot; my left hand goes numb still and that has to get fixed before I can seriously learn to knit which I want to do! But my hands are not what they were pre-carpal tunnel. They are almost always tight. Just not in pain with it. I filed a workers' compensation claim and really had to get ergonomic to go back to work which I did for years; but in the end I could not work well with Lyme disease and too many other issues causing disability. > > >I know Marie had severe carpal tunnel going on. I wonder what she did about it? Hope she is okay. So glad to hear that YOU got much better and you are still working! Yeah! You've been through a lot! > > > > > Re: For Aandraya > > > > >LInda- sorry I never responded to this. I don't take The Core. I take all the ingredients to that protocol individually. I started at 250 mg Zinc for 8 months and 100 mg the last 4 mos. It is common for it to make you nauseous especially if you are deficient. Apparently zinc picolinate is the form to cause the least amount of nausea. I take Manganese, Zinc 100mg, B6 25mg, P5P 50 mg, Taurine 500mg 3x a day, Omega 6. Then I take the optional ones- LIthium orotate, Boron, and Molybdenum. Klinghardt also recommends for all Lyme treatments- Magnesium, fish oil for Omega 3's, and Niacin. I buy the powder supplements from PureBulk.com and the Lith. oro. powder at Beyond a Century. > > >Aandraya > > > >On Sep 18, 2011, at 12:47 AM, Goldstein@... wrote: > > > > > > >Aandraya, > > >Are you taking The Core Mineral Supplement for the HPU? Did you actually see a doctor to get diagnosed for it and did you get the testing done for it? I'm interested in all of that. I increased my Zinc levels the last few days and notice an increase in energy, but I know there is more to it than just adding in zinc. The first dayI increased the zinc I was nauseous until about 12:30 a.m. I have some of the symptoms... I've always needed more B6 than most people I know and I have carpal tunnel syndrome. Had surgery for that in right hand and should get the left done at some point, maybe some time soon. B6 really helps carpal tunnel syndrome. > > >How much zinc are you taking if you are not on The Core Mineral Supplement. That supplement is kind of expensive too, so do you know where to get it more cheaply? > > >Lots of questions... thanks Aa. > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 1, 2011 Don't they use chemicals to keep the bugs off the farm animals?AandrayaOn Oct 1, 2011, at 10:41 AM, Goldstein@... wrote: Hi Bill,I'm here... going through so much Herx reaction and it has made me pretty sicko. It has only been a week so far on these new drugs. I've been reading a lot this week about Lyme Disease and coinfections since that is what I am dealing with now. Did you ever get anything internally, infection-wise from the mites? Not everyone does or if they catch it early on, like Zoe, they can get rid of it and more or less back to normal (if there is anything really normal). I found references this week in one book on Lyme Disease I'm reading that LD was and is found in mites. I started to wonder when bird mites infect chickens are we getting exposed to LD through our chicken, turkeys, etc.? Birds are one of the most common carriers of LD, wild birds, but what about our farmed animals like chickens, turkeys, etc.? Any idea about any of this?Hugs to all, From: " Doe" <doe1769@...>bird mites Sent: Saturday, October 1, 2011 1:50:41 AMSubject: Re: For Hi testing 1,2,3,4 .. I haven't seen ?y posts since ' Thu Sep 29th, 2011 10:26 PM EDT ... Anybody there ? God bless you all , Thanks for saving my life with all you tips & care , Bill ps before there was a word called carpel tunnel my gym teacher said for example if you get a cramp from painting with your right hand , switch & use your left hand & if the left cramps change the grasp technique while painting the house with a brush. It works for me On Thu Sep 29th, 2011 10:26 PM EDT Goldstein@... wrote: >Hi Doris, I think the surgery on the right for carpal tunnel was successful too. I have less pain and numbness on the right and am still considering getting the left hand done, but right now I'm so involved in starting meds and doing new protocols I don't think the time is right. Yes, I agree with you... it was a gradual improvement. Last winter I started knitting and I type a lot; my left hand goes numb still and that has to get fixed before I can seriously learn to knit which I want to do! But my hands are not what they were pre-carpal tunnel. They are almost always tight. Just not in pain with it. I filed a workers' compensation claim and really had to get ergonomic to go back to work which I did for years; but in the end I could not work well with Lyme disease and too many other issues causing disability. > > >I know Marie had severe carpal tunnel going on. I wonder what she did about it? Hope she is okay. So glad to hear that YOU got much better and you are still working! Yeah! You've been through a lot! > > > > > Re: For Aandraya > > > > >LInda- sorry I never responded to this. I don't take The Core. I take all the ingredients to that protocol individually. I started at 250 mg Zinc for 8 months and 100 mg the last 4 mos. It is common for it to make you nauseous especially if you are deficient. Apparently zinc picolinate is the form to cause the least amount of nausea. I take Manganese, Zinc 100mg, B6 25mg, P5P 50 mg, Taurine 500mg 3x a day, Omega 6. Then I take the optional ones- LIthium orotate, Boron, and Molybdenum. Klinghardt also recommends for all Lyme treatments- Magnesium, fish oil for Omega 3's, and Niacin. I buy the powder supplements from PureBulk.com and the Lith. oro. powder at Beyond a Century. > > >Aandraya > > > >On Sep 18, 2011, at 12:47 AM, Goldstein@... wrote: > > > > > > >Aandraya, > > >Are you taking The Core Mineral Supplement for the HPU? Did you actually see a doctor to get diagnosed for it and did you get the testing done for it? I'm interested in all of that. I increased my Zinc levels the last few days and notice an increase in energy, but I know there is more to it than just adding in zinc. The first dayI increased the zinc I was nauseous until about 12:30 a.m. I have some of the symptoms... I've always needed more B6 than most people I know and I have carpal tunnel syndrome. Had surgery for that in right hand and should get the left done at some point, maybe some time soon. B6 really helps carpal tunnel syndrome. > > >How much zinc are you taking if you are not on The Core Mineral Supplement. That supplement is kind of expensive too, so do you know where to get it more cheaply? > > >Lots of questions... thanks Aa. > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 1, 2011 Hi : Aandraya & Chemicals for chickens is DE as far as I have heard , there were chickens in the barn where I stored my things, in a barn attic when all this started. yikes .... I shudder when I go to that barn now . I am ok now though. I get a bite or two once in a while . The body fights off disease after a while . I had cuts that would heal , I kept treating every cut . The peroxide borax mix heals them fast . & Arm & Hammer Powdered Laundry Detergent 1 teap per cup of water allied is very effective also as a cointer attack with a different punch than 16 ozperox /2 tbls borax & 32 oz water . I never used an internal drug , Zoe did though , she used Doxy .* ( see her re-pasted post at bottom ) I keep thinking about Rush using Anu water & getting totolly free from the flying lint bug, & lesions so bad she was told she would be scared for life. She is fine now & no scars , she used Anu water for 4 months after trying MMS ( NOT MSM ) MMS made her so sick she couldn't work so she started on Anu weater for about $1.10 - 2.00 per day . It had no side effects & she never totaled her house with sprays & the like . AMAZING .....I wonder if it would cure lyme disease . For a dollar ten a day it might be worh the test . Rush was absolutly in trouble when I first met her on the forum , I have never seen the lint bug , but it seems I can feel it, like it is swarming , I powder everything with baking soda if I do feel it & it stops then I wash all , w/ 1 cup borax & 1 cup spic & span & 1 gal of hoht hot water to disolve the borax while I stir it for 15 seconds ps anu water is at http://www.espbotanicals.com pss : ZOE'S POST RE- POSTED HERE : ''Original Message ----- > From: " Zoe " <zoe_z3@...> > bird mites > Sent: Thursday, January 27, 2011 6:33:48 PM > Subject: Doxy 3 times a day still working! > > > > > > > OK I know I just posted a few days ago. But after 2 years of pure frigging HELL, I just cannot believe this: NO NEW BITES since I began taking doxy and all old bites healing after months and months of only partial healing. > > We got bit where ever we went unless we utilized heroic means to sanitize the environment constantly for 2 years. We are exhausted and have wasted so much money and energy fighting this. > > I wonder now if we could have take doxy 18 months ago and not had gone through so much trauma????? Were there still too many biting mites that carry this disease in our environment still? We will never know. > > THANK YOU ROSE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! > > I know other folks have been helped by Dr. Staninger. But whatever we had did not respond to the expensive and time-and-energy -consuming treatment she recommended to us. > > We also tried McCain's 3pt plan and still were not cured. > > We had taken doxy at 2 times a day for a month as prescribed by a couple Stanford MD who were sure we had folliculitis even though all biopsies came back of 'bites'. Doxy 2 times per day had no effect. Why did it take us so long to try 3 times a day???? Rose had suggested a long time ago... > > I'll keep everyone posted over the next several weeks. > > Best wishes, ''' END OF ZOE'S RE- POSTED POST God bless you, Bill On Sat Oct 1st, 2011 2:28 PM EDT Aandraya wrote: >Don't they use chemicals to keep the bugs off the farm animals? >Aandraya > > > >On Oct 1, 2011, at 10:41 AM, Goldstein@... wrote: > >> Hi Bill, >> >> I'm here... going through so much Herx reaction and it has made me pretty sicko. It has only been a week so far on these new drugs. I've been reading a lot this week about Lyme Disease and coinfections since that is what I am dealing with now. >> >> Did you ever get anything internally, infection-wise from the mites? Not everyone does or if they catch it early on, like Zoe, they can get rid of it and more or less back to normal (if there is anything really normal). I found references this week in one book on Lyme Disease I'm reading that LD was and is found in mites. I started to wonder when bird mites infect chickens are we getting exposed to LD through our chicken, turkeys, etc.? Birds are one of the most common carriers of LD, wild birds, but what about our farmed animals like chickens, turkeys, etc.? Any idea about any of this? >> >> Hugs to all, >> >> >> >> From: " Doe " <doe1769@...> >> bird mites >> Sent: Saturday, October 1, 2011 1:50:41 AM >> Subject: Re: For >> >> >> Hi >> >> testing 1,2,3,4 .. I haven't seen ?y posts since ' Thu Sep 29th, 2011 10:26 PM EDT >> .. Anybody there ? >> >> God bless you all , >> >> Thanks for saving my life with all you tips & care , >> >> Bill >> >> ps before there was a word called carpel tunnel my gym teacher said for example if you get a cramp from painting with your right hand , switch & use your left hand & if the left cramps change the grasp technique while painting the house with a brush. It works for me >> >> On Thu Sep 29th, 2011 10:26 PM EDT Goldstein@... wrote: >> >> >Hi Doris, I think the surgery on the right for carpal tunnel was successful too. I have less pain and numbness on the right and am still considering getting the left hand done, but right now I'm so involved in starting meds and doing new protocols I don't think the time is right. Yes, I agree with you... it was a gradual improvement. Last winter I started knitting and I type a lot; my left hand goes numb still and that has to get fixed before I can seriously learn to knit which I want to do! But my hands are not what they were pre-carpal tunnel. They are almost always tight. Just not in pain with it. I filed a workers' compensation claim and really had to get ergonomic to go back to work which I did for years; but in the end I could not work well with Lyme disease and too many other issues causing disability. >> > >> > >> >I know Marie had severe carpal tunnel going on. I wonder what she did about it? Hope she is okay. So glad to hear that YOU got much better and you are still working! Yeah! You've been through a lot! >> > >> > >> > >> > >> > Re: For Aandraya >> > >> > >> > >> > >> >LInda- sorry I never responded to this. I don't take The Core. I take all the ingredients to that protocol individually. I started at 250 mg Zinc for 8 months and 100 mg the last 4 mos. It is common for it to make you nauseous especially if you are deficient. Apparently zinc picolinate is the form to cause the least amount of nausea. I take Manganese, Zinc 100mg, B6 25mg, P5P 50 mg, Taurine 500mg 3x a day, Omega 6. Then I take the optional ones- LIthium orotate, Boron, and Molybdenum. Klinghardt also recommends for all Lyme treatments- Magnesium, fish oil for Omega 3's, and Niacin. I buy the powder supplements from PureBulk.com and the Lith. oro. powder at Beyond a Century. >> > >> > >> >Aandraya >> > >> > >> > >> >On Sep 18, 2011, at 12:47 AM, Goldstein@... wrote: >> > >> > >> > >> > >> > >> > >> >Aandraya, >> > >> > >> >Are you taking The Core Mineral Supplement for the HPU? Did you actually see a doctor to get diagnosed for it and did you get the testing done for it? I'm interested in all of that. I increased my Zinc levels the last few days and notice an increase in energy, but I know there is more to it than just adding in zinc. The first dayI increased the zinc I was nauseous until about 12:30 a.m. I have some of the symptoms... I've always needed more B6 than most people I know and I have carpal tunnel syndrome. Had surgery for that in right hand and should get the left done at some point, maybe some time soon. B6 really helps carpal tunnel syndrome. >> > >> > >> >How much zinc are you taking if you are not on The Core Mineral Supplement. That supplement is kind of expensive too, so do you know where to get it more cheaply? >> > >> > >> >Lots of questions... thanks Aa. >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> >> Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 1, 2011 It is tried, but isn't altogether effective. On 1 October 2011 13:28, Aandraya <aandraya@...> wrote: Don't they use chemicals to keep the bugs off the farm animals?AandrayaOn Oct 1, 2011, at 10:41 AM, Goldstein@... wrote: Hi Bill,I'm here... going through so much Herx reaction and it has made me pretty sicko. It has only been a week so far on these new drugs. I've been reading a lot this week about Lyme Disease and coinfections since that is what I am dealing with now. Did you ever get anything internally, infection-wise from the mites? Not everyone does or if they catch it early on, like Zoe, they can get rid of it and more or less back to normal (if there is anything really normal). I found references this week in one book on Lyme Disease I'm reading that LD was and is found in mites. I started to wonder when bird mites infect chickens are we getting exposed to LD through our chicken, turkeys, etc.? Birds are one of the most common carriers of LD, wild birds, but what about our farmed animals like chickens, turkeys, etc.? Any idea about any of this?Hugs to all, From: " Doe " <doe1769@...>bird mites Sent: Saturday, October 1, 2011 1:50:41 AMSubject: Re: For Hi testing 1,2,3,4 .. I haven't seen ?y posts since ' Thu Sep 29th, 2011 10:26 PM EDT ... Anybody there ? God bless you all , Thanks for saving my life with all you tips & care , Bill ps before there was a word called carpel tunnel my gym teacher said for example if you get a cramp from painting with your right hand , switch & use your left hand & if the left cramps change the grasp technique while painting the house with a brush. It works for me On Thu Sep 29th, 2011 10:26 PM EDT Goldstein@... wrote: >Hi Doris, I think the surgery on the right for carpal tunnel was successful too. I have less pain and numbness on the right and am still considering getting the left hand done, but right now I'm so involved in starting meds and doing new protocols I don't think the time is right. Yes, I agree with you... it was a gradual improvement. Last winter I started knitting and I type a lot; my left hand goes numb still and that has to get fixed before I can seriously learn to knit which I want to do! But my hands are not what they were pre-carpal tunnel. They are almost always tight. Just not in pain with it. I filed a workers' compensation claim and really had to get ergonomic to go back to work which I did for years; but in the end I could not work well with Lyme disease and too many other issues causing disability. > > >I know Marie had severe carpal tunnel going on. I wonder what she did about it? Hope she is okay. So glad to hear that YOU got much better and you are still working! Yeah! You've been through a lot! > > > > > Re: For Aandraya > > > > >LInda- sorry I never responded to this. I don't take The Core. I take all the ingredients to that protocol individually. I started at 250 mg Zinc for 8 months and 100 mg the last 4 mos. It is common for it to make you nauseous especially if you are deficient. Apparently zinc picolinate is the form to cause the least amount of nausea. I take Manganese, Zinc 100mg, B6 25mg, P5P 50 mg, Taurine 500mg 3x a day, Omega 6. Then I take the optional ones- LIthium orotate, Boron, and Molybdenum. Klinghardt also recommends for all Lyme treatments- Magnesium, fish oil for Omega 3's, and Niacin. I buy the powder supplements from PureBulk.com and the Lith. oro. powder at Beyond a Century. > > >Aandraya > > > >On Sep 18, 2011, at 12:47 AM, Goldstein@... wrote: > > > > > > >Aandraya, > > >Are you taking The Core Mineral Supplement for the HPU? Did you actually see a doctor to get diagnosed for it and did you get the testing done for it? I'm interested in all of that. I increased my Zinc levels the last few days and notice an increase in energy, but I know there is more to it than just adding in zinc. The first dayI increased the zinc I was nauseous until about 12:30 a.m. I have some of the symptoms... I've always needed more B6 than most people I know and I have carpal tunnel syndrome. Had surgery for that in right hand and should get the left done at some point, maybe some time soon. B6 really helps carpal tunnel syndrome. > > >How much zinc are you taking if you are not on The Core Mineral Supplement. That supplement is kind of expensive too, so do you know where to get it more cheaply? > > >Lots of questions... thanks Aa. > > > > > > > > > > -- I keep six honest serving-men (They taught me all I knew); Their names are What and Why and When And How and Where and Who. Rudyard Kipling Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 13, 2012 Hi, I just met a young lady with Hashimoto's who let the doctors destroy her thyroid gland. I told her that you would be the person to talk to, but it's been several years since I joined this group and the iodineOT group and I am unsure on how to start her out. I'd really appreciate the links to the relavent info, how to sign up for the groups and any essays you've written about living well without a thyroid gland. I'll pass them along to her and expect she'll be wanting to sign up for the groups. Thanks for all you do! You've been instrumental in turning my life around health-wise.Mark Quote Share this post Link to post Share on other sites
