for

[Guest guest]

Namaste...No, I did not get any relief from kutapressin, however; I am

ultra sensitive to animal products which may have been why it didn't

help me and actually made me feel worse.

The doctor I see is in New York. Tricia

>From: " oobadooba " <oobadooba@...>

>Reply-onelist

><onelist>

>Subject: Re: Introduction

>Date: Sat, 20 Mar 1999 16:21:54 -0600

>

>From: " oobadooba " <oobadooba@...>

>

>Did you get any relief from the kutapressin? Do you mind telling me

what

>state your dr is in?

> Introduction

>

>

>>From: " P " <butterfli30@...>

>>

>>

>>

>>Namaste, just wanted to introduce myself at this time since I'm NOT in

a

>>flare at the moment (knock on wood). My name is , I'm 31, and

>>have been disabled since April 1994.

>>I was dxed with Lyme Disease relatively early (within a month of the

>>onset of symptoms). I never had the bullseye rash, but came up with

high

>>Lyme titer levels in several blood tests. I was immediately put on

>>various oral antibiotics to no avail. In August I started IV

>>antibiotics and truthfully felt that I got sicker. By January of 95 I

>>was a mess. I turned to various holistic modalities such as

>>chiropractic care, acupuncture, massage, IV vitamins, aromatherapy,

>>herbology, meditation, cranial sacral, hatha yoga, candida cleanse,

and

>>diet restriction. I now combine holistic modalities along with

>>traditional Western medicine (I take Soma, buspar, and trazadone

>>regularly, and antibiotic only when ABSOLUTELY necessary).

>> My dx was changed to CFIDS/FMS when my Lyme titer levels didn't come

up

>>in a blood test. I didn't take a Lyme test again until this year and

it

>>came up inconclusive. So what I actually have is a big ? (personally

in

>>my own mind), all I know is I still feel sick.

>> I've tried Kutapressin, IV Gamma globulin, B12 injections and various

>>scripts: prozac, ultram, elavil, ambien, paxil, just to name a few.

>> Today I'm still fully disabled and dependent on another. I have more

>> bad days than good, but am hopeful for recovery. I feel great today

and

>>I'm savoring the " normalness " I feel. It's days like today that keep

my

>>hope alive. Glad to be a part of this group.

>>P.S. To Clement:

>>The below hotmail " pitch " is not an endorsement from me, it's just

>>automatically added to all of my e-mail.

>>Get Your Private, Free Email at http://www.hotmail.com

>>

>>------------------------------------------------------------------------

>>Start a new hobby. Meet a new friend.

>>

>>Onelist: The leading provider of free email list services

>>------------------------------------------------------------------------

>>This list is intended for patients to share personal experiences with

each

>other, not to give medical advice. If you are interested in any

treatment

>discussed here, please consult your doctor.

>>

>

>

>------------------------------------------------------------------------

>

[Guest guest]

In a message dated 4/8/00 6:11:48 PM Central Daylight Time,

susifloozi@... writes:

<< ,

Sorry it has taken me so long to reply to your post, but there is

something I wanted to share with you and I haven't had the time to

put it into words until now.

Most of you already know this, but for those of you who don't, I was

diagnosed with depression in February 1999. From the psychological

testing I have undergone, it appears as though I actually had

depression a lot longer than any doctor or therapist realized. One

of the reasons that I think it went on so long undetected is because

I have a job that I am extremely good at, and that was one area of my

life where I felt confident in myself and good about myself.

Whenever other things were going badly, I poured myself into my work

and kicked ass. I was able to shut out the other things that were

going on.

Well, that only works for so long. I thought I was " better " because

I was able to block out everything else and focus on my job. Last

summer, I worked 30 days straight, travelling regularly and kicking

butt. Eventually, I crashed. I pushed myself way too hard. I got

worse and I didn't know how to fix it. In November, I ended up in

the hospital because I didn't want to live anymore, but called 911

before I did anything stupid. Since then, I've had to face a lot of

things about my life that I have been avoiding for a long time. One

of the things I have had to do is cut back on the work I do so I can

devote time to taking care of myself. I needed to figure out who

Susi REALLY was deep down inside.

I'm sort of going on and on, but what I am trying to say is this. A

person can have a great career, but that doesn't necessarily mean

that their life is by any means complete. There are so many

different facets of our lives that need attention, and we all may

focus on different facets first.

You have a husband and a family...those are two things I would LOVE

to have. You are a fabulous person who brightens every one of my

days. You work in a grocery store and have lost weight in the

process!!! LOL...that's a HUGE accomplishment as far as I am

concerned! You have done 5 DAYS straight of Advanced tapes! Be

proud of yourself and who you are. The career will come in time.

>>

Susi

That was an amazing post, I am confident that it will help and many

more of us. It actually gave me chills! You are an amazing person and you

have so much to offer us here... and me personally because I am privileged

enough to know you. I think it's extremely unselfish for you to share

stories that must be difficult for you to share just because you KNOW those

stories will help at least one of us. Please know that they will... and

keep being your wonderful self.

Jenni

[Guest guest]

In a message dated 4/8/00 9:37:50 PM Central Daylight Time, slowens@...

writes:

<<

((((((Susi)))))

Your message to made me cry! I just want you to know how amazing I

think you are. You have gone through so much and continue to amaze me with

your kindness and sincerity. I am so glad that I have had the chance to

meet you and get to know you. You are an amazing woman and I am so glad

that you were able to get help and are taking care of YOU now

who wants to give Susi a big hug and say " I love ya, man " .....(like the

Budweiser commercial, I think?) >>

I couldn't have said it better. You are an awesome person Suzi!!!

Love,

[Guest guest]

In a message dated 4/8/00 7:11:55 PM Eastern Daylight Time,

susifloozi@... writes:

<< I'm sort of going on and on, but what I am trying to say is this. A

person can have a great career, but that doesn't necessarily mean

that their life is by any means complete. There are so many

different facets of our lives that need attention, and we all may

focus on different facets first.

You have a husband and a family...those are two things I would LOVE

to have. You are a fabulous person who brightens every one of my

days. You work in a grocery store and have lost weight in the

process!!! LOL...that's a HUGE accomplishment as far as I am

concerned! You have done 5 DAYS straight of Advanced tapes! Be

proud of yourself and who you are. The career will come in time.

Susi >>

Wow Susi,

That was an amazing post! It actually made me cry! It never occurred to me

that people who have their careers together may not have the rest of their

lives together. I really never thought of that. You are such an amazing

person. You have been through so much. You may not realize it, but you are a

very strong woman. Everyday I am in awe of you. Thank you so much for your

encouragement!

[Guest guest]

> Since then, I've had to face a lot of

> things about my life that I have been avoiding for a long time. One

> of the things I have had to do is cut back on the work I do so I can

> devote time to taking care of myself. I needed to figure out who

> Susi REALLY was deep down inside.

>

((((((Susi)))))

Your message to made me cry! I just want you to know how amazing I

think you are. You have gone through so much and continue to amaze me with

your kindness and sincerity. I am so glad that I have had the chance to

meet you and get to know you. You are an amazing woman and I am so glad

that you were able to get help and are taking care of YOU now

who wants to give Susi a big hug and say " I love ya, man " .....(like the

Budweiser commercial, I think?)

[Guest guest]

> Since then, I've had to face a lot of

> things about my life that I have been avoiding for a long time. One

> of the things I have had to do is cut back on the work I do so I can

> devote time to taking care of myself. I needed to figure out who

> Susi REALLY was deep down inside.

>

((((((Susi)))))

Your message to made me cry! I just want you to know how amazing I

think you are. You have gone through so much and continue to amaze me with

your kindness and sincerity. I am so glad that I have had the chance to

meet you and get to know you. You are an amazing woman and I am so glad

that you were able to get help and are taking care of YOU now

who wants to give Susi a big hug and say " I love ya, man " .....(like the

Budweiser commercial, I think?)

[Guest guest]

<snip> A > person can have a great career, but that doesn't

necessarily mean that their life is by any means complete. <snip>

Susi,

Thanks so much for sharing that difficult part of your life. ) We

are all a little weepy right now. <as she tries to compose herself>

You are wonderful person and I'm sure someday in the not so distant

future you too will have a hubby and family AND career, if you so

choose. It takes a good person to share difficult stories with

friends to try to help them. I feel better now. Please don't be

jealous but I have all of it. I hate to tell you this but I

sometimes take it for granted but thanks to you I have again taken a

good look and said thank you, Lord. Thanks for who you are, what you

are, and all the help you're giving others. )

~Sherry~

[Guest guest]

In a message dated 4/10/00 5:27:43 AM Eastern Daylight Time,

j.clappison@... writes:

<< ,

I'm sorry I have to pull you up about this, don't get me wrong, I'm

not cross or anything, though maybe I'm a bit touchy on the subject,

but it's a bit harsh to assume that part of someone's life is 'not

together'.

It could be by choice, or a lack of opportunity, they may not

consider it's 'not together' or that anythings wrong with it at all,

it may be what they want, but not what you would want in their

position.

I guess I'm trying to say don't be judgemental, everybodies life

standards are different. >>

I was just saying that when I see a person with what I consider to be " the

perfect career " I assume that the rest of their lives must be perfect also.

That is my own assumption, based on my own insecurities. Susi was pointing

out that a person with a great career may still have longings for other

things in life. I was not trying to imply that Susi didn't have her life

" together " . I really hope that she or anyone else on this board didn't take

it that way. I think Susi is an amazing person. I apologize if I offended

anyone.

[Guest guest]

In a message dated 4/10/00 7:38:52 AM Eastern Daylight Time,

j.clappison@... writes:

<< Jill

who hope she's not put 'both feet in her mouth' again!!! >>

Not at all Jill! I understand what you were saying.

Hugs,

[Guest guest]

<< I'm sort of going on and on, but what I am trying to say is this.

A person can have a great career, but that doesn't necessarily mean

that their life is by any means complete. There are so many

different facets of our lives that need attention, and we all may

focus on different facets first.

You have a husband and a family...those are two things I would LOVE

to have. You are a fabulous person who brightens every one of my

days. You work in a grocery store and have lost weight in the

process!!! LOL...that's a HUGE accomplishment as far as I am

concerned! You have done 5 DAYS straight of Advanced tapes! Be

proud of yourself and who you are. The career will come in time.

Susi>>>

Thank you Susi,

I'm so pleased that there are other single women on the group, I was

beginning to feel like the only one!!

A lot of your post expresses much of what I have 'felt' in my life

too. *HUG*

Now I'm just Single and (trying to learn to) Love it!!

Jill

who hasn't done TB over the weekend and now knows that was a bad

decision, because everything aches!

[Guest guest]

<< I'm sort of going on and on, but what I am trying to say is this.

A person can have a great career, but that doesn't necessarily mean

that their life is by any means complete. There are so many

different facets of our lives that need attention, and we all may

focus on different facets first.

You have a husband and a family...those are two things I would LOVE

to have. You are a fabulous person who brightens every one of my

days. You work in a grocery store and have lost weight in the

process!!! LOL...that's a HUGE accomplishment as far as I am

concerned! You have done 5 DAYS straight of Advanced tapes! Be

proud of yourself and who you are. The career will come in time.

Susi>>>

Thank you Susi,

I'm so pleased that there are other single women on the group, I was

beginning to feel like the only one!!

A lot of your post expresses much of what I have 'felt' in my life

too. *HUG*

Now I'm just Single and (trying to learn to) Love it!!

Jill

who hasn't done TB over the weekend and now knows that was a bad

decision, because everything aches!

[Guest guest]

<<It never occurred to me that people who have their careers together

may not have the rest of their lives together. I really never thought

of that.

You are such an amazing person. You have been through so much. You

may not realize it, but you are a very strong woman. Everyday I am in

awe of you. Thank you so much for your encouragement!

> >>>

,

I'm sorry I have to pull you up about this, don't get me wrong, I'm

not cross or anything, though maybe I'm a bit touchy on the subject,

but it's a bit harsh to assume that part of someone's life is 'not

together'.

It could be by choice, or a lack of opportunity, they may not

consider it's 'not together' or that anythings wrong with it at all,

it may be what they want, but not what you would want in their

position.

I guess I'm trying to say don't be judgemental, everybodies life

standards are different.

For me, I feel that in taking a career has the price of being single,

before I moved south I had partners, lots of close friends, no money,

no prospects, shit jobs, (sometimes awful) rented rooms but I enjoyed

life very much, despite it's 'storms'

Now I have a career job, decent money, my own house, freedom to do

what I want, no partner, not so many close 'everyday' friends where I

live, a much quieter social life and I enjoy life very much, and I

still have 'storms'.

The only thing I'd say I need is close friend/s where I live, I miss

having someone to 'hang out' with without having to travel 3 hrs to

do it! and that does get me down sometimes!

Maybe I'm also trying to say be flexible in you approach to life,

having lived mine (so far) I don't know what to expect next, or where

I'll be in 2,5 or 10 years time! But I'll do my best to get as much

positive out of it as I can, day by day, and aim to enjoy every day

too!

Jill

who's little chat's have been called 'jill's philosophy on life' ;-)

[Guest guest]

You have no need to apologise. You didn't offend me, I guess it's just

verging on one of my 'soap-boxes', all the people here are exceptional,

wonderful individual people, including you! *hug* and Susi *hug*

I can't recall having known anyone who's got 100% of what they want - most

people if they are truly honest would want something extra or different, but

I think that's what gives us our dreams/ drive/ ambition, part of the spark

that makes us human beings.

There is so much pressure on people (esp the young and women) to be/have

this, that or the other to be 'perfect'. It's no wonder our emotional

health suffers so much! remember that many people are " like swans

gracefully floating along, but in reality we're paddling like hell under

water " which is one of the lessons my Dad taught me!

I try hard not to make assumptions about anybody (and often fail!), and hope

that they will try to do likewise, otherwise we risk losing sight of other

people's qualities & feelings. I sincerely hope that I haven't upset

anybody, I don't mean too.

Jill

who hope she's not put 'both feet in her mouth' again!!!

<<I was just saying that when I see a person with what I consider to be " the

perfect career " I assume that the rest of their lives must be perfect also.

That is my own assumption, based on my own insecurities. Susi was pointing

out that a person with a great career may still have longings for other

things in life. I was not trying to imply that Susi didn't have her life

" together " . I really hope that she or anyone else on this board didn't take

it that way. I think Susi is an amazing person. I apologise if I offended

anyone.

>>

[Guest guest]

In a message dated 4/16/00 3:30:31 PM Hawaiian Standard Time,

creativitygirl@... writes:

<< who does not have her own children to share stories about, but I will

share

one from last night about my 2 1/2 year old niece. points to a scab

on my knee and says, " Wha' happened? " I said, " I fell down. " She looks up at

me, so concerned, and says, " A boo-boo? " I solemnly nod. She bends down and

kisses my knee, then looks back up, " Feel better? " And I tell her, " Like

new! " and give her a big kiss. , I know you will feel like new too

when you see your son in August. God bless! >>

Thanks . I just talked to my son's grandma today. He has learned a

whole bunch of new words, and has done so many new wonderful things. I miss

him so much, and regret my decision. But my only other decision would have

been to le my son's father keep living with me, and he was driving my crazy.

So I had to kick him out, and I had to let my son go as well. But he is very

well taken care of. They say he is very happy. I am glad of that. He gets

on the phone and yells " ma-ma " . I can't wait to see him again, but he is

oging to be all grown up practically by then! Well, thanks again. Take care

all!

who is missing and nursing an injured knee...

[Guest guest]

Janalise,

I don't know what VRE is, so I'm betting that Matty hasn't been

tested!! LOL

They're wanting to use the Reglan for 's motility problems. I

know that in most cases it is safe, but for , that particular

drug could cause big-time problems.

How are you doing, hon? Hope that you're feeling a bit better.

" (o= janalise =o) " wrote:

> Has Matt had a fecal culture to rule out VRE?

> Reglan is one of the safest for nausea there is. (It is not related in

> anyway to Ritalin, which some people think...

> VRE could be causing the vancomyociyn not to work.

> just a thought

>

> jana

> i'm back in bed myself. alive but tired,

>

> At 10:31 PM 5/7/00 -0700, you wrote:

>

>> Hi all.

>> Now that we've been home for a bit and things are pretty well

>> settled

>> (ha ha), I thought I would give an update...

>> continues to decompensate at the drop of a hat. Most times I

>>

>> don't even know what triggers it, it just seems to happen. His

>> bicarb

>> drops (to around 11 or 12), he vomits uncontrollably, just overall

>> miserable!

>> Right now, we're attempting to control his bicarb with a 24 hour

>> bicarb

>> fluid IV. A real pain, but it seems to be helping a bit...currently,

>>

>> bicarb is about 17 or 18, but it fluctuates a lot.

>> The vomiting got better for a few days, we have had to back off of

>> all

>> enteral feeding, and we cut his po meds to an absolute mininum. When

>> he

>> came home, they changed most of his meds back to po, and so now he's

>>

>> vomiting again...We're trying to give him Kytril in an effort to

>> control

>> the nausea, and maybe at least help to keep his meds down.

>> His GI seems to think that all the blood that we were seeing in the

>> vomit is coming from his esophagus, and is due to the reflux. An

>> upper

>> GI showed no signs of bleeding in his stomach. He really needs to be

>>

>> scoped, but we are very reluctant to do that right now, for several

>> reasons. Doc doesn't think that he would do well with anesthesia

>> right

>> now (she thinks that he would decompensate too quickly for us to

>> keep up

>> with), and also the scope might cause injury and more bleeding. GI

>> has

>> agreed to try to scope him with only sedation if it comes down to

>> that.

>> An echocardiogram showed that his heart is at about 58% now, a drop

>> for

>> him, but still okay.

>> His spleen is enlarging now, and his liver is absolutely huge. The

>> liver

>> has always been enlarged, about 5 cm below where it should be, but

>> now

>> it's getting bigger. The docs have felt it almost into his pelvis

>> now,

>> and they can feel the left lobe wrapping around his g-tube. What

>> this

>> means, we're not altogether sure, since his liver function tests

>> aren't

>> great, but aren't indicating failure yet, either. An ultrasound also

>>

>> showed that he has portal hypertension, high blood pressure in the

>> liver. At this point, though, it's not causing the blood vessels to

>> back

>> up, so I guess we just wait it out.

>> GI docs recommended Reglan, which we shot down fast!! Next choice

>> was

>> Prilosec, which our doc also shot down (not sure why, probably some

>> negative affect on liver or kidneys, though). So we've settled on

>> Carafate for now, though I'm not sure it's doing him much good, as

>> he's

>> still vomiting all over the daggone place.

>> He continues to spike mysterious fevers, and although these might be

>> due

>> to autonomic dysfunction, we treat as though it is infection, as it

>> would be extremely dangerous for Matty to overlook an infection

>> right

>> now. So he's pretty much living on vancomycin and ceftriaxone. LOL

>> As much as we're doing for him right now, most of it is aimed at

>> comfort, but of course, we continue to do as much as possible to

>> better

>> his situation.

>> Bacterial blood culture continue to come up negative. We drew fungal

>>

>> cultures on Friday, haven't heard about those yet. Does anyone know

>> how

>> long it takes for fungal/ yeast cultures to grow?

>> Anyway, sorry so long. Seems to take longer and longer to bring

>> everyone

>> up to date on Matty these days!! LOL

>>

>>

>>

>>

>> ---------------------------------------------------------------------

>> The Being Sick Members Lounge.....

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>> * FREE psychic/tarot readings via email

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>> * Members Profiles, locations and birthdays

>> * DAILY LIVE CHAT!!

>> * Medical Resources, and more.... http://www.elderwyn.com/members

>>

>> ~~~~~~~~~~~~~~~

>>

>> “There will always be people who are better off and worse off then

>> you. This makes no difference to how you are feeling. You are the

>> only one who feels as you do, and you have every right to be

>> negative or upset when you are ill, injured, disabled, or caring for

>> someone who is. No one deserves being sick. It is not fair. It is

>> not your fault.” - Aisha Elderwyn.

>>

>> ~~~~~~~~~~~~~~~

>>

>> Your subscription details

>> /mygroups

>>

>> To unsubscribe

>> mailto:-unscubscribeegroups

>>

>> Elderwyn Management

>> http://www.elderwyn.com

>

>

> -----------------------------------------------------------------------

>

> -----------------------------------------------------------------------

> Your subscription details

> /mygroups

>

> To unsubscribe

> mailto:-unscubscribeegroups

>

> ~~~~~~~~~~~~~~~

>

> “Hold on to what is good, even if it's a handful of earth. Hold on to

> what you believe, even if it's a tree that stands by itself. Hold on

> to what you must do even, if it's a long way from here. Hold on to

> your life, even if it's easier to let go. " - Pueblo Prayer

>

> ~~~~~~~~~~~~~~~

>

> The Being Sick Members Lounge.....

> * FREE counselling via email

> * Daily Horoscopes

> * FREE psychic/tarot readings via email

> * Daily cartoons

> * Members Profiles, locations and birthdays

> * DAILY LIVE CHAT!!

> * Medical Resources, and more.... http://www.elderwyn.com/members

[Guest guest]

B4R, Your message below says you think it sad that this list would be

about sales, yet yesterday you wanted to help other list owners who

might like to sell their products here also!

I, too, keep a low profile here and would never presume that i could tell

everyone here how to run the list. I have had emails today, with

listers mystified as to why your posts are so inflamatory.

I do regret that you are unhappy and wonder if perhaps you have felt your

questions or concerns about LifeLift have gone unanswered?

Sincerest hopes that you will find joy,

Pam

________________________________________________________________

YOU'RE PAYING TOO MUCH FOR THE INTERNET!

Juno now offers FREE Internet Access!

Try it today - there's no risk! For your FREE software, visit:

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[Guest guest]

HI -

I'm sorry to hear how bad you're feeling. I can

really relate as two years ago when I was first

diagnosed I couldn't even get out of bed and nothing

seemed to be working. Yet gradually we did isolate

some problems, and with medication like cortef,

thyroid, and antibiotics, plus eliminating foods that

I was allergic to, I did get better. I'm not well yet

- still working on the EBV, HHV-6, Lyme, and possible

Lupus - but I am at least able to leave the house

every day.

I agree with Lynea about considering disability. I

didn't want to stop working either, and I think I did

myself alot of damage by continuing to work while ill

for as long as I did. Finally my doctors essentially

insisted on a medical leave, initially planned for 3

months, which turned into 9. I've gone back to work a

couple of times since then, both times ended up with a

relapse, and I'm now out on workers' comp due to an

injury and applying for SSDI. It's hard to admit I'm

too sick to work, but I'm making my recovery my

fulltime job now, and consider that my career is " on

hold " til I get better. Please consider doing

something like this if you are able to!

Good luck, and feel free to write me privately if

you'd like. Best, Jennie F.

--- Lynea Search <lsearch@...> wrote:

> Hi ,

>

> You said in your post today, among other things,

> that

>

> " Maybe I really am just crazy? I did have an anxiety

> and depression problem before this

> CFS stuff settled in 3.5 years ago. But I was pretty

> damn healthy nonetheless, except

> for allergies, mild IBS, and more than normal colds.

>

> Maybe my psychological quirks have turned themselves

> inside out, penetrating

> my brain and creating physical symptoms where no

> real organic cause exists.

> Maybe a few years of intensive therapy will clear it

> up. Oh gee, another

> twenty thousand dollars!

>

> Maybe I have a slow onset of MS or Cancer or

> autoimmune disease, and its just

> taking a while before it will actually show up on a

> lab test.

>

> I'm struggling just to keep afloat working fulltime

> . . . "

>

> ,, I can really relate to how you're feeling;

> I'm sure most of us can. You are

> NOT ALONE! I too had anxiety and some depression

> " BC " --before the CFS began. But so

> what? That doesn't mean we don't have a

> *neurological* problem. A book I've just found

> helpful is Dr. Amen, MD, " Change Your Brain,

> Change Your Life. " It's mainly about

> ADD, which many of our brainfog symptoms are very

> similar to and which may even be a dx

> for us (see his " subtype test " or his website. I

> fought this idea as I've always been

> extremely " conscientious " (cf. grade school report

> cards) and didn't think I could have

> ADD. But there are many forms it can take in

> adulthood, and one need NOT have had it

> since childhood as some think--just for six months!

> Anyway, the test site is

> www.amenclinic.com/ac/addtests/subtype.asp. in case

> you want to self-test yourself.

>

> The main help I got from the book was just to

> realize that our BRAINS CAN BE ILL. I do

> take all this with a grain of salt, of course, since

> mental illness itself is a

> debatable entity cf. Szacz (sp?) work and

> that of others. I guess I'm saying it's

> not an " either-or " question. Mind and body, or

> mental and organic. Or, maybe we should

> think of our illness as NEUROLOGICAL with behavioral

> aspects/manifestations. That's what

> I tell the shrinks I'm forced to see by the state

> mental health system, where

> " behavioral " is now the big buzzword to replace

> " mental " cf. people requiring

> " psychiatric meds " that ones PCP won't RX.

>

> I began to write this with the idea of asking you

> this final question: Have you thought

> of going on disability, whether through your company

> and/or followed by Social Security

> Disability? For me, just caring for myself and doing

> the few things I love takes more

> than all my energy. When I try to do my old work

> (editing) I get into a severe relapse.

>

> Please keep posting, and feel free to post me

> privately too.

>

> Lynea

>

__________________________________________________

[Guest guest]

Hey !

I just went through your web site and looked at your pictures and read your

essays. All I have to say is " INSPIRATIONAL " ! I did sign your guestbook so

you'll have to read it when you have time. Our stories are similar except I

married the jerk. I was pregnant and 16, blah, blah, blah. I finally got a

little confidence and found a way out. Now it's time to work on my body.

I am totally amazed in how I look and feel. I preach my new bible (Body for

Life) daily to anyone who will listen (not many do). But I still try to show

the people I care about how great this program really is, not just another

" diet book. "

You are my new hero. Thank you, thank you, thank you for being you and

telling it like it is. I love what you wrote in you essay, " My life was a

gift and it was up to me to shape it and take care of it. " Those words are so

powerful and just hit me.

I am looking forward to the weeks to come and watching my body change.

Thanks again!

Michele

[Guest guest]

{{{{}}}}}

I'm here for ya anytime, day or night. (I'm always online!!!)

I wonder if you are still with him. It's amazing how we LET ourselves stay

in such a situation that is so damaging. It's almost as if with each

argument and each fight and each hit you can feel the life being sucked out

of you. We give up our power, we surrender our energy, and after we are

drained of our soul.....we lay dead to the world.

I hope you are using this program to regain and build up your own fountain of

positivity. Once you begin living for your own life's purpose, it's like an

endless resevoir of power that keeps you accelerating forward. And that's

when you are able to look around you and be in a moment of clarity, where it

all makes sense and you understand it all. And as you reach out to others it

grows, and grows.

*warm smile* {{{{big hug}}}}}

-

[Guest guest]

Hi

I understand. Even before I got this I had chronic sinus infections and I

was so frustrated with doctors I stopped going for years. The problem was

my sinuses were infected so long that they suffered irreparable damage. I

went through a few, but I finally found a good set of doctors. I still do

most of my own treatment, reading about things on the web, etc. and I

figured out that I was hypercoag, but at least I have a doctor that know

the medications I'm taking and can make sure I'm not doing something dumb.

And when I have bizarre side effects or whatever, they rule out that

something really bad is going on. And my GP even found the CMV, the EBV,

and diagnosed me with CFIDS originally. She suggested things like CoQ10,

etc that are known to help. She gave me medications I wanted to try (that

worked.) There is so much going on now that I think it's too much for

anyone except a CFIDS specialist to keep up with. That's why I'm doing

more on my own.

Anyway, doctors are not all jerks. I know there is someone near you that

is good. You just have to find them.

Cindi

I decided to treat myself, so I didn't seek medical help with it.

> And my health has been going downhill since then. I think I was

suffering a

> lot of fatigue before it hit, that I never completely recooperated from

with

> the previous episode. This episode has been going on for about two

years,

> and has by far been the worst.

>

> I've developed a multitude of health problems with this episode that

I've

> never had previously. I'm currently seeing a naturopath who has done a

lot

> to help with some of the health problems. But the fatigue remains, and

seems

> to grow worse as time goes by. I've been dealing with a lot of health

> problems that I'm hoping to get some help with from this list in sorting

it

> out, if that's okay?

>

>

> lindaj@...

[Guest guest]

Am I reading this right?? What the h*ll kind of world are we living in.

>> The owner, Ruth Harville, was accused of giving her adopted

Grandson Fetal Alcohol Syndrome!!!>>>

[Guest guest]

Yes, you read this right. This was the same hospital (Vanderbilt) and state

(Tennessee) that said 's son was not sick she was and then made

her watch him die standing by his side in handcuffs! She could offer the

child no comfort at all.

Love and Blessings,

Ellen

meharv84@...

I am secure in my Lord, Jesus Christ! He is my Saviour, my Protector, my

Salvation, my Healer, my Provider, my EVERYTHING!

Learn more about my people at

http://chicora-waccamaw.com/

> Am I reading this right?? What the h*ll kind of world are we living in.

>

>

>

>

> >> The owner, Ruth Harville, was accused of giving her adopted

> Grandson Fetal Alcohol Syndrome!!!>>>

[Guest guest]

,

Yes I did use the word 'Harrassment' Because they are not taking it serously

and it keeps going on. The principle makes it seem like my son is at fault

and if he was the problem I would think I would have been contacted about it

by someone.

Thanks

Tammy

[Guest guest]

Hi Tammy,

So do you go to the superintendent now? Please keep on it--being bullied is NOT

acceptable. I wish I could be there to back the principle down for you.

in Nebraska

Re: For

,

Yes I did use the word 'Harrassment' Because they are not taking it serously

and it keeps going on. The principle makes it seem like my son is at fault

and if he was the problem I would think I would have been contacted about it

by someone.

Thanks

Tammy

[Guest guest]

Hi Naomi. Thanks for the thought-- it (thrush, re mouth sores) was one of the

first things that was ruled out by the specialists.

for

Re: 's mouth sores, did anyone rule out a thrush condition?

Hugs,

Naomi