Sleep Apnea

August 17, 2006

Oh, joy! I am so looking forward to tomorrow night. I'm sure I'll sleep well

for them with all the wires and knowing they're looking at me. If they need me

back for the 2nd visit, that will be next Thursday. Mine at at an office rather

than the hospital. I guess I should check out their web site and see if they

show the rooms or anything.

De (what do you need a uvula for, anyway?)

>

> From: " Allan W Anger Jr " <allananger@...>

> Date: 2006/08/17 Thu AM 10:32:14 EDT

> <Hepatitis CSupportGroupForDummies >

> Subject: Re: sleep apnea

>

> Hi De,

>

> They hook you up with a bazillion sensor wires like the kind they use for an

EKG. It takes almost an hour to get hooked up. These are connected to a

computer. They also have a camera on you. Don't be afraid to ask for extra

pillows and blankets. I froze my butt off at the hospital study. I can't stay in

one position all night so I moved a lot and the dang wires kept coming off. When

they did the nurse would come in and flip on all the fluorescent lights HELLO!

Probably why I never got to REM sleep.

>

> With the in-home study they used the same wires that go into a fiber optic

cable that ran downstairs to the living room to a laptop where the technician

sat all night. That study was conclusive and showed I stopped breathing 18 times

per hour. I wouldn't go for the CPAP machine and opted instead for the surgery.

It made a MAJOR difference in my sleep and my breathing.

>

> Good Luck!

>

> Allan with 2 L's but no Uvula

August 17, 2006

Kim,

My brother got his CPAP on-line, I'm not sure whether it was E-Bay or some other place. His wife loves it - no more snoring!!! He says he feels a lot better now, getting to sleep through the night he isn't so tired in the morning.

A friend's husband also has apnea. He had the CPAP for years but had surgery four years ago & now sleeps normally. The surgery is not guaranteed to work but when it does it's great. I guess I'd better get tested, I have alot of the symptoms - don't know if I snore, SpYke hasn't complained.

SuZie

Next time I'm coming back as a cat

sleep apnea

I have apnea too. I went through one study. They said I wake up one time every 59 seconds. I'm sure that adds to the extreme fatigue. The next study I went to, they put me on a CPAP with a humidifier. My cost,after insurance pays is $650. I told them to keep it. I don't really want to wear that mask all night long. I have lost 27 pounds since the end of April and the kids say that most nights Idon't snore as much anymore--only when I am really exhausted. I may end up getting that machine, but for now, I need to concentrate on keeping the diabetes and cholesterol under control and starting tx. That's enough for now. FYI--the sleep study tech told me to look on Ebay, sometimes you can find a machine there for much cheaper. You just have to make sure that it is exactly what your doctor ordered. Bye for now,

August 17, 2006

LOL Beats me what you need a uvula for other than maybe a gag reflex. I didn't install it so I guess you'd have to ask the guy that put it there.

As to Labor Day weekend I have Microsoft Streets & Trips and I've already got the map and directions. What time is good for you for my arrival?

LL

Re: sleep apnea> > Hi De,> > They hook you up with a bazillion sensor wires like the kind they use for an EKG. It takes almost an hour to get hooked up. These are connected to a computer. They also have a camera on you. Don't be afraid to ask for extra pillows and blankets. I froze my butt off at the hospital study. I can't stay in one position all night so I moved a lot and the dang wires kept coming off. When they did the nurse would come in and flip on all the fluorescent lights HELLO! Probably why I never got to REM sleep.> > With the in-home study they used the same wires that go into a fiber optic cable that ran downstairs to the living room to a laptop where the technician sat all night. That study was conclusive and showed I stopped breathing 18 times per hour. I wouldn't go for the CPAP machine and opted instead for the surgery. It made a MAJOR difference in my sleep and my breathing.> > Good Luck!> > Allan with 2 L's but no Uvula

August 18, 2006

He

already started me on some samples of Requip for the RLS. It’s actually

better already. I’m playing with the dose to see what’s best right

now. He took me off the elavil though saying it can cause some of the

jerkiness and leg movement. The elavil was helping me asleep & with my

migraines.

Be

thinking of me all hooked up to the machines in my “hotel-like”

room while you can’t sleep tonight.

De

Re:

sleep apnea

SuZiE and ,

Sleep Apnea...I don't think it's taken seriously

enough...yet!

Y was dignosed with it when I took all the other

test's for TP.

I asked the doc, (sleep man) why it is that everyone

thinks it's a joke...I did too! It's because jokingly people wouls refer to

snoring, suck the wall paper off the wall snoring, as a joke. Family get

togethers?? OOOhhh NOOOO! Don't sleep with Uncle Willie, you'll never get to

sllep!! Laughter..thgen off to bed.

Not only does SA affect your rest, because you never

go in to Deep Sleep, because you are waking yourself up, either by sound, or

the lack of AIR!! I just used to think I was having a bad dream when I sat up

in bed and gasping, trying to get air into me, and would say, Man...that must

have been a doozy!!!

I have others tell me that somtimes I would go a

minute,or more, without moving, or breathing, and then I wouold pop up and do

my thing. When this happens, not only does the brain not get enough oxygen, but

all of other organsns, muscles, EVERYTHING, is suffocating too! My doc (sleep

man), said my problems today may have been avoided or slowed down alot, if

I had been dx'd long ago. SuZiE,,, I have a CPAP, but have trouble keeping on

my face when sleeping. I rip it off in the night. Does your brother like

his? I have quit trying, but I sure would like to awake rested, even

if I look like and Air Force Pilot. But...there may be some fun with that,too!

...you night dancer!!!!

When I'am about to drift off I do a double

check (mentally).... ( normally with Captain Kirk or Mr. Spock....

Bones thinks it's a cure or txis a newfangled gimmick still).

Actually it's form of hypnosis. When I get down to my belly and then go lower,

I realize my butt cheeks are so tense you couldn't get them open with a

crowbar!! (some say that is natural defensive thing that happens in

prison...I dunno').Then I realize my calves are all tense and my feet are doing

a jig! I think this may be The dreaded dancing legs syndrome.

If you find anything out please let me know, if not,

let's find a place halfway with a town that never sleeps and dance all night!!!

Del

August 19, 2006

Hey Del, thanks for the offer but I think I'll pass. I relly don't want to wear that mask all night. I get so closterphobic (sp?) over things, I really don't think I sleep that much better with or without the machine. New enrollment for my insurance is in October, 2 months from now. I plan on "buying up", and making my deductible lower. Then I will go back to the sleep doc, and check out the surgery option. I have enough wrong with me, I can't deal with anymore right now. REALLY!! I have RLS too. I take Requip--also given to pts. with Parkinson's Disease. I thought I would stop taking it because it is expensive and I didn't see where it did anything. I missed a few nights and could tell the difference, I woke up with leg cramps all night, and my legs hurt the next day, after not taking the medicine, all day. So, I will defintely continue to take that.

Hope everyone is well. Peace and love, Kim Scars are souveniers you never lose. __________________________________________________

September 28, 2006

I talked to about taking part in a ZapChat. He said he would

be glad to... but nor right away. We are working to get his new book

ready for launch, tweaking his website... and both getting ready for

big trips. (he to Asia and me to San Francisco area)

When? Most likely in early November. We'll let you know precise

date. That session will be limited to ONLY sleep disorders..

especially Apnea.

Stay tuned and well!

Duffey

December 9, 2006

My son has severe sleep apnea also. We've spent a year now, trying to get

him to wear the CPAP....to no avail. When he has worn it, there is a definite

difference in his ability to function during the day.

We've tried writing a social story about sleep apnea, what happens

when you have it, why the CPAP helps, how he feels about wearing it, why Mom

worries so much when he doesn't wear it, etc. We tried several different

" masks " , with the most successful one being " the pillows " .....a rubber tube

that

sits on the upper lip with an extention in each nostril. This one only has

two straps on the head.....other devices had as many as five, which created a

sweat-soaked head for in the a.m.!! has an aversion to the

machine also....so much so that he gets really tearful when we talk about using

it.

We're going backwards next....we're going to the ENT to check out the

throat structures to see if anything needs to be removed surgically. This

should have been done first, before getting the CPAP.........

I'd suggest using a social story with your daughter to try to change

her thinking about the CPAP......but you also might try different

" " masks " .....there is also one that is relatively new that is more like a nasal

canula

that you wear in the hospital. Medicaid would only pay for one every 3

months.....and the masks (or apparatus) are rather costly (starting at $75.)

So

check with your doctor.....or go to the company that services your CPAP

machine....they will have the different masks to try on your daughter.

Just a few thoughts! Good luck!

Reggie in West Virginia

December 9, 2006

Thanks Sue! I printed the info on the Cine MRI and will send a copy to

na's ENT......I just cannot believe how little is done for kids with Sleep

apnea. We have been given such a run-around about this. 3 different sleep

studies and 3 different opinions! Just does not make sense they let this go! My

daughter has a different duplication of chromosome...on #9, but she still have

many of the same issues as Trisomy 21 kiddo's.

I think getting right to the cause is necessary instead of playing anymore

guessing games and cutting on my daughter!

Thanks,

Laurie

December 9, 2006

Hi,

We saw an ENT at Cincinnati Children's Hospital and had a sleep study done. It

was determined that had severe sleep apnea. The next morning he was

sedated for an MRI and the MRI results showed huge lingual tonsils closing off

throat when relaxed during sleep. A couple months later they called and the

team recommended surgery to remove these tonsils (of which I had never heard of

before) that are seated in throat at base of tongue. They called on a Friday

and wanted to schedule on Monday. Then, we would go back for another sleep

study to determine if a c-pap would still be necessary. To date we've done

neither. has never done well with surgery. He fights them, us, and

makes things so much more difficult for himself and us. He won't let you help

him. It scares me out of my mind. We would have a hour drive coming home after

surgery and should anything happen during recovery at home we would be 45

minutes from hospital. Last month we saw a sleep doc in our area and are

waiting for him to schedule a sleep study for to guage adequate

pressure for a cpap. I've called back to check and see why we are still waiting

and was told the doctor will call us when he reads his file. My gut tells me

that I should've went back to Cincy. We can still take him there to get this

done. We'll probably end up back there after school goes out.

Barb mom to (13)ds and Tyler (11)

Sleep Apnea

jacksonsmom99@...

Hi,

Anyone else on this list dealing with Obstructive Sleep Apnea?? My oldest is

fighting her CPAP machine like craaaaaaaaaaazy! She says she cannot breath with

it on.

She has severe obstructive apnea.

Needless to say, she's a zombie in the daytime. We are thinking about another

surgery.

I hear there is a procedure called a " cine MRI " ....to watch the airway while a

child sleeps??

Thanks for any help!

Laurie

---------------------------------

Check out the all-new beta - Fire up a more powerful email and get

things done faster.

December 9, 2006

has used the C Pap machine for almost three years and has done well with

it. He still has tonsils and the sleep apnea has greatly improved.

Good luck and we will praying for all of you.

Dad to , Kristi, (all three Down syndrome) and (Cri du

chat)

Husband to C. in Mo.

Uncle Daddy to and in Calif. (both Down syndrome and is

recuperating from a successful TNA)

Barbara Dillon <cbbtdillon@...> wrote:

Hi,

We saw an ENT at Cincinnati Children's Hospital and had a sleep study done. It

was determined that had severe sleep apnea. The next morning he was

sedated for an MRI and the MRI results showed huge lingual tonsils closing off

throat when relaxed during sleep. A couple months later they called and the team

recommended surgery to remove these tonsils (of which I had never heard of

before) that are seated in throat at base of tongue. They called on a Friday and

wanted to schedule on Monday. Then, we would go back for another sleep study to

determine if a c-pap would still be necessary. To date we've done neither.

has never done well with surgery. He fights them, us, and makes things

so much more difficult for himself and us. He won't let you help him. It scares

me out of my mind. We would have a hour drive coming home after surgery and

should anything happen during recovery at home we would be 45 minutes from

hospital. Last month we saw a sleep doc in our

area and are waiting for him to schedule a sleep study for to guage

adequate pressure for a cpap. I've called back to check and see why we are still

waiting and was told the doctor will call us when he reads his file. My gut

tells me that I should've went back to Cincy. We can still take him there to get

this done. We'll probably end up back there after school goes out.

Barb mom to (13)ds and Tyler (11)

Sleep Apnea

jacksonsmom99@...

Hi,

Anyone else on this list dealing with Obstructive Sleep Apnea?? My oldest is

fighting her CPAP machine like craaaaaaaaaaazy! She says she cannot breath with

it on.

She has severe obstructive apnea.

Needless to say, she's a zombie in the daytime. We are thinking about another

surgery.

I hear there is a procedure called a " cine MRI " ....to watch the airway while a

child sleeps??

Thanks for any help!

Laurie

---------------------------------

Check out the all-new beta - Fire up a more powerful email and get

things done faster.

December 9, 2006

Hi Jayne,

The cine MRI was developed, to my understanding, at Cincinnati Children's Down

Syndrome Clinic. I know I found a medical abstract on it, forwarded it to St.

Louis Children's Hospital's ENT for the DS Clinic. He even flew out to Cin. to

be trained in the procedure! This protocol is supposed to be more accurate for

our kids with DS.

Best of luck!! Thank God that Karrie's central sleep apnea was caused by the

meds she was on. Trying to put a bi-pap on her and keep it on was a nightmare!!

Sue mom to Kate 17 and Karrie 10 w/ds and mild autism

---- Jayne Hickey <jacksonsmom99@...> wrote:

=============

TRIER9@... wrote: From: TRIER9@...

Date: Fri, 8 Dec 2006 16:21:06 EST

Subject: Sleep Apnea

jacksonsmom99@...

Hi,

Anyone else on this list dealing with Obstructive Sleep Apnea?? My oldest is

fighting her CPAP machine like craaaaaaaaaaazy! She says she cannot breath with

it on.

She has severe obstructive apnea.

Needless to say, she's a zombie in the daytime. We are thinking about another

surgery.

I hear there is a procedure called a " cine MRI " ....to watch the airway while a

child sleeps??

Thanks for any help!

Laurie

---------------------------------

Check out the all-new beta - Fire up a more powerful email and get

things done faster.

December 9, 2006

In a message dated 12/8/2006 10:44:54 PM Eastern Standard Time,

jacksonsmom99@... writes:

Thanks for any help!

Hi Laurie,

i don't know if this will help or not. My Micah has sleep apnea. Had

tonsils and adenoids out but is now going for another sleep study because he

still has problems. My pulmonologist said that instead of using a c-pap

machine with him (if necessary) they may give him a dose of singulair each

night

before bed. They have found this helps with obstructive sleep apnea. This

is amazing to me and I guess a relatively new finding. I don't know if anyone

else has heard of this. Unfortunately he has not had his sleep study done

yet. Was suppose to go next week but hubby needs surgery so we will postpone

it until after the first of the year. Perhaps you could question your

pulmonologist about it. Hope this is helpful.

Loree

December 9, 2006

In a message dated 12/9/2006 10:37:45 A.M. Pacific Standard Time,

Loree5@... writes:

singulair each night

Hi Loree......singulair?? What is that used for? I know I have heard the

name!

Thanks!

Laurie

Mom to na w/Trisomy 9p and Kayla w/Trisomy 21

December 10, 2006

In a message dated 12/9/2006 4:03:59 A.M. Pacific Standard Time,

cbbtdillon@... writes:

We saw an ENT at Cincinnati Children's Hospital and had a sleep study done.

It was determined that had severe sleep apnea. The next morning

Hi Barb! Did see Dr. Shott??

Thanks,

Laurie

Mom to Bri w/Trisomy 9p and Kayla w/Trisomy 21

December 10, 2006

Hi Laurie and sorry for responding so late. Our entire family is sick. I was

hoping I would escape but it was not to be.

Yes, we saw Dr. Shott. had an exam and a hearing test done.

Afterwards we had the sleep study. Next morning the MRI. Then it's home to

wait on results. When you call they will set everything up. Everyone was very

nice and helpful. They take care of everyting.

Barb mom to 13ds and Tyler 11

Re: Sleep Apnea

In a message dated 12/9/2006 4:03:59 A.M. Pacific Standard Time,

cbbtdillon@... writes:

We saw an ENT at Cincinnati Children's Hospital and had a sleep study done.

It was determined that had severe sleep apnea. The next morning

Hi Barb! Did see Dr. Shott??

Thanks,

Laurie

Mom to Bri w/Trisomy 9p and Kayla w/Trisomy 21

------------------------------------------------------------------------------

No virus found in this incoming message.

Checked by AVG Free Edition.

Version: 7.1.409 / Virus Database: 268.15.15/581 - Release Date: 12/9/2006

July 3, 2007

Hi, Colin.

I'm very happy to hear that you had this sleep study run. Sleep apnea

is a very big deal. I have it myself, and have slept with a CPAP

machine for two or three years now (actually now I have an

automatically adjusting CPAP or IPAP, which I like much better). If

you have sleep apnea, I will bet that you will experience benefits

from a CPAP machine much sooner than three months. I did the first

or second day! I think you will be very happy that you finally found

this out. I can tell you that I don't want to sleep even for half an

hour without mine. I have even taken it with a car battery on

camping trips and slept in tents with it. When my first one was

stolen out of my car at a medical conference, I went nine days

without one, and I was very happy to get a replacement. Good for you!

Rich

>

> Hi -

>

> After 4 years of complaining to almost 50 doctors about non-

restortative

> sleep, I have had a sleep study done.

>

> I have moderate to severe sleep apnea, with an oxygenation rate as

low

> as 66% of normal, which the Sleep specialist says is likely

responsible

> for all of my problems, including even my history of strokes...

>

> So now I will begin undertaking a CPAP program, sleeping with a

mask on

> to keep pressurized air in my windpipe, so I can breath at night.

The

> projection is that after 3 months of this I will start to feel

results,

> and perhaps after a year start to reverse the damage of years of

oxygen

> starvation to my body during sleep.

>

> CPAP stands for Continuous Postive Airway Pressure, and involves

> wearing a device strapped to your head while you sleep. This device

> covers either the nose, or nose and mouth both, and maintains a

constant

> pressure of air in the air way while the person sleeps. This

pressure

> prevents the airway from sagging and closing off during sleep, and

> ensures that sufficient oxygen is reaching the body.

>

> It remains to be seen how much this will help me feel better. I am

going

> to start Rich's simplified protocol at the same time, as much as

this

> might confuse the results. If the CPAP takes 3 months to show any

> results, I expect any immediate gains in energy and mood I can

attribute

> to improvements in my methylation cycle. Longer term it will be

harder

> to distinguish which is reponsible. But, if I am feeling better,

who

> cares how I got there!! (as long as I report my findings accurately

to

> this group, which I will).

>

> But this Sleep Specialist thought this condition was likely

responsible

> for everything. Of course, every specialist thinks their specialty

is

> the most important. He said that most Doctors ignore the

possibility of

> this being a problem, and finding nothing else wrong, either refer

the

> patients to anti depressants, or categorize them as loonies, all

the

> while ignoring the large body of scientific work that has been done

> proving the link between sleep problems (which might be unknown to

the

> patient) and health issues.

>

> I thought the CFS community might benefit from my story, and I

would

> love to hear from others with their experiences of going down this

road,

> if indeed anyone has.

>

> Thanks -

>

> Colin

>

July 3, 2007

I have used a CPAP machine for seven years. I sleep well. It doesn't

cure cfs or Lyme. It probably doesn't cure nonrestorative sleep in

cfs either. But if you have sleep apnea CPAP will fix it as long as

you use the machine and probably extend your life.

a Carnes

>

> Hi -

>

> After 4 years of complaining to almost 50 doctors about non-

restortative

> sleep, I have had a sleep study done.

>

> I have moderate to severe sleep apnea, with an oxygenation rate as

low

> as 66% of normal, which the Sleep specialist says is likely

responsible

> for all of my problems, including even my history of strokes...

>

> So now I will begin undertaking a CPAP program, sleeping with a

mask on

> to keep pressurized air in my windpipe, so I can breath at night.

The

> projection is that after 3 months of this I will start to feel

results,

> and perhaps after a year start to reverse the damage of years of

oxygen

> starvation to my body during sleep.

>

> CPAP stands for Continuous Postive Airway Pressure, and involves

> wearing a device strapped to your head while you sleep. This device

> covers either the nose, or nose and mouth both, and maintains a

constant

> pressure of air in the air way while the person sleeps. This

pressure

> prevents the airway from sagging and closing off during sleep, and

> ensures that sufficient oxygen is reaching the body.

>

> It remains to be seen how much this will help me feel better. I am

going

> to start Rich's simplified protocol at the same time, as much as

this

> might confuse the results. If the CPAP takes 3 months to show any

> results, I expect any immediate gains in energy and mood I can

attribute

> to improvements in my methylation cycle. Longer term it will be

harder

> to distinguish which is reponsible. But, if I am feeling better,

who

> cares how I got there!! (as long as I report my findings accurately

to

> this group, which I will).

>

> But this Sleep Specialist thought this condition was likely

responsible

> for everything. Of course, every specialist thinks their specialty

is

> the most important. He said that most Doctors ignore the

possibility of

> this being a problem, and finding nothing else wrong, either refer

the

> patients to anti depressants, or categorize them as loonies, all

the

> while ignoring the large body of scientific work that has been done

> proving the link between sleep problems (which might be unknown to

the

> patient) and health issues.

>

> I thought the CFS community might benefit from my story, and I

would

> love to hear from others with their experiences of going down this

road,

> if indeed anyone has.

>

> Thanks -

>

> Colin

>

July 3, 2007

I see a problem with these sleep studies in that some people probably have

fungal sinusitis in their homes and are in denial so they are quite possibly

going to sleep better if they are somewhere that doesn't have mold..

July 3, 2007

I think you should test the sleep apnea stuff and the yasko simplified

stuff seperately.

why? is so that you will know which is helping you? why? is because

if you dont know which is helping you then you willl end up paying for

the other one for a long time thinking it is helping.

re sleep apnea, are there any symproms of this such as breathing

problems that are noticeable coughing waking up etc? and lacking

these woulod it mean one doesnt have it?

thanks, amy

July 3, 2007

The nice thing about a CPAP machine is that it has a filter so that

all air you breathe at night is filtered. I have no allergies and no

congestion after seven years with a CPAP machine.However, I cannot

even take a 10 minute nap without the machine. My home is not mold

contaminated, but we stay at hotels where the rooms are bad. This is

an issue because then the filter and hoses get contaminated with toxic

mold, and I have time cleaning the machine. But, no, if you have

severe sleep apnea it is not relieved when you clear the mold. Sleep

apnea is either the throat collapsing or the brain not controlling

breathing. Avoiding mold is not going to fix either of those. If your

apnea is caused by the throat closing sometimes surgery will help. I

have been told three times that my throat is clear and no surgery will

possibly help me.

a Carnes

>

> I see a problem with these sleep studies in that some people

probably have

> fungal sinusitis in their homes and are in denial so they are quite

possibly

> going to sleep better if they are somewhere that doesn't have mold..

>

March 17, 2008

I know there are children on here with sleep apnea who are using the c-pap.

My question is how old were they when they started to use one. Micah is 7

and 2 and a half years ago we did sleep study on him. Showed moderate sleep

apnea 9didn't need anyone to tell me lol) took his tonsils and adenoids

out...didn't help. Did another study still has sleep apnea. Doctor put him on

singulair to see if it would help. Seemed to help for a few months and then

back to square one. She wanted to do another sleep study...didn't get a good

one on him cause he is older...stronger..wiser lol! She wanted to send him

back for yet another one but then said that she was going to send him to

orthodontist. Toook him to another sleep center they said it was ridicupus to

put

him through another study. He HAS sleep apnea. Had me call a dentist to find

out about a pallette extender for him. Dentist said he is to little and his

jaw growing so fast they would have to change the device every few weeks.

Said he might be able to have a device called a rapid extender which would

open the mandibular??? quickly. Soundsd painful to me. ANyway he didn't know

if they could even do that but they keep telling me he is to young for the

c-pap. I am at my wits end. None of us are sleeping and haven't for the past

7 years. I know this is affecting him in school. He is exhausted by the

early afternoon. Any advice guys?

Loree

**************It's Tax Time! Get tips, forms, and advice on AOL Money &

Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001)

March 17, 2008

Loree,

I don't know all about the apnea. had it and removing the tonsils

and adenoids helped tremendously. But, I do know about the palate expander.

had one for a while. It helped a lot with opening up the space.

It worked very quickly. (But I am not sure if it's the rapid one you spoke

of). We had to turn the key every other day and in a few weeks, it was

opened to the full extent of that device. Then they put in a permanent

archwire to hold the space they created. That has been in for almost 2

years, I would say. He was 8 when they did it. Creating more space has

helped him with eating/not choking as much. In a few years I think we will

probably do braces and then have permanent retainers put in behind the

teeth. Not sure on that, but it's an option.

It was someone on the list who told me about the palate expander with their

child that helped me decide to do it. I am really glad we did

I wish you the best in figuring out what is best for Micah

Take care,

Kym

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Life may not be the party we hoped for,

but while we are here we might as well dance

March 17, 2008

started on the C Pap at age 12, so he was a little older when he started.

It has helped a lot. The doctors at Childrens Hospital said there are kids a

lot younger who use the C Pap successfully, but I do not know of any personally.

I know that if left untreated sleep apnea can lead to more problems.

still has his tonsils and adenoids and plans to keep them.

Good luck in finding the right treatment (the original mask used was

cumbersome and hard to keep on; the one he has now is much more practical; we

got ours through Apria, which may be a local company).

Dad to , Kristi, and (all three who have Down syndrome) and

(who has Cri du chat)

Husband to C. in Mo.

Uncle Daddy to and in Calif. (both of whom have Down syndrome)

BIL to

Loree5@... wrote:

I know there are children on here with sleep apnea who are using the

c-pap.