test

[Guest guest]

wrote:

>Hmm.... you think things got a bit heated with the " inclusion " discussion?

>Burned out the cyber wires of communication?

>

>

>

Guess we're all busy putting all that information into practice,

whichever way we have chosen to go :-)

I, for one, have been busy trying to educate 's teacher that

" inclusion " does not mean " meet the 2nd grade standards exactly like the

other kids " , though try to do as much towards them as possible! This

teacher, although I think she's fairly inflexible in her classroom

routines, wants to do well, she wants to learn how to include ,

but is looking for more guidance. Thankfully, we had a pretty good

meeting on Monday, and it was the first time I ever felt the inclusion

specialist was really useful. Not that she said anything different than

I said, but you know, she's the specalist and I'm just that old

bullheaded parent :-)

I liked how the inclusion specalist described how to modify work, a

technique she called " scaffolding " . Her approach was to give a child

work you thought they might be able to do (aim high), and if it was too

much " scaffold " down a bit rather than to assume the child needs

modifications or adaptations down to a certain level. Over time,

everyone would understand better exactly where the child was at, and be

better able to estimate their needs. Obviously you didn't want to

frustrate the child by giving too hard of work, but the idea was not to

aim low, and hope the child would " step up " , but rather modify down in

small steps until you hit the level the child was at.

An example of a good modification we discussed is for spelling

sentences. Teacher thinks understands capitilization because

if you ask something like " what do you do at the beginning of

a sentence " , she will reply " start with a capital letter. " Yet, she has

never done it on a test, and rarely does it when doing regular classroom

writing. Good time for me to try to expain to them (again) that her

being able to repeat something, or answer a question about something

does NOT mean that she will actually be able to process that information

appropriately when the need arises, especially when it is coupled with a

difficult process like writing. They seemed to understand it this

time. So, the adaptation is: a sentence strip on her desk (they look

like a mountain, then a flat line, then a period...... mountain part is

in green, period is in red...... this is for a " telling " sentence, they

also have these for " asking " and other types of sentences), and that the

teacher would point to the sentence strip while was writing

her sentences. This is one " scaffold " down, with this non-verbal

reminder. If this isn't successful, we will try " scaffolding down "

again, but the idea being, rather than just not marking her wrong for

incorrect capitlization/punctuation, they will try to allow her to write

it properly (and build good habits), yet she will feel successful. They

also agreed that perhaps there were typical kids in the class who could

benefit from this lesson, so the teacher is going to teach them all the

" sentence strip " method, and then will be able to remind other kids as well.

So one tiny step forward, but I'm hopeful that the teacher will be able

to use this example to make simple modifications like that without

entire team meetings. It was obvious to me after this meeting that the

teacher really did want to include , loves having her in her

class, but wasn't sure how to proceed. Fortunately, she's not afraid to

ask what to do, but I'd imagine there are teachers out there who have no

one to ask, or are unable to ask, and will have a difficult time.

, mom to (9), (7 DS), and (6)

[Guest guest]

> Hmm.... you think things got a bit heated with the " inclusion " discussion?

> Burned out the cyber wires of communication?

I prefer to read it as food for thought topic.......always interesting and

passionate.

[Guest guest]

test

Re: /TC

Hi ,Cam had his TC release when he was 22 mo. and his first cast at 5yrs. His constipation got worse the older he got(along with his curve) Our ortho. said scoliosis and constipation alot of the time go together. We tried everything, diet changes, laxatives, perscription meds. etc. Cam was so happy that the cast fixed his problem, he tells people that the cast fixed his "poo poo problem" He has since lost weight, since the pain doesn't slow him down, and is sooooo much more active! It really was our miracle-cure!Also, when his constipation was at its worse, he would sometimes wet his pants since all the pressure was pushing on his bladder. We had no idea he was so constipated since he would have extremely loose stools, but I later found out that it was a sign. Only the loose would make it through the compact stuff. At the hospital they took an xray, it was a shock to see how bad he was! Well, I'll give ya a break on all of this poop talk! Let me know it ya have any questions, I've become extremely educated on constipation warnings!Take Care! S.-- In infantile scoliosis treatment , Delaney <adelaney4@y...> wrote:>> That is so interesting! Did you decide not to do the> surgery then? I wonder if Owen's constipation is> related to a tc. I attributed it to his g-tube and> likely his hypotonia (low muscle tone) and now I> wonder. Probably there is some grand connection> between all his issues and we just need to find that> missing link!> thanks> allison> > --- heathersprigg <heathersprigg@y...> wrote:> > > Hi ,> > > > > > When we first found out about Cams tethered cord,> > the doc. told us, > > that a lot of times the first signs of a TC will be> > the child, who > > was already potty trained, starts losing control. > > Anyway, Cam had > > terrible constipation, he was even put in the> > hospital once for the > > pain. Nothing worked, until he was casted! Within> > a couple days of > > the cast being put on he was regular! And has been> > ever since. > > Their only explanation was that the cast must have> > moved something > > out of the way. Anyway, just thought I'd share!> > > > S.--> > > > > > > > > > > > - In infantile scoliosis treatment , Carmell> > Burns > > <cjbmom23@y...> wrote:> > >> > > Hi ,> > > > > > Good luck with your neurosurgeon appointment. I> > hope> > > the nsg can clarify how a thickened filum affects> > > Owen. Braydon had a thickened filum. More> > details> > > below.> > > > > > <<We are also seeing a urologist for urodynaimc> > > testing- has anyone else done this? how do you> > test a> > > non-potty-trained toddler (19 mo) for bladder> > > incontinence?>>> > > > > > A urodynamic test (also called CMG) is a bit> > invasive.> > > They fill the bladder with fluid and place> > electrodes> > > around the genital area (including rectum) to> > monitor> > > the nerve function. The test uses sonar-type> > > equipment (not sure how to explain it better - my> > > brain isn't working well today). They watch the> > nerve> > > waves on a screen to determine the function. If> > the> > > bladder is filled to the point of making it spasm,> > > they monitor how much fluid was required to get to> > > that point. That's just one example of what they> > do. > > > They also have the patient empty the bladder and> > watch> > > to see how the nerves function during elimination.> > On> > > an infant, they may not get exact measurements,> > but at> > > least you will have a baseline for the future.> > > > > > <<Has anyone out there decided to do the surgery> > and> > > found that there was no tether?>>> > > > > > Nope, Braydon had pre-surgery symptoms> > (occasionally,> > > not constant). When they did the surgery, the> > spinal> > > cord sprang into place like a stretched rubber> > band> > > being released. > > > > > > <<Any cases of the cord retethering?>>> > > > > > Fatty/thickened filum release surgery is the most> > > straightforward and basic of the neurosurgery> > > procedures. I'm not discounting that its still> > > serious, but to a neurosurgeon, this is pocket> > change.> > > Our neurosurgeon has seen many patients over many> > > years. He has only seen 1-2 true fatty filum> > patients> > > re-tether. Braydon has not re-tethered. He is> > now> > > 10yrs old. The biggest chance of him re-tethering> > > will be during his adolescent growth spurt.> > > > > > <<Does anyone regret doing the surgery?>>> > > > > > Absolutely not. Braydon's quality of life> > improved> > > after his TC release. He grew 3 inches and gained> > 3> > > pounds in 6 weeks after his surgery. It was> > almost> > > like his body was able to thrive again. (He was> > > almost 4yrs old at the time of his release.)> > > > > > <<Oh, i guess the constipation is also a> > symptom.>>> > > > > > Constipation can play a big part in bladder> > function. > > > If there is chronic constipation, all that stool> > > presses on the bladder and can trigger spasms> > (often> > > painful). The spasms aren't good because every> > time a> > > spasm happens, it toughens the bladder wall and> > over> > > time can make it be too thick and not empty> > > completely. This is not good. Keeping the> > > constipation under control is very important. Do> > you> > > have a bowel management plan to keep Owen> > "moving"? > > > > > > Carmell> > > > > > > > > mom to Kara 19, idiopathic scoliosis, Blake 15,> > GERD and Braydon > > 10, VACTERL, GERD, DGE, Titanium Rib Project patient> > #137 (dbl > > implant 8/01), thoracic insufficiency, rib> > anomalies, congenital > > scoliosis (fusion surgery 5/96), missing coccyx,> > fatty filum/TC > > (released 4/99), anal stenosis, chronic> > constipation, horseshoe > > (cross-fused) kidney, dbl ureter in left kidney,> > ureterocele > > (excized 6/95), kidney reflux (reimplant surgery> > 1/97), neurogenic > > bladder, bilateral hip dysplasia, right leg/foot> > dyplasia, tibial > > torsion, clubfoot with 8 toes (reconstructed 2/96,> > 3/96, 1/97, > > 3/04), pes cavus, single umblilical artery,> > tonsil-adnoidectomy and > > ear tubes (3/98), etc.> > http://carmellb-ivil.tripod.com/myfamily/> > > > > > > > > > > > __________________________________ > > > FareChase: Search multiple travel sites in> > one click.> > > http://farechase.> > >> > > > > > > > > > > > > > > __________________________________ > FareChase: Search multiple travel sites in one click.> http://farechase.>

[Guest guest]

In a message dated 2/20/2006 4:16:28 PM Eastern Standard Time,

mymacfamily@... writes:

test 2:15pm

Test score 100!!

[Guest guest]

I read ya Kay!

Sheri B.

Kay Philpot <kay8889@...> wrote:

Testing to see if my account is still working.

Kay P.

---------------------------------

Use Photomail to share photos without annoying attachments.

[Guest guest]

Bad Gateway: The message has been attached.

[Guest guest]

test

Re: Tyler Terry

Tawney,

Terry's story has been an inspiration to me and my husband since we discovered the website about 9-10 months ago, and your post touched my heart. My son Jake (now 21 months old) has been in a cast since Nov 2005, and his curve at its highest was 33o. Now in his 3rd cast (with 2 curves at 4o and 3o respectively), we await our appointment in Boston to have it cut off. May 17th is fast approaching, and I am getting nervous. They will put him in a Boston brace. Our doc from Erie suggested 23 hours a day for a year (I freaked because I thought Mehta only uses it for 6 months if it holds.), but I don't know what the doc in Boston will say/do. I worry and obsess about Jake coming out of casts and now relying on a brace to hold him straight. I also worry about growth spurts in and out of brace. My son is a tall boy already (36" at his 18 month visit). My husband is 6'3" and I am 5'9", so I know Jake has A LOT of growing to do! I know I will worry and obsess about his back until he reaches skeletal maturity. I'm also sure I will watch his spine like a hawk at every bath. It will be a long road. We can all feel your frustrations, and I'm very sorry you didn't get better news at your last appointment.

Sending good thoughts your way,

mom to and Jake

P.S. Jake was evaluated for connective tissue disorder as well. We did not get a definitive diagnosis but were told he probably had a mild case of Ehlers Danlos Syndrome. tawneyterry <tawneyterry@...> wrote:

Hello Everyone,Most of you don't know me since its been awhile since I have been on the group. But I am back and anxious to get back in touch with everyone. I have four year old identical twin boys one with infantile scoliosis. Tylers story is on the website. He has been on and off in casts and braces for the last three years. He has also had periods of time with no support on his back (doctors didn't think he needed)He has had great results when put in the casts but I feel always taken out prematurely. He has went up and down and each time put back in a cast. His worst curve was in the 40's with a RVAD of 49. Just six months ago Tyler was at a 4 to 6 degree curve with RVAD of around 0 to 3. The doctors said they did not even consider this scoliosis. So we were pretty excited. We at that time were given a brace to wear part time and to lessen the hours little by little. We were told he didnt need to get a brace at all it was up to us. We did good for a few months but really thought he was fine so he has been without any support for around four months now. We just returned from SLC last week and he has around a 20 degree curve with a RVAD in the 20's or 30's. For some reason the doctor did not measure the RVAD and just estimated this time. His ribs do not look good at all. I watch his back like a hawk and for so many months his back was stable. The last month it seems to be changing everyday. Just a few weeks ago I could only see his rib hump if he turned certain ways or bent over. Now it is clearly visable with him just standing straight. We go back in two weeks and get a brace. At that time I am going to request the doctor measure the RVAD. I asked the doctor for a cast and at this time he wants to go with the brace. Of course I am scared. He obviously needed to stay in support for a lot longer. Now that he is 4 1/2 I am scared he will not correct as easy as he has in the past. When we go back I am going to talk to the doctor once again about another cast but I thing he is pretty set on trying a brace first. Tyler's curve has stayed stable for long periods of time but when he does start curving again its amazing how fast he curves. It's very frustrating. Thanks for listening to me vent. Hope to get to know everyone and to reconnnect with you guys that I havent spoken to in so long.Take care Tawney

[Guest guest]

Hi,

Your test was successful. Your message got through to the group list.

Love always,

Pat

larneson2003 wrote:

>This is just a test

>

>

>

>

>

>

>

>

>

>

>What can changing the way you breathe do for you? Everything!

>See why tens of thousands agree, Life Lift is the best! http://www.lifelift.net

>

[Guest guest]

Hi ,

You came through!

Dorothy

Dorothy McCall, Cert. Aroma.

Kingsbury Fragrances

The Royal York

3955 Bigelow Blvd. Ste. 907

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(412) 687-2720

www.kingsburyfragrances.com

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[Guest guest]

Hi ,

Received your email.

Stype

Arlys Naturals

_www.arlysnaturals.com_ (http://www.arlysnaturals.com)

[Guest guest]

I actually find going individual mail and letting outlook express get my

mail for me is a lot easier then going to the web or digest. I was on dial

up for years and it was still easier. I have heard a lot of people goes to

the web to read their mail but have never really understood why. I guess

there is something I don't know about other ISP servers. I hope you get your

mail fixed the way you want it. Well I gotta go grab some Cheerios. I just

got up and havent had breakfast yet. Have a good day.

> This is a test. Seems I may have to go up and go individual mail so I'm

> setting up filters so

> my lists have their own individual emails.

[Guest guest]

i have my sent to my email. i set up a name on gmail ( google mail) just for my groups.. and with google all replies to indivisual emails are put together then when i click on a subject i can chose to see the replies or i can delete everything in the subject..

gmail.com is by invite only but if any one wants an invite.. its free

On 6/30/06, <sandra.mygroup@...> wrote:

I actually find going individual mail and letting outlook express get my mail for me is a lot easier then going to the web or digest. I was on dial up for years and it was still easier. I have heard a lot of people goes to the web to read their mail but have never really understood why. I guess there is something I don't know about other ISP servers. I hope you get your mail fixed the way you want it. Well I gotta go grab some Cheerios. I just got up and havent had breakfast yet. Have a good day.

> This is a test. Seems I may have to go up and go individual mail so I'm > setting up filters so> my lists have their own individual emails.

-- Love Ya,~~

[Guest guest]

,

I use gmail for my diet groups, but I have everything going to Outlook Express at work and Outlook 2006 for at home. I think it's great. I never had any problems with or Google.

Re: Test

i have my sent to my email. i set up a name on gmail ( google mail) just for my groups.. and with google all replies to indivisual emails are put together then when i click on a subject i can chose to see the replies or i can delete everything in the subject..

gmail.com is by invite only but if any one wants an invite.. its free

On 6/30/06, <sandra.mygroup@...> wrote:

I actually find going individual mail and letting outlook express get my mail for me is a lot easier then going to the web or digest. I was on dial up for years and it was still easier. I have heard a lot of people goes to the web to read their mail but have never really understood why. I guess there is something I don't know about other ISP servers. I hope you get your mail fixed the way you want it. Well I gotta go grab some Cheerios. I just got up and havent had breakfast yet. Have a good day.

> This is a test. Seems I may have to go up and go individual mail so I'm > setting up filters so> my lists have their own individual emails.

-- Love Ya,~~

[Guest guest]

I've got 4 gmail accounts, 4 isp accounts, 2 hotmail accounts and 2 hotpop accounts. LOL I know....I'm a email junkie. LOL All of my accounts are checked in outlook express. I have 13 different and google groups going to them and all my personal mail. I wonder why my kids tells me I need to get a life?

,

I use gmail for my diet groups, but I have everything going to Outlook Express at work and Outlook 2006 for at home. I think it's great. I never had any problems with or Google.

[Guest guest]

I'm ashamed to tell you how many email accounts I have between , excite, hotmail, gmail, care2 and AIM <sandra.mygroup@...> wrote: I've got 4 gmail accounts, 4 isp accounts, 2 hotmail accounts and 2 hotpop accounts. LOL I know....I'm a email junkie. LOL All of my accounts are checked in outlook express. I have 13 different and google groups going to them and all my personal mail. I wonder why my kids

tells me I need to get a life? , I use gmail for my diet groups, but I have everything going to Outlook Express at work and Outlook 2006 for at home. I think it's great. I never had any problems with or Google. -Sapphyre Feel Free to Visit: www.geocities.com/asmallersapphyre www.livejournal.com/users/changescomin www.geocities.com/mothernatureschyld

Want to be your own boss? Learn how on Small Business.

[Guest guest]

Hi ,

Blessings to you, too, my dear LL friend!!!

Love always,

Pat

Rettig wrote:

>Blessings

> R

>

>

[Guest guest]

> I actually find going individual mail and letting outlook express get my

> mail for me is a lot easier then going to the web or digest. I was on dial

> up for years and it was still easier.

I'm *still* on dial up, connecting at the highest speed of 32kbps, and still

find it easier than reading on-line.

Sue in NJ

[Guest guest]

>I've got 4 gmail accounts,

Only 3 for me, so far.

> 4 isp accounts,

7 for me, between 3 different ISP's.

>2 hotmail accounts and 2 hotpop accounts.

None of these, but other web-based accounts, including byzantines.net,

excite.com, 5 different accounts, and a few email accounts on various

hobby BBSes I still belong to. Luckily I don't use most of them or I would

really go nuts! LOL

>I wonder why my kids tells me I need to get a life?

Henry just comes out and shakes his head whenever I start something new

on-line, like another blog, or Flickr account or join anothe rmessage board.

Now that he's home for the summer he saw why my neck and shoulder keep

acting up. He's knows I'm going batty not being able to spend more time

on-line until this all heals up again.

Sue in NJ

almost out of time for today and still over 100 messages behind for this

list alone

[Guest guest]

>> I actually find going individual mail and letting outlook express get my

>> mail for me is a lot easier then going to the web or digest. I was on

>> dial

>> up for years and it was still easier.

>

> I'm *still* on dial up, connecting at the highest speed of 32kbps, and

> still

> find it easier than reading on-line.

>

I know where you are coming from on the dial up. We just have had dsl lite

for about 6 months I reckon. We are with Bell South and we had dial up and

also had call wave so we wouldn't miss a call while on the internet. Well.

after adding those two together we was only 4.00 away from the price of the

dsl lite. When I found they out we signed up so fast it wasn't even funny.

$4.00 more is well worth it for the faster always on service and the

convience of always having the phone line open. But Outlook express to me

has always been the best choice for checking mail. I mean it's free, it's

handy and stats come though as they should. I also got a program called hide

oe. It keeps outlook on all the time so my mail is constantly being checked

and it is ready and waiting on me to read it.I just cannot ever imagine

going to a website to read mail when Outlook is so easy.

[Guest guest]

> >I've got 4 gmail accounts,

>

> Only 3 for me, so far.

I love gmail:)

>> 4 isp accounts,

>

> 7 for me, between 3 different ISP's.

We was allowed 5. But I was nice and allowed my hubby to have one of them:)

>>2 hotmail accounts and 2 hotpop accounts.

>

> None of these, but other web-based accounts, including byzantines.net,

> excite.com, 5 different accounts, and a few email accounts on

> various

> hobby BBSes I still belong to. Luckily I don't use most of them or I would

> really go nuts! LOL

>

Actually I have 3 hotmails. I forgot about one. And I have my account

but it is what I call my spam account. I use that addy to sign up on the

internet for memberships, sending greeting cards etc.... That way spam

robots will get addy and it keeps other accounts spam free most of the

time.

>>I wonder why my kids tells me I need to get a life?

>

> Henry just comes out and shakes his head whenever I start something new

> on-line, like another blog, or Flickr account or join anothe rmessage

> board.

> Now that he's home for the summer he saw why my neck and shoulder keep

> acting up. He's knows I'm going batty not being able to spend more time

> on-line until this all heals up again.

>

I know what you mean. My son says I have enough tags, stationery, and psp

tubes that I could use 20 different ones a day and still not use the same

tag twice in 10 years.

>

[Guest guest]

Back at ya Pat!

R

Re: test

Hi ,

Blessings to you, too, my dear LL friend!!!

Love always,

Pat

Rettig wrote:

>Blessings

> R

>

>

[Guest guest]

What a sweetheart you are, !! You have a heart that is as pure as

gold and just as precious!!! Please remember that give Jake all my

love, and of course, you have it, too!!! But, I think that by now that

goes without saying!!!

Love always,

Pat

Rettig wrote:

>Back at ya Pat!

>

> R

> Re: test

>

>

> Hi ,

>

> Blessings to you, too, my dear LL friend!!!

>

> Love always,

> Pat

>

> Rettig wrote:

>

> >Blessings

> > R

> >

> >

[Guest guest]

You are special PAt

R

Re: test

>

>

> Hi ,

>

> Blessings to you, too, my dear LL friend!!!

>

> Love always,

> Pat

>

> Rettig wrote:

>

> >Blessings

> > R

> >

> >

[Guest guest]

You are very special yourself, sweetheart!!!

Love always,

Pat

Rettig wrote:

>You are special PAt

> R

> Re: test

> >

> >

> > Hi ,

> >

> > Blessings to you, too, my dear LL friend!!!

> >

> > Love always,

> > Pat

> >

> > Rettig wrote:

> >

> > >Blessings

> > > R

> > >

> > >

[Guest guest]

test

parents magazine

> > >

> > > i forgot to post that in the july parents

> magazine

> > > in one of

> > > the front sections that are very small short

> > > segments that

> > > they mentioned there is a rise in infantile

> > > scoliosis cases.

> > > i've been meaning to scan it in and post it but

> > > haven't gotten

> > > around to it. i can't find the same thing on

> their

> > > website

> > > otherwise i would post the link. the doc they

> > > interviewed, i

> > > had never heard of. if i'm remembering

> correctly,

> > > they also

> > > said that usually it resolves, but nothing else

> > > about

> > > treatment if it doesn't.

> > >

> > > deshea

> > >

> > > [Non-text portions of this message have been

> > > removed]

> > >

> > >

> >

> > [Non-text portions of this message have been

> removed]

> >

> >

> >

>

> [Non-text portions of this message have been

> removed]

>

> [Non-text portions of this message have been

> removed]

>

>