Guest guest Posted December 10, 1999 Report Share Posted December 10, 1999 What is your dose and freqeuncy of injections? I'm ionterested in tryin them again with the rst of my protocol. I tried them by themselves five years ago without any difference. Phil berry@... wrote: > From: berry@... > > I am currently taking the high dose B12 injections recommended by Cheney. I haven't really noticed any detox symptoms or that my sleep is any better or worse - it hasn't been one of my big problems anyway. Has anyone had this " non-reaction " to the B12 injections? > Thanks M- > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 1999 Report Share Posted December 11, 1999 Phil, My experience has been as follows: at first I took 5000 mcg hydroxycobalamin every day at bedtime. After about 6 months I cut back to the same amount every other day. Now, I confess, I usually miss a day a week. Not sure if it helps with my sleep, but it does help with my tremors. in North Carolina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2000 Report Share Posted March 16, 2000 In a message dated 3/16/2000 10:35:19 AM Eastern Standard Time, jamesinspace@... writes: << Does he, I didn't know this, guess I skipped straight to step 2! I had a blood test a couple of years ago and my B12 status was fine but I understand that it can still be depleted elsewhere in the body. >> According to a study Cheney sent me, B12 has been shown to be normal in the blood of PWCs, yet not so in the spinal fluid, and this has significant impact. :-) Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2000 Report Share Posted March 16, 2000 Dear Jane, Could you please post the reference for this study? I can't get my dr to listen to this!! -Theresa >According to a study Cheney sent me, B12 has been shown to be normal in the blood of PWCs, yet not so in the spinal fluid, and this has significant >impact. > >Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2000 Report Share Posted August 1, 2000 In a message dated 8/1/00 4:45:58 PM Central Daylight Time, egroups writes: << >Does any one know of a good and inexpensive source for b12 (hydroxy- or >methyl-) for IM injection? 1000mcg's is fine. with thanks to Hud R. - 's Natural Pharmacy (in Ontario - don't need scrip)416-488-2600, $40 US (+ $8 S & H)for 50 ml at 10,000mcg/mL >> I believe that Hud said that one DOES need a script for hydroxy, but you can get cyano without one. It is hard for me to believe that any doc wouldn't write a script for hydroxy. I believe the relevant info to take to a doc can be found on Carol S's site for the DFW CFIDS support group. I am not going for the hydroxy now as I really haven't had much benefit from 3cc's of cyano. If anyone else noticed a substantial difference from switching to hydroxy from cyano, pls let me know. Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2000 Report Share Posted August 1, 2000 > with thanks to Hud R. - 's Natural Pharmacy (in Ontario > - don't need > scrip)416-488-2600, $40 US (+ $8 S & H)for 50 ml at 10,000mcg/mL > >> > I believe that Hud said that one DOES need a script for > hydroxy, but you can > get cyano without one. I just bought methyl-cobalamin from 's without a script. Thanks Hud!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2000 Report Share Posted August 1, 2000 Just in case any one is in NJ, (though they ship nationally) I get my Hydroxy B12 from Hopewell Pharmacy in Hopewell NJ (near Princeton). It is 30 ml, each 1000 mcg per ml for 30 dollars. Their number is 609 466 1960. They may also have a toll free number. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2000 Report Share Posted August 1, 2000 Mike, Cyano did nothing for me. I did it for at least 6 months. With hydroxy I noticed an improvement. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2000 Report Share Posted August 1, 2000 > I am not going for the hydroxy now as I really haven't had much benefit > from 3cc's of cyano. If anyone else noticed a substantial difference from > switching to hydroxy from cyano, pls let me know. I have sublingual 2500mcg cyano- tabs which do nothing. About two hours after a 1000mcg hydroxy- injection, I feel generally much better, but it doesn't last. -- spaceboy@... (david in NZ) " ...my fever burns me deeper than I'll ever show... " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2000 Report Share Posted August 3, 2000 Hi, Methylcobolamine should be the B12 of choice if available. It is the active form and is the most bioavailable especially if you don't have a lot of methyl groups floating around. ---------------------------------------------------------------- > << >Does any one know of a good and inexpensive source for b12 (hydroxy- or > >methyl-) for IM injection? 1000mcg's is fine. > > with thanks to Hud R. - 's Natural Pharmacy (in Ontario - don't need > scrip)416-488-2600, $40 US (+ $8 S & H)for 50 ml at 10,000mcg/mL > >> > I believe that Hud said that one DOES need a script for hydroxy, but you can > get cyano without one. It is hard for me to believe that any doc wouldn't > write a script for hydroxy. I believe the relevant info to take to a doc can > be found > on Carol S's site for the DFW CFIDS support group. > > I am not going for the hydroxy now as I really haven't had much benefit > from 3cc's of cyano. If anyone else noticed a substantial difference from > switching to hydroxy from cyano, pls let me know. > > Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2000 Report Share Posted August 3, 2000 The sublingual (under the tongue) form of methylcobalamin B12 is really not all that expensive, especially if you wait for a buy two get one free deal which immunesupport.com seems to have a lot. Plus no needles to buy or use. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2000 Report Share Posted August 5, 2000 Hi, Not only is it inexpensive, but studies I have read found that similar levels are achieved in the blood stream as injectables. Immunosupport.com carries a product, I think its called Neuro B12 or something like that and is 5mg/sublingual tablet. Ten mg/day has found to provide neuroprotective effects. ------------------------------------------------------------ > The sublingual (under the tongue) form of methylcobalamin B12 is really > not all that expensive, especially if you wait for a buy two get one > free deal which immunesupport.com seems to have a lot. Plus no needles > to buy or use. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2000 Report Share Posted August 19, 2000 I have had blood tests on b12. My blood count was always 4 to 5 times the norm. Does anyone know what and why this is happening ? Thanks Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2000 Report Share Posted September 21, 2000 Al, Is there a sublingual form of hydroxycobalamin b-12? If so, tell me where I can get it. Other b-12's of limited usefulness. Steve B B12 > > Contrary to popular belief , a recent Medical study determined that the sublingual forms of B12 were just as effective as B12 injections ! So I wonder if Dr. Cheney knows about the new study and if he will discontinue using injectables. > Sorry pharmacists if we reduce your income with this news! > Why waste money on injectables? > Al > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2000 Report Share Posted September 21, 2000 Al: Are you sure that the studies found that it worked as well in the body, and not just that it gets into the blood stream just as effectively? << Contrary to popular belief , a recent Medical study determined that the sublingual forms of B12 were just as effective as B12 injections ! So I wonder if Dr. Cheney knows about the new study and if he will discontinue using injectables. Sorry pharmacists if we reduce your income with this news! Why waste money on injectables? Al Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 on 9/21/00 10:19 PM, Al Melillo at melillo3@... wrote: > Contrary to popular belief , a recent Medical study determined that the > sublingual forms of B12 were just as effective as B12 injections ! So I wonder > if Dr. Cheney knows about the new study and if he will discontinue using > injectables. > Sorry pharmacists if we reduce your income with this news! > Why waste money on injectables? Al, I see your point, but there are a few caveats to keep in mind. One, that study (and others before it) measured B12 in the blood, NOT the brain or spinal fluid. Two, the sublinguals tend to have undesirable ingredients like sugars and unhealthful oils, to name a few (someone else mentioned a problem with the sorbitol/mannitol in the MethylB12 from immunesupport.com). Plus, I'm not so sure it's that much more expensive to buy injectible vs. sublingual. Just some thoughts... Hud Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 There was a question on why to take injectable B12, when sublingual was easier to take, and required no prescrition. For me , injectable B12 (I prefer the 5000mcg/cc Methlycobal.), the injectable B12's work better for me because , the sublingual forms agravate my allergies very badly. But, the injects. don't bother me at all. Don't know why this, just that it is. Have the same experience w/ glandulars, as well. Very allergic to oral liver extract, and oral adrenal cortex, but taking the injectables of the same, bothers me not at all. Go figure. Maybe this helps someone else. Zippy890@... http://homestead.juno.com/jtg63/index.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 Hi , I don't remember and the study appeared on co-cure.org. It's on my other computer which is in the shop. I'll post it when I get the computer back. Al Re: B12 > > Al: > Are you sure that the studies found that it worked as well in the body, > and not just that it gets into the blood stream just as effectively? > > > << Contrary to popular belief , a recent Medical study determined that > the sublingual forms of B12 were just as effective as B12 injections ! > So I wonder if Dr. Cheney knows about the new study and if he will > discontinue using injectables. Sorry pharmacists if we reduce your > income with this news! > Why waste money on injectables? > Al > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 In a message dated 9/22/2000 1:43:38 AM Pacific Daylight Time, hudr@... writes: << , the sublinguals tend to have undesirable ingredients like sugars and unhealthful oils, to name a few (someone else mentioned a problem with the sorbitol/mannitol in the MethylB12 from immunesupport.com). >> Fwiw, the nutrisorb b12 ( sublingual hydroxycobalamin) has the following ingredients: hydroxycobalamin in a stabilized aqueous base (in other words, water). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2001 Report Share Posted January 8, 2001 There's an interesting article about B12 at: www.lef.org/magazine/mag2000/dec2000_report_b12_1.html It does more for our symptoms than detox. Most of us probably have elevated homosysteine and " people with elevated homosysteine can't think. " It also says that " Methylcobalamin is considered 'bioactive' which means that it doesn't have to undergo any chemical reactions in the body before it starts working. " Another article I read recently said that all other forms of B12 are converted into methylcobalamin before it is used by the body. My nutritionist told me I should use methylcobalamin and the more I read, the more I understand why he said that. BB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2001 Report Share Posted January 8, 2001 <<< It also says that " Methylcobalamin is considered 'bioactive' which means that it doesn't have to undergo any chemical reactions in the body before it starts working. " Another article I read recently said that all other forms of B12 are converted into methylcobalamin before it is used by the body. My nutritionist told me I should use methylcobalamin and the more I read, the more I understand why he said that. BB I'll bet there's good reasoning behind Cheney's recommending hydroxy, but I wonder if we couldn't take both together just to cover all bases.? Or maybe mixing them together would convert all the hydroxy to methyl. I'll ask my doctor tommorow if I have time, which is doubtful. E. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2001 Report Share Posted May 8, 2001 In a message dated 5/8/01 7:50:17 PM Eastern Daylight Time, philcome@... writes: > The main point of my > question is which do I consider to be more accurate; electroacupuncture > which indicates that my body does not want any form of B12 or my amino > acid profile that recommends B12? One is measuring chemically and the > other energetically. I can muscle test myself with b12(methyl > sublingual) and it doesn't test as needed but other things like enzymes > Phil, I have had allergy testing for immediate and delayed allergies, had 9 months of airborn allergy shots and avoided foods I was tested allergic to and could never tell any difference in any of it. I never even knew I had allergies until being tested. Cheney and Lapp say that 80% of their patients benefit by taking high dose B12 injections even if their blood shows normal levels. Why don't you just inject and if it helps then continue, if not then don't. I will be trying high dose in about 9 days and I will see for myself as well. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2001 Report Share Posted June 16, 2001 I was the someone. It's McGuff Compounding Pharmacy. I'm flat on my back (big time end of the day exhausted) so can't give you their 800 # but will tomorrow. If you know how to do archive searching I wrote a comprehensive thing on the Bl2 business and McGuff, with their prices and other issues. If in my end of week weariness I don't post this, please write to me backchannel and remind me. However, another way you can get their 800 # is 800 info. Judith Fastest way to get my attention is to write me at my other address: wisdomjf@... On Thu, 14 Jun 2001 18:46:17 -0000 wyomin@... writes: Quite some time ago someone on this list found a pharmacist in southern california who would formulate the concentrated hydroxycobalamine that cheney recommends (for a reasonable price). Does anyone remember anything about this? Who I could contact? thanks, jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2001 Report Share Posted June 17, 2001 It is Mc Guff pharmacy in Santa Ana toll free (877)- 444-1133. Just got some a couple weeks ago, they were great. Need type you want eg hydroxy, strength, quantity and with or without preservatives on prescription. I got 30 ml of 10,000mcg/ml hydroxycobalamine w/out preservatives for about $32 including shipping to NJ. I THINK it's helping some of my Lyme induced brain fog.... tansy B12 > Quite some time ago someone on this list found a pharmacist in southern california who would formulate the concentrated hydroxycobalamine that cheney recommends (for a reasonable price). Does anyone remember anything about this? Who I could contact? thanks, jo > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2001 Report Share Posted June 28, 2001 and you don't need a prescription to buy sublingual B12 tablets. [Patti] You can buy injectable B-12 without a prescription (both cyanocobalamin and hydroxycobalamin - maybe methyl also) in Canada. Americans can order from a pharmacy there and have it shipped to the US. I bought B-12, both cyano_and Hydroxy_ twice without any problems. Patti -- Quote Link to comment Share on other sites More sharing options...
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