B12

[Guest guest]

Now

I take 18 mcg as part of my multi, which the label says is 300% RDA.

De

Re:

Re: coming off treatment/ question

How much vitamin B12 do ya'll take??if any??..just wonderin...hugs,

patty

[Guest guest]

Now

I take 18 mcg as part of my multi, which the label says is 300% RDA.

De

Re:

Re: coming off treatment/ question

How much vitamin B12 do ya'll take??if any??..just wonderin...hugs,

patty

[Guest guest]

What kind of diet are you on? If you are a vegetarian then you have to

watch & /or supplement B12 & Iron. I am a vegan (no meat or dairy) so I

supplement B vitamins with this excellent source:

http://www.rawguru.com/store/raw-food/living-vitamin-b-nano-plex-2-oz.html

It is expensive but awesome, it makes me feel calmer & stronger with more

energy. Still any B multi vitamin supplement should help & I don't see why

you need the injections. Also nutritional yeast (found in health food

stores) is a great source of B vitamins as well as a complete protein

source.

With potassium apple cider vinegar (braggs brand) is very high in potassium

as well as bananas, avocados and potatoes. If I were you I would just alter

my diet & natural supplements & forgo the doctors' chemical plans. :-)

Hope this helps.

On 1/5/10 6:36 PM, " hispunk_4_ever " <hispunk_4_ever@...> wrote:

> I had to have a blood test last time I was at the ER and they said a few

> things were low, they were vague but wanted me to get my blood tested again so

> I did. My B12 and Iron was low, first off is this common? Secondly, i've been

> having to have B12 injections so far i've had two the first one gave me bad

> muscle cramps and then after today's I feel like i'm in terrible pain. My toes

> keep curling up underneath and it hurts to straighten them and my fingers are

> doing the same thing, I can't function like this, I start my last semester of

> college next Monday so can anyone tell me if they have any ideas or advice. I

> talked to the nurse and they say its not the B12 it's potassium so now they

> want me to take potassium as well. So is it common for B12, Iron, and

> Potassium to be low in SMA patients. Any advice or words of comfort would be

> appreciated right now thank you.

>

>

>

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[Guest guest]

I'm not sure how common it is in SMA, but I know of a few SMAers who have

a history of low K (potassium) like me. I also take the diuretic Lasix for

swelling. which can deplete K. I mix a daily supplement of K into my tube

feeds, and have my K monitored every 3 months or more when low. I believe

there have been times when my hands tremor and I lack the fine motor

skills to do things like type with one finger when my K was low. I also try to

eat K rich foods like potatoes and bananas as much as I can.

Kimi

In a message dated 1/5/2010 7:37:06 P.M. Eastern Standard Time,

hispunk_4_ever@... writes:

I had to have a blood test last time I was at the ER and they said a few

things were low, they were vague but wanted me to get my blood tested again

so I did. My B12 and Iron was low, first off is this common? Secondly, i've

been having to have B12 injections so far i've had two the first one gave

me bad muscle cramps and then after today's I feel like i'm in terrible

pain. My toes keep curling up underneath and it hurts to straighten them and my

fingers are doing the same thing, I can't function like this, I start my

last semester of college next Monday so can anyone tell me if they have any

ideas or advice. I talked to the nurse and they say its not the B12 it's

potassium so now they want me to take potassium as well. So is it common for

B12, Iron, and Potassium to be low in SMA patients. Any advice or words of

comfort would be appreciated right now thank you.

[Guest guest]

Yes, I think it went like this for a lot of us sue.

We need B12 for our brains and nervous systems, but what happens is it gets

oxidised by the toxins and so is not available to drive the methylation cycle.

" Hijacked by toxins " is how Rich Van Konynenburg has expressed it, I think.

I have been doing some kind of B12 supplementation for three years now. I was

doing shots of 25ml/mg .. 2 or 3ccs a day for a while.. which I think is quite

high dose.

And I believe I may have reached the point Amy Yasko talks about where cobalt

peaks on a Urine Toxic Elements test from say Doctors Data or wherever, and then

you begin to detox really easily.. in other words you really start to dump all

those toxins and metals you have accumulated from years of a non-functioning

detox system due to a broken methylation cycle.

I still need to run tests to confirm this, but at the moment I seem to detox

very easily, even on L carnitine, magnesium and co q 10.. ie mitochondrial

supports.

I took a shot of 1000 mcg/,ml B12 last week and that was hard to tolerate.. and

I think that is way lower than the amounts of B12 I was taking before.. so that

tells me, (if I have this right) that I have much less tolerance for B12 than

before.

Long way of saying I think we need B12, don't be put off because it seems to be

doing nothing.. but it needs to be part of a larger program & apparently it can

take years to get it where you need it.. depending of course on what else you

are doing (chelation, antimicrobials, antivirals, gut support etc.).

HTH

Cheers

L.

>

> same thing happened when i first took b12. i felt NORMAL for a few hrs..brain

fog GONE. i was jumping up and down so happy....but it never worked again.

>

>

>

>

> ________________________________

> From: susan letteer <sletteer@...>

>

> Sent: Wed, January 20, 2010 5:24:34 PM

> Subject: (unknown)

>

>  

> as per fredd on the b12 thread i was taking enormous amounts of methyl and

adeno. the first day i went from feeling like i was dying to just ordinary cfs.

definitely helped at first. then nothing, no further improvement. i have cut way

back to 3000 adeno /day. started end of august.

> susan

>

>

[Guest guest]

There is truth to this. I did the b12 injections for several months this year.

Except for my daughter seeming happier, I saw no visible differences and we were

on daily shots. Also, I had her on the various other bs for almost a month

prior to starting the shots. Since she has always had trouble with the b

vitamins, I introduced each one individually and set them all up except for b6

which has always been a problem. Well, a couple of months ago, I tested her and

her folate was very high, as was her b6. Not only that her uric acid levels

were very high which can happen with niacin supplementation. I think with

supplementation it is important to test regularly. Btw, the doses of

supplements that I use are not even very high, in fact, would be considered low

by most people.

Anyway, my point was that I started out with the idea that all the bs needed to

be supplemented and actually found that supplementation seems to throw them all

off kilter for my daughter.

Best wishes,

Radhe

>

> this is from a biassed source (ie health food shops who want to sell

> health food products) but I assume that the info it provides is not

> actually wrong and it would give you a basis for checking out B12 safety.

>

> Most Bvits work together and the usual thing to say is make sure you

> take them all or you will give your child a deficiency in one of the

> others. The other B vits are water-based so easily lost from the body. I

> think B12 is different but I haven't checked.

>

> What sort of test shows a B12 deficiency?

>

> Sally

>

[Guest guest]

SALLY! VERY nice to see you. Welcome back!

Tests show he's deficient in B12 and B6 and nothing else. MB12 is

not ok for him so guessing over-methylator.

Sara x

On 08/08/2010 20:37, aargi_nath wrote:

There is truth to this. I did the b12 injections for

several months this year. Except for my daughter seeming

happier, I saw no visible differences and we were on daily

shots. Also, I had her on the various other bs for almost

a month prior to starting the shots. Since she has always

had trouble with the b vitamins, I introduced each one

individually and set them all up except for b6 which has

always been a problem. Well, a couple of months ago, I

tested her and her folate was very high, as was her b6.

Not only that her uric acid levels were very high which

can happen with niacin supplementation. I think with

supplementation it is important to test regularly. Btw,

the doses of supplements that I use are not even very

high, in fact, would be considered low by most people.

Anyway, my point was that I started out with the idea that

all the bs needed to be supplemented and actually found

that supplementation seems to throw them all off kilter

for my daughter.

Best wishes,

Radhe

>

> this is from a biassed source (ie health food shops

who want to sell

> health food products) but I assume that the info it

provides is not

> actually wrong and it would give you a basis for

checking out B12 safety.

>

> Most Bvits work together and the usual thing to say

is make sure you

> take them all or you will give your child a

deficiency in one of the

> others. The other B vits are water-based so easily

lost from the body. I

> think B12 is different but I haven't checked.

>

> What sort of test shows a B12 deficiency?

>

> Sally

>

[Guest guest]

oh sorry and the sort of test was just the ONE test. urine,

Sara x

On 08/08/2010 20:37, aargi_nath wrote:

There is truth to this. I did the b12 injections for

several months this year. Except for my daughter seeming

happier, I saw no visible differences and we were on daily

shots. Also, I had her on the various other bs for almost

a month prior to starting the shots. Since she has always

had trouble with the b vitamins, I introduced each one

individually and set them all up except for b6 which has

always been a problem. Well, a couple of months ago, I

tested her and her folate was very high, as was her b6.

Not only that her uric acid levels were very high which

can happen with niacin supplementation. I think with

supplementation it is important to test regularly. Btw,

the doses of supplements that I use are not even very

high, in fact, would be considered low by most people.

Anyway, my point was that I started out with the idea that

all the bs needed to be supplemented and actually found

that supplementation seems to throw them all off kilter

for my daughter.

Best wishes,

Radhe

>

> this is from a biassed source (ie health food shops

who want to sell

> health food products) but I assume that the info it

provides is not

> actually wrong and it would give you a basis for

checking out B12 safety.

>

> Most Bvits work together and the usual thing to say

is make sure you

> take them all or you will give your child a

deficiency in one of the

> others. The other B vits are water-based so easily

lost from the body. I

> think B12 is different but I haven't checked.

>

> What sort of test shows a B12 deficiency?

>

> Sally

>

[Guest guest]

I take B12 injections every day .. I am on .3 mls and it does seem to help with

energy.

I don't notice it at the time, but if I don't have b12 for a couple of days, I

do notice the difference in energy levels.

I have to get the b12 on prescription (in Australia) but I'm not sure about easy

availability in other countries.

The b12 injections I believe work quicker and more efficiently than the

sublingual, but I hear the sublingual are really effective for those who can't

tolerate needles or are unable to get daily injections.

I know of some people who are on much higher doses of b12 injection - supposedly

b12 is quite safe to have as it's water soluble so doesn't stay in your body for

long periods or have any toxic effect.

I think other tablets help the b12 with the nitrous oxide cycle.

Hope that helps. I'm sure there's others out there more knowledgeable on a lot

of this info.

Lee

[Guest guest]

Hi all, Can anyone tell me if Solgar nuggets as the same as the caplets. Having trouble finding them locally. So will try internet. any recomendations.?. Just realised the pain in my side like electric shock's could be caused by this. have had this pain for years . Keen to get started So advice please Luv Connelly

[Guest guest]

Prices can differ markedly, you need to shop around as some

places charge an awful lot. Here is a reasonable one http://www.echemist.co.uk/p-solgar-vitamin-b12-1000-mcg-nuggets

or

http://www.bodykind.com/brand/88-Solgar/product/3248-Solgar-Vitamin-B12-1000mcg-250-Nuggets.aspx

and yes, caplets and nuggets are the same.

Hi all,

Can anyone tell me if Solgar nuggets as the same as the caplets. Having trouble

finding them locally. So will try internet.

any recomendations.?. Just realised the pain in my side

like electric shock's could be caused by this. have had this pain for years

.. Keen to get started So advice please

Luv

Connelly

[Guest guest]

I had tingling in my right leg and hand and doc prescribed B12 injection…so I am on some 1000 µg/month B12 each visit to my doc…but he says B12 injection does not get absorbed completely L but B12 has had reduced tingling effects in my right hand and some 80% in my right leg. Max.62M HTN (since 1995) L adenoma by NP59 scan. Aldos=1065…2056 [28-860] pmol/L, Renin=6 [<30] ng/L (DX 2009). med combo #78={Spiro=100, Amlo=2x5mg, Indap=2.5mg, Ramip=2x2.5mg,  Metf=2x500mg, Crestor=20mg, Feno=67mg, K.Cl=6x20mEq, Motilium=10mg, B12=1000µg/m}{K=4.5}{not DASHing but low-salt diet just slightly above craving while keeping K/Na ratio constant, heat intolerance, insulin resistance, tingling right leg & hand} |No one's ever checked (or even asked about) B12, but I do take a daily B12|supplement.|

[Guest guest]

Or it was the tincture of time. You can now get good B12 OTC. and unless u have no stomach acid or pernicious anemia it is absorbed well. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Jun 14, 2012, at 16:35, Study Circle <studycircle@...> wrote:

I had tingling in my right leg and hand and doc prescribed B12 injection…so I am on some 1000 µg/month B12 each visit to my doc…but he says B12 injection does not get absorbed completely L but B12 has had reduced tingling effects in my right hand and some 80% in my right leg. Max.62M HTN (since 1995) L adenoma by NP59 scan. Aldos=1065…2056 [28-860] pmol/L, Renin=6 [<30] ng/L (DX 2009). med combo #78={Spiro=100, Amlo=2x5mg, Indap=2.5mg, Ramip=2x2.5mg, Metf=2x500mg, Crestor=20mg, Feno=67mg, K.Cl=6x20mEq, Motilium=10mg, B12=1000µg/m}{K=4.5}{not DASHing but low-salt diet just slightly above craving while keeping K/Na ratio constant, heat intolerance, insulin resistance, tingling right leg & hand} |No one's ever checked (or even asked about) B12, but I do take a daily B12|supplement.|

[Guest Toledo]

In addition to pts receiving supplements, serum B12 may also be elevated in pts with liver disease/liver cancer elevated WBC, leukemia, or other myeloproliferative disorders. Is the pt taking a MVI? Oddly enough they don't always consider a vitamin to be a supplement.

 

The reason she is high in B12 is either she is taking a blue green algae (spirulina or chlorella) which have B12 analogues and not bioavailable; OR a worse problem she is not methylating.... There is a test for MTHFR that shows whether a person has the mutation. When you have MTHFR, your body can’t convert inactive forms of folate and B12 to the active forms. So the inactive forms just build up in your blood, and they inhibit the active forms from being absorbed and taken up by the receptors.I myself was vegan for 21 years and vegetarian for 7 more and had B12 levels over 1000-- off the charts. Very annoying because these are the people that need it the most but MEDICAL doctors dont' pay any attention to it,,,, so they suffer immensely without ANY B12. I find it ridiculous that anyone who makes REAL and RELEVANT and HELPFUL discoveries is NEVER the conventional  medical profession, but always  some alternative rogue doctor or scientist who is capable of actually using his/her brain.