Guest guest Posted October 12, 1999 Report Share Posted October 12, 1999 Dear Jim, Myasthenia gravis is a chronic disease marked by abnormal fatigue and weakness in the muscles. The fatigue can be so extreme that the muscles are paralyzed. Other symptoms can be a droopy eyelid, double vision and slurred speech. The cause is suspected to be a deficiency of acetylcholine at the neuromuscular junctions, causing improper muscular contraction. Since surgical removal of the thymus improves symptoms to a small degree, it most probably is an autoimmune disease. Ozone therapy has been used successfully to treat this disease. Best of Health! Saul Pressman Become a Certified Ozone Hyperthermic Technician: Oct 16 Vancouver BC, Oct 23 Dallas Texas. URL: http://www.plasmafire.com.education.html email: saul@... for more info. myasthenia gravis > From: Jim Lambert <jlambert@...> > > I have n acquaintance with myasthenia gravis. Does anyone > know anything about this disease? > > jim > > -- > jim@... http://www.entrance.to/madscience > http://www.entrance.to/poetry > > Intellectual brilliance is no guarantee against being dead > wrong. -- Fasold > > amicus certus in re incerta > > > OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and other alternative self- help subjects. > > THERE IS NO MEDICAL ADVICE HERE! > > This list is the 1st Amendment in action. The things you will find here are for information and research purposes only. We are people sharing information we believe in. If you act on ideas found here, you do so at your own risk. Self-help requires intelligence, common sense, and the ability to take responsibility for your own actions. By joining the list you agree to hold yourself FULLY responsible FOR yourself. Do not use any ideas found here without consulting a medical professional, unless you are a researcher or health care provider. > > You can subscribe/unsubscribe via e-mail by sending AN e-mail to the following address > DO NOT PUT THIS IN THE SUBJECT LINE > oxyplus-subscribeonelist - subscribe to a list. > oxyplus-unsubscribeonelist - unsubscribe from a list. > oxyplus-digestonelist - switch your subscription to digest mode. > oxyplus-normalonelist - switch your subscription to normal mode. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2002 Report Share Posted September 1, 2002 Thanks for the info Carolyn, I really dont understand it either!!! Myasthenia Gravis http://www.myasthenia.org/information/summary.htm , here is a link that tells about MG. I really don't understand it all myself, so I thought this would be the best way to tell you. Hugs Carolyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2004 Report Share Posted February 2, 2004 Carl I am sure that by now you have got all the info on MG. I have had a few pts with it but the most interseting was a pt who was dx'd with it after the first gulf war. He started off with flu s/s then fatigue and when it was full bore the only real s/s was he would lose control of eye mvmnt and start getting double vision. The army docs figured it out and he leads a fairly normal life except that he has to watch his activity level, if he goes to hard for a few days it usually takes about a week of rest to catch up. I dont think this one fell under the " Gulf War " syndrome pts bbecause it was dx'd and tx'd but have not heard of any others getting MG after the war. What alot of people didn't hear was ALL of the soldiers were vacinated for a variety of conditions and situations. The kicker is that alot of these vaccines were not approved by the FDA so these vacines were not administered on US soil, alot of the soliers did not get vaccinated untill they were in Kuait hmmm...kind of makes you wonder! Dr. Charlie Caughlin DC 155 NW 1st Ave Day, Or 97845 off 541-575-1063 hm 541-575-1103 fax 541-575-5554 ----- Myasthenia Gravis > Anybody have any information or thoughst on Myasthenia Gravis > > Carl Bonofiglio ------- End of Original Message ------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2006 Report Share Posted April 16, 2006 Hi . I saw a neurologist recently who recommended that I try the drug mestinon to improve muscle stamnina. The drug is used for myasthenia gravis (mg) but she did not diagnose me with mg. Maybe mg is one condition that we can develop on the ME/CFIDS trail. I know that my health is degenerating and that I have cardiac, neurological and immune problems, so at some point I will probably be able to be diagnosed with some officially recognized illness, maybe mg. Tom > > Hello Group, > I have a friend with severe Myalgic Encephalomyelitis in Ohio (I live in > California) who just wrote me this note about her doctor giving her an > additional diagnosis of myasthenia gravis. Her e-mail to me is below my > signature, and she was wondering about any other person with Myalgic > Encephalomyelitis who has developed this condition. > Du Pre > Website: http://www.angelfire.com/poetry/soareagle/index.html > " By words the mind is winged. " Aristophanes > > " , > Do you know of any pwME who has developed myasthenia gravis? My doctor > diagnosed myasthenia gravis because of the profound weakness that I've > developed in my upper body. It is such an odd and different kind of > weakness. And its really bad. There is no way to work against it. And > it's making my respiratory arrest worse. > > I did some reading about this so-called autoimmune disease and it > certainly seems that this is whats going on. Of course my view on > auto-immune diseases, as you know, is that it is in fact the immune > system attacking cells that are infected with one or more intercellular > pathogens. And this situation fits that too as I developed this during > that episode of flu I had last month. I'm just trying to figure out how > to get past this as it is so bad I'm concerned about being able to live > alone for much longer if it gets much worse. > > It is interesting to note that I know pwME's who have developed MS (my > cousin), Parkinsons, Lupus, and now my myasthenia gravis. I guess if we > live with ME long enough it can cause just about anything. Thanks for > any info on others dealing with this. " > Judy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2006 Report Share Posted April 17, 2006 Hi , here is some thing on MG from a very old book, by Adelle Davies, called " Let's Eat Right to Keep Fit " , in case of interest to your friend. It says the following: " Dr phson has reported the complete recovery from MG by persons who adhered for a few weeks to an adequate diet supplementd with 50mg manganese at each meal. He found manganese to be remarkably non toxic. I recently had lunch with Mrs Kempton, who has recovered after having MG for 27 years. Once interested in nutrition, she supplemented her diet not only with manganese but also with large amounts of cholin, inositol, Vit E and other nutrients.This attractive woman was so healthy that I assumed her illness hadn't been serious. " " How sick were you? " The woman replied, " Couldn't move a muscle and the doctor was convinced I couldn't possibly live " > > Hello Group, > I have a friend with severe Myalgic Encephalomyelitis in Ohio (I live in > California) who just wrote me this note about her doctor giving her an > additional diagnosis of myasthenia gravis. Her e-mail to me is below my > signature, and she was wondering about any other person with Myalgic > Encephalomyelitis who has developed this condition. > Du Pre > Website: http://www.angelfire.com/poetry/soareagle/index.html > " By words the mind is winged. " Aristophanes > > " , > Do you know of any pwME who has developed myasthenia gravis? My doctor > diagnosed myasthenia gravis because of the profound weakness that I've > developed in my upper body. It is such an odd and different kind of > weakness. And its really bad. There is no way to work against it. And > it's making my respiratory arrest worse. > > I did some reading about this so-called autoimmune disease and it > certainly seems that this is whats going on. Of course my view on > auto-immune diseases, as you know, is that it is in fact the immune > system attacking cells that are infected with one or more intercellular > pathogens. And this situation fits that too as I developed this during > that episode of flu I had last month. I'm just trying to figure out how > to get past this as it is so bad I'm concerned about being able to live > alone for much longer if it gets much worse. > > It is interesting to note that I know pwME's who have developed MS (my > cousin), Parkinsons, Lupus, and now my myasthenia gravis. I guess if we > live with ME long enough it can cause just about anything. Thanks for > any info on others dealing with this. " > Judy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2006 Report Share Posted April 17, 2006 Hello, " lowcreoch " ... Someone reading Adelle and thinking of following any of her recommendations might do well to do some cross-referencing to find out more substantive information. This applies to anyone's protocol or regimen, of course. It's my age and perspective that makes me say this here with regard to Ms. . > > > Hi , here is some thing on MG from a very old book, by Adelle > Davies, called " Let's Eat Right to Keep Fit " , in case of interest to > your friend. > > It says the following: > " Dr phson has reported the complete recovery from MG by persons > who adhered for a few weeks to an adequate diet supplementd with 50mg > manganese at each meal. He found manganese to be remarkably non toxic. > I recently had lunch with Mrs Kempton, who has recovered after > having MG for 27 years. Once interested in nutrition, she supplemented > her diet not only with manganese but also with large amounts of > cholin, inositol, Vit E and other nutrients.This attractive woman was > so healthy that I assumed her illness hadn't been serious. " > " How sick were you? " > The woman replied, " Couldn't move a muscle and the doctor was > convinced I couldn't possibly live " > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 , I quite agree. I posted this just to give a bit of info that obviously would have to be followed up, if nothing else, as I said, it is a very old book and there were no references but perhaps such anecdotal evidence might lead on, through a search, to evidence to back up the use of manganese in MG. BW, Sheila > > > > > > Hi , here is some thing on MG from a very old book, by Adelle > > Davies, called " Let's Eat Right to Keep Fit " , in case of interest to > > your friend. > > > > It says the following: > > " Dr phson has reported the complete recovery from MG by persons > > who adhered for a few weeks to an adequate diet supplementd with > 50mg > > manganese at each meal. He found manganese to be remarkably non > toxic. > > I recently had lunch with Mrs Kempton, who has recovered > after > > having MG for 27 years. Once interested in nutrition, she > supplemented > > her diet not only with manganese but also with large amounts of > > cholin, inositol, Vit E and other nutrients.This attractive woman > was > > so healthy that I assumed her illness hadn't been serious. " > > " How sick were you? " > > The woman replied, " Couldn't move a muscle and the doctor was > > convinced I couldn't possibly live " > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2010 Report Share Posted April 28, 2010 I have found a program through studying about Dr. R. that's worth looking into. He has an "incurables" program that is centered around such autoimmune diseases and ailments.-K.Hancock, M.H. in trainingMother of 1 (7mo)Sent on the Sprint® Now Network from my BlackBerry®From: <lisawilliams91@...>Date: Tue, 27 Apr 2010 13:52:52 -0600Vaccinations<Vaccinations >Subject: Myasthenia Gravis Would homeopathy help with this auto immune disease? I have a friend who thinks that this is what her son may have. -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2010 Report Share Posted April 28, 2010 Thank you so much. I will let my friend know. This means alot to me, and I know that she is going to be very happy as well. On Wed, Apr 28, 2010 at 11:45 AM, <krissyewen@...> wrote: I have found a program through studying about Dr. R. that's worth looking into. He has an " incurables " program that is centered around such autoimmune diseases and ailments.-K.Hancock, M.H. in training Mother of 1 (7mo)Sent on the Sprint® Now Network from my BlackBerry® Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2010 Report Share Posted May 29, 2010 Marti, My Lyme doc ran tests for Myasthenia Gravis last year or the year before, but I don't remember what they were now. She also ran some tests for some other conditions at the time. I had never heard of the tests before, so made a copy of the script before having the blood drawn so that I could look them up. The tests were all negative for the conditions she was concerned about, so no meds needed, but I appreciated her thoroughness. Donna in NC -------------------------------------------------- From: " marti_zavala " <marti_zavala@...> Sent: Saturday, May 29, 2010 12:59 PM < > Subject: Myasthenia Gravis > Hi Group, > Has anyone here had myasthenia gravis used as a differential in their > diagnosis of ME/CFIDS? > > I was at the endocrinologist office the other day and the resident taking > my history suggested looking into that. It doesn't seem to fit me but I > was curious if anyone has had discussion of that with their docs. > > http://en.wikipedia.org/wiki/Myasthenia_gravis > > " The hallmark of myasthenia gravis is fatiguability. Muscles become > progressively weaker during periods of activity and improve after periods > of rest. Muscles that control eye and eyelid movement, facial expression, > chewing, talking, and swallowing are especially susceptible. The muscles > that control breathing and neck and limb movements can also be affected. > Often the physical examination is within normal limits.[3] > > The onset of the disorder can be sudden. Often symptoms are intermittent. > The diagnosis of myasthenia gravis may be delayed if the symptoms are > subtle or variable. " > > The Wiki page had a series of interesting tests and medications. > > Curious if anyone here has had these tests done or on the medications. > > Marti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2010 Report Share Posted May 30, 2010 marti_zavala wrote: > Hi Group, > Has anyone here had myasthenia gravis used as a differential in their diagnosis of ME/CFIDS? My doctor R/O MG along with many other diseases when I first presented to him, even though the symptom constellation was different. He looked at everything, even the ridiculous! He was quite thorough. Jeri <teewinot13@...> @>--->---->-------------------<----<---<@ Dr. Pall's NO/ONOO- Theory/Treatment Discussion Group: TenthParadigmSociety @>----------<---------->-----------------------<----------<----------<@ The Tenth Paradigm - Dr. Pall's Website for CFS/MCS/FM/ETC.: http://www.thetenthparadigm.org @>----------<---------->-----------------------<----------<----------<@ MCS-SinglesConnection: For all singles MCSers 18 and over: MCS-SinglesConnection @>----------<---------->----------<----------<----------<@ MCS-Florida - For All Chemically Sensitive Floridians MCS-Florida Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2010 Report Share Posted May 30, 2010 " marti_zavala " <marti_zavala@...> wrote: > ...myasthenia gravis ... > I was at the endocrinologist office the other day and > the resident taking my history suggested looking into that. After any Dr testing is out of the way, could try some DMAE 100 mg for a week and see if that shifts anything for you. e.g. Radiance or Twinlabs brand. If they find nothing, and the DMAE helps, then could take it every other day. I try to avoid taking anything that affects NTs every day as receptors quickly downregulate. Low acetylcholine levels are not uncommon in aging, and need not be official MG. (You don't want to have MG.) Carol W. willis_protocols Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2011 Report Share Posted September 23, 2011 Since low dose naltrexone is so effective with multiple sclerosis as well as cancer and many other conditions, you might want to check it out at low dose naltrexone.org Nothing to lose and perhaps quite a lot to gain!! Best wishes, pj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2011 Report Share Posted September 23, 2011 The person who originally posted was saying she her doctor wanted her to test for myasthenia, not that she had it. Also, this group is about iodine, so please move this discussion to the Iodine Off Topic Group. Thanks! Kathleen myasthenia gravis Since low dose naltrexone is so effective with multiple sclerosis as well as cancer and many other conditions, you might want to check it out at low dose naltrexone.org Nothing to lose and perhaps quite a lot to gain!! Best wishes, pj Quote Link to comment Share on other sites More sharing options...
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