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Well I think we've all had the experiences and feelings you are now

having. My gastroenterologist actually beleived I had achalasi,

long before the motility specialist would agree. Talk about

frustrating...the surgeon was waiting for the specialist to determine

this. I think that at least now you have validation....you know what

you have and what the options are. It isn't fun, but it coud be

worse. We are all given only what we can handle. Keep your chin up.

jeanne

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  • 5 months later...
Guest guest

Hi Sharon

Welcome to the group you will get some great help here and answers to alot of questions. I have had a icd for 7 months now there are some rough spots to go thru sometimes but least we are alive:) wish your father and your family the best

Bill S

freqtravel2@...suncatcher111 <suncatcher111@...> wrote:

Hi. My name is Sharon and I just brought myDad home from a 22 day hospital stay. He wascutting the grass on the hottest day we hadon July 7th and he had Ventricular Fib. He now has 8 doctors and they're calling himthe 'miracle man'. They gave him 20% chance.He had the defib put in last week Tues anddoing well so far with it. Mostly we'recontending to wounds from being in the hospitalbed so long. I take him to a Wound Care Centernow and my mom changes dressings daily on him.They told my dad he can't drive for 6 months andif his heart 'behaves' with the Defib, then hecan drive after 6 months. My mom doesn't driveand I'm an only child so I'll be taking them todr. appts, grocery shopping etc. They live about25 minutes away from me, so that's not bad.Does anyone

know if Medicare pays for the ICD?I've heard yes and no. I've also heard it'sanywhere from $35,000 to $85,000. They just hada health segment on the news the other night aboutthem and it said it's $85,000 over 3 years. I don'tknow what that '3 yrs' means. My dad just got thehospital bill only yesterday and it was $157,696.00That doesn't include the ICD, the 8 drs etc, etc.Well, I just found this group, so gonna go readposts. Have a good weekend everyone!Sharon J.Please visit the Zapper homepage athttp://www.ZapLife.org

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  • 2 months later...

You are NOT alone . I am from Penna. too and had to learn the hard way

about the ravages of vaccine.

Thank God that you did not have to learn this way.

I have six children. Four are partially vaxed and two are completely vaccine

free. Congrats on the new baby and I hope all goes well. I just had a baby

girl this April and she had continuous room care so I could be with her at ALL

times. She is also free of the vit-K shot. She is such a happy, healthy little

girl with just incredible development!

Where in PA do you live? I am in the southwest.

Lynda

New Member here

Hello, my name is Stacey, I am 29 years old and currently reside in

PA. I have a 2 1/2 year old daughter and am due to have a baby boy on

October 25th. I do not vaccinate my daughter and don't plan on

vaccinating my son. I am very interested in learning more about

vaccinations and the laws regarding exemption. I would also love to

meet other people that believe in the non vaccination of children. I

feel like I am all alone in my decision and would love to know that I

am not.

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Hi Stacey, I am 28 and also live in PA (the poconos). I have a 4 year old

ds partially vaccinated (reaction) and a baby boy born in July - not

vaccinated! I had my 4 year old in pre-school for a short time and we had

no trouble with exemptions.

Welcome to the list...lots of terrific info and help here!

Tammy, mom to Noah Keegan (10/14/99) and Caleb , my water birth babe!

(7/17/03)

New Member here

> Hello, my name is Stacey, I am 29 years old and currently reside in

> PA. I have a 2 1/2 year old daughter and am due to have a baby boy on

> October 25th. I do not vaccinate my daughter and don't plan on

> vaccinating my son. I am very interested in learning more about

> vaccinations and the laws regarding exemption. I would also love to

> meet other people that believe in the non vaccination of children. I

> feel like I am all alone in my decision and would love to know that I

> am not.

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Welcome Stacey and NO you are not alone, we just feel like it because we are

alone in the towns we are in. I am in Western NY. A lot here don't

vaccinate but it is like a " sin " to talk about it almost.

But you will learn lots here, and it is a good support.

And there are LOTS of 's here too.

,

Western NY

New Member here

> Hello, my name is Stacey, I am 29 years old and currently reside in

> PA. I have a 2 1/2 year old daughter and am due to have a baby boy on

> October 25th. I do not vaccinate my daughter and don't plan on

> vaccinating my son. I am very interested in learning more about

> vaccinations and the laws regarding exemption. I would also love to

> meet other people that believe in the non vaccination of children. I

> feel like I am all alone in my decision and would love to know that I

> am not.

>

>

>

>

>

>

>

>

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  • 2 months later...

On 1/20/04 10:40 AM, " Gen@... " <Gen@...> wrote:

I¹m moving to San . I lived there for over 20 years and most of my

family is still there. I don¹t know of anyone for sure but may. I¹ll ask

my mother if the person I know is still practicing. In my opinion the fact

that you graduated from college should be an indication that you could have

autism. They tend to be extremely intelligent. At any rate I want to

commend you for being so open-minded and proactive with all of the struggles

that you have to deal with.

Shauna

> Hello all, my name is Carolyn, and I am thankful to have found you. I am 43

> years-old and I believe, as I have for several years now, that I have a light

> case of some form of autism, possibly asberger's syndrome. I have a 17

> year-old

> son and a 14 year-old daughter, and I believe they could have a light case of

> it also. I have been diagnosed with all kinds of other things over the last

> 12 years, such as dissociative identity disorder, anxiety, major depression,

> obsessive-compulsive disorder, and my most recent diagnosis is bipolar. My

> kids

> have had all kinds of other diagnoses also.

>

> No one wants to seem to listen to me about the autism. I mentioned it last

> week to my psychiatrist who is treating me for bipolar. He then said, " You did

> graduate from high school, didn't you? " I told him, yes, I graduated from

> college. So his reply was that there was no way I have any form of autism,

> and

> " Don't worry about it. "

>

> I live in San . Does anyone here know where I can find a professional

> in San to be evaluated for this?

>

> Thanks so much!

>

> ~Carolyn

>

>

>

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On 1/20/04 10:40 AM, " Gen@... " <Gen@...> wrote:

I¹m moving to San . I lived there for over 20 years and most of my

family is still there. I don¹t know of anyone for sure but may. I¹ll ask

my mother if the person I know is still practicing. In my opinion the fact

that you graduated from college should be an indication that you could have

autism. They tend to be extremely intelligent. At any rate I want to

commend you for being so open-minded and proactive with all of the struggles

that you have to deal with.

Shauna

> Hello all, my name is Carolyn, and I am thankful to have found you. I am 43

> years-old and I believe, as I have for several years now, that I have a light

> case of some form of autism, possibly asberger's syndrome. I have a 17

> year-old

> son and a 14 year-old daughter, and I believe they could have a light case of

> it also. I have been diagnosed with all kinds of other things over the last

> 12 years, such as dissociative identity disorder, anxiety, major depression,

> obsessive-compulsive disorder, and my most recent diagnosis is bipolar. My

> kids

> have had all kinds of other diagnoses also.

>

> No one wants to seem to listen to me about the autism. I mentioned it last

> week to my psychiatrist who is treating me for bipolar. He then said, " You did

> graduate from high school, didn't you? " I told him, yes, I graduated from

> college. So his reply was that there was no way I have any form of autism,

> and

> " Don't worry about it. "

>

> I live in San . Does anyone here know where I can find a professional

> in San to be evaluated for this?

>

> Thanks so much!

>

> ~Carolyn

>

>

>

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> I told him, yes, I graduated from

college. So his reply was that there was no way I have any form of autism, and

" Don't worry about it. " <

He must not know about Temple Grandin. I'm not sure if she has earned a Phd.

but I think it is likely she did. Dr. (?) Dale Rudin in Austin has expertise in

this area. She is a woman by the way.

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> I told him, yes, I graduated from

college. So his reply was that there was no way I have any form of autism, and

" Don't worry about it. " <

He must not know about Temple Grandin. I'm not sure if she has earned a Phd.

but I think it is likely she did. Dr. (?) Dale Rudin in Austin has expertise in

this area. She is a woman by the way.

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On 1/21/04 5:41 AM, " Carlson " <ckcarlson@...> wrote:

She did. How about Einstein. There are also roomers that Bill Gates or the

other computer guru has Autism. I can¹t remember which one.

Shauna

>> > I told him, yes, I graduated from

> college. So his reply was that there was no way I have any form of autism,

> and

> " Don't worry about it. " <

>

> He must not know about Temple Grandin. I'm not sure if she has earned a Phd.

> but I think it is likely she did. Dr. (?) Dale Rudin in Austin has expertise

> in this area. She is a woman by the way.

>

>

>

>

>

>

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On 1/21/04 5:41 AM, " Carlson " <ckcarlson@...> wrote:

She did. How about Einstein. There are also roomers that Bill Gates or the

other computer guru has Autism. I can¹t remember which one.

Shauna

>> > I told him, yes, I graduated from

> college. So his reply was that there was no way I have any form of autism,

> and

> " Don't worry about it. " <

>

> He must not know about Temple Grandin. I'm not sure if she has earned a Phd.

> but I think it is likely she did. Dr. (?) Dale Rudin in Austin has expertise

> in this area. She is a woman by the way.

>

>

>

>

>

>

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  • 2 months later...
Guest guest

New Member Here

If anyone could point me to a few posts that I

> definitely should read I would be grateful.

You might try this site also;

http://www.kneeguru.co.uk/kneegeeks/PF_joint.html

> I have begun taking glucosamine and chondrotin to see it that helps.

> I was also given a page of exercises by the Doctor and a prescription

> for Physical Therapy. I am trying to decide if the PT is worth the

> time and also whether it is covered by my insurance.

Here is the best physical therapy for patella-femoral pain I have

found.............and it's free!!;

http://www.ohsu.edu/orthopaedics/dc_knee.htm

The doctor also

> gave me a knee brace to where during physical activities but it is

> going to take some getting used to.

In my case the brace only hurt more than it helped, but everyone is

different. Get on top of this problem before it gets out of hand like it

has with me. Get on this PT program and stay on it. The glucosamine is

good, and you might try an NSAID on days the pain is worse. Good Luck!

Mike

MT

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Guest guest

Have you tried McConnell taping? If your CP is caused by lateral tracking of

the patella, taping your kneecap (properly -- should be shown by a PT) can make

the difference between being able to be active and not.

There's white tape you can get in a drugstore called Sports Tape. Forget that.

It sweats off. You can get tape on line, but you'll have to pay twice as much

because of the shipping. I called around to various PT offices and finally

found one within driving distance that would sell rolls to me at $7 (less than

what I was paying 10 years ago!).

Hope this helps some.

Ann

New Member Here

I'm a new member. I have been experiences some minor knee pain for a

few years. Finally went to an Orthopedic Surgeon and was diagnosed

with Chondromalacia. I was searching around and found this group. I

will be spending some time looking back through the archives but

6,000 posts is a lot! If anyone could point me to a few posts that I

definitely should read I would be grateful.

My particular condition doesn't prevent me from doing anything, I

just experience some mild to moderate pain and discomfort. It varies

in intensity from barely noticable some days to moderate pain other

days. Sometimes running or golfing actually seem to reduce the pain

rather than increase it.

I have begun taking glucosamine and chondrotin to see it that helps.

I was also given a page of exercises by the Doctor and a prescription

for Physical Therapy. I am trying to decide if the PT is worth the

time and also whether it is covered by my insurance. The doctor also

gave me a knee brace to where during physical activities but it is

going to take some getting used to.

Thanks,

------------------------------------------------------------------------------

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Guest guest

Thanks Mike,

The exercises on that PT site look very similar to the ones given to

me by the Doctor. I started this morning and will definitely stick

to them.

>

> New Member Here

>

>

> If anyone could point me to a few posts that I

> > definitely should read I would be grateful.

>

> You might try this site also;

>

> http://www.kneeguru.co.uk/kneegeeks/PF_joint.html

>

> > I have begun taking glucosamine and chondrotin to see it that

helps.

> > I was also given a page of exercises by the Doctor and a

prescription

> > for Physical Therapy. I am trying to decide if the PT is worth

the

> > time and also whether it is covered by my insurance.

>

> Here is the best physical therapy for patella-femoral pain I have

> found.............and it's free!!;

>

> http://www.ohsu.edu/orthopaedics/dc_knee.htm

>

> The doctor also

> > gave me a knee brace to where during physical activities but it is

> > going to take some getting used to.

>

> In my case the brace only hurt more than it helped, but everyone is

> different. Get on top of this problem before it gets out of hand

like it

> has with me. Get on this PT program and stay on it. The

glucosamine is

> good, and you might try an NSAID on days the pain is worse. Good

Luck!

>

> Mike

> MT

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  • 1 year later...

Welcome to the group. I look forward to networking

with you.

Carmen

http://soapingbycarmen.bravehost.com

http://carmen.2savvy.com

--- luvssunflowers2 <mjsears79@...> wrote:

> I just wanted to introduce myself to the group. I

> have recently

> started my own bath & body products company

> (www.bobebathessentials.com) & am looking to

> interact with fellow

> crafters.

>

> Look forward to chatting with you!

>

> ~Marlese~

>

>

>

>

>

>

http://my2.tupperware.com/1Csquared

http://www.suityourselfgiftware.com/thecubbyhole

http://enchantedpotions.com/store/affiliate.asp?aff=1011

http://fs19.formsite.com/TupperwareSignUp/form675891405/index.html

http://pub21.bravenet.com/chat/show.php/1723805537

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

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Hi Everyone I'm new, too. I started my bath and body business in 2002 and I'm

going strong. Still have a zillion questions and would love to network and brain

storm with you all. I'm looking forward to getting to know you and your

businesses really well! Thanx.

April

http://www.aprilcline.com

---------------------------------

Music Unlimited - Access over 1 million songs. Try it free.

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----- Original I just wanted to introduce myself, new to the list. I 'm Cleo

and I own a

small skincare business.

I have been in business for about 18 mo. now. and things are going

wonderfully. I have just launched my own fragrance and it is doing quite

well. I am excited to be here and can't wait to read all the posts. Thanks

for having me.

www.tieolia.com

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I have recently started my own bath and body products online business Welcome!

Sullivan www.amandassoapsandsweets.net Also check out www.techbarn.net

they have great hosting plans and links to free advertising they also like to

get reviews about their search engine.

luvssunflowers2 <mjsears79@...> wrote:I just wanted to introduce myself

to the group. I have recently

started my own bath & body products company

(www.bobebathessentials.com) & am looking to interact with fellow

crafters.

Look forward to chatting with you!

~Marlese~

Flat Rate Shipping! Just $4.00 per order this week! See Site for details

http://www.glenbrookfarm.com/store/essent_1.html

Don't miss the weekly specials!

http://glenbrookfarm.com/store/specialsseeds_1.html

To unsub send an e-mail to :

-unsubscribe

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Hi April,

Welcome... I took a peek at your site. Your perfumes sound yummy!

Lucinda

Glenbrook Farms Herbs and Such

Bulk Herbs, Spices, Teas, Essential oils

www.glenbrookfarm.com/herbs

Re: New Member here

Hi Everyone I'm new, too. I started my bath and body business in 2002 and

I'm going strong. Still have a zillion questions and would love to network

and brain storm with you all. I'm looking forward to getting to know you and

your businesses really well! Thanx.

April

http://www.aprilcline.com

---------------------------------

Music Unlimited - Access over 1 million songs. Try it free.

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Hi Cleo,

Welcome..

I took a peek at your site too!

Beautiful pictures of your products.

Did you take those pictures?

Lucinda

Glenbrook Farms Herbs and Such

Bulk Herbs, Spices, Teas, Essential oils

www.glenbrookfarm.com/herbs

Re: New Member here

----- Original I just wanted to introduce myself, new to the list. I 'm

Cleo and I own a

small skincare business.

I have been in business for about 18 mo. now. and things are going

wonderfully. I have just launched my own fragrance and it is doing quite

well. I am excited to be here and can't wait to read all the posts.

Thanks

for having me.

www.tieolia.com

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Yes, with my walmart digital camera

Thank you.

Cleo

Re: New Member here

----- Original I just wanted to introduce myself, new to the list. I 'm

Cleo and I own a

small skincare business.

I have been in business for about 18 mo. now. and things are going

wonderfully. I have just launched my own fragrance and it is doing quite

well. I am excited to be here and can't wait to read all the posts.

Thanks

for having me.

www.tieolia.com

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  • 1 year later...
Guest guest

Just wondering, Did your daughter have genetic testing to diagnose this?

Debby <all_for_christ_6@...> wrote: I'm here because my 3 year

old daughter has been diagnosed with

FMF. It all started when she was about 4 months old. She spiked a

high fever all of a sudden. This went on every month. She has had

pnuemonia 3 times, broncitis twice, URI once, numerouse differnt

colds and the flu since she was born. I was calling the doctor

constantly because her fevers would 106 sometimes and it really

scared us. Tylenol and Motrin really didn't help much. It would

last for 3 or 4 days and she was fine for awhile. At first I

believed the doctors who kept saying that it was just a cold or a

bug going around. I never though much about it until my mothers

death 18 months ago. Thats when, for some strange reason, we really

got paying attention and was able to predict when this was going to

happen. My poor baby has had several blood draws trying to figure

this out. The doctors continually put me off. Finally about 2

months ago, my husband took her in. He refused to leave until they

did something about it. We got an appointment with a juvenile

rhuemotologist who took an extensive background information on her

and finally gave us this diagonosis. He has had experience with

this so I guess that made is much easier and quicker for us to get

one. She has been on colchicine now for just over a month and we

have had no signs of this since!! I'm really looking forward to

learning more about this genetic problem.

Now for the rest of our family! I have been married to my childhood

sweetheart for 10 years. Besides our 3 year old daughter we also

have a 5 year old daughter, a 7 year old son, and a 10 year old

son. None of us has this genetic disorder, or at least none of us

has the symptoms of it! We are an active family with our church and

communtiy. Thanks for letting me join here!!

God be with you,

Debby

Northern Oklahoma

---------------------------------

Looking for earth-friendly autos?

Browse Top Cars by " Green Rating " at Autos' Green Center.

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  • 8 months later...

Welcome !

I am Darcy, Mom to three boys. My youngest is just 3 months old...

Anyway, there are sooo many awesome videos out there, and it's hard to

recommend w/out knowing what you like first. The first thing that

comes to my mind is Turbo Jam. It's fun, and not too hard. You can

modify and make the workout work for you. It's got great music, and

the instructor is awesome. It's a 'dancey' kickboxing workout. There

are several videos out there ranging from 20 minutes to an hour (or

over an hour?). Anyway, that's the first that comes to mind - but

please tell us what you are looking for so we could suggest more (or

different ones).

BTW. congrats on taking the first step to changing your lifestyle. I

also think you will love the group as well!!

Darcy

>

>

>

>

>

>

> Hi all,

>

> Im , I just joined and have a couple questions. Im getting back

> into the exervids and need some advise on where to start. Ive not been

> consistent in exercise for a while now and I had two babies back to

> back but now im ready to stop blaming them for the excess weight as my

> youngest is now 15months (the other 26 months). Yes, 11 months apart,

> im psycho!!! Not to mention im not a spring chicken (im 37) so my

> metabolism is slowing down, i can feel it slowing as I write!!

>

> So,I would like to know which vids get results quick!! I want to drop

> 60 lbs, keep some muscle tone and not have to be to strict on dieting.

> If I am in total La La land with these expectations, Please someone set

> me straight. But, really please let me know what some of the vids are

> that you have seen good results with. I do have a couple here at the

> house, but I would like some more for variety.

>

> Thanks,

>

>

>

>

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hi julie welcome.

well i do plenty of resistance training. right now i

am sticking with heavier weights but alternate b/c

variety and changing up shocks the muscles to

results.but if you are starting videos by tamilee

webb, denise austin, and gilad are a great place to

start. if you get fittv you can see gilad workouts.

denise and tae-bo are the two that i started with.

tae-bo still kicks my butt after all these years.

some great cardio is tae-bo and most kickboxing and

dance workouts. they help you engage all muscles of

the body while building a health heart and burning

body fat. a little goes a long way. plus you don't

need to be perfect to get good results from this

workout. i look nothing like the dancers do in most of

my videos(10 min. solution dance videos,dance off the

inches,carmen electra) but i love how i feel after

doing them and its just fun to try. thank goodness for

videos to do in the privacy of your own home LOL.

" circuit " videos meaning alternating weights/cardio

are also a great body burner. i don't use them to much

b/c of my goals to add alot of muscle to my upper

body. but for workouts in a pinch,more endurance,

getting lean,or break the monotony they are great. i

have a few like the firms systems and classics(i only

have two of the newer retail ones but they are good

for beginners and cheaper).

http://www.collagevideo.com has tons of previews of

videos and you can search by type of workout and level

of fitness.most of my workouts contain more on the

advanced from ciavideo.com, cathe.com, and

nrgfitness.net

you mention diet which is something that is always a

biggie. while i am not strict with my diet i am with

what and how much i eat. its 85% of the equation of

losing weight. protien and fiber should be bigger

changes b/c both help you fill up with less.

fresh/frozen veggies/fruits are the best b/c anything

in its natural state provides you more nutrients for

less. not to mention a whole orange or apple provides

more fiber and less calories then juice. you might

hear " clean eating " which means foods in a natural

state,unprocessed(think boxed and canned over cooked

etc)

plz understand that you have to make a lifestyle

change with eating to have a health lifestyle. many of

us refer to our eating as " diet " but its not that at

all. most of enjoy or over enjoy at times but we

bounce back with eating a balance of good foods which

for me include grains,protiens from meats(something

protien powder with milk b/c of how i much i lift),

and fresh/frozen veggies/fruits(never canned they have

to much salt and sugar that contribute to weight

gain).

i hope that helps some. i am big on saying its what

and how much you eat that really works with exercise.a

good 1200-2000 calories a day of good food is ideal

for most of women(although i think 1200 is still to

low i am just going by booked recommendations).also

keeping a food journal about what you eat,how

much,what time, and how you felt. emotional eating is

the number one reason most folks can't stay on the

health track. i know this time of year its one of mine

so i am not looking so toned in the belly as i was

before the thanksgiving day feast.

kassia

--- mrsmumsiebear wrote:

> Hi all,

>

>

> So,I would like to know which vids get results

> quick!! I want to drop

> 60 lbs, keep some muscle tone and not have to be to

> strict on dieting.

> If I am in total La La land with these expectations,

> Please someone set

> me straight. But, really please let me know what

> some of the vids are

> that you have seen good results with. I do have a

> couple here at the

> house, but I would like some more for variety.

>

> Thanks,

>

>

>

>

>

>

>

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